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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2023 Special Edition 5 - Low Resource Setting List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2023 SE5 - Low Resource Setting
URL Address
<a href="http://doi.org/10.25259/IJPC_20_2021" target="_blank" rel="noreferrer noopener"> http://doi.org/10.25259/IJPC_20_2021</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Setting-up a Supportive and Palliative Care Service for Children with Life-threatening Illnesses in Maharashtra -- Children's Palliative Care Project in India
Publisher
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Indian Journal of Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Collaboration; Child; Pain; Hospitals Pediatric; Critical Illness; Female; Male; Palliative Care; Quality of Life; Questionnaires; Needs Assessment; Data Collection; Cognition; Health Services Accessibility; Education; Community Health Services; Program Implementation; Child Advocacy; Human; India; Symptoms; Administration; International Agencies; Licensure; Pediatric Care; Only Child; In Infancy and Childhood; Academic Performance; Health and Welfare Planning; Health Facility Administrators; Personnel Health Facility; Psychosocial Functioning; Teamwork
Creator
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Muckaden MA; Ghoshal A; Talawadekar P; Marston JM; Paleri AK
Description
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Objectives: To describe the key initiatives that were successful in planning and implementing hospital- and community-based Paediatric Palliative Care (PPC) services designed for a resource-limited setting in Maharashtra, India, in collaboration with DfID. Materials and Methods: The CPC project was a 5-year service development project (April 2010--March 2015) conducted in Maharashtra, India, developed in collaboration with the Department for International Development (DFID), Hospice UK, International Children's Palliative Care Network (ICPCN), Indian Association of Palliative Care (IAPC) and Tata Memorial Centre, to advocate and care for the needs of children and families with life-limiting illnesses in a non-cancer setting. It was implemented through raising awareness and sensitising hospital administrators and staff about PPC, providing education and training on PPC, team building, and data collection to understand the need for PPC. Results: The total number of children enrolled in the CPC project was 866, 525 (60.6%) were male with a mean age of 9.3 years. Major symptom across sites was mild pain, and serial Quality of Life measurement (through PedsQL questionnaire) showed improvement in social, psychological and school performance. Advocacy with the Ministry of Health helped in procurement of NDPS licenses in district hospitals, and led to access to palliative care for children at policy level. Conclusion: The model of PPC service development can be replicated in other resource-limited settings to include children with life-limiting conditions. The development of pilot programmes can generate interest among local physicians to become trained in PPC and can be used to advocate for the palliative care needs of children.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.25259/IJPC_20_2021" target="_blank" rel="noreferrer noopener">10.25259/IJPC_20_2021</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
2023 SE5 - Low Resource Setting
Academic Performance
Administration
Child
Child Advocacy
Cognition
Collaboration
Community Health Services
Critical Illness
Data Collection
Education
Female
Ghoshal A
Health and Welfare Planning
Health Facility Administrators
Health Services Accessibility
Hospitals Pediatric
Human
In Infancy and Childhood
India
Indian Journal Of Palliative Care
International Agencies
Licensure
Male
Marston JM
Muckaden MA
Needs Assessment
Only Child
Pain
Paleri AK
Palliative Care
Pediatric Care
Personnel Health Facility
Program Implementation
Psychosocial Functioning
Quality Of Life
Questionnaires
Symptoms
Talawadekar P
Teamwork
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1528-1167.2010.02522.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1528-1167.2010.02522.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Revised terminology and concepts for organization of seizures and epilepsies: report of the ILAE Commission on Classification and Terminology, 2005-2009
Publisher
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Epilepsia
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Humans; Terminology as Topic; Syndrome; International Agencies; Epilepsy/classification/diagnosis/etiology; Seizures/classification/diagnosis/etiology
Creator
An entity primarily responsible for making the resource
Berg AT; Berkovic SF; Brodie MJ; Buchhalter J; Cross JH; van Emde BW; Engel J; French J; Glauser TA; Mathern GW; Moshe SL; Nordli D; Plouin P; Scheffer IE
Description
An account of the resource
The International League Against Epilepsy (ILAE) Commission on Classification and Terminology has revised concepts, terminology, and approaches for classifying seizures and forms of epilepsy. Generalized and focal are redefined for seizures as occurring in and rapidly engaging bilaterally distributed networks (generalized) and within networks limited to one hemisphere and either discretely localized or more widely distributed (focal). Classification of generalized seizures is simplified. No natural classification for focal seizures exists; focal seizures should be described according to their manifestations (e.g., dyscognitive, focal motor). The concepts of generalized and focal do not apply to electroclinical syndromes. Genetic, structural-metabolic, and unknown represent modified concepts to replace idiopathic, symptomatic, and cryptogenic. Not all epilepsies are recognized as electroclinical syndromes. Organization of forms of epilepsy is first by specificity: electroclinical syndromes, nonsyndromic epilepsies with structural-metabolic causes, and epilepsies of unknown cause. Further organization within these divisions can be accomplished in a flexible manner depending on purpose. Natural classes (e.g., specific underlying cause, age at onset, associated seizure type), or pragmatic groupings (e.g., epileptic encephalopathies, self-limited electroclinical syndromes) may serve as the basis for organizing knowledge about recognized forms of epilepsy and facilitate identification of new forms.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1528-1167.2010.02522.x" target="_blank" rel="noreferrer">10.1111/j.1528-1167.2010.02522.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Backlog
Berg AT
Berkovic SF
Brodie MJ
Buchhalter J
Cross JH
Engel J
Epilepsia
Epilepsy/classification/diagnosis/etiology
French J
Glauser TA
Humans
International Agencies
Journal Article
Mathern GW
Moshe SL
Nordli D
Plouin P
Scheffer IE
Seizures/classification/diagnosis/etiology
Syndrome
Terminology as Topic
van Emde BW
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1528-1157.2001.10401.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1528-1157.2001.10401.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A proposed diagnostic scheme for people with epileptic seizures and with epilepsy: report of the ILAE Task Force on Classification and Terminology
Publisher
An entity responsible for making the resource available
Epilepsia
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Humans; Terminology as Topic; Syndrome; Epilepsy/classification/diagnosis; International Agencies; Seizures/classification/diagnosis
Creator
An entity primarily responsible for making the resource
Engel Jr J; (ILAE) International League Against Epilepsy
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1528-1157.2001.10401.x" target="_blank" rel="noreferrer">10.1046/j.1528-1157.2001.10401.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2001
(ILAE) International League Against Epilepsy
2001
Backlog
Engel Jr J
Epilepsia
Epilepsy/classification/diagnosis
Humans
International Agencies
Journal Article
Seizures/classification/diagnosis
Syndrome
Terminology as Topic