Browse Items · Pediatric Palliative Care Library

Single-center Experience Providing Palliative Care To Pediatric Patients With End-stage Renal Disease

Background: End-stage renal disease (ESRD) affects nearly 1400 new children each year in the United States. Morbidity and mortality rates remain high for pediatric patients with ESRD, including those that have received a renal transplant. Objective:…

Palliative medicine consultation for preparedness planning in patients receiving left ventricular assist devices as destination therapy.

OBJECTIVE: To assess the benefit of proactive palliative medicine consultation for delineation of goals of care and quality-of-life preferences before implantation of left ventricular assist devices as destination therapy (DT)., PATIENTS AND METHODS:…

Utilization review of hospice: an interdisciplinary team approach

1991

Tags: 1991, American Journal of Hospice & Palliative Medicine, Backlog, Gill MA, Hospices, Interdisciplinary Communication, Interprofessional Relations, Journal Article, Nursing, Patient Care Team, Progressive Patient Care, Team, Utilization Review

Health care transition: youth, family, and provider perspectives

OBJECTIVE: This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care…

Pediatric palliative and end-of-life care: the role of social work in pediatric oncology

Pediatric oncology social workers are often engaged in the psychosocial care of dying children and their families. Despite their participation on the interdisciplinary team, the role for social work in pediatric palliative and end-of-life care has…

Tags: 2005, Backlog, Communication, Family/psychology, Humans, Interdisciplinary Communication, Jones BL, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Medical Oncology, Pain/drug Therapy, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Pediatrics, Professional Role, Social Work/organization & administration, Terminal Care/organization & Administration

Social work and end-of-life care: reviewing the past and moving forward

This paper reviews the professional literature with respect to the social work profession's involvement in end-of-life care. The search process was conducted by entering key words in various combinations to electronic databases. Eligible articles…

Tags: 2005, Altruism, Attitudes, Backlog, Brandsen CK, Clinical Competence, Health Knowledge, Health Services Accessibility, Humans, Interdisciplinary Communication, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Practice, Social Work/education/organization & administration, Terminal Care/organization & Administration

Social work competencies in palliative and end-of-life care

Social workers from clinical, academic, and research settings met in 2002 for a national Social Work Leadership Summit on Palliative and End-of-Life Care. Participants placed the highest priority on the development and broad dissemination of a…

Setting an agenda for social work in end-of-life and palliative care: an overview of leadership and organizational initiatives

This article describes leadership efforts within social work to promote, enhance, and shape the future of social work practice, education, and research in end-of-life and palliative care. The background and outcomes of the Project on Death in…

Tags: 2005, Backlog, Blacker S, Christ GH, Cooperative Behavior, Humans, Interdisciplinary Communication, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Leadership, Organizational Innovation, Palliative Care/organization & Administration, Social Work/organization & administration, Terminal Care/organization & Administration

Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders

Approaches to providing comprehensive coordinated care for individuals with complex diseases include the medical home approach, the chronic care model in primary care, and disease-specific, multidisciplinary specialty clinics. There is uneven…

Tags: 2009, Adolescent Transitions, Backlog, Comprehensive Health Care/methods, Genetic, Genetic Diseases, Grosse SD, Humans, Inborn/diagnosis/epidemiology/therapy, Interdisciplinary Communication, Journal Article, Kulkarni R, Lloyd-Puryear MA, Models, Pediatrics, Schechter MS, Strickland B, Trevathan E, United States/epidemiology

ABRV (or Abbrevobabble Revisited)

Tags: 2009, Abbreviations as Topic, Backlog, Biomedical Research/standards, Brumback RA, Interdisciplinary Communication, Journal Article, Journal of Child Neurology, Language, Peer Review, Periodicals as Topic/standards, Research/standards

Psychosocial and spiritual needs of children living with a life-limiting illness

Quality end-of-life care includes the management of distressing symptoms; provisions of care, including the assessment and management of psychosocial and spiritual needs; and respite from diagnosis through death and bereavement. Meeting the…

Pediatric palliative care.

Palliative care has always been a part of the care of children. It includes any intervention that focuses on relieving suffering, slowing the progression of disease, and improving quality of life at any stage of disease. In addition, for even the…

Learning that leads to action: impact and characteristics of a professional education approach to improve the care of critically ill children and their families

OBJECTIVE: To determine the impact of an innovative professional educational approach on clinicians' confidence and ability to make institutional improvements in pediatric palliative care. DESIGN: Evaluation to assess impact of educational…

Integrating oncology and palliative home care in Italy: the experience of the "L'Aquila per la Vita" Home Care Unit

AIM: To evaluate the efficacy of a home care program, closely integrated with a medical oncology department. PATIENTS AND METHODS: The charts, prospectively recorded, of all the patients treated at home by the "L'Aquila per la Vita" Home Care Unit…

Evaluation of the effect of a comprehensive multidisciplinary care pathway for hip fractures: design of a controlled study.

BACKGROUND: Hip fractures constitute an economic burden on healthcare resources. Most persons with a hip fracture undergo surgery. As morbidity and mortality rates are high, perioperative care leaves room for improvement. Improvement can be achieved…

The Quality of Life of Children with Advanced Cancer: The Perspective of Children and Parents

Objective: Quality of Life (QoL) is the core of pediatric palliative care (PPC). The evaluation of QoL allows the adjustment of patient care. However, it remains difficult for clinicians to measure it in this population because there is very little…

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