A difference in perception of quality of life in chronically ill children was found between parents and pediatricians
Pediatrics; Psychology; quality of life; PedPal Lit; Acute; Lymphocytic; physiopathology; [95% CI 2.00-11.22]); [95% CI 2.88-18.97]; Adolescent Arthritis; and asthma (2.3; juvenile idiopathic arthritis (4.7; Juvenile Rheumatoid/physiopathology/psychology/rehabilitation Asthma/physiopathology/psychology/rehabilitation Child Child; physiology Male Pain; physiopathology Parents; Preschool Chronic Disease/psychology/; rehabilitation Cognition Cross-Sectional Studies Cystic Fibrosis; rehabilitation Emotions Female Health Status Indicators Humans Infant Leukemia; rehabilitation Locomotion; Social Perception Speech/physiology
2005
Janse AJ; Uiterwaal CS; Gemke RJ; Kimpen JL; Sinnema G
Journal Of Clinical Epidemiology
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.jclinepi.2004.09.010" target="_blank" rel="noreferrer">10.1016/j.jclinepi.2004.09.010</a>
Quality of life in chronic illness: perceptions of parents and paediatricians
Psychology; quality of life; PedPal Lit; Lymphocytic; Adolescent Arthritis; Acute/psychology/rehabilitation Longitudinal Studies Pain Measurement Parents/; at baseline and follow up; but also after a period of follow up; differences at follow up did not decrease compared to baseline. CONCLUSION: At the onset of a chronic disease; especially in the subjective attributes. Systematic assessment of quality of life may contribute to better understanding between(TRUNCATED); juvenile idiopathic arthritis; Juvenile Rheumatoid/psychology/rehabilitation Asthma/psychology/rehabilitationAttitude of Health Personnel Child Child; not only at diagnosis but also after a period of follow up. Differences were particularly clear in the subjective attributes emotion (range of agreement 28-68%) and pain/discomfort (range of agreement 11-33%). In all patient groups; Pediatrics Perception Pneumonia/complications; Preschool Chronic Disease/psychology/rehabilitation Cystic Fibrosis/complications/psychology/rehabilitation Emotions Health Status Humans Infant Leukemia; quality of life of paediatric patients may be misunderstood by healthcare professionals; the paediatrician asse ssed the patient to have less pain/discomfort in comparison to the parents. Despite a prolonged patient- paediatrician relationship
2005
Janse AJ; Sinnema G; Uiterwaal CS; Kimpen JL; Gemke RJ
Archives Of Disease In Childhood
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1136/adc.2004.051722" target="_blank" rel="noreferrer">10.1136/adc.2004.051722</a>