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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2024 List
Text
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April List 2024
URL Address
<a href="http://doi.org/10.1080/17482631.2024.2321645" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1080/17482631.2024.2321645</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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"What about me?": lived experiences of siblings living with a brother or sister with a life-threatening or life-limiting condition
Publisher
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International Journal of Qualitative Studies on Health and Well-being
Date
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2024
Subject
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Humans; Parents; Child; child; Male; Attention; Emotions; sibling; life-threatening condition; Adaptation Psychological; life-limiting condition; paediatric palliative care; lived experience; Siblings; Hermeneutics
Creator
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Kittelsen TB; Castor C; Lee A; Kvarme LG; Winger A
Description
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BACKGROUND: There is a lack of knowledge regarding siblings' experiences of being a brother or sister of a child with a life-threatening or life-limiting condition. Siblings' perspectives are often expressed through their parents and not by siblings themselves. METHOD: This study has a qualitative design within hermeneutic phenomenology. Thirteen siblings (ages 3-29) of children with cancer or genetic conditions participated in semi-structured interviews. Analyses followed a thematic analysis guided by van Manen's lifeexistentials. RESULTS: One overall theme, "What about me?", illustrates that siblings of children with LT/LL conditions are dealing with their own challenges and needs in the situation while also struggling to receive attention from their parents. The overall theme derives from three subthemes: living with heavy strains, feeling disregarded, and having needs of one's own. CONCLUSION: The study revealed that siblings' own needs compete with the needs of the ill child, resulting in the risk of siblings taking a step back rather than expressing what they might actually need themselves. These findings can inform healthcare professionals on the importance of educating and supporting parents and the surrounding community close to the sibling, for example, by helping schoolteachers understand how to meet siblings' needs.
Identifier
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<a href="http://doi.org/10.1080/17482631.2024.2321645" target="_blank" rel="noreferrer noopener">10.1080/17482631.2024.2321645</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
Adaptation Psychological
April List 2024
Attention
Castor C
Child
Emotions
Hermeneutics
Humans
International Journal Of Qualitative Studies On Health And Well-being
Kittelsen TB
Kvarme LG
Lee A
Life-limiting Condition
Life-threatening Condition
lived experience
Male
paediatric palliative care
Parents
Sibling
Siblings
Winger A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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June 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2020 List
URL Address
<a href="http://doi.org/10.1080/17482631.2020.1756686" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/17482631.2020.1756686</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Consulting with a folk deity before making decisions: spiritual practices in parents facing end-of-life decisions for their child on life support with brain stem dysfunction
Publisher
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International Journal of Qualitative Studies on Health and Well-being
Date
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2020
Subject
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brain stem dysfunction; decision making; end-of-life; parents; qualitative; Spiritual practices
Creator
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Lin S C; Huang M C
Description
An account of the resource
Background: Adolescents with brain stem dysfunction may undergo many invasive treatments, and parents are often faced with making the decision to withdraw treatment. However, in the face of their child's death, the spiritual practices of parents dealing with end-of-life decision-making remain under investigated.Purpose: This study explores the spiritual practices in parents making end-of-life decisions for adolescents on life support with brain stem dysfunction.Method: A descriptive phenomenological study was conducted through in-depth interviews with three parents of two adolescents in Taiwan. Data were analysed using Colaizzi's seven-step protocol.Results: Three main themes emerged: (1) faith during decision-making, (2) struggles during decision-making, (3) transformation during decision-making. The findings indicate that "transforming the nature of hope" is the essence of the experience.Conclusion: Family-centred care, gaining insight into parental spiritual practices, and developing culturally-appropriate care are recommended.
Identifier
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<a href="http://doi.org/10.1080/17482631.2020.1756686" target="_blank" rel="noreferrer noopener">10.1080/17482631.2020.1756686</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
brain stem dysfunction
Decision Making
end-of-life
Huang M C
International Journal Of Qualitative Studies On Health And Well-being
June 2020 List
Lin S C
Parents
Qualitative
Spiritual practices
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.3402/qhw.v1i3.4927" target="_blank" rel="noreferrer">http://doi.org/10.3402/qhw.v1i3.4927</a>
Dublin Core
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Title
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The "core category" of grounded theory: Making constant comparisons
Publisher
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International Journal Of Qualitative Studies On Health And Well-being
Date
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2006
Subject
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Qualitative Research; Research; grounded theory approach; qualitative methods; symbolic interactionism; epistemology; ontology
Creator
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Hallberg Lillemor R-M
Description
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Approximately 40 years ago, Barney Glaser and Anselm Strauss and their joint research approach, the constant comparative method of grounded theory, were at the forefront of what can be called a qualitative revolution. The publication of their book, The discovery of grounded theory (1967), was a breakthrough because of the systematic procedures for qualitative research that were presented. Prior to this publication, qualitative research methodology was traditionally most often taught orally. Through their book, Glaser and Strauss defended the method of qualitative research and countered the prevailing opinion that quantitative research provided the one and only approach to scientific inquiry. They argued that qualitative research is a field of inquiry in its own right, not merely to be used for pre-studies to "real" statistically based studies. The grounded theory method fits in with life world research, because the emphasis is on individuals as unique living wholes and the researcher focuses on the world as it is experienced by the individual. The researcher does not formulate any hypothesis in advance and tries to approach the research area with as few preconceptions as possible. Preconceptions, taken-for-granted assumptions, and interpretations must be handled by reflexive strategies in line with what Dahlberg (2006) has labelled "bridling". Grounded theory offers the researcher a set of guidelines for building conceptual frameworks that specify the relationships among categories. The guidelines should be used as flexible tools rather than being seen as rigid rules. Grounded theory is a broad method with distinct procedures that work in practice and that are suitable to pragmatic researchers. The "core category" in grounded theory is, as I see it, the constant comparative method. The grounded theory method has been modified by the era within which it exists and by new ideas encountered in the world of inquiry (Annells, 1997). Varying views of what reality is and how it can be known affect the modes of the grounded theory method.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3402/qhw.v1i3.4927" target="_blank" rel="noreferrer">10.3402/qhw.v1i3.4927</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2006
Backlog
epistemology
grounded theory approach
Hallberg Lillemor R-M
International Journal Of Qualitative Studies On Health And Well-being
Journal Article
ontology
Qualitative Methods
Qualitative Research
Research
symbolic interactionism