1
40
150
-
Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0964-3397(03)00022-3" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0964-3397(03)00022-3</a>
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Title
A name given to the resource
"The worst journey of our lives": parents' experiences of a specialised paediatric retrieval service
Publisher
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Intensive and Critical Care Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Humans; Intensive Care Units; Pediatric; retrospective studies; Nonparametric; Statistics; ICU Decision Making; Parents/psychology; London; Consumer Satisfaction/statistics & numerical data; Transportation of Patients/standards
Creator
An entity primarily responsible for making the resource
Colville G; Orr F; Gracey D
Description
An account of the resource
In this retrospective study, a sample of 233 parents were surveyed, by means of a postal questionnaire, about their experience of a specialised paediatric retrieval service (median time interval after child's retrieval=10 months). Although all parents were routinely provided with written information about the retrieval service, only 46% remember receiving it. Also, although generally high, satisfaction ratings relating to the period of the child's transit were significantly lower (P<0.005) than those relating to the other stages of the transfer. Two main reasons were given by parents for their dissatisfaction: distress at being separated from their critically ill child and logistic problems locating and parking at the new hospital. Implications for future service provision are considered.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0964-3397(03)00022-3" target="_blank" rel="noreferrer">10.1016/s0964-3397(03)00022-3</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Backlog
Child
Colville G
Consumer Satisfaction/statistics & numerical data
Gracey D
Humans
ICU Decision Making
Intensive and Critical Care Nursing
Intensive Care Units
Journal Article
London
Nonparametric
Orr F
Parents/psychology
Pediatric
Retrospective Studies
Statistics
Transportation of Patients/standards
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.arcped.2013.10.018" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.arcped.2013.10.018</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
[French law related to patient's rights and end of life: pediatric intensive care unit's health professionals' opinions]
Publisher
An entity responsible for making the resource available
Archives De Pediatrie
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Child; Humans; Intensive Care Units; Palliative Care; patient care team; Terminal Care; Attitude of Health Personnel; Withholding Treatment; Resuscitation Orders; Double Effect Principle; Suicide; Patient Rights; Pediatric; Health Surveys; France; Assisted; Health Care; Quality Assurance
Creator
An entity primarily responsible for making the resource
de Saint Blanquat L; Cremer R; Elie C; Lesage F; Dupic L; Hubert P; pour le Groupe francophone de réanimation et urgences pédiatriques (GFRUP)
Description
An account of the resource
INTRODUCTION AND OBJECTIVES: To identify the knowledge of caregivers of pediatric intensive care units (PICUs) on the French law related to patients' rights and end of life, their views on withholding/withdrawing life-sustaining treatment (WWLST) decisions, and their feelings about how these decisions were made and implemented. MATERIALS AND METHODS: A multicenter survey in 24 French PICUs during the fourth trimester 2010. RESULTS: One thousand three hundred and thirty-nine professional healthcare workers (1005 paramedics and 334 physicians) responded. Over 85% of caregivers had good knowledge of the WWLST decision-making processes required by law. More than 80% of caregivers accepted mechanical ventilation, hemodiafiltration, or hemodynamic support withdrawal or withholding. Nevertheless, the withdrawal of artificial nutrition and hydration generated reluctance or opposition for the majority of respondents. While paramedics' participation in the decision-making process was deemed necessary by all caregivers, paramedics found more often than physicians that they were insufficiently involved. The quality of end-of-life care was judged very positively by caregivers. The answers on how WWLST was applied suggest very different interpretations of the law. Some caregivers respect the principles of palliative care as stated in the public health code and 40% of doctors and 64% of caregivers consider it "acceptable" to hasten death if resulting from a collaborative decision-making process. CONCLUSION: This study is the first to show that caregivers of French PICUs have good knowledge of the French law concerning the end of life. Yet, there is still confusion about the limits of practice during the end-of-life period.
2014-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.arcped.2013.10.018" target="_blank" rel="noreferrer">10.1016/j.arcped.2013.10.018</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Archives de Pediatrie
Assisted
Attitude Of Health Personnel
Backlog
Child
Cremer R
de Saint Blanquat L
Double Effect Principle
Dupic L
Elie C
France
Health Care
Health Surveys
Hubert P
Humans
Intensive Care Units
Journal Article
Lesage F
Palliative Care
Patient Care Team
Patient Rights
Pediatric
pour le Groupe francophone de réanimation et urgences pédiatriques (GFRUP)
Quality Assurance
Resuscitation Orders
Suicide
Terminal Care
Withholding Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1056/NEJMoa063446" target="_blank" rel="noreferrer">http://doi.org/10.1056/NEJMoa063446</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A communication strategy and brochure for relatives of patients dying in the ICU
Publisher
An entity responsible for making the resource available
The New England Journal Of Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Male; Intensive Care Units; Aged; Middle Aged; Professional-Family Relations; Communication; 80 and over; bereavement; Terminally Ill/psychology; Family/psychology; ICU Decision Making; Stress Disorders; Depression/epidemiology; Pamphlets; Anxiety/epidemiology; Post-Traumatic/epidemiology/prevention & control; Visitors to Patients/psychology
Creator
An entity primarily responsible for making the resource
Lautrette A; Darmon M; Megarbane B; Joly LM; Chevret S; Adrie C; Barnoud D; Bleichner G; Bruel C; Choukroun G; Curtis JR; Fieux F; Galliot R; Garrouste-Orgeas M; Georges H; Goldgran-Toledano D; Jourdain M; Loubert G; Reignier J; Saidi F; Souweine B; Vincent F; Barnes NK; Pochard F; Schlemmer B; Azoulay E
Description
An account of the resource
BACKGROUND: There is a need for close communication with relatives of patients dying in the intensive care unit (ICU). We evaluated a format that included a proactive end-of-life conference and a brochure to see whether it could lessen the effects of bereavement. METHODS: Family members of 126 patients dying in 22 ICUs in France were randomly assigned to the intervention format or to the customary end-of-life conference. Participants were interviewed by telephone 90 days after the death with the use of the Impact of Event Scale (IES; scores range from 0, indicating no symptoms, to 75, indicating severe symptoms related to post-traumatic stress disorder [PTSD]) and the Hospital Anxiety and Depression Scale (HADS; subscale scores range from 0, indicating no distress, to 21, indicating maximum distress). RESULTS: Participants in the intervention group had longer conferences than those in the control group (median, 30 minutes [interquartile range, 19 to 45] vs. 20 minutes [interquartile range, 15 to 30]; P<0.001) and spent more of the time talking (median, 14 minutes [interquartile range, 8 to 20] vs. 5 minutes [interquartile range, 5 to 10]). On day 90, the 56 participants in the intervention group who responded to the telephone interview had a significantly lower median IES score than the 52 participants in the control group (27 vs. 39, P=0.02) and a lower prevalence of PTSD-related symptoms (45% vs. 69%, P=0.01). The median HADS score was also lower in the intervention group (11, vs. 17 in the control group; P=0.004), and symptoms of both anxiety and depression were less prevalent (anxiety, 45% vs. 67%; P=0.02; depression, 29% vs. 56%; P=0.003). CONCLUSIONS: Providing relatives of patients who are dying in the ICU with a brochure on bereavement and using a proactive communication strategy that includes longer conferences and more time for family members to talk may lessen the burden of bereavement. (ClinicalTrials.gov number, NCT00331877.)
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1056/NEJMoa063446" target="_blank" rel="noreferrer">10.1056/NEJMoa063446</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
80 And Over
Adrie C
Aged
Anxiety/epidemiology
Azoulay E
Backlog
Barnes NK
Barnoud D
Bereavement
Bleichner G
Bruel C
Chevret S
Choukroun G
Communication
Curtis JR
Darmon M
Depression/epidemiology
Family/psychology
Female
Fieux F
Galliot R
Garrouste-Orgeas M
Georges H
Goldgran-Toledano D
Humans
ICU Decision Making
Intensive Care Units
Joly LM
Jourdain M
Journal Article
Lautrette A
Loubert G
Male
Megarbane B
Middle Aged
Pamphlets
Pochard F
Post-Traumatic/epidemiology/prevention & control
Professional-family Relations
Reignier J
Saidi F
Schlemmer B
Souweine B
Stress Disorders
Terminally Ill/psychology
The New England Journal Of Medicine
Vincent F
Visitors to Patients/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.pcc.0000123547.28099.44" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.pcc.0000123547.28099.44</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment
Publisher
An entity responsible for making the resource available
Pediatric Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Female; Humans; Male; Intensive Care Units; Palliative Care; Euthanasia; Patient Participation; Time Factors; Pediatric; adolescent; Preschool; infant; retrospective studies; ICU Decision Making; Parents/psychology; Analgesics/administration & dosage; Hypnotics and Sedatives/administration & dosage; Passive; Neuromuscular Blockade
Creator
An entity primarily responsible for making the resource
Zawistowski CA; DeVita MA
Description
An account of the resource
OBJECTIVE: To examine physiologic and therapeutic changes following withdrawal of life-sustaining treatment in children. DESIGN: Retrospective chart review. SETTING: University-affiliated tertiary care pediatric hospital. PATIENTS: All patients who had life-sustaining treatment withdrawn over a 5-yr period. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: A total of 125 charts were examined to obtain 50 in which the terminal event preceding death was withdrawal of life-sustaining treatment. Data are expressed as median (1st, 3rd quartiles). Median hospital stay before death was 20 days (1st and 3rd quartiles, 8 and 30). Median time from decision to withdraw life-sustaining treatment to actual withdrawal was 30 mins (1st and 3rd quartiles, 10 and 180). All interventions were simultaneously discontinued in 80% of patients with mechanical ventilation followed by vasopressors being most common. No patients had stepwise reduction in ventilator rate before discontinuing the mechanical ventilation. Devices were rarely removed from patients including endotracheal tubes. Time from withdrawal of life-sustaining treatment to death was 15 mins (5, 30); only seven patients took >60 mins to die. Multivariable analysis (Kruskal-Wallis test) of various factors revealed simultaneous withdrawal of life-sustaining treatment, female gender, and not having received renal therapy as hastening death. CONCLUSIONS: Forgoing life-sustaining treatment in a small cohort of children at a single institution follows a pattern: Most cases occur after prolonged intensive care unit stays, withdrawal of treatment occurs almost immediately after the decision to withdraw, most treatments are withdrawn simultaneously rather than sequentially, and most patients die within minutes of life-sustaining treatment cessation. This is the first pediatric study to report the time to death after withdrawal of life-sustaining treatment and factors associated with shorter time to death in children.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.pcc.0000123547.28099.44" target="_blank" rel="noreferrer">10.1097/01.pcc.0000123547.28099.44</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adolescent
Analgesics/administration & dosage
Backlog
Child
DeVita MA
Euthanasia
Female
Humans
Hypnotics and Sedatives/administration & dosage
ICU Decision Making
Infant
Intensive Care Units
Journal Article
Male
Neuromuscular Blockade
Palliative Care
Parents/psychology
Passive
Patient Participation
Pediatric
Pediatric Critical Care Medicine
Preschool
Retrospective Studies
Time Factors
Zawistowski CA
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2018 List
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2018 List
URL Address
<a href="http://doi.org/10.1177/1049909116660688" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909116660688</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A Multimodal Mindfulness Training to Address Mental Health Symptoms in Providers Who Care for and Interact With Children in Relation to End-of-Life Care
Publisher
An entity responsible for making the resource available
The American journal of hospice & palliative care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Humans; Intensive Care Units; Intensive Care Units; Middle Aged; Female; Male; Adult; Aged; Pediatric; Neonatal; Terminal Care/px [Psychology]; Mental Health; Burnout; Health Personnel/px [Psychology]; Mindfulness/mt [Methods]; Clergy/px [Psychology]; Depression/px [Psychology]; Social Workers/px [Psychology]; Professional/px [Psychology]
Creator
An entity primarily responsible for making the resource
O'Mahony S; Gerhart J; Abrams I; Greene M; McFadden Rory; Tamizuddin S; Levy MM
Description
An account of the resource
AIM: Medical providers may face unique emotional challenges when confronted with the suffering of chronically ill, dying, and bereaved children. This study assessed the preliminary outcomes of participation in a group-based multimodal mindfulness training pilot designed to reduce symptoms of burnout and mental health symptoms in providers who interact with children in the context of end-of-life care., METHODS: A total of 13 medical providers who care for children facing life-threatening illness or bereaved children participated in a 9-session multimodal mindfulness session. Mental health symptoms and burnout were assessed prior to the program, at the program midpoint, and at the conclusion of the program., RESULTS: Participation in the pilot was associated with significant reductions in depressive and posttraumatic stress disorder (PTSD) symptoms among providers ( P < .05)., CONCLUSION: Mindfulness-based programs may help providers recognize and address symptoms of depression and PTSD. Additional research is needed to enhance access and uptake of programming among larger groups of participants.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049909116660688" target="_blank" rel="noreferrer noopener">10.1177/1049909116660688</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Abrams I
Adult
Aged
August 2018 List
Burnout
Clergy/px [Psychology]
Depression/px [Psychology]
Female
Gerhart J
Greene M
Health Personnel/px [psychology]
Humans
Intensive Care Units
Levy MM
Male
McFadden Rory
Mental Health
Middle Aged
Mindfulness/mt [Methods]
Neonatal
O'Mahony S
Pediatric
Professional/px [Psychology]
Social Workers/px [psychology]
Tamizuddin S
Terminal Care/px [psychology]
The American Journal of Hospice & Palliative Care
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2018 List
URL Address
<a href="http://doi.org/10.3389/fped.2018.00003" target="_blank" rel="noreferrer noopener">http://doi.org/10.3389/fped.2018.00003</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A Review of the Integrated Model of Care: An Opportunity to Respond to Extensive Palliative Care Needs in Pediatric Intensive Care Units in Under-Resourced Settings
Publisher
An entity responsible for making the resource available
Frontiers in Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Humanities; pediatric intensive care; Child; Health Resources; Humans; Intensive Care Units; Only Child; Palliative Care; Pediatric; pediatric palliative care; child; consultative model; Humanism; integrated model of care; low-resource settings; pediatric critical care; Pediatric Palliative Screening Scale
Creator
An entity primarily responsible for making the resource
Grunauer M; Mikesell C
Description
An account of the resource
It is estimated that 6.3 million children who die annually need pediatric palliative care (PPC) and that only about 10% of them receive the attention they need because about 98% of them live in under-resourced settings where PPC is not accessible. The consultative model and the integrated model of care (IMOC) are the most common strategies used to make PPC available to critically ill children. In the consultative model, the pediatric intensive care unit (PICU) team, the patient, or their family must request a palliative care (PC) consultation with the external PC team for a PICU patient to be evaluated for special care needs. While the consultation model has historically been more popular, issues related to specialist availability, referral timing, staff's personal biases, misconceptions about PC, and other factors may impede excellent candidates from receiving the attention they need in a timely manner. Contrastingly, in the IMOC, family-centered care, PC tasks, and/or PC are a standard part of the treatment automatically available to all patients. In the IMOC, the PICU team is trained to complete critical and PC tasks as a part of normal daily operations. This review investigates the claim that the IMOC is the best model to meet extensive PPC needs in PICUs, especially in low-resource settings; based on an extensive review of the literature, we have identified five reasons why this model may be superior. The IMOC appears to: (1) improve the delivery of PPC and pediatric critical care, (2) allow clinicians to better respond to the care needs of patients and the epidemiological realities of their settings in ways that are consistent with evidence-based recommendations, (3) facilitate the universal delivery of care to all patients with special care needs, (4) maximize available resources, and (5) build local capacity; each of these areas should be further researched to develop a model of care that enables clinicians to provide pediatric patients with the highest attainable standard of health care. The IMOC lays out a pathway to provide the world's sickest, most vulnerable children with access to PPC, a human right to which they are entitled by international legal conventions.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3389/fped.2018.00003" target="_blank" rel="noreferrer noopener">10.3389/fped.2018.00003</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2018 List
Child
consultative model
Frontiers in Pediatrics
Grunauer M
Health Resources
Humanism
Humanities
Humans
integrated model of care
Intensive Care Units
low-resource settings
Mikesell C
Only Child
Palliative Care
Pediatric
Pediatric Critical Care
Pediatric Intensive Care
Pediatric Palliative Care
Pediatric Palliative Screening Scale
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/qjmed/hch087" target="_blank" rel="noreferrer">http://doi.org/10.1093/qjmed/hch087</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Acute and chronic paediatric intensive care patients: current trends and perspectives on resource utilization
Publisher
An entity responsible for making the resource available
Monthly Journal Of The Association Of Physicians
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Intensive Care Units; Hospital Mortality; Prospective Studies; Length of Stay; Respiration; Severity of Illness Index; Analysis of Variance; adolescent; Preschool; infant; Newborn; Pediatric/utilization; ICU Decision Making; Greece; Acute Disease/mortality/therapy; Artificial/methods; Chronic Disease/mortality/therapy; Health Resources/trends/utilization
Creator
An entity primarily responsible for making the resource
Briassoulis G; Filippou O; Natsi L; Mavrikiou M; Hatzis T
Description
An account of the resource
BACKGROUND: Advances in paediatric critical care have resulted in increased survival of critically ill patients, many of whom require long-term ventilation as a means of life support. AIM: To determine current trends in resource utilization, and problems in the care of acute and chronic paediatric intensive care patients. DESIGN: Open observational study. METHODS: We evaluated consecutive admissions (n = 1629) to a 10-bed paediatric intensive care unit (PICU) over a 5-year period. Three previously defined criteria for resource utilization were used: mean length of stay (LOS); length of mechanical ventilation (LOMV); and LOMV/LOS ratio. RESULTS: A total of 10 310 patient bed days and 5223 ventilator days were used. Mean LOS increased from 5.3 +/- 12 days in 1998 to 8.7 +/- 27 days in 2001 (p 2 weeks (n = 320, 20%) used 55% of LOS and 57% of LOMV, in contrast to the 1298 (80%) hospitalized for 3 months (11, 0.7%) consumed 17% of LOS and 23% of LOMV. Five of these (45%) were eventually discharged home, two on ventilators. CONCLUSION: The increasing trend of occupation of PICU bed and ventilator days by critically ill children may be related to the increasing trend for hospitalization of chronic care patients. Severity scoring systems were predictive of resource consumption, but not of the overall trend in mortality rate.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/qjmed/hch087" target="_blank" rel="noreferrer">10.1093/qjmed/hch087</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Acute Disease/mortality/therapy
Adolescent
Analysis of Variance
Artificial/methods
Backlog
Briassoulis G
Child
Chronic Disease/mortality/therapy
Female
Filippou O
Greece
Hatzis T
Health Resources/trends/utilization
Hospital Mortality
Humans
ICU Decision Making
Infant
Intensive Care Units
Journal Article
Length Of Stay
Male
Mavrikiou M
Monthly Journal Of The Association Of Physicians
Natsi L
Newborn
Pediatric/utilization
Preschool
Prospective Studies
Respiration
Severity Of Illness Index
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2010-0420" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2010-0420</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Alterations in end-of-life support in the pediatric intensive care unit.
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Humans; Advance Directives; Withholding Treatment; Life Support Care; Resuscitation Orders; Brain Death; Pediatric; DNAR; Intensive Care Units; Terminal Care
Creator
An entity primarily responsible for making the resource
Lee KJ; Tieves K; Scanlon MC
Description
An account of the resource
OBJECTIVE: Our purpose was to examine alterations in end-of-life support in a multiinstitutional sample of PICUs., METHODS: This was a retrospective, descriptive study. Variables collected included end-of-life support category, race, length of stay, operative status, reason for admission, and Pediatric Index of Mortality 2 score, as well as the number of ICU beds and the presence of trainees., RESULTS: There were 1745 deaths at 35 institutions between January 1, 2004, and September 30, 2005. Of those, 1263 had complete data and were analyzed. The end-of-life support category distribution was as follows: brain death, 296 (23%); do not resuscitate, 205 (16%); limitation of support, 36 (3%); withdrawal of support, 579 (46%); no limitation, 124 (10%); no advance directives, 23 (2%). For further analyses, end-of-life support categories were grouped as limitation (ie, do not resuscitate, limitation of support, or withdrawal of support) versus no limitation (ie, no limitation or no advance directive). Brain death was not included in further analyses. The majority of deaths were in the limitation group (n=820 [85%]), and 12 (40%) of 30 institutions had 100% of deaths in this group. There were significant differences between institutions (P<.001). Decisions for limitation were seen less frequently in the black race (112 [76%] of 147 deaths; P=.037) and in institutions with no trainees (56 [69%] of 81 deaths; P<.001)., CONCLUSIONS: Decisions to limit support are common. Black race and an absence of trainees are associated with decreased frequency of limitation decisions.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2010-0420" target="_blank" rel="noreferrer">10.1542/peds.2010-0420</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Advance Directives
Backlog
Brain Death
Child
DNAR
Humans
Intensive Care Units
Journal Article
Lee KJ
Life Support Care
Pediatric
Pediatrics
Resuscitation Orders
Scanlon MC
Terminal Care
Tieves K
Withholding Treatment
-
Dublin Core
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Title
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September 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2018 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2017-313539" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/archdischild-2017-313539</a>
Dublin Core
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Title
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Always a burden? Healthcare providers' perspectives on moral distress
Publisher
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Archives of Disease in Childhood Fetal & Neonatal Edition
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Humans; Intensive Care Units; Stress; Attitude of Health Personnel; Female; Male; Adult; Qualitative Research; Intensive Care; Terminal Care/es [Ethics]; Terminal Care/px [Psychology]; Morals; Job Satisfaction; Psychological; Neonatal; Burnout; Terminal Care; Health Personnel/px [Psychology]; Professional/px [Psychology]; Neonatal/sn [Statistics & Numerical Data]; Neonatal/es [Ethics]; Burnout; Intensive Care; Stress; Neonatal/px [Psychology]; Professional; Professional/et [Etiology]; Professional/pc [Prevention & Control]; Psychological/et [Etiology]; Psychological/pc [Prevention & Control]
Creator
An entity primarily responsible for making the resource
Prentice TM; Gillam L; Davis PG; Janvier A
Description
An account of the resource
BACKGROUND: Current conceptualisations of moral distress largely portray a negative phenomenon that leads to burnout, reduced job satisfaction and poor patient care. OBJECTIVE: To explore clinical experiences, perspectives and perceptions of moral distress in neonatology. DESIGN: An anonymous questionnaire was distributed to medical and nursing providers within two tertiary level neonatal intensive care units (NICUs)-one surgical and one perinatal-seeking their understanding of the term and their experience of it. Open-ended questions were analysed using qualitative methodology. RESULTS: A total of 345 healthcare providers from two NICUs participated (80% response rate): 286 nurses and 59 medical providers. Moral distress was correctly identified as constrained moral judgement resulting in distress by 93% of participants. However, in practice the term moral distress was also used as an umbrella term to articulate different forms of distress. Moral distress was experienced by 72% of providers at least once a month. Yet despite the negative sequelae of moral distress, few (8% medical, 21% nursing providers) thought that moral distress should be eliminated from the NICU. Open-ended responses revealed that while interventions were desired to decrease the negative impacts of moral distress, moral distress was also viewed as an essential component of the caring profession that prompts robust discussion and acts as an impetus for medical decision-making. CONCLUSIONS: Moral distress remains prevalent within NICUs. While the harmful aspects of moral distress need to be mitigated, moral distress may have a positive role in advocating for and promoting the interests of the neonatal population.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/archdischild-2017-313539" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2017-313539</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here.
2018
Adult
Archives of Disease in Childhood Fetal & Neonatal Edition
Attitude Of Health Personnel
Burnout
Davis PG
Female
Gillam L
Health Personnel/px [psychology]
Humans
Intensive Care
Intensive Care Units
Janvier A
Job Satisfaction
Male
Morals
Neonatal
Neonatal/es [Ethics]
Neonatal/px [Psychology]
Neonatal/sn [Statistics & Numerical Data]
October 2018 List
Prentice TM
Professional
Professional/et [Etiology]
Professional/pc [Prevention & Control]
Professional/px [Psychology]
Psychological
Psychological/et [etiology]
Psychological/pc [Prevention & Control]
Qualitative Research
September 2018 List
Stress
Terminal Care
Terminal Care/es [ethics]
Terminal Care/px [psychology]
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00003246-200005000-00055" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003246-200005000-00055</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Attitudes toward limitation of support in a pediatric intensive care unit
Publisher
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Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Child; Female; Humans; Male; Intensive Care Units; Medical Futility; Prospective Studies; Euthanasia; Ethics; Medical; quality of life; Pediatric; patient care team; Caregivers/psychology; ICU Decision Making; Resuscitation Orders/psychology; Passive/psychology; Life Support Care/psychology
Creator
An entity primarily responsible for making the resource
Keenan HT; Diekema DS; O'Rourke PP; Cummings P; Woodrum DE
Description
An account of the resource
OBJECTIVE: To prospectively determine opinions of members of a pediatric intensive care unit (PICU) team regarding the appropriateness of aggressive care. The types of support that caregivers sought to limit and their reasons for wanting these limits were collected over time. DESIGN: Prospective survey of caregiver opinions. SETTING: PICU in an academic tertiary care children's hospital. SUBJECTS: A total of 68 intensive care nurses, 11 physicians attending in the PICU, 10 critical care and anesthesia fellows, and 24 anesthesia and pediatric residents. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: During a 6-month period, 503 patients were admitted to the PICU. Within this time period, 52.4% of all deaths were preceded by limitation of support, with 100% of noncardiac surgical deaths preceded by limitation of medical interventions. At least one caregiver wished to limit care for 63 of these patients (12.5%). When caregivers wished to limit support they most frequently wished to limit invasive modes of support such as cardiopulmonary resuscitation (94%) and hemodialysis (83%). The ethical rationales identified most often for wishing to limit support were burden vs. benefit (88%) and qualitative futility (83%). Preadmission quality of life was cited less frequently (50%). Caregivers were less likely to limit care on the basis of quality of life. Nurses and physicians in the PICU were very similar to each other in the types of support they thought should be limited and their ethical rationales. CONCLUSIONS: When making decisions about whether or not to limit care for a patient, caregivers were more likely to rely on the perceived benefit to the patient than preadmission quality of life.
2000
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00003246-200005000-00055" target="_blank" rel="noreferrer">10.1097/00003246-200005000-00055</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
Backlog
Caregivers/psychology
Child
Critical Care Medicine
Cummings P
Diekema DS
Ethics
Euthanasia
Female
Humans
ICU Decision Making
Intensive Care Units
Journal Article
Keenan HT
Life Support Care/psychology
Male
Medical
Medical Futility
O'Rourke PP
Passive/psychology
Patient Care Team
Pediatric
Prospective Studies
Quality Of Life
Resuscitation Orders/psychology
Woodrum DE
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.2008.150417" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.2008.150417</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Autopsies in children continue to reveal unanticipated discrepancies between autopsy findings and antemortem clinical diagnoses
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Female; Humans; Male; Intensive Care Units; Preschool; infant; Epidemiologic Methods; Diagnosis; Pediatric/statistics & numerical data; Autopsy/standards/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Narayanan A; Thorburn K; Baines P
Identifier
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<a href="http://doi.org/10.1136/adc.2008.150417" target="_blank" rel="noreferrer">10.1136/adc.2008.150417</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2009
2009
Archives of Disease in Childhood
Autopsy/standards/statistics & numerical data
Backlog
Baines P
Child
Diagnosis
Epidemiologic Methods
Female
Humans
Infant
Intensive Care Units
Journal Article
Male
Narayanan A
Pediatric/statistics & Numerical Data
Preschool
Thorburn K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163221076365" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163221076365</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Barriers and facilitators for parents in end-of-life decision-making for neonates at the Neonatal Intensive Care Unit: A qualitative study
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
decision making; emotional regulation; intensive care units; neonatal; Neonatology; parents; qualitative research
Creator
An entity primarily responsible for making the resource
Piette V; Dombrecht L; Deliens L; Cools F; Chambaere K; Goossens L; Naulaers G; Laroche S; Cornette L; Bekaert E; Decoster P; Beernaert K; Cohen J
Description
An account of the resource
BACKGROUND: Mortality and end-of-life decision-making can occur in newborns, especially within the Neonatal Intensive Care Unit. For parents, participating in end-of-life decision-making is taxing. Knowledge is lacking on what support is helpful to parents during decision-making. AIM: To identify barriers and facilitators experienced by parents in making an end-of-life decision for their infant. DESIGN: Qualitative study using face-to-face semi-structured interviews. SETTING/PARTICIPANTS: We interviewed 23 parents with a child that died after an end-of-life decision at a Neonatal Intensive Care Unit between April and September 2018. RESULTS: Parents stated barriers and facilitators within 4 themes: 1. Clinical knowledge and prognosis; 2. Quality of information provision; 3. Emotion regulation; and 4. Psychosocial environment. Facilitators include knowing whether the prognosis includes long-term negative quality of life, knowing all treatment options, receiving information according to health literacy level, being able to process intense emotions, having experienced counseling and practical help. Barriers include a lack of general medical knowledge, being unprepared for a poor prognosis, having an uninformed psychologist. CONCLUSIONS: We found that clinical information and psychosocial support aid parents in decision-making. Information is best tailored to health literacy. Psychosocial support can be provided by experienced, informed counselors, social services and sibling support, distinguishing between verbal and non-verbal coping preferences, and calm, familiar architecture. Intense emotions may hinder absorption of clinical information, therefore interventions to aid emotion regulation and reduce cognitive load may be looked at in further research. Adjustment of the Situations, Opinions and Options, Parents, Information, Emotions framework based on our results can be evaluated.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163221076365" target="_blank" rel="noreferrer noopener">10.1177/02692163221076365</a>
2022
April 2022 List
Beernaert K
Bekaert E
Chambaere K
Cohen J
Cools F
Cornette L
Decision Making
Decoster P
Deliens L
Dombrecht L
emotional regulation
Goossens L
Intensive Care Units
Laroche S
Naulaers G
Neonatal
Neonatology
Palliative Medicine
Parents
Piette V
Qualitative Research
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2018 List
URL Address
<a href="http://doi.org/10.1016/j.pedn.2018.02.002" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.pedn.2018.02.002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Becoming a Team: The Nature of the Parent-Healthcare Provider Relationship when a Child is Dying in the Pediatric Intensive Care Unit
Publisher
An entity responsible for making the resource available
Journal of Pediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Child death; Parent; intensive care; Bereavement; Child; Intensive Care; Intensive Care Units; Only Child; Pediatric; Pediatric intensive care unit; Grounded theory; child; Nurse; Relationship
Creator
An entity primarily responsible for making the resource
Butler AE; Hall H; Copnell B
Description
An account of the resource
PURPOSE: To explore bereaved parents' perspectives of parent and staff roles in the pediatric intensive care unit when their child was dying, and their relationships with healthcare staff during this time. DESIGN AND METHODS: Constructivist grounded theory was used to undertake this study. Semi-structured interviewers were conducted with 26 bereaved parents recruited from four Australian pediatric intensive care units. The constant comparative method, coupled with open, focused, and theoretical coding were used for data analysis. RESULTS: Becoming a team explores the changes that occurred to the parent-healthcare provider relationship when parents realized their child was dying and attempted to become part of their child's care team. When the focus of care changed from 'life-saving' to 'end-of-life', parents' perspectives and desires of their and the healthcare providers' roles changed. Parents' attempted to reconstruct their roles to match their changing perspectives, which may or may not have been successful, depending on their ability to successfully negotiate these roles with healthcare providers. CONCLUSIONS: Findings offer insights into parental understandings of both the parental and healthcare provider roles for parents of dying children in intensive care, and the ways in which the parent-healthcare provider relationships can influence and be influenced by changes to these roles. PRACTICE IMPLICATIONS: Successful parent-healthcare provider relationships require an understanding of the parental and healthcare provider role from the parents' perspective. The meanings of the parental and healthcare provider roles should be explored with parents of dying children, and supported as much as possible to enable the development of a collaborative relationship.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pedn.2018.02.002" target="_blank" rel="noreferrer noopener">10.1016/j.pedn.2018.02.002</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2018 List
Bereavement
Butler AE
Child
Child Death
Copnell B
Grounded Theory
Hall H
Intensive Care
Intensive Care Units
Journal of Pediatric Nursing
Nurse
Only Child
Parent
Pediatric
Pediatric Intensive Care Unit
Relationship
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2018 List
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2018 List
URL Address
<a href="http://doi.org/10.1542/peds.2017-3417" target="_blank" rel="noreferrer noopener">http://doi.org/10.1542/peds.2017-3417</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Benefits of Early Referral to Pediatric Palliative Care for a Child With a Rare Disease
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Palliative Care; Decision Making; Intensive Care Units; Referral and Consultation; Mutation; Child; Male; Pain Management; Intellectual Disability; Health Education; Parental Attitudes; Pediatric; Pediatric Care; Connective Tissue Diseases Diagnosis; Connective Tissue Diseases Familial and Genetic In Infancy and Childhood; Connective Tissue Diseases Symptoms; Connective Tissue Diseases Therapy In Infancy and Childhood; Dyspnea Drug Therapy; Face Pathology; Family Education; Fibrosis; Morphine Therapeutic Use; Clinical; Muscle; Skeletal Abnormalities
Creator
An entity primarily responsible for making the resource
Vadeboncoeur C; McHardy M
Description
An account of the resource
The article outlines the benefits of palliative care supporting the child and family with attention to individualized symptom management, improved communication, and support making difficult decisions. Topics mentioned include the research program Care4Rare at the Children's Hospital of Eastern Ontario, the importance of finding a name or a genetic difference or a cause for future family planning, and the role of morphine for symptom management.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2017-3417" target="_blank" rel="noreferrer noopener">10.1542/peds.2017-3417</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
August 2018 List
Child
Clinical
Connective Tissue Diseases Diagnosis
Connective Tissue Diseases Familial and Genetic In Infancy and Childhood
Connective Tissue Diseases Symptoms
Connective Tissue Diseases Therapy In Infancy and Childhood
Decision Making
Dyspnea Drug Therapy
Face Pathology
Family Education
Fibrosis
Health Education
Intellectual Disability
Intensive Care Units
Male
McHardy M
Morphine Therapeutic Use
Muscle
Mutation
Pain Management
Palliative Care
Parental Attitudes
Pediatric
Pediatric Care
Pediatrics
Referral And Consultation
Skeletal Abnormalities
Vadeboncoeur C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/J077v24n02_05" target="_blank" rel="noreferrer">http://doi.org/10.1300/J077v24n02_05</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Bereavement support for families following the death of a child from cancer: experience of bereaved parents
Publisher
An entity responsible for making the resource available
Journal Of Psychosocial Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Intensive Care Units; bereavement; Death; Neoplasms; Parents; Siblings; Professional-Family Relations; Death; social support; Pediatric; bereavement; Parents/psychology; Neoplasms; social support; sibling bereavement; Hospital; SSHRC CURA; Personnel; Siblings/psychology
Creator
An entity primarily responsible for making the resource
deCinque N; Monterosso L; Dadd G; Sidhu R; Macpherson R; Aoun S
Description
An account of the resource
This study explored the experiences and needs of nine parents who had received hospital-based bereavement support following the death of their child from cancer, in Western Australia. Six prominent themes emerged from thematic data analysis: personal grief, personal coping, concern for siblings of the deceased child, hospital bereavement support, community supports and unmet needs. Parents identified the need for more supportive contact from hospital staff during the palliative phase and following the child's death, early provision of information on how to practically and emotionally prepare for the death of their child, contact with other bereaved parents, and formal grief support for siblings. Areas for future research include exploration of parents' wish to become involved in activities to help others, bereavement support for siblings, the level of contact with the hospital unit that may be therapeutically beneficial, and parental behaviors associated with accessing both hospital and community-based bereavement supports.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/J077v24n02_05" target="_blank" rel="noreferrer">10.1300/J077v24n02_05</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Aoun S
Backlog
Bereavement
Child
Dadd G
Death
deCinque N
Hospital
Humans
Intensive Care Units
Journal Article
Journal Of Psychosocial Oncology
Macpherson R
Monterosso L
Neoplasms
Parents
Parents/psychology
Pediatric
Personnel
Professional-family Relations
sibling bereavement
Siblings
Siblings/psychology
Sidhu R
Social Support
SSHRC CURA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jpeds.2009.07.019" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpeds.2009.07.019</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and The Netherlands.
Publisher
An entity responsible for making the resource available
The Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Female; Humans; infant; Male; United States; Intensive Care Units; Terminal Care; Canada; Netherlands; Cross-Cultural Comparison; Respiration; Neonatal; decision making; Newborn; gestational age; Artificial; Withholding Treatment/statistics & numerical data; Physician Assisted Dying PAD; decision making; Diseases/mortality; Diseases/mortality; Withholding Treatment/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Verhagen AAE; Janvier A; Leuthner SR; Andrews B; Lagatta J; Bos AF; Meadow W
Description
An account of the resource
OBJECTIVE: To clarify the process of end-of-life decision-making in culturally different neonatal intensive care units (NICUs). STUDY DESIGN: Review of medical files of newborns >22 weeks gestation who died in the delivery room (DR) or the NICU during 12 months in 4 NICUs (Chicago, Milwaukee, Montreal, and Groningen). We categorized deaths using a 2-by-2 matrix and determined whether mechanical ventilation was withdrawn/withheld and whether the child was dying despite ventilation or physiologically stable but extubated for neurological prognosis. RESULTS: Most unstable patients in all units died in their parents' arms after mechanical ventilation was withdrawn. In Milwaukee, Montreal, and Groningen, 4% to 12% of patients died while receiving cardiopulmonary resuscitation. This proportion was higher in Chicago (31%). Elective extubation for quality-of-life reasons never occurred in Chicago and occurred in 19% to 35% of deaths in the other units. The proportion of DR deaths in Milwaukee, Montreal, and Groningen was 16% to 22%. No DR deaths occurred in Chicago. CONCLUSIONS: Death in the NICU occurred differently within and between countries. Distinctive end-of-life decisions can be categorized separately by using a model with uniform definitions of withholding/withdrawing mechanical ventilation correlated with the patient's physiological condition. Cross-cultural comparison of end-of-life practice is feasible and important when comparing NICU outcomes.
2010-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpeds.2009.07.019" target="_blank" rel="noreferrer">10.1016/j.jpeds.2009.07.019</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Andrews B
Artificial
Backlog
Bos AF
Canada
Cross-cultural Comparison
Decision Making
Diseases/mortality
Female
Gestational Age
Humans
Infant
Intensive Care Units
Janvier A
Journal Article
Lagatta J
Leuthner SR
Male
Meadow W
Neonatal
Netherlands
Newborn
Physician Assisted Dying PAD
Respiration
Terminal Care
The Journal Of Pediatrics
United States
Verhagen AAE
Withholding Treatment/statistics & Numerical Data
-
Text
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URL Address
<a href="http://doi.org/10.1136/jme.2002.001537" target="_blank" rel="noreferrer">http://doi.org/10.1136/jme.2002.001537</a>
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Title
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Certainty and mortality prediction in critically ill children.
Publisher
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Journal Of Medical Ethics
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Intensive Care Units; Medical Staff; Hospital Mortality; Prognosis; Prospective Studies; Clinical Competence; Longitudinal Studies; Risk Assessment; Pediatric; Empirical Approach; Professional Patient Relationship; Death and Euthanasia; Hospital; Health Care and Public Health; Critical Illness/mortality
Creator
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Marcin JP; Pretzlaff RK; Pollack MM; Patel KM; Ruttimann UE
Description
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OBJECTIVES: The objective of this study is to investigate the relationship between a physician's subjective mortality prediction and the level of confidence with which that mortality prediction is made. DESIGN AND PARTICIPANTS: The study is a prospective cohort of patients less than 18 years of age admitted to a tertiary Paediatric Intensive Care Unit (ICU) at a University Children's Hospital with a minimum length of ICU stay of 10 h. Paediatric ICU attending physicians and fellows provided mortality risk predictions and the level of confidence associated with these predictions on consecutive patients at the time of multidisciplinary rounds within 24 hours of admission to the paediatric ICU. Median confidence levels were compared across different ranges of mortality risk predictions. RESULTS: Data were collected on 642 of 713 eligible patients (36 deaths, 5.6%). Mortality predictions greater than 5% and less than 95% were made with significantly less confidence than those predictions 95%. Experience was associated with greater confidence in prognostication. CONCLUSIONS: We conclude that a physician's subjective mortality prediction may be dependent on the level of confidence in the prognosis; that is, a physician less confident in his or her prognosis is more likely to state an intermediate survival prediction. Measuring the level of confidence associated with mortality risk predictions (or any prognostic assessment) may therefore be important because different levels of confidence may translate into differences in a physician's therapeutic plans and their assessment of the patient's future.
2004
Identifier
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<a href="http://doi.org/10.1136/jme.2002.001537" target="_blank" rel="noreferrer">10.1136/jme.2002.001537</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Backlog
Child
Clinical Competence
Critical Illness/mortality
Death and Euthanasia
Empirical Approach
Health Care and Public Health
Hospital
Hospital Mortality
Humans
Intensive Care Units
Journal Article
Journal of Medical Ethics
Longitudinal Studies
Marcin JP
Medical Staff
Patel KM
Pediatric
Pollack MM
Pretzlaff RK
Professional Patient Relationship
Prognosis
Prospective Studies
Risk Assessment
Ruttimann UE
-
Dublin Core
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Title
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July 2020 List
Text
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July 2020 List
URL Address
<a href="http://doi.org/10.1097/pcc.0000000000001868" target="_blank" rel="noreferrer noopener">http://doi.org/10.1097/pcc.0000000000001868</a>
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Title
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Characteristics and Outcomes of Critical Illness in Children With Feeding and Respiratory Technology Dependence
Publisher
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Pediatric Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Adolescent; Artificial/adverse effects/*statistics & numerical data; Biomedical Technology; Case-Control Studies; Child; Critical Care/*methods; Critical Illness/therapy; Health Care/*statistics & numerical data; Humans; Infant; Intensive Care Units; Newborn; Outcome Assessment; Parenteral Nutrition; Pediatric/statistics & numerical data; Preschool; Prospective Studies; Respiration; Severity of Illness Index; Total/adverse effects/*statistics & numerical data
Creator
An entity primarily responsible for making the resource
Heneghan J A; Reeder R W; Dean J M; Meert K L; Berg R A; Carcillo J; Newth C J L; Dalton H; Tamburro R; Pollack M M
Description
An account of the resource
OBJECTIVES: Children with dependence on respiratory or feeding technologies are frequently admitted to the PICU, but little is known about their characteristics or outcomes. We hypothesized that they are at increased risk of critical illness-related morbidity and mortality compared with children without technology dependence. DESIGN: Secondary analysis of prospective, probability-sampled cohort study of children from birth to 18 years old. Demographic and clinical characteristics were assessed. Outcomes included death, survival with new morbidity, intact survival, and survival with functional status improvement. SETTING: General and cardiovascular PICUs at seven participating children's hospitals as part of the Trichotomous Outcome Prediction in Critical Care study. SUBJECTS: Children from birth to 18 years of age as part of the Trichotomous Outcome Prediction in Critical Care study. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: Children with technology dependence composed 19.7% (1,989/10,078) of PICU admissions. Compared with those without these forms of technology dependence, these children were younger, received more ICU-specific therapeutics, and were more frequently readmitted to the ICU. Death occurred in 3.7% of technology-dependent patients (n = 74), and new morbidities developed in 4.5% (n = 89). Technology-dependent children who developed new morbidities had higher Pediatric Risk of Mortality scores and received more ICU therapies than those who did not. A total of 3.0% of technology-dependent survivors (n = 57) showed improved functional status at hospital discharge. CONCLUSIONS: Children with feeding and respiratory technology dependence composed approximately 20% of PICU admissions. Their new morbidity rates are similar to those without technology dependence, which contradicts our hypothesis that children with technology dependence would demonstrate worse outcomes. These comparable outcomes, however, were achieved with additional resources, including the use of more ICU therapies and longer lengths of stay. Improvement in functional status was seen in some technology-dependent survivors of critical illness.
Identifier
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<a href="http://doi.org/10.1097/pcc.0000000000001868" target="_blank" rel="noreferrer noopener">10.1097/pcc.0000000000001868</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adolescent
Artificial/adverse effects/*statistics & numerical data
Berg R A
Biomedical Technology
Carcillo J
Case-Control Studies
Child
Critical Care/*methods
Critical Illness/therapy
Dalton H
Dean J M
Health Care/*statistics & numerical data
Heneghan J A
Humans
Infant
Intensive Care Units
July 2020 List
Meert K L
Newborn
Newth C J L
outcome assessment
Parenteral Nutrition
Pediatric Critical Care Medicine
Pediatric/statistics & Numerical Data
Pollack M M
Preschool
Prospective Studies
Reeder R W
Respiration
Severity Of Illness Index
Tamburro R
Total/adverse effects/*statistics & numerical data
-
Dublin Core
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Title
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July 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July List 2023
URL Address
<a href="http://doi.org/10.1089/jpm.2022.0408" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1089/jpm.2022.0408</a>
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Title
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Characteristics of Critically Ill Infants at the End of Life in the Neonatal Intensive Care Unit
Publisher
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Journal of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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Critical Illness; Intensive Care Units Neonatal; Aged; Child; Critical Illness; Death; Female; Humans; Infant; Infant Newborn; Intensive Care Units; Intensive Care Units Neonatal; Male; Palliative Care; Retrospective Studies
Creator
An entity primarily responsible for making the resource
Fortney CA; Baughcum AE; Garcia D; Winning AM; Humphrey L; Cistone N; Moscato EL; Keim MC; Nelin LD; Gerhardt CA
Description
An account of the resource
Objectives: About 16,000 infants die in the neonatal intensive care unit (NICU) each year with many experiencing invasive medical treatments and high number of symptoms.1 To inform better management, we characterized diagnoses, symptoms, and patterns of care among infants who died in the NICU. Method: Retrospective electronic medical record (EMR) review of 476 infants who died following admission to a large regional level IV NICU in the United States over a 10-year period. Demographic, symptom, diagnosis, treatment, and end-of-life characteristics were extracted. Results: About half of infants were male (55.9%, n = 266), average gestational age was 31.3 weeks (standard deviation [SD] = 6.5), and average age at death was 40.1 days (SD = 84.5; median = 12; range: 0-835). Race was documented for 65% of infants, and most were White (67.0%). One-third of infants (n = 138) were seen by fetal medicine. Most infants experienced pain through both the month and week before death (79.6%), however, infants with necrotizing enterocolitis had more symptoms in the week before death. Based on EMR, infants had more symptoms, and received more medical interventions and comfort measures during the week before death compared with the month prior. Only 35% (n = 166) received a palliative care referral. Conclusions: Although the medical profiles of infants who die in the NICU are complex, the overall number of symptoms was less than in older pediatric populations. For infants at high risk of mortality rate, providers should assess for common symptoms over time. To manage symptoms as effectively as possible, both timely and continuous communication with parents and early referral to palliative care are recommended.
Identifier
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<a href="http://doi.org/10.1089/jpm.2022.0408" target="_blank" rel="noreferrer noopener">10.1089/jpm.2022.0408</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Aged
Baughcum AE
Child
Cistone N
Critical Illness
Death
Female
Fortney CA
Garcia D
Gerhardt CA
Humans
Humphrey L
Infant
Infant Newborn
Intensive Care Units
Intensive Care Units Neonatal
Journal of Palliative Medicine
July List 2023
Keim MC
Male
Moscato EL
Nelin LD
Palliative Care
Retrospective Studies
Winning AM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/PCC.0b013e318272048d" target="_blank" rel="noreferrer">http://doi.org/10.1097/PCC.0b013e318272048d</a>
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Title
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Characteristics of family conferences at the bedside versus the conference room in pediatric critical care
Publisher
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Pediatric Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Child; Female; Humans; Male; Intensive Care Units; patient care team; decision making; Cohort Studies; Health Care Surveys; Parents; Attitude of Health Personnel; Questionnaires; Prospective Studies; Professional-Family Relations; Physicians; Patient Participation; Intensive Care; Pediatric
Creator
An entity primarily responsible for making the resource
October TW; Watson Anne C; Hinds PS
Description
An account of the resource
OBJECTIVE: To compare characteristics of family conferences at the bedside vs. the conference room in the PICU. DESIGN: Single-site, cohort survey study. SETTING: Thirty-three bed academic PICU in an urban setting. PARTICIPANTS: Ten PICU physicians (90.9%) providing care to 29 patients whose families participated in 58 family conferences. MEASUREMENTS AND MAIN RESULTS: Family conferences, defined as a meeting involving the parent(s) of a PICU patient and the critical care attending physician to discuss a treatment decision, redirection of care from curative to palliative, or deliver bad news, occurred most commonly among families of the sickest patients. Conferences were conducted at the bedside 20 times out of 58 (33%). Although physicians stated a general preference to discuss withdrawal or withholding care in the conference room, there was no difference in location during actual conferences. Physicians preferred the bedside when they wanted the patient to participate (p = 0.01) or because it was perceived to be easier (p < 0.0005) or faster (p = 0.016) to conduct, while the conference room was preferred when additional space was needed (p < 0.0005). Family conferences at the bedside were less likely to include a social worker (p < 0.0005), consultant physicians (p = 0.043), or father of the patient (p = 0.006) as compared with conferences in a conference room. Family conferences convened to discuss a treatment were followed by a decision within 24 hours (42% of the time) and a change in code status (32% of the time). In 32 of 58 family conferences (55%), the attending physician did not have a prior relationship with the family. CONCLUSION: Family conferences in the PICU are common both at the bedside and in conference rooms in a subpopulation of the most critically ill children and frequently result in a treatment decision or change in code status.
2013-03
Identifier
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<a href="http://doi.org/10.1097/PCC.0b013e318272048d" target="_blank" rel="noreferrer">10.1097/PCC.0b013e318272048d</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Attitude Of Health Personnel
Backlog
Child
Cohort Studies
Decision Making
Female
Health Care Surveys
Hinds PS
Humans
Intensive Care
Intensive Care Units
Journal Article
Male
October TW
Parents
Patient Care Team
Patient Participation
Pediatric
Pediatric Critical Care Medicine
Physicians
Professional-family Relations
Prospective Studies
Questionnaires
Watson Anne C
-
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Title
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July 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2018 List
URL Address
<a href="http://doi.org/10.1038/jp.2017.30" target="_blank" rel="noreferrer noopener">http://doi.org/10.1038/jp.2017.30</a>
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Title
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Children's outcomes at 2-year follow-up after 4 years of structured multi-professional medical-ethical decision-making in a neonatal intensive care unit
Publisher
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Journal of Perinatology
Date
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2017
Creator
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de Boer JC; Gennissen L; Williams M; van Dijk M; Tibboel D; Reiss I; Naghib S; Sol J
Identifier
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<a href="http://doi.org/10.1038/jp.2017.30" target="_blank" rel="noreferrer noopener">10.1038/jp.2017.30</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
OBJECTIVE: We reviewed our decisions about continuation/withdrawal of life-sustaining treatments in a group of critically ill newborns who were discussed in structured medical ethical decision-making meetings, and provide the surviving children's outcomes at 2-year follow-up. STUDY DESIGN: In an explorative observational study, 61 cases were evaluated. The children involved had been discussed in such a structured way from 2009 to 2012 in a level III-D neonatal intensive care unit. RESULTS: Decisions made were: full treatment (n=6), earlier restriction cancelled (n=3), treatment restriction (n=30) and palliative care (n=22). Parents of six children disagreed with the decision proposed. Thirteen (54%) of the 24 children who survived (39%) had moderate to severe neurological problems; 8 (33%) had additional sequelae; only one 2-year-old child was healthy. CONCLUSIONS: Decisions made varied to a large extent. The poor outcomes should be disseminated among decision makers. Future studies must explore new ways to improve outcome prediction, extend follow-up periods and consider what living with severe handicaps really means for both child and family.
2017
Child
Clinical Decision-Making/ethics
Critical Illness/mortality/therapy
de Boer JC
Female
Follow-up Studies
Gennissen L
Humans
Infant
Intensive Care Units
Journal Of Perinatology
July 2018 List
Male
Naghib S
Neonatal
Netherlands
Newborn
Palliative Care
Parents/psychology
Preschool
Prospective Studies
Reiss I
Sol J
Survival Analysis
Tibboel D
van Dijk M
Williams M
Withholding Treatment/ethics/standards
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.112.5.e371" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.112.5.e371</a>
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Title
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Circumstances surrounding end of life in a pediatric intensive care unit
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Intensive Care Units; Adult; Parent-Child Relations; Withholding Treatment; Attitude to Death; Resuscitation Orders; Ontario; Analgesia; Treatment Failure; Pediatric; adolescent; Preschool; patient care team; decision making; infant; Newborn; ICU Decision Making; cause of death; Parents/psychology; Physicians/psychology; Terminal Care/psychology
Creator
An entity primarily responsible for making the resource
Garros D; Rosychuk RJ; Cox PN
Description
An account of the resource
OBJECTIVE: Approximately 60% of deaths in pediatric intensive care units follow limitation or withdrawal of life-sustaining treatment (LST). We aimed to describe the circumstances surrounding decision making and end-of-life care in this setting. METHODS: We conducted a prospective, descriptive study based on a survey with the intensivist after every consecutive death during an 8-month period in a single multidisciplinary pediatric intensive care unit. Summary statistics are presented as percentage, mean +/- standard deviation, or median and range; data are compared using the Mantel-Haenszel test and shown as survival curves. RESULTS: Of the 99 observed deaths, 27 involved failed cardiopulmonary resuscitation; of the remaining 72, 39 followed withdrawal/limitation (W/LT) of LST, 20 were do not resuscitate (DNR), and 13 were brain deaths (BDs). Families initiated discussions about forgoing LST in 24% (17 of 72) of cases. Consensus between caregivers and staff about forgoing LST as the best approach was reached after the first meeting with 51% (35 of 68) of families; 46% (31 of 68) required >or=2 meetings (4 not reported). In the DNR group, the median time to death after consensus was 24 hours and for W/LT was 3 hours. LST was later withdrawn in 11 of 20 DNR cases. The family was present in 76% (45 of 59) of cases when LST was forgone. The dying patient was held by the family in 78% (35 of 45) of these occasions. CONCLUSIONS: More than 1 formal meeting was required to reach consensus with families about forgoing LST in almost half of the patients. Families often held their child at the time of death. The majority of children died quickly after the end-of-life decision was made.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.112.5.e371" target="_blank" rel="noreferrer">10.1542/peds.112.5.e371</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Adolescent
Adult
Analgesia
Attitude To Death
Backlog
Cause Of Death
Child
Cox PN
Decision Making
Female
Garros D
Humans
ICU Decision Making
Infant
Intensive Care Units
Journal Article
Male
Newborn
Ontario
Parent-child Relations
Parents/psychology
Patient Care Team
Pediatric
Pediatrics
Physicians/psychology
Preschool
Resuscitation Orders
Rosychuk RJ
Terminal Care/psychology
Treatment Failure
Withholding Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/INF.0000000000000024" target="_blank" rel="noreferrer">http://doi.org/10.1097/INF.0000000000000024</a>
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Title
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Clinical and laboratory factors that predict death in very low birth weight infants presenting with late-onset sepsis
Publisher
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The Pediatric Infectious Disease Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Female; Humans; infant; Male; retrospective studies; Intensive Care Units; Comorbidity; Risk Factors; Multivariate Analysis; Sepsis; Neonatal; Newborn; Connecticut; Very Low Birth Weight
Creator
An entity primarily responsible for making the resource
Levit O; Bhandari V; Li Fang-Yong; Shabanova V; Gallagher PG; Bizzarro MJ
Description
An account of the resource
BACKGROUND: Late-onset sepsis (LOS) in very low birth weight (VLBW) infants is associated with significant morbidity and mortality. The ability to predict mortality in infants with LOS based on clinical and laboratory factors at presentation of illness remains limited. OBJECTIVES: To identify predictors of sepsis-associated mortality from a composite risk profile that includes demographic data, category of infecting organism, clinical and laboratory data at onset of illness. STUDY DESIGN: Data were collected from VLBW infants with at least 1 episode of LOS admitted to Yale Neonatal Intensive Care Unit from 1989 through 2007. Episodes were categorized as Gram-positive, Gram-negative or fungal. Multivariate logistic regression analysis was used to compare and contrast different types of infections and to assess independent risk factors for death. RESULTS: Four hundred twenty-four cases of LOS were identified in 424 VLBW infants. Of these, 262 (62%) were categorized as Gram-positive, 126 (30%) as Gram-negative and 36 (8%) as fungal. Multivariate analyses revealed that infants with Gram-positive infections had significantly lower odds of death compared to those with Gram-negative (adjusted odds ratio: 0.17; 95% confidence interval: 0.08-0.36) or fungal LOS (adjusted odds ratio: 0.22; 95% confidence interval: 0.07-0.64). Need for intubation, initiation of pressors, hypoglycemia and thrombocytopenia as presenting laboratory signs of infection and necrotizing enterocolitis were independent risk factors for sepsis-related death. CONCLUSIONS: We identified presenting clinical and laboratory factors, including category of infecting organism, which predict the increased risk of LOS-related death. This information can be useful in estimating prognosis shortly after the onset of disease.
2014-02
Identifier
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<a href="http://doi.org/10.1097/INF.0000000000000024" target="_blank" rel="noreferrer">10.1097/INF.0000000000000024</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Bhandari V
Bizzarro MJ
Comorbidity
Connecticut
Female
Gallagher PG
Humans
Infant
Intensive Care Units
Journal Article
Levit O
Li Fang-Yong
Male
Multivariate Analysis
Neonatal
Newborn
Retrospective Studies
Risk Factors
Sepsis
Shabanova V
The Pediatric Infectious Disease Journal
Very Low Birth Weight
-
Dublin Core
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Title
A name given to the resource
September 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.3389/fped.2023.1197360" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3389/fped.2023.1197360</a>
Dublin Core
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Title
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Clinician perception of care at the end of life in a quaternary neonatal intensive care unit
Publisher
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Frontiers in Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Infant, Newborn; palliative care; symptom management; Intensive Care Units, Neonatal; Intensive Care Units; Nicu; neonatal death; end of life care; quality of death
Creator
An entity primarily responsible for making the resource
Imai L; Gray MM; Kim BJH; Lyle ANJ; Bock A; Weiss EM
Description
An account of the resource
INTRODUCTION: Care for neonates at the end of life (EOL) is often challenging for families and medical teams alike, performed suboptimally, and requires an experienced and compassionate clinician. Much literature exists on adult and pediatric EOL care, but limited studies examine the neonatal process. METHODS: We aimed to describe clinicians' experiences around EOL care in a single quaternary neonatal intensive care unit as we implemented a standard guideline using the Pediatric Intensive Care Unit-Quality of Dying and Death 20 tool. RESULTS: Surveys were completed by 205 multidisciplinary clinicians over three time periods and included 18 infants at EOL. While most responses were high, a meaningful minority were below goal (<8 on 0-10 scale) for troubling symptom management, conflict between parents and staff, family access to resources, and parent preparation of symptoms. Comparison between Epochs revealed improvement in one symptom management and four communication categories. Satisfaction scores related to education around EOL were better in later Epochs. Neonatal Pain, Agitation, and Sedation Scale scores were low, with few outliers. DISCUSSION: These findings can guide those aiming to improve processes around neonatal EOL by identifying areas with the greatest challenges (e.g., conflict management) and areas that need further study (e.g., pain management around death).
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3389/fped.2023.1197360" target="_blank" rel="noreferrer noopener">10.3389/fped.2023.1197360</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Bock A
End Of Life Care
Frontiers in Pediatrics
Gray MM
Imai L
Infant, Newborn
Intensive Care Units
Intensive Care Units, Neonatal
Kim BJH
Lyle ANJ
Neonatal Death
Nicu
Palliative Care
Quality Of Death
September List 2041
Symptom Management
Weiss EM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00003246-199309001-00053" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003246-199309001-00053</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Communication between physician, patient, and family in the pediatric intensive care unit
Publisher
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Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1993
Subject
The topic of the resource
Child; Humans; Intensive Care Units; Grief; Physician-Patient Relations; Attitude of Health Personnel; Education; Professional-Family Relations; Communication; Physician's Role; Patient Satisfaction; Internal-External Control; Defense Mechanisms; Power (Psychology); Kinesics; Pediatric; Adaptation; Psychological; patient care team; Parents/education/psychology; ICU Decision Making; empathy; humanism; Medical/methods; Anxiety/prevention & control/psychology
Creator
An entity primarily responsible for making the resource
Todres ID
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00003246-199309001-00053" target="_blank" rel="noreferrer">10.1097/00003246-199309001-00053</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1993
1993
Adaptation
Anxiety/prevention & control/psychology
Attitude Of Health Personnel
Backlog
Child
Communication
Critical Care Medicine
Defense Mechanisms
Education
Empathy
Grief
Humanism
Humans
ICU Decision Making
Intensive Care Units
Internal-External Control
Journal Article
Kinesics
Medical/methods
Parents/education/psychology
Patient Care Team
Patient Satisfaction
Pediatric
Physician-patient Relations
Physician's Role
Power (psychology)
Professional-family Relations
Psychological
Todres ID
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2018 List
URL Address
<a href="http://doi.org/10.1186/s13052-018-0531-8" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s13052-018-0531-8</a>
Dublin Core
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Title
A name given to the resource
Comparison of mothers and grandmothers physical and mental health and functioning within 6 months after child NICU/PICU death
Publisher
An entity responsible for making the resource available
Italian Journal of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Attitude to Death; Bereavement; Blacks; Checklists; Chi Square Test; Cross Sectional Studies; Depression; Employment Status; Grandparents Psychosocial Factors; Grief; Health Status; Hispanics; Human; Intensive Care Units; Interviews; Mental Health; Mothers Psychosocial Factors; Neonatal; Paired T-Tests; Pediatric; Physical Fitness; Post-Traumatic; Psychological Tests; Psychosocial; Stress Disorders; Support
Creator
An entity primarily responsible for making the resource
Youngblut JM; Brooten D
Description
An account of the resource
Losing a child is devastating for parents and grandparents. Family and friends generally focus on comforting and supporting the bereaved parents, unintentionally ignoring the bereaved grandparents. Grandmothers and grandfathers often struggle with wanting to help their adult children (deceased child’s parents) without usurping the parents’ responsibilities and decisions regarding the deceased child. Research on mothers’ and grandmothers’ health at about the same time after the same child’s death in the neonatal or pediatric intensive care unit is lacking. The aim of this study was to compare mothers and grandmothers on physical health, mental health, and functioning in the first 1–6 months after the same child’s death in a neonatal or pediatric intensive care unit.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/s13052-018-0531-8" target="_blank" rel="noreferrer noopener">10.1186/s13052-018-0531-8</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here.
2018
Attitude To Death
Bereavement
Blacks
Brooten D
Checklists
Chi Square Test
Cross Sectional Studies
Depression
Employment Status
Grandparents Psychosocial Factors
Grief
Health Status
Hispanics
Human
Intensive Care Units
Interviews
Italian Journal of Pediatrics
Mental Health
Mothers Psychosocial Factors
Neonatal
October 2018 List
Paired T-Tests
Pediatric
Physical Fitness
Post-traumatic
Psychological Tests
psychosocial
September 2018 List
Stress Disorders
Support
Youngblut JM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.pcc.0000128892.38431.2b" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.pcc.0000128892.38431.2b</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Congenital neurodevelopmental diagnoses and an intensive care unit: defining a population
Publisher
An entity responsible for making the resource available
Pediatric Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Female; Humans; Male; Intensive Care Units; Cohort Studies; Critical Illness; Hospitals; Chi-Square Distribution; Pediatric; adolescent; Preschool; infant; Chronic disease; Nonparametric; Statistics; ICU Decision Making; Pediatric/statistics & numerical data; Length of Stay/statistics & numerical data; Boston/epidemiology; Developmental Disabilities/classification/epidemiology
Creator
An entity primarily responsible for making the resource
Graham RJ; Dumas HM; O'Brien JE; Burns JP
Description
An account of the resource
OBJECTIVE: To identify and describe the population of children with congenital or perinatally acquired neurodevelopmental diagnoses in a pediatric intensive care unit and to assess the nature and extent of their utilization of critical care resources. DESIGN: Twelve-month, inception cohort study. SETTING: Intensive care unit at an urban, tertiary care pediatric hospital. PATIENTS AND METHODS: All pediatric intensive care unit admissions were screened for preexisting neurodevelopmental diagnoses. Computerized and chart-based medical records were reviewed for demographic, clinical, and outcome data. RESULTS: A total of 309 children with congenital neurodevelopmental diagnoses accounted for 427 pediatric intensive care unit admissions. This represented 23% of the total 1,820 admissions in 1 yr. Trisomy 21 was the most identifiable developmental abnormality (n = 25, 8%). Eighty-five percent of the children were cared for at home before hospitalization. A total of 220 of the admissions (52%) demonstrated a preexisting technology dependence. Fewer children admitted from the home-care setting had tracheostomies or were ventilator dependent. The majority of admissions were scheduled surgical admissions (45%) or for management of acute respiratory illness (26%). Of the patients with preexisting tracheostomy, nonrespiratory conditions accounted for 70% of acute admitting diagnoses. Two hundred twenty-three of the admissions (52%) required noninvasive or transtracheal ventilatory support, yet the length of stay and mortality rate were consistent with those reported in other general pediatric intensive care unit populations. The average and median length of stay were 5.4 and 2.0 days, respectively. Mortality rate was 3%. Technology support needs at discharge increased significantly from admission for enterostomy support (p =.008) and mechanical ventilation (p =.008). CONCLUSIONS: Children with congenital or perinatally acquired neurodevelopmental diagnoses represented nearly one quarter of all pediatric intensive care unit admissions at a tertiary academic center. This population has substantial ongoing medical needs, requiring utilization of intensive care resources. More rigorous investigations are needed to determine the effect of this burgeoning population in pediatric critical care, to optimize their care, and to meet the comprehensive needs of their families.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.pcc.0000128892.38431.2b" target="_blank" rel="noreferrer">10.1097/01.pcc.0000128892.38431.2b</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adolescent
Backlog
Boston/epidemiology
Burns JP
Chi-Square Distribution
Child
Chronic Disease
Cohort Studies
Critical Illness
Developmental Disabilities/classification/epidemiology
Dumas HM
Female
Graham RJ
Hospitals
Humans
ICU Decision Making
Infant
Intensive Care Units
Journal Article
Length Of Stay/statistics & Numerical Data
Male
Nonparametric
O'Brien JE
Pediatric
Pediatric Critical Care Medicine
Pediatric/statistics & Numerical Data
Preschool
Statistics
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1472-6939-3-3" target="_blank" rel="noreferrer">http://doi.org/10.1186/1472-6939-3-3</a>
Dublin Core
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Title
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Consensus guidelines on analgesia and sedation in dying intensive care unit patients
Publisher
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Bmc Medical Ethics
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Humans; Intensive Care Units; Terminally Ill; Consensus; Euthanasia; Suicide; Stress; Empirical Approach; Death and Euthanasia; Practice Guidelines; Pain/drug therapy; Active; Hypnotics and Sedatives/therapeutic use; Assisted; Terminal Care/standards; Psychological/drug therapy; Analgesics/therapeutic use; Palliative Care/methods/standards
Creator
An entity primarily responsible for making the resource
Hawryluck LA; Harvey WR; Lemieux-Charles L; Singer PA
Description
An account of the resource
BACKGROUND: Intensivists must provide enough analgesia and sedation to ensure dying patients receive good palliative care. However, if it is perceived that too much is given, they risk prosecution for committing euthanasia. The goal of this study is to develop consensus guidelines on analgesia and sedation in dying intensive care unit patients that help distinguish palliative care from euthanasia. METHODS: Using the Delphi technique, panelists rated levels of agreement with statements describing how analgesics and sedatives should be given to dying ICU patients and how palliative care should be distinguished from euthanasia. Participants were drawn from 3 panels: 1) Canadian Academic Adult Intensive Care Fellowship program directors and Intensive Care division chiefs (N = 9); 2) Deputy chief provincial coroners (N = 5); 3) Validation panel of Intensivists attending the Canadian Critical Care Trials Group meeting (N = 12). RESULTS: After three Delphi rounds, consensus was achieved on 16 statements encompassing the role of palliative care in the intensive care unit, the management of pain and suffering, current areas of controversy, and ways of improving palliative care in the ICU. CONCLUSION: Consensus guidelines were developed to guide the administration of analgesics and sedatives to dying ICU patients and to help distinguish palliative care from euthanasia.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1472-6939-3-3" target="_blank" rel="noreferrer">10.1186/1472-6939-3-3</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Active
Analgesics/therapeutic use
Assisted
Backlog
Bmc Medical Ethics
Consensus
Death and Euthanasia
Empirical Approach
Euthanasia
Harvey WR
Hawryluck LA
Humans
Hypnotics and Sedatives/therapeutic use
Intensive Care Units
Journal Article
Lemieux-Charles L
Pain/drug Therapy
Palliative Care/methods/standards
Practice Guidelines
Psychological/drug therapy
Singer PA
Stress
Suicide
Terminal Care/standards
Terminally Ill
-
Dublin Core
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Title
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2021 Special Edition 1 - Low Resource Settings
Text
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Citation List Month
2021 Special Edition 1 - Low Resource Settings
URL Address
<a href="http://doi.org/10.1111/tmi.13529" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1111/tmi.13529</a>
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Title
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Coronavirus Disease-19 Deaths among Children and Adolescents in an Area of Northeast, Brazil: Why So Many?
Publisher
An entity responsible for making the resource available
Tropical Medicine and International Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Child; Adolescent; Child Preschool; Female; Humans; Infant; Infant Newborn; Male; Comorbidity; Children; Intensive Care Units; Age Distribution; Adolescents; Hospitalization/statistics & numerical data; Brazil/epidemiology; Mortality; deaths; Covid-19; mortality; Deaths; adolescents; children; covid-19; COVID-19/mortality
Creator
An entity primarily responsible for making the resource
de Siqueira ALA; Cristina FVS; Lima SPR; Santana SV; Cristina FLD; Eduardo CL; Queiroz GR
Description
An account of the resource
OBJECTIVE: To describe COVID-19 deaths among children and adolescents in Sergipe, Brazil. METHODS: Ecological study of all COVID-19 reported cases and deaths occurring in children and adolescents <19 years of age in Sergipe reported by the health surveillance and mortality information systems of Sergipe's Health Secretary and hospital records. RESULTS: 37 deaths of children <19 years old were reported up to 30(th) September 2020, corresponding to 4.87 deaths for 100,000 population <19 years old. Most deaths occurred among infants (44.1/100,000), and this age group had the highest case fatality rate (15.3 %). Most children had comorbidities such as chronic neurological diseases (n=7; 19%) and prematurity (n=4; 11%). Most children who died (n=18; 49%) were not admitted to intensive care units (ICU). CONCLUSION: COVID-19 mortality in children and adolescents in Sergipe was higher than in other Brazilian states and in high-income countries. A large proportion of the deaths occurred among children with co-morbidities and a minority of children were admitted to ICU, reflecting the limited provision of such beds in the State. Newborns and infants are a high-risk group that must have priority in health public policy.
Identifier
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<a href="http://doi.org/10.1111/tmi.13529" target="_blank" rel="noreferrer noopener">10.1111/tmi.13529</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2021 Special Edition 1 - Low Resource Settings
Adolescent
Adolescents
Age Distribution
Brazil/epidemiology
Child
Child Preschool
Children
Comorbidity
COVID-19
COVID-19/mortality
Cristina FLD
Cristina FVS
de Siqueira ALA
deaths
Eduardo CL
Female
Hospitalization/statistics & numerical data
Humans
Infant
Infant Newborn
Intensive Care Units
Lima SPR
Male
Mortality
Queiroz GR
Santana SV
Tropical Medicine & International Health
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00006254-199706000-00009" target="_blank" rel="noreferrer">http://doi.org/10.1097/00006254-199706000-00009</a>
Dublin Core
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Title
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Death in the intensive care nursery: physician practice of withdrawing and withholding life support
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
The topic of the resource
Humans; infant; Intensive Care Units; Medical Futility; Euthanasia; Life Support Care; quality of life; Pediatric; Empirical Approach; Death and Euthanasia; decision making; Newborn; ICU Decision Making; Very Low Birth Weight; Passive; San Francisco; Life Support Systems; University of California
Creator
An entity primarily responsible for making the resource
Wall SN; Partridge JC
Description
An account of the resource
OBJECTIVE: To determine the frequency of selective nontreatment of extremely premature, critically ill, or malformed infants among all infant deaths in a level III intensive care nursery (ICN) and to determine the reasons documented by neonatologists for their decisions to withdraw or withhold life support. METHODS: This was a descriptive study based on review of the medical records of all 165 infants who died at a university-based level III ICN during 3 years. We determined whether each death had occurred despite the use of all available technologies to keep the infant alive or whether these were withheld or withdrawn, thereby leading to the infant's death. We also determined whether neonatologists documented either "futility" or "quality of life" as a reason to limit medical interventions. RESULTS: One hundred sixty-five infants died among the 1609 infants admitted during the study period. One hundred eight infant deaths followed the withdrawal of life support, 13 deaths followed the withholding of treatment, and 44 deaths occurred while infants continued to receive maximal life-sustaining treatment. For 90 (74%) of the 121 deaths attributable to withholding of withdrawal of treatment, physicians cited that death was imminent and treatment was futile. Quality-of-life concerns were cited by the neonatologists as reasons to limit treatment in 62 (51%). Quality of life was the only reason cited for limiting treatment for 28 (23%) of the 121 deaths attributable to withholding or withdrawal of treatment. CONCLUSIONS: The majority of deaths in the ICN occurred as a result of selective nontreatment by neonatologists, with few infants receiving maximal support until the actual time of death. Neonatologists often documented that quality-of-life concerns were considered in decisions to limit treatment; however, the majority of these decisions were based on their belief that treatment was futile. Prospective studies are needed to elucidate the determinants of neonatologists' practice decisions of selective nontreatment for marginally viable or damaged infants.
1997
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00006254-199706000-00009" target="_blank" rel="noreferrer">10.1097/00006254-199706000-00009</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1997
Backlog
Death and Euthanasia
Decision Making
Empirical Approach
Euthanasia
Humans
ICU Decision Making
Infant
Intensive Care Units
Journal Article
Life Support Care
Life Support Systems
Medical Futility
Newborn
Partridge JC
Passive
Pediatric
Pediatrics
Quality Of Life
San Francisco
University of California
Very Low Birth Weight
Wall SN
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.2005.074971" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.2005.074971</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Death in the neonatal intensive care unit: changing patterns of end of life care over two decades
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood. Fetal And Neonatal Edition
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Humans; infant; Intensive Care Units; Prognosis; Medical Audit; Intensive Care; Newborn; Premature; Chromosome Aberrations; Diseases/mortality; Hospital Mortality/trends; Terminal Care/trends; Cause of Death/trends; Infant Mortality/trends; Neonatal/trends; Neural Tube Defects/mortality; Victoria/epidemiology; Withholding Treatment/trends
Creator
An entity primarily responsible for making the resource
Wilkinson DJ; Fitzsimons JJ; Dargaville PA; Campbell NT; Loughnan PM; McDougall PN; Mills JF
Description
An account of the resource
BACKGROUND: Death remains a common event in the neonatal intensive care unit, and often involves limitation or withdrawal of life sustaining treatment. OBJECTIVE: To document changes in the causes of death and its management over the last two decades. METHODS: An audit of infants dying in the neonatal intensive care unit was performed during two epochs (1985-1987 and 1999-2001). The principal diagnoses of infants who died were recorded, as well as their apparent prognoses, and any decisions to limit or withdraw medical treatment. RESULTS: In epoch 1, 132 infants died out of 1362 admissions (9.7%), and in epoch 2 there were 111 deaths out of 1776 admissions (6.2%; p<0.001). Approximately three quarters of infants died after withdrawal of life sustaining treatment in both epochs. There was a significant reduction in the proportion of deaths from chromosomal abnormalities, and from neural tube defects in epoch 2. CONCLUSIONS: There have been substantial changes in the illnesses leading to death in the neonatal intensive care unit. These may reflect the combined effects of prenatal diagnosis and changing community and medical attitudes.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/adc.2005.074971" target="_blank" rel="noreferrer">10.1136/adc.2005.074971</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Archives of Disease in Childhood. Fetal and Neonatal Edition
Backlog
Campbell NT
Cause of Death/trends
Chromosome Aberrations
Dargaville PA
Diseases/mortality
Fitzsimons JJ
Hospital Mortality/trends
Humans
Infant
Infant Mortality/trends
Intensive Care
Intensive Care Units
Journal Article
Loughnan PM
McDougall PN
Medical Audit
Mills JF
Neonatal/trends
Neural Tube Defects/mortality
Newborn
Premature
Prognosis
Terminal Care/trends
Victoria/epidemiology
Wilkinson DJ
Withholding Treatment/trends
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.PCC.0000102413.32891.E5" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.PCC.0000102413.32891.E5</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Decision making and satisfaction with care in the pediatric intensive care unit: findings from a controlled clinical trial
Publisher
An entity responsible for making the resource available
Pediatric Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Female; Humans; Male; Intensive Care Units; Prospective Studies; Professional-Family Relations; Boston; Life Support Care; Conflict (Psychology); Consumer Satisfaction; Counseling; Pediatric; decision making; Nonparametric; Statistics; ICU Decision Making
Creator
An entity primarily responsible for making the resource
Mello MM; Burns JP; Truog RD; Studdert DM; Puopolo AL; Brennan T
Description
An account of the resource
OBJECTIVE: To facilitate critical decision making and improve satisfaction with care among families of patients in a pediatric intensive care unit. DESIGN: Prospective observational study followed by a nonrandomized controlled trial of a clinical intervention to identify conflicts and facilitate communication between families and the clinical team. SETTING: The pediatric intensive care unit of a Boston teaching hospital. PATIENTS: A total of 127 patients receiving care in the pediatric intensive care unit in 1998-1999 and their families. INTERVENTIONS: Interviews were conducted with surrogates and decisionally capable older children concerning the adequacy of information provided, understanding, communication, and perceived decisional conflicts. Findings were relayed to the clinical team, who then developed tailored follow-up recommendations. MEASUREMENTS AND MAIN RESULTS: A survey administered to surrogates at baseline and day 7 or intensive care unit discharge measured satisfaction with care. Information on patient acuity and hospital stay were extracted from medical records and hospital databases. Wilcoxon rank-sum tests and incidence rate comparisons were used to assess the impact of the intervention on satisfaction and sentinel decision making, respectively. Incidence rates of care plan decision making, including decisions to adopt a comfort-care-only plan and decisions to forego resuscitation, were lower among families who received the intervention. The intervention did not significantly affect satisfaction with care. CONCLUSIONS: Prospectively screening for and intervening to mitigate potential conflict did not increase decision making or parental satisfaction with the care provided in this pediatric intensive care unit.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.PCC.0000102413.32891.E5" target="_blank" rel="noreferrer">10.1097/01.PCC.0000102413.32891.E5</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Backlog
Boston
Brennan T
Burns JP
Child
Conflict (Psychology)
Consumer Satisfaction
Counseling
Decision Making
Female
Humans
ICU Decision Making
Intensive Care Units
Journal Article
Life Support Care
Male
Mello MM
Nonparametric
Pediatric
Pediatric Critical Care Medicine
Professional-family Relations
Prospective Studies
Puopolo AL
Statistics
Studdert DM
Truog RD
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2013-0470" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2013-0470</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Differences in characteristics of dying children who receive and do not receive palliative care
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; retrospective studies; United States; Intensive Care Units; Palliative Care; Terminal Care; Cohort Studies; Hospital Mortality; cause of death; Age Factors; Length of Stay; Hospitals; Utilization Review; Neonatal; Palliative Care; Pediatric; Preschool; Newborn; location of death; Pediatric palliative care; complex chronic conditions
Creator
An entity primarily responsible for making the resource
Keele L; Keenan HT; Sheetz J; Bratton SL
Description
An account of the resource
OBJECTIVE: Comparing demographic and clinical characteristics associated with receipt of palliative care (PC) among children who died in children's hospitals to those who did not receive PC and understanding the trends in PC use. METHODS: This retrospective cohort study used the Pediatric Health Information System database. Children <18 years of age who died ≥5 days after admission to a Pediatric Health Information System hospital between January 1, 2001, and December 31, 2011 were included. Receipt of PC services was identified by the International Classification of Diseases, Ninth Revision code for PC. Diagnoses were grouped using major diagnostic codes. International Classification of Diseases codes and clinical transaction codes were used to evaluate all interventions. RESULTS: This study evaluated 24 342 children. Overall, 4% had coding for PC services. This increased from 1% to 8% over the study years. Increasing age was associated with greater receipt of PC. Children with the PC code had fewer median days in the hospital (17 vs 21), received fewer invasive interventions, and fewer died in the ICU (60% vs 80%). Receipt of PC also varied by major diagnostic codes, with the highest proportion found among children with neurologic disease. CONCLUSIONS: Most pediatric patients who died in a hospital did not have documented receipt of PC. Children receiving PC are different from those who do not in many ways, including receipt of fewer procedures. Receipt of PC has increased over time; however, it remains low, particularly among neonates and those with circulatory diseases.
2013-07
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2013-0470" target="_blank" rel="noreferrer">10.1542/peds.2013-0470</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Adolescent
Age Factors
Backlog
Bratton SL
Cause Of Death
Child
Cohort Studies
Complex Chronic Conditions
Female
Hospital Mortality
Hospitals
Humans
Infant
Intensive Care Units
Journal Article
Keele L
Keenan HT
Length Of Stay
Location Of Death
Male
Neonatal
Newborn
Palliative Care
Pediatric
Pediatric Palliative Care
Pediatrics
Preschool
Retrospective Studies
Sheetz J
Terminal Care
United States
Utilization Review
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00003246-199810000-00032" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003246-199810000-00032</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Differences in pediatric ICU mortality risk over time
Publisher
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Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Subject
The topic of the resource
Child; Humans; Intensive Care Units; Logistic Models; Prospective Studies; Age Factors; Severity of Illness Index; Risk Assessment; Hospitals; Reproducibility of Results; Predictive Value of Tests; Pediatric; ICU Decision Making; United States/epidemiology; Age Distribution; Health Care; Quality Assurance; Hospital Mortality/trends; Hospital Bed Capacity; Intensive Care/standards/trends; Pediatric/standards/statistics & numerical data/trends; University
Creator
An entity primarily responsible for making the resource
Tilford JM; Roberson PK; Lensing S; Fiser DH
Description
An account of the resource
OBJECTIVES: To compare pediatric intensive care unit (ICU) mortality risk using models from two distinct time periods; and to discuss the implications of changing mortality risk for severity systems and quality-of-care assessment. DATA SOURCES AND SETTING: Consecutive admissions (n = 10,833) from 16 pediatric ICUs across the United States that participate in the Pediatric Critical Care Study Group were recorded prospectively. Data collection occurred during a 12-mo period beginning in January 1993. METHODS: Data collection for the development and validation of the original Pediatric Risk of Mortality (PRISM) score occurred from 1980 to 1985. The original PRISM coefficients were used to calculate mortality probabilities in the current data set. Updated estimates of mortality probabilities were calculated, using coefficients from a logistic regression analysis using the original PRISM variable set. Quality-of-care tests were performed using standardized mortality ratios. RESULTS: Risk of mortality from pediatric ICU admission improved considerably between the two periods. Overall, the reduction in mortality risk averaged 15% (p < .001). Analysis of mortality risk by age indicated a large improvement for younger infants. The mortality risk for infants <1 mo improved by 39% (p < .001). Mortality risk improved by 28% (p < .001) for infants between 1 and 12 mos. Analysis of mortality risk by principal diagnosis indicated substantial improvement in respiratory diseases, including respiratory diseases developing in the perinatal period. The mortality risk for respiratory diseases improved by 45% (p < .001). The improvement in mortality risk substantially deteriorated the calibration of the original PRISM severity system (p < .001). As a result of changing mortality risk, the standardized mortality ratios across the 16 pediatric ICUs demonstrated substantial disparities, depending on the choice of models. CONCLUSIONS: This study documents differences in pediatric ICU risk of mortality over time that are consistent with a general improvement in the quality of pediatric intensive care. Despite continued widespread use of the original PRISM, recent improvements in pediatric ICU quality of care have negated its usefulness for many intended applications, including quality-of-care assessment.
1998
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00003246-199810000-00032" target="_blank" rel="noreferrer">10.1097/00003246-199810000-00032</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1998
Age Distribution
Age Factors
Backlog
Child
Critical Care Medicine
Fiser DH
Health Care
Hospital Bed Capacity
Hospital Mortality/trends
Hospitals
Humans
ICU Decision Making
Intensive Care Units
Intensive Care/standards/trends
Journal Article
Lensing S
Logistic Models
Pediatric
Pediatric/standards/statistics & numerical data/trends
Predictive Value of Tests
Prospective Studies
Quality Assurance
Reproducibility of Results
Risk Assessment
Roberson PK
Severity Of Illness Index
Tilford JM
United States/epidemiology
University
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2019 List
URL Address
<a target="_blank" class="vk-MessageLink sc-hxTMRp fGfItZ" href="http://ow.ly/t9Os50wM6GL" rel="noreferrer noopener">http://ow.ly/t9Os50wM6GL</a> <span></span>
Dublin Core
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Title
A name given to the resource
Do-Not-Resuscitate Orders in the Neonatal ICU: Experiences and Beliefs Among Staff
Publisher
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Pediatric Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Attitude of Health Personnel; Attitudes; Female; Health Knowledge; Hospital/psychology; Humans; Intensive Care Units; Male; Medical Staff; Neonatal/statistics & numerical data; Nursing Staff; Practice; Professional-Family Relations; Resuscitation Orders/psychology; Retrospective Studies; Surveys and Questionnaires; United States; Withholding Treatment/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Arzuaga BH; Wraight CL; Cummings CL; Mao W; Miedema D; Brodsky DD
Description
An account of the resource
OBJECTIVES: Studies in adult patients have shown that do-not-resuscitate orders are often associated with decreased medical intervention. In neonatology, this phenomenon has not been investigated, and how do-not-resuscitate orders potentially affect clinical care is unknown. DESIGN: Retrospective medical record data review and staff survey responses about neonatal ICU do-not-resuscitate orders. SETTING: Four academic neonatal ICUs. SUBJECTS: Clinical staff members working in each neonatal ICU. INTERVENTIONS: Survey response collection and analysis. MEASUREMENTS AND MAIN RESULTS: Participating neonatal ICUs had 14-48 beds and 120-870 admissions/yr. Frequency range of do-not-resuscitate orders was 3-11 per year. Two-hundred fifty-seven surveys were completed (46% response). Fifty-nine percent of respondents were nurses; 20% were physicians. Over the 5-year period, 44% and 17% had discussed a do-not-resuscitate order one to five times and greater than or equal to 6 times, respectively. Fifty-seven percent and 22% had cared for one to five and greater than or equal to 6 patients with do-not-resuscitate orders, respectively. Neonatologists, trainees, and nurse practitioners were more likely to report receiving training in discussing do-not-resuscitate orders or caring for such patients compared with registered nurses and respiratory therapists (p < 0.001). Forty-one percent of respondents reported caring for an infant in whom interventions had been withheld after a do-not-resuscitate order had been placed without discussing the specific withholding with the family. Twenty-seven percent had taken care of an infant in whom interventions had been withdrawn under the same circumstances. Participants with previous experiences withholding or withdrawing interventions were more likely to agree that these actions are appropriate (p < 0.001). CONCLUSIONS: Most neonatal ICU staff report experience with do-not-resuscitate orders; however, many, particularly nurses and respiratory therapists, report no training in this area. Variable beliefs with respect to withholding and withdrawing care for patients with do-not-resuscitate orders exist among staff. Because neonatal ICU patients with do-not-resuscitate orders may ultimately survive, withholding or withdrawing interventions may have long-lasting effects, which may or may not coincide with familial intentions.
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Arzuaga BH
Attitude Of Health Personnel
Attitudes
Brodsky DD
Cummings CL
Female
Health Knowledge
Hospital/psychology
Humans
Intensive Care Units
Male
Mao W
Medical Staff
Miedema D
Neonatal/statistics & Numerical Data
November 2019 List
Nursing Staff
Pediatric Critical Care Medicine
Practice
Professional-family Relations
Resuscitation Orders/psychology
Retrospective Studies
Surveys And Questionnaires
United States
Withholding Treatment/statistics & Numerical Data
Wraight CL
-
Dublin Core
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Title
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2023 Special Edition 5 - Low Resource Setting List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2023 SE5 - Low Resource Setting
URL Address
<a href="http://doi.org/10.1136/bmjopen-2022-066620" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1136/bmjopen-2022-066620</a>
Dublin Core
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Title
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Doctors' experiences of referring and admitting patients to the intensive care unit: a qualitative study of doctors' practices at two tertiary hospitals in Malawi
Publisher
An entity responsible for making the resource available
BMJ Open
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Humans; Critical Care; Tertiary Care Centers; Intensive Care Units; Intensive Care Units; Hospitalization; Malawi; Paediatric intensive & critical care; Adult intensive & critical care; Quality in health care
Creator
An entity primarily responsible for making the resource
Gundo R; Kayambankadzanja RK; Chipeta D; Gundo B; Chikumbanje SS; Baker T
Description
An account of the resource
OBJECTIVE: To explore doctors' experiences of referring and admitting patients to the intensive care unit (ICU) at two tertiary hospitals in Malawi. DESIGN: This was a qualitative study that used face-to-face interviews. The interviews were audiotaped and transcribed verbatim into English. The data were analysed manually through conventional content analysis. SETTING: Two public tertiary hospitals in the central and southern regions of Malawi. Interviews were conducted from January to June 2021. PARTICIPANTS: Sixteen doctors who were involved in the referral and admission of patients to the ICU. RESULTS: Four themes were identified namely, lack of clear admission criteria, ICU admission requires a complex chain of consultations, shortage of ICU resources, and lack of an ethical and legal framework for discontinuing treatment of critically ill patients who were too sick to benefit from ICU. CONCLUSION: Despite the acute disease burden and increased demand for ICU care, the two hospitals lack clear processes for referring and admitting patients to the ICU. Given the limited bed space in ICUs, hospitals in low-income countries, including Malawi, need to improve or develop admission criteria, severity scoring systems, ongoing professional development activities, and legislation for discontinuing intensive care treatments and end-of-life care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmjopen-2022-066620" target="_blank" rel="noreferrer noopener">10.1136/bmjopen-2022-066620</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
2023 SE5 - Low Resource Setting
Adult intensive & critical care
Baker T
Bmj Open
Chikumbanje SS
Chipeta D
Critical Care
Gundo B
Gundo R
Hospitalization
Humans
Intensive Care Units
Kayambankadzanja RK
Malawi
Paediatric intensive & critical care
Quality In Health Care
Tertiary Care Centers
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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January 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2020 List
URL Address
<a href="https://scholarlyexchange.childrensmercy.org/posters/101/">https://scholarlyexchange.childrensmercy.org/posters/101/</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Does Pediatric Palliative Care Involvement Influence Location of Death?
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Death; Hospice Care; Intensive Care Units; Palliative Care; Pediatric
Creator
An entity primarily responsible for making the resource
Solano J; Singh M; Sherman A K; Linebarger J
Description
An account of the resource
This study describes the influence of a palliative care team on location of death and location of death discussions with patients/caregivers, and determines whether location of death discussions influence location of death. With palliative care or a location of death discussion, patients were less likely to die in the PICU and more likely to die at home. Location of death discussions were more likely to occur if a palliative care team was involved.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Death
Hospice Care
Intensive Care Units
January 2020 List
Linebarger J
Palliative Care
Pediatric
Sherman A K
Singh M
Solano J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.inf.0000126273.27123.33" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.inf.0000126273.27123.33</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Driscoll Children's Hospital respiratory syncytial virus database: risk factors, treatment and hospital course in 3308 infants and young children, 1991 to 2002
Publisher
An entity responsible for making the resource available
The Pediatric Infectious Disease Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Hospitalization; Humans; infant; Intensive Care Units; Pediatrics; Length of Stay; Severity of Illness Index; Risk Factors; Medical Records; infant; Newborn; Premature; Human; Databases; Factual; Mechanical; Ventilators; Antiviral Agents/therapeutic use; Respiratory Syncytial Virus; Respiratory Syncytial Virus Infections/drug therapy/physiopathology/virology; Respiratory Tract Infections/drug therapy/physiopathology/virology; Ribavirin/therapeutic use
Creator
An entity primarily responsible for making the resource
Purcell K; Fergie J
Description
An account of the resource
BACKGROUND: Treatment of respiratory syncytial virus (RSV) lower respiratory tract infection has historically been one of the most frequent reasons for admission to Driscoll Children's Hospital. OBJECTIVE: The objective of this study was to examine the relationship of risk factors for a severe and complicated disease course to the treatment and hospital length of stay. METHODS: Subjects were identified through a retrospective review of the medical records of all patients discharged with a diagnosis of RSV lower respiratory tract infection during 9 of the 11 RSV seasons between July 1, 1991 and June 30, 2002. The RSV seasons from 1991-1992 to 1994-1995 were compared with the RSV seasons from 1995-1996 to 2001-2002 with regard to treatment and hospital course. RESULTS: There were a total of 3308 admissions. Compared with patients with no risk factors, higher percentages of patients with age <6 weeks, history of prematurity, congenital heart disease and neurologic disease were admitted to the pediatric intensive care unit (PICU) and required mechanical ventilation (P < 0.001). Also the hospital length of stay was longer for patients with each of these individual risk factors (P < 0.001). The hospital length of stay and the percentages of patients admitted to the PICU and requiring on mechanical ventilation increased as the number of risk factors increased from zero to 3 or more (P < 0.001). Of patients with 3 or more risk factors, the average hospital length of stay was 13.5 days; 67% were admitted to the PICU, and 47% required mechanical ventilation. Ribavirin use decreased in patients with each of the individual risk factors (P < 0.001) as well as in patients with one or more risk factors (P < 0.001). At the same time the PICU admission rate increased from 6.1% to 11.2% (P < 0.001). CONCLUSIONS: Patients with three or more risk factors were at very high risk for having a severe or complicated disease course associated with admission to the PICU, placement on mechanical ventilation and a longer hospital length of stay.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.inf.0000126273.27123.33" target="_blank" rel="noreferrer">10.1097/01.inf.0000126273.27123.33</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Antiviral Agents/therapeutic use
Backlog
Databases
Factual
Fergie J
Hospitalization
Human
Humans
Infant
Intensive Care Units
Journal Article
Length Of Stay
Mechanical
Medical Records
Newborn
Pediatrics
Premature
Purcell K
Respiratory Syncytial Virus
Respiratory Syncytial Virus Infections/drug therapy/physiopathology/virology
Respiratory Tract Infections/drug therapy/physiopathology/virology
Ribavirin/therapeutic use
Risk Factors
Severity Of Illness Index
The Pediatric Infectious Disease Journal
Ventilators
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.3171/2009.1.PEDS08319" target="_blank" rel="noreferrer">http://doi.org/10.3171/2009.1.PEDS08319</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Effectiveness of ketamine in decreasing intracranial pressure in children with intracranial hypertension
Publisher
An entity responsible for making the resource available
Journal Of Neurosurgery. Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Humans; Male; Intensive Care Units; Prospective Studies; Israel; Respiratory Mechanics; adolescent; Preschool; infant; Blood Pressure/drug effects; Analgesics/administration & dosage/pharmacology; Brain/blood supply/drug effects; Cerebrovascular Circulation/drug effects; Intracranial Hypertension/drug therapy/prevention & control; Intracranial Pressure/drug effects; Ketamine/administration & dosage/pharmacology
Creator
An entity primarily responsible for making the resource
Bar-Joseph G; Guilburd Y; Tamir A; Guilburd JN
Description
An account of the resource
OBJECT: Deepening sedation is often needed in patients with intracranial hypertension. All widely used sedative and anesthetic agents (opioids, benzodiazepines, propofol, and barbiturates) decrease blood pressure and may therefore decrease cerebral perfusion pressure (CPP). Ketamine is a potent, safe, rapid-onset anesthetic agent that does not decrease blood pressure. However, ketamine's use in patients with traumatic brain injury and intracranial hypertension is precluded because it is widely stated that it increases intracranial pressure (ICP). Based on anecdotal clinical experience, the authors hypothesized that ketamine does not increase-but may rather decrease-ICP. METHODS: The authors conducted a prospective, controlled, clinical trial of data obtained in a pediatric intensive care unit of a regional trauma center. All patients were sedated and mechanically ventilated prior to inclusion in the study. Children with sustained, elevated ICP (> 18 mm Hg) resistant to first-tier therapies received a single ketamine dose (1-1.5 mg/kg) either to prevent further ICP increase during a potentially distressing intervention (Group 1) or as an additional measure to lower ICP (Group 2). Hemodynamic, ICP, and CPP values were recorded before ketamine administration, and repeated-measures analysis of variance was used to compare these values with those recorded every minute for 10 minutes following ketamine administration. RESULTS: The results of 82 ketamine administrations in 30 patients were analyzed. Overall, following ketamine administration, ICP decreased by 30% (from 25.8 +/- 8.4 to 18.0 +/- 8.5 mm Hg) (p 2 mm Hg during the distressing intervention in only 1 of 17 events. In Group 2, when ketamine was administered to lower persistent intracranial hypertension, ICP decreased by 33% (from 26.0 +/- 9.1 to 17.5 +/- 9.1 mm Hg) (p < 0.0001) following ketamine administration. CONCLUSIONS: In ventilation-treated patients with intracranial hypertension, ketamine effectively decreased ICP and prevented untoward ICP elevations during potentially distressing interventions, without lowering blood pressure and CPP. These results refute the notion that ketamine increases ICP. Ketamine is a safe and effective drug for patients with traumatic brain injury and intracranial hypertension, and it can possibly be used safely in trauma emergency situations.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3171/2009.1.PEDS08319" target="_blank" rel="noreferrer">10.3171/2009.1.PEDS08319</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent
Analgesics/administration & dosage/pharmacology
Backlog
Bar-Joseph G
Blood Pressure/drug effects
Brain/blood supply/drug effects
Cerebrovascular Circulation/drug effects
Child
Guilburd JN
Guilburd Y
Humans
Infant
Intensive Care Units
Intracranial Hypertension/drug therapy/prevention & control
Intracranial Pressure/drug effects
Israel
Journal Article
Journal Of Neurosurgery. Pediatrics
Ketamine/administration & dosage/pharmacology
Male
Preschool
Prospective Studies
Respiratory Mechanics
Tamir A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
June 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2022 List
URL Address
<a href="https://www.sciencedirect.com/science/article/pii/S0021755723000311?via%3Dihub">https://www.sciencedirect.com/science/article/pii/S0021755723000311?via%3Dihub</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End-of-life care in Brazilian Pediatric Intensive Care Units
Publisher
An entity responsible for making the resource available
The Journal of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
End-of-life care; Palliative care; Terminal Care; Intensive Care Units; Terminal care; Biomedical ethics; Pediatric intensive care units
Creator
An entity primarily responsible for making the resource
Sousa ITE; Cruz CT; Soares Lcdc; van Leeuwen G; Garros D
Description
An account of the resource
OBJECTIVE: Most deaths in Pediatric Intensive Care Units involve forgoing life-sustaining treatment. Such deaths required carefully planned end-of-life care built on compassion and focused on palliative care measures. This study aims to assess topics related to the end of life care in Brazilian pediatric intensive care units from the perspective of a multidisciplinary team. METHOD: The authors used a tested questionnaire, utilizing Likert-style and open-ended questions. After ethics committee approval, it was sent by email from September to November/2019 to three Pediatric Intensive Care Units in the South and Southeast of Brazil. One unit was exclusively dedicated to oncology patients; the others were mixed units. RESULTS: From 144 surveys collected (23% response rate) 136 were analyzed, with 35% physicians, 30% nurses, 21% nurse technicians, and 14% physiotherapists responding. Overall, only 12% reported enough end-of-life care training and 40% reported never having had any, albeit this was not associated with the physician's confidence in forgoing life-sustaining treatment. Furthermore, 60% of physicians and 46% of other professionals were more comfortable with non-escalation than withdrawing therapies, even if this could prolong suffering. All physicians were uncomfortable with palliative extubation; 15% of all professionals have witnessed it. The oncologic team uniquely felt that "resistance from the teams of specialists" was the main barrier to end-of-life care implementation. CONCLUSION: Most professionals felt unprepared to forego life-sustaining treatment. Even for terminally ill patients, withholding is preferred over the withdrawal of treatment. Socio-cultural barriers and the lack of adequate training may be contributing to insecurity in the care of terminally ill patients, diverging from practices in other countries.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Identifier
An unambiguous reference to the resource within a given context
<a href="https://www.sciencedirect.com/science/article/pii/S0021755723000311?via%3Dihub">10.1016/j.jped.2023.02.003</a>
2023
Biomedical ethics
Cruz CT
End-of-life Care
Garros D
Intensive Care Units
June 2022 List
Palliative Care
Pediatric Intensive Care Units
Soares Lcdc
Sousa ITE
Terminal Care
The Journal Of Pediatrics
van Leeuwen G