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Dublin Core
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Special Edition #2 2022 List
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Special Edition #2
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.05.019" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.05.019</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parent Perceptions of Team-Delivered Care for Children with Advanced Cancer: A report from the PediQUEST study
Publisher
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Journal of Pain and Symptom Management
Date
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2020
Subject
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Childhood Cancer; Interdisciplinary Care; Interprofessional Healthcare Teams; Multidisciplinary Care; Pediatric Oncology; Psychosocial Oncology; Team-Delivered Care
Creator
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Feraco AM; Ananth P; Dussel V; Al-Sayegh H; Ma C; Rosenberg AR; Feudtner C; Wolfe J
Description
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CONTEXT: Childhood cancer care is delivered by interprofessional healthcare teams however little is known about how parents perceive overall team-delivered care (TDC). OBJECTIVES: We sought to describe parent perceptions of TDC and associated factors, including care rendered by individual clinicians, teamwork, information consistency, and patient and parent characteristics. METHODS: Cross-sectional surveys were distributed to parents of 104 children with recurrent/refractory cancer enrolled in a multi-site symptom management trial. The primary outcome, TDC, was parent report of care quality delivered by the child's care team during the preceding 3 months. Likert scaled items (excellent/very good/good/fair/poor) queried care quality delivered by individual clinicians, perceived teamwork and other factors. Factors associated with parent perceptions of "excellent" TDC were identified using Fisher's Exact test. RESULTS: Eighty-six parents (83%) responded. Over the preceding 3 months, 63% (n=54) of parents reported excellent TDC. However, only 47% (n=40) described their care team's teamwork as excellent. Approximately one-quarter (24%) described care rendered by their child's oncologist as less-than-excellent. Among parents who reported psychosocial clinician involvement (71%, n=60), only 43% described this care as excellent. Individually, excellent care from each clinician type (oncologist, psychosocial clinician, primary nurse) was associated with excellent TDC (all p
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<a href="http://doi.org/10.1016/j.jpainsymman.2020.05.019" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.05.019</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2022 Special Edition 2 - Parent Perspectives
Al-Sayegh H
Ananth P
Childhood Cancer
Dussel V
Feraco AM
Feudtner C
interdisciplinary care
Interprofessional Healthcare Teams
Journal of Pain and Symptom Management
Ma C
Multidisciplinary Care
Pediatric Oncology
psychosocial oncology
Rosenberg AR
Team-Delivered Care
Wolfe J