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Text
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<a href="http://doi.org/10.1093/jjco/hyu077" target="_blank" rel="noreferrer">http://doi.org/10.1093/jjco/hyu077</a>
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Title
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Barriers of Healthcare Providers Against End-of-life Discussions with Pediatric Cancer Patients
Publisher
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Japanese Journal Of Clinical Oncology
Date
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2014
Subject
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pediatric cancer; barrier; end-of-life discussion; qualitative study
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Yoshida S; Shimizu K; Kobayashi M; Inoguchi H; Oshima Y; Dotani C
Description
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OBJECTIVE: End-of-life discussions with patients can be one of the most difficult and stressful tasks for the oncologist. However, little is known about the discussions that healthcare providers have with patients in such situations and the difficulties they face. The primary end points of this study were to describe the contents of end-of-life discussion in the pediatric setting and the barriers to end-of-life discussion for pediatric patients, as perceived by pediatric healthcare providers. METHODS: Participants were 10 healthcare providers. Semi-structured interviews were conducted, and the KJ method was performed to analyze the data. RESULTS: We found 23 barriers against end-of-life discussion with pediatric cancer patients. These barriers were classified as follows: healthcare provider factors, patient factors, parent factors and institutional or cultural factors. In addition to barriers found in previous studies, some unique barriers were uncovered such as, 'Lack of confidence to face the patient after the discussion', 'Uncertain responsibility for treatment decision-making' and 'No compelling reason to discuss'. Healthcare providers actively discussed the purpose of treatment and the patients' wishes and concerns; however, they were reluctant to deal with the patients' own impending death and their estimated prognosis. CONCLUSIONS: End-of-life discussion with pediatric patients differs from that with adult patients. Further studies are required to analyze pediatric cases associated with end-of-life discussion and carefully discuss its adequacy, pros and cons.
2014-08
Identifier
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<a href="http://doi.org/10.1093/jjco/hyu077" target="_blank" rel="noreferrer">10.1093/jjco/hyu077</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
Backlog
barrier
Dotani C
end-of-life discussion
Inoguchi H
Japanese Journal Of Clinical Oncology
Journal Article
Kobayashi M
Oshima Y
Pediatric Cancer
Qualitative Study
Shimizu K
Yoshida S
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/jjco/hyu140" target="_blank" rel="noreferrer">http://doi.org/10.1093/jjco/hyu140</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A Comprehensive Study of the Distressing Experiences and Support Needs of Parents of Children with Intractable Cancer
Publisher
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Japanese Journal Of Clinical Oncology
Date
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2014
Creator
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Yoshida S; Amano K; Ohta H; Kusuki S; Morita T; Ogata A; Hirai K
Description
An account of the resource
OBJECTIVE: The primary endpoints of this study were: (1) to explore the distressing experiences of parents of patients with intractable pediatric cancer in Japan from disclosure of poor prognosis to the present and (2) to explore support they regarded as necessary. METHODS: A multi-center questionnaire survey was conducted that included 135 bereaved parents of patients with pediatric cancer in Japan. RESULTS: The top five distressing experiences shared by over half of the bereaved parents were: 'Realize that the child's disease was getting worse' (96.7%), 'Witness the child's suffering' (96.7%), 'Make many decisions on the basis that the child will die in the not-so-distant future' (83.6%), 'Feel anxious and nervous about the child's acute deterioration' (82.0%) and 'Realize that there was nothing that I could do for the child' (78.7%). The top five support regarded as necessary were: 'Visit the room and speak to the sick child every day' (90.2%), 'Provide up-to-date information' (80.3%), 'Sufficiently explain the disadvantages of each treatment option' (80.3%), 'Show a never-give-up attitude until the end' (78.7%) and 'Make arrangements to allow the sick child to spend time with his/her siblings' (73.8%). CONCLUSIONS: This study identified the common distressing experiences of parents and the support regarded as necessary by them. To provide efficient support with limited manpower in pediatric setting, healthcare professionals should recognize these tasks as high priorities when engage parents of intractable pediatric cancer patients.
2014-09
Identifier
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<a href="http://doi.org/10.1093/jjco/hyu140" target="_blank" rel="noreferrer">10.1093/jjco/hyu140</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
Amano K
Backlog
Hirai K
Japanese Journal Of Clinical Oncology
Journal Article
Kusuki S
Morita T
Ogata A
Ohta H
Yoshida S