1 40 3 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource February 2022 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month February 2022 List URL Address <a href="http://doi.org/10.1038/s41390-021-01396-8" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1038/s41390-021-01396-8</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Transition of children with life-limiting conditions to adult care and healthcare use: a systematic review Publisher An entity responsible for making the resource available Pediatric Research Date A point or period of time associated with an event in the lifecycle of the resource 1120 Subject The topic of the resource child; life-limiting condition; systematic review; Transition to adult care Creator An entity primarily responsible for making the resource Jarvis SW; Roberts D; Flemming K; Richardson G; Fraser LK Description An account of the resource Background: Improved survival has led to increasing numbers of children with life-limiting conditions transitioning to adult healthcare services. There are concerns that transition may lead to a reduction in care quality and increases in emergency care. This review explores evidence for differences in health or social care use post- versus pre-transition to adult services. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1038/s41390-021-01396-8" target="_blank" rel="noreferrer noopener">10.1038/s41390-021-01396-8</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 1120 Child February 2022 List Flemming K Fraser LK Jarvis SW Life-limiting Condition Pediatric Research Richardson G Roberts D Systematic Review Transition To Adult Care Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource May 2021 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month May 2021 List URL Address <a href="http://doi.org/10.1038/s41390-021-01396-8" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1038/s41390-021-01396-8</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Transition of children with life-limiting conditions to adult care and healthcare use: a systematic review Publisher An entity responsible for making the resource available Pediatric Research. Date A point or period of time associated with an event in the lifecycle of the resource 2021 Subject The topic of the resource children; health care utilization; life-limiting conditions; Transition to adult care Creator An entity primarily responsible for making the resource Jarvis SW; Roberts D; Flemming K; Richardson G; Fraser LK Description An account of the resource Background: Improved survival has led to increasing numbers of children with life-limiting conditions transitioning to adult healthcare services. There are concerns that transition may lead to a reduction in care quality and increases in emergency care. This review explores evidence for differences in health or social care use post- versus pre-transition to adult services. Method(s): MEDLINE, EMBASE, CINAHL, PsychINFO and Social Science Citation Index were searched. Studies published in English since 1990 including individuals with any life-limiting condition post- and pre-transition and reporting a health or social care use outcome were included. Data were extracted and quality assessed by one reviewer with 30% checked by an independent reviewer. Result(s): Nineteen papers (18 studies) met the inclusion criteria. There was evidence for both increases and decreases (post- versus pre-transition) in outpatient attendance, inpatient admissions, inpatient bed days and health service costs; for increases in Emergency Department visits and for decreases in individuals receiving physiotherapy. Conclusion(s): Evidence for changes in healthcare use post- versus pre-transition is mixed and conflicting, although there is evidence for an increase in Emergency Department visits and a reduction in access to physiotherapy. More high-quality research is needed to better link changes in care to the transition. Impact: Evidence for changes in healthcare use associated with transition to adult services is conflicting.Emergency Department visits increase and access to physiotherapy decreases at transition.There are marked differences between care patterns in the United States and Canada. Copyright © 2021, The Author(s). Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1038/s41390-021-01396-8" target="_blank" rel="noreferrer noopener">10.1038/s41390-021-01396-8</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2021 Children Flemming K Fraser LK Health Care Utilization Jarvis SW Life-limiting Conditions May 2021 List Pediatric Research. Richardson G Roberts D Transition To Adult Care Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource October 2021 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month October 2021 List URL Address <a href="http://doi.org/10.1136/archdischild-2020-319700" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1136/archdischild-2020-319700</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Place of death of children and young adults with a life-limiting condition in England: a retrospective cohort study Publisher An entity responsible for making the resource available Archives of Disease in Childhood Date A point or period of time associated with an event in the lifecycle of the resource 2021 Subject The topic of the resource children; young adult; epidemiology; mortality; palliative care Creator An entity primarily responsible for making the resource Gibson-Smith D; Jarvis SW; Fraser LK Description An account of the resource Objective To assess trends in place of death for children with a life-limiting condition and the factors associated with death at home or hospice rather than hospital. Design Observational cohort study using linked routinely collected data. Setting England. Patients Children aged 0–25 years who died between 2003 and 2017. Main outcome measures Place of death: hospital, hospice, home. Multivariable multinomial logistic regression models. Results 39 349 children died: 73% occurred in hospital, 6% in hospice and 16% at home. In the multivariable models compared with dying in a hospital: neonates were less likely, and those aged 1–10 years more likely, than those aged 28 days to <1 year to die in hospice. Children from all ethnic minority groups were significantly less likely to die in hospice, as were those in the most deprived group (RR 0.8, 95% CI 0.7 to 0.9). Those who died from 2008 were more likely than those who died earlier to die in a hospice.Children with cancer (RR 4.4, 95% CI 3.8 to 5.1), neurological (RR 2.0, 95% CI 1.7 to 2.3) or metabolic (RR 3.7, 95% CI 3.0 to 4.6) diagnoses were more likely than those with a congenital diagnosis to die in a hospice.Similar patterns were seen for clinical/demographic factors associated with home versus hospital deaths. Conclusions Most children with a life-limiting condition continue to die in the hospital setting. Further research on preferences for place of death is needed especially in children with conditions other than cancer. Paediatric palliative care services should be funded adequately to enable equal access across all settings, diagnostic groups and geographical regions. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1136/archdischild-2020-319700" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2020-319700</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2021 Archives of Disease in Childhood Children Epidemiology Fraser LK Gibson-Smith D Jarvis SW Mortality October 2021 List Palliative Care Young Adult