Browse Items · Pediatric Palliative Care Library

Children's palliative care: examination of a nursing rotation programme

An 8-month rotation programme was implemented for five nurses employed in two kinds of children's palliative care environments: hospital wards and hospices. This study reports the views of the nurses completing the rotation. The research drew on…

Tags: 2021, Attitude Of Health Personnel, Children's Hospice, Children's palliative nursing, Clinical Competence, Hospice And Palliative Care Nursing/education, Humans, International Journal of Palliative Nursing, Job Satisfaction, London, May 2021 List, Nursing Staff/education, O'Grady M, Pediatric Nursing/education, Petty J, Program Evaluation, Rotation programmes, Whiting L, Whiting M

Independent non-medical prescribing in children's hospices in the UK: a practice snapshot

Background: Non-medical prescribing is well established within the British health service, with increasing numbers of nurses practicing within children's hospices. Aim: To identify the context of non-medical prescribing in children's hospices in the…

Tags: 2017, Children, December 2017 List, Hospice, Independent Prescribing, International Journal of Palliative Nursing, Non-medical, Nursing, Tatterton MJ

Developing a nursing dependency scoring tool for children's palliative care: the impact on hospice care

BACKGROUND: Occupancy is commonly used to measure bed management in hospices. However, the increasing complexity of children and young people and growing dependence on technology mean that this is no longer effective. AIM: To develop a dependency…

'I No Longer Feel Alone': Meeting the Needs of Bereaved Grandparents Through a Children's Hospice Support Group

BACKGROUND: Children's hospices provide a range of family-centred care services, including bereavement support. Not all hospices provide specific services for grandparents. AIM: To explore how a hospice-based bereavement support group supported…

Tags: 2022, Adult, Bereavement, Child, Children, Family centred care, Grandparents, Grief, Hospice, International Journal of Palliative Nursing, Lyon JA, Palliative Care, September 2022 List, Tatterton M J

The palliative care nurse's role in supporting the adolescent child of a dying patient

The aim of this article was to critically evaluate the author's role as a hospital-based palliative care nurse in supporting the adolescent child of a dying parent. The approach taken and the resources that were available have been reflected upon.…

Tags: 2005, Adaptation, Adolescent Psychology/ethics Adult Attitude to Death Bereavement Female Helping Behavior Humans Information Services Internet Life Change Events Neoplasms/nursing/psychology Nurse's Role/, Backlog, International Journal of Palliative Nursing, Journal Article, Methods, PedPal Lit, Professional-Family Relations/ethics Prognosis Social Support Truth Disclosure/ethics, Psychological/ethics Adolescent, Psychology, psychology Palliative Care/ethics/, Sweetland C

Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study

This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate…

Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study

The results from a pilot study are reported in this article, part two of a two-part paper. The experiences of parents (six mothers and two fathers) are described as their families transitioned to the Canuck Place Children's Hospice (CPHC) in Canada.…

Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study

This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate…

Tags: 2008, Cadell S, Canada, Child, Davies B, Derman S, Health Planning, Health Services Needs And Demand, Hospices/organization & administration, Humans, International Journal of Palliative Nursing, Palliative Care, Pediatrics, Pilot Projects, Siden H, Steele R, Straatman L

Impact on parents when a child has a progressive, life-threatening illness.

Children with neurodegenerative, life-threatening illnesses (NLTIs) account for a significant proportion of children requiring palliative care, yet there is a lack of of research that examines families' experiences. This grounded theory study…

Tags: 2006, Backlog, Child, Davies B, Disease Progression, Humans, International Journal of Palliative Nursing, Journal Article, Longitudinal Studies, Palliative Care, Parent-child Relations, Pediatrics, Steele R

Experiences of families in which a child has a prolonged terminal illness: modifying factors.

A significant proportion of children requiring palliative care have neurodegenerative life-threatening illnesses (NLTIs). While most of their care is provided at home by their families over many years, there is a paucity of research examining…

Tags: 2002, Backlog, Child, Communication, Family, Female, Humans, International Journal of Palliative Nursing, Journal Article, Longitudinal Studies, Male, Neurodegenerative Diseases/nursing, Non-U.S. Gov't, Parents/psychology, Research Support, Steele R, Terminal Care/psychology

Parents’ Experience of Extended Viewing in a Paediatric Hospice: A Qualitative Study

Background: The rising prevalence of life-limiting conditions in children and young people warrants an evaluation of paediatric palliative care, hospice services and delivered care. Aim: First, this study aimed to develop a deeper understanding of…

Tags: 2023, Hospice, International Journal of Palliative Nursing, March List 2023, Sheppard-Law S, Smith P, Teasdale E

An integrated model of care is needed for children and young people with cancer

2005

Tags: 2005, Backlog, International Journal of Palliative Nursing, Journal Article, PedPal Lit, Scullion F

The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions

BACKGROUND: Children with life-limiting conditions have a high risk of colonisation with a multidrug-resistant organism (MDRO). To avoid the spread of hospital-aquired infections to other patients, children with a MDRO are moved to an isolated room…

Implementing a nurse-led paediatric palliative care service

BACKGROUND: Children with life-limiting illnesses are living longer. They have complex care needs and require specialised knowledge and skills, yet paediatric palliative care is still at its infancy in most settings worldwide. AIMS: To describe the…

Tags: 2022, Abudari G, Alyami HH, April 2022 List, End-of-life Care, International Journal of Palliative Nursing, Nancarrow L, Nursing Practice, Pediatric Palliative Care, Sadler K, Saudi Arabia

Paediatric oncology providers' perspectives on early integration of paediatric palliative care

BACKGROUND: Healthcare providers' perceptions of palliative care in children with cancer influence care management, specifically that of its early integration. Thus, it is crucial to understand the perspectives of the providers on early integration…

Tags: 2020, children with cancer, Communication, end-of-life, interdisciplinary collaboration, International Journal of Palliative Nursing, Irani C, Kurdahi L B, Muwakkit S, Oncology 2020 List, paediatric oncology providers, paediatric palliative care, Saad R, Yazbick-Dumit N

Do Interventions Make a Difference to Bereaved Parents? A Systematic Review of Controlled Studies.

The provision of bereavement support for parents who have lost a child is based on the assumption that it will lead to better subsequent adjustment. To determine the validity of this assumption, a systematic review of studies was undertaken, looking…

Tags: 2002, Backlog, Bereavement, Female, Humans, International Journal of Palliative Nursing, Intervention, Intervention Studies, Interventions, Journal Article, Longitudinal Studies, Male, Parents/psychology, Rowa-Dewar N

Sharing the care: the key-working experiences of professionals and the parents of life-limited children

AIMS: To explore the lived experience of caring and care planning for a child with a life-limiting condition (LLC). METHOD: Using van Manen's conceptualisation of hermeneutic phenomenology, three focus groups were conducted with 21 paediatric…

Lived experiences of adult community nurses delivering palliative care to children and young people in rural areas

The anticipated death of a child or young person is a relatively rare occurrence in the Western world. Many families receive support from children's health-care services until the late stages of palliation, with adult community nurses being involved…

Tags: 2013, Backlog, International Journal of Palliative Nursing, Journal Article, Reid F

A perinatal hospice for an unborn child with a life-limiting condition

Perinatal hospice is a newly developing model of hospice care, offered to the family in the prenatal period, which provides support, guidance and comfort to families who make the difficult choice to continue a pregnancy after the diagnosis of a fatal…

Tags: 2005, Abnormalities/diagnosis/nursing Abortion, Backlog, International Journal of Palliative Nursing, Journal Article, Newborn Medical Futility/psychology Minnesota Models, Nursing Models, Nursing Prenatal Diagnosis Referral and Consultation Social Work/organization & administration, Organizational Neonatal Nursing/organization & administration Parents/education/psychology Patient Care Planning Perinatal Care/organization & administration Philosophy, Pediatric Humans Infant, PedPal Lit, Psychological Attitude to Death Attitude to Health Female Grief Hospice Care/organization & administration Hospitals, Ramer-Chrastek J, Therapeutic Adaptation, Thygeson MV

Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study

This paper reports the findings from a Delphi Study undertaken to identify the research priorities in children's palliative care in Ireland. Palliative care for children is a small and highly specialised field of healthcare that focuses on improving…

Breaking bad news to parents: the children's nurse's role

Breaking bad news is an extremely difficult and challenging process for the health care professional. The National Service Framework for Children in the UK highlights that the manner in which the health care professional delivers bad news impacts…

Tags: 2006, Backlog, ChildDisclosure Humans Nurse's RolePediatric NursingProfessional-Family Relations Social SupportTerminal Care, International Journal of Palliative Nursing, Journal Article, McNeilly P, PedPal Lit, Price J, Surgenor M

Paediatric palliative care in the UK: past, present and future

2005

Tags: 2005, Backlog, Child Child Health Services/organization & administration/trends Family Nursing Great Britain Holistic Nursing Humans Palliative Care/organization & administration/trends Research, International Journal of Palliative Nursing, Journal Article, McFarlane M, McNeilly P, PedPal Lit, Price J

Can art therapy reduce death anxiety and burnout in end-of-life care workers? a quasi-experimental study

BACKGROUND: The need for empathy and the difficulties of coping with mortality when caring for the dying and the bereaved can cause psychological, emotional, and spiritual strain. OBJECTIVE: The aim of this study was to examine the effectiveness of…

Using computer-assisted learning to gain knowledge about child death and bereavement

Computer-assisted learning (CAL) can be a useful tool in helping nurses to learn about child death and bereavement. A CAL package on the care of children with life-limited illnesses and their families has been designed, developed and evaluated with…

Tags: 2005, Attitude of Health PersonnelBereavement Child Clinical Competence/standards Computer-Assisted Instruction/methods/standards Curriculum Education, Baccalaureate, Backlog, education Problem-Based Learning Program Evaluation Psychology, Educational Students, International Journal of Palliative Nursing, Journal Article, Nursing, Nursing/psychologyTerminal Care/psychology, organization & administration Evidence-Based Medicine Family, PedPal Lit, Pfund R, psychology Forecasting Health Services Needs and Demand Holistic Health Humans Nursing Education Research Nursing Theory Pediatric Nursing

The development of an interdisciplinary outpatient clinic in specialist palliative care

The interdisciplinary team approach is essential in the assessment and management of the palliative care of patients and their families. An innovative approach has been developed to allow the interdisciplinary team to see patients and their families…

The Relationship Between The Nursing Environment And Delivering Culturally Sensitive Perinatal Hospice Care

BACKGROUND: Wide variations exist among perinatal hospices, and barriers to perinatal palliative care exist at the healthcare level. Research in the area of culturally sensitive perinatal palliative care has been scarce, a gap which this study…

Short Break And Emergency Respite Care: What Options For Young People With Life-limiting Conditions?

BACKGROUND:
Service providers face difficult decisions about how best to develop services for the increasing numbers of young people with life-limiting conditions who require palliative care.

OBJECTIVE:
To explore alternative short break and…

Reflecting on Palliative Care for Children, Young People and their Families: A Revised Model

The unique needs of children requiring palliative care and their families have been increasingly recognised on a global scale. The complexities of such care, the unpredictability of the illness trajectory and increased choice in terms of where care…

Tags: 2022, Adolescent, Child, child wellbeing, December List 2022, Family, Human, International Journal of Palliative Nursing, McCloskey S, McNeilly P, Palliative, palliative nursing, Palliative Therapy, partnership, Peacock V, Price JE, reflective models, Trials

Symptoms suffered by life-limited children that cause anxiety to UK children's hospice staff

BACKGROUND: Very little is published about the symptom profile of children with life-limiting illnesses other than cancer. METHOD: A postal questionnaire was sent to children's hospice staff who were asked to identify symptoms experienced by…

Seeking and using families' views to shape children's hospice services

Child and family involvement is key to improving the quality of children's hospice services. This article reports on a quality assurance initiative undertaken as one component of a clinical governance strategy. Service users participated in focus…

Development Of A Logic Model To Support A Network Approach In Delivering 24/7 Children’s Palliative Care: Part One.

BACKGROUND:
This is the second of a two-part article that discusses a research project that aimed to develop and evaluate a 24/7 symptom-management service for children with palliative care needs and a nursing logic model to enable a novel service…

Tags: 2016, 24/7, April 2016 List, Children's Palliative Care, End Of Life, Funding Palliative Care, International Journal of Palliative Nursing, Logic Model, Lynn D, Maynard L, Out Of Hours, Palliative Care/organization & Administration, Research, Symptom Management

Palliative care for children and young people: a community paediatric nursing perspective

Community children's nursing services are well placed to provide palliative care for children and young people living with life-limiting conditions. The provision of home support can make a real difference to the quality of life for these families.…

Tags: 2006, Adolescent, Backlog, Child, Community Health Nursing, Health Services Accessibility, Humans, International Journal of Palliative Nursing, Journal Article, Maunder EZ, Palliative Care, Pediatric Nursing, Quality Of Life

Emotion work in the palliative nursing care of children and young people

The nurse's role in supporting and caring for children and young people with life-limiting illness/conditions and their families requires specialist expertise. This domain can be one of the most emotionally challenging areas of practice. The concept…

Grief experiences of nurses in Ireland who have cared for children with an intellectual disability who have died

Background The personal grief experience of nurses who have cared for children with an intellectual disability who have died is little understood. Method This descriptive qualitative study was initiated to ascertain nurses' knowledge and personal…

Tags: 2014, Backlog, International Journal of Palliative Nursing, Journal Article, Keenan PM, MacDermott C

The need for palliative care for patients with non-cancer diseases: a review of the evidence

The palliative care needs of patients with cancer are understood and managed well by specialist palliative care services. Patients dying of non-cancer diseases are rarely offered these services. A literature review was conducted to determine the…

Tags: 2001, Backlog, Cox S, Health Services Needs And Demand, Higginson I, Humans, International Journal of Palliative Nursing, Journal Article, Livesley B, Luddington L, Palliative Care/psychology, Patient Education as Topic, Psychological, Research Design, Stress, Terminal Care/psychology

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