Browse Items (76 total)
- Tags: Infant Newborn
Advance Care Planning and Parent-Reported End-of-Life Outcomes in the Neonatal Intensive Care Unit
Tags: 2023, Advance Care Planning, American Journal of Perinatology, Article, Child, Cummings C, Decision Making, DeCourcey DD, Expectation, Human, Infant, Infant Newborn, July List 2023, Lin M, Neonatal Intensive Care Unit, outcome assessment, rank sum test, Satisfaction, Sayeed S, shared decision making, Vitcov G, Williams D, Wolfe J
Advance Care Planning: Outpatient Antenatal Palliative Care Consultation
Tags: 2017, Adult, Advance Care Planning/organization & Administration, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Female, Humans, Infant Newborn, March 2017 List, Outpatients, Palliative Care/organization & Administration, Pregnancy, Prenatal Care/organization & Administration, Referral And Consultation
An Evidence-based Infant Safe Sleep Program To Reduce Sudden Unexplained Infant Deaths
An Order Protocol For Respiratory Distress/acute Pain Crisis In Pediatric Palliative Care Patients: Medical And Nursing Staff Perceptions
An order protocol for distress (OPD), including respiratory distress and acute pain crisis, has been established for pediatric palliative care patients at Sainte-Justine Hospital (SJH). After discussion with the patient/his or her family,…
Tags: 2016, Acute Pain/therapy, Adolescent, Adult, Advance Directives, Aged, Attitude Of Health Personnel, Bidet G, Canada, Child, Child Preschool, Daoust L, Ducruet T, Duval M, Female, Humans, Humbert N, Infant, Infant Newborn, Journal of Palliative Medicine, Male, March 2016 List, Medical Staff Hospital/psychology, Middle Aged, Nursing Staff Hospital/psychology, Palliative Care/standards, Pediatric Nursing/standards, Practice Guidelines As Topic, Respiratory Distress Syndrome Adult/therapy, Surveys And Questionnaires, Toledano B, Young Adult
Antenatal Palliative Care Consultation: Implications For Decision-making And Perinatal Outcomes In A Single-centre Experience
Tags: 2017, Adult, Archives of Disease in Childhood. Fetal and Neonatal Edition, Decision Making, Female, Follow-up Studies, Gollehon N, Humans, Infant Newborn, Kukora S, Laventhal N, Male, March 2017 List, Palliative Care/methods, Pregnancy, Pregnancy Outcome, Prenatal Care/methods, Referral And Consultation/organization & Administration, Retrospective Studies, Young Adult
Associations between Music Therapy, Pain and Heart Rate for Children Receiving Palliative Care
Tags: 2023, Bernard A, Bradford N, Child, Child Preschool, Confidence Intervals, Convenience Sample, Delaney AM, Descriptive Statistics, Female, Heart Rate, Herbert AR, Human, In Infancy and Childhood, Infant, Infant Newborn, July List 2023, Male, Multimethod Studies, Music Therapy, Music Therapy Perspectives, Only Child, Pain, Palliative Care, Pediatric Care, Pretest-Posttest Design, Prevention and Control, Psychosocial Factors, Purposive Sample, Quality Of Life, scales, Summated Rating Scaling, Thematic Analysis, Therapy
Caring For Premature Life And Death: The Relational Dynamics Of Detachment In A Nicu
Characteristics of Critically Ill Infants at the End of Life in the Neonatal Intensive Care Unit
Tags: 2023, Aged, Baughcum AE, Child, Cistone N, Critical Illness, Death, Female, Fortney CA, Garcia D, Gerhardt CA, Humans, Humphrey L, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Journal of Palliative Medicine, July List 2023, Keim MC, Male, Moscato EL, Nelin LD, Palliative Care, Retrospective Studies, Winning AM
Children with life-shortening conditions are denied the support they need, says charity
Consultation of Parents in Actual End-Of-Life Decision-Making in Neonates and Infants
Tags: 2006, Belgium, Bilsen J, Cools F, Critical Illness/th [therapy], Decision Making, Deconinck P, Deliens L, Deschepper R, European Journal of Pediatrics, Gestational Age, Humans, Infant, Infant Newborn, January 2018 List, Life Support Care/px [Psychology], Medical Futility/px [Psychology], Mortier F, Parents/px [psychology], Physician-patient Relations, Provoost V, Ramet J, Retrospective Studies, Surveys And Questionnaires, Terminal Care, Terminal Care/px [psychology], Vandenplas Y, Withholding Treatment
Context of a neonatal death affects parental perception of end-of-life care, anxiety and depression in the first year of bereavement
Tags: 2023, anxiety, Bereavement, BMC Palliative Care, Cambonie G, Combes C, de Balanda KB, Depression, Desage C, Female, Gavotto A, Humans, Infant, Infant Newborn, July List 2023, Lemaitre A, Parents/px [psychology], Perception, Perinatal Death, Prospective Studies, Terminal Care, Terminal Care/px [psychology], Thaller P
Coronavirus Disease-19 Deaths among Children and Adolescents in an Area of Northeast, Brazil: Why So Many?
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adolescents, Age Distribution, Brazil/epidemiology, Child, Child Preschool, Children, Comorbidity, COVID-19, COVID-19/mortality, Cristina FLD, Cristina FVS, de Siqueira ALA, deaths, Eduardo CL, Female, Hospitalization/statistics & numerical data, Humans, Infant, Infant Newborn, Intensive Care Units, Lima SPR, Male, Mortality, Queiroz GR, Santana SV, Tropical Medicine & International Health
Data-driven approach to understanding neonatal palliative care needs in England and Wales: a population-based study 2015-2020
Tags: 2023, Archives of Disease in Childhood, Article, Battersby C, England, Female, Harnden F, Human, Infant, Infant Newborn, Lanoue J, long term survival, Major Clinical Study, Male, May List 2023, Modi N, Morbidity, Neonatology, Newborn, Newborn Care, Palliative Care, Palliative Therapy, Perinatal Care, Uthaya SN, Wales
Developing A Perinatal Memory-making Program At A Children's Hospital
Tags: 2014, American journal of maternal/child nursing, Child Health, Female, Fornehed ML, Hospice Care/methods, Hospice Care/psychology, Hospitals, Humans, Infant Newborn, Lindley LC, March 2016 List, Memory, Miller LH, Mixer SJ, Niederhauser VP., Perinatal Death, Postnatal Care/psychology, Pregnancy
Differences in palliative opportunities across diagnosis groups in children with cancer.
Tags: 2023, 2023 SE3 - Oncology, Adolescent, Allen KE, Brock KE, Castellino SM, Child, Child Preschool, Clinical Trials Phase I as Topic, DeGroote NP, Ebelhar J, Humans, Infant, Infant Newborn, Labudde E, Leukemia, Lymphoma, Massie AM, Neoplasms/therapy, Only Child, Palliative Care, Pediatric Blood and Cancer, Quality Of Life, Recurrence, Retrospective Studies, Terminal Care/psychology, Wasilewski-Masker K
Empathic Care of Neonates: A Critical Literature Review
End-of- Life Decision-making For Newborns: A 12-year Experience In Hong Kong. Archives Of Disease In Childhood Fetal & Neonatal Edition
Neonatal end-of-life decisions could be influenced by cultural and ethnic backgrounds. These practices have been well described in the West but have not been systematically studied in an Asian population.
OBJECTIVES
To determine: (1)…
Tags: 2016, April 2016 List, Archives of Disease in Childhood, Cause Of Death, Chan LC, Cheung HM, Decision Making, Ethics, Female, Hong Kong, Humans, Infant, Infant Mortality/trends, Infant Newborn, Lam HS, Ma TP, Male, Ng PC, Palliative Care, Poon TC, Retrospective Studies, Terminal Care/trends, Withholding Treatment/trends
End-of-Life Decision-Making in Pediatric and Neonatal Intensive Care Units in Croatia-A Focus Group Study among Nurses and Physicians
Tags: 2022, Adult, April 2022 List, Borovecki A, Brajkovic L, Child, Critical Care, Croatia, Curkovic M, Death, Decision Making, end-of-life, Filipovic-Grcic B, Focus Groups, Humans, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Lah Tomulic K, Medicina (Kaunas), Mestrovic J, Neonatal Intensive Care Unit, Nevajdic B, Novak M, Nurses, Pediatric Intensive Care Unit, Peter B, Physicians, Rubic F, Terminal Care
Ethical Considerations in Critically Ill Neonatal and Pediatric Patients
Ethical decision making in neonatal units--the normative significance of vitality
Tags: 2001, Brinchmann BS, Decision Making, Ethics Medical, Euthanasia/px [Psychology], Female, Humans, Infant Mortality, Infant Newborn, Infant Premature, Infant Premature Diseases, Intensive Care Neonatal/st [standards], January 2018 List, Male, Medical Futility, Medicine, Health Care & Philosophy, Nortvedt P, Norway, Parents/px [psychology], Physician's Role, Qualitative Research
Ethical Dilemmas in Neonatal Care at the Limit of Viability
Ethical Issues In Neonatal Intensive Care Units.
Ethics at the end of life in the newborn intensive care unit: Conversations and decisions
Tags: 2023, active euthanasia, Artificial Ventilation, Bioethics, Controlled Study, Conversation, Critically Ill Patient, Decision Making, Ethics, Gillam L, Human, Hydration, hypoxic ischemic encephalopathy, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, July List 2023, Mercurio MR, Neonatal Intensive Care Unit, Neonatologist, Newborn, Nutrition, Resuscitation, Review, Seminars in Fetal and Neonatal Medicine, Treatment Withdrawal
Evidence For Implementation Strategies To Provide Palliative Care In The Neonatal Intensive Care Unit.
Palliative care is a holistic framework that is designed to improve quality of life by identifying and treating distressing symptoms of life-threatening or complex conditions. Neonatal palliative care (NPC) has potential benefits for…
Tags: 2016, Advances in Neonatal Care, Attitude Of Health Personnel, Clinical Protocols, Evidence-based Practice, Gephart S, Hospice And Palliative Care Nursing/education, Humans, Infant Newborn, Intensive Care Units Neonatal, Neonatal Nursing/education, Neonatal Nursing/methods, October 2016 List, Palliative Care/methods, Patient Care Team, Quinn M
Experiences In Palliative Home Care Of Infants With Life-limiting Conditions.
The aim of this study was to determine the distinct issues neonates/infants with life-limiting conditions and their families face during palliative home care and to enable physicians/caregivers to carefully address their needs. Data on…
Tags: 2015, Borkhardt A, Caregivers, December 2016 List, European Journal of Pediatrics, Female, Germany, Höll J, Home Care, Home Care Services/statistics & Numerical Data, Hospitals Pediatric, Humans, Infant, Infant Mortality, Infant Newborn, Infants, Jansen G, Kuhlen M, Life-limiting Conditions, Male, Neonates, Palliative Care, Palliative Care/statistics & Numerical Data, Patient Comfort/statistics & Numerical Data, Sabir H, Terminal Care/statistics & Numerical Data
Experiences of healthcare personnel with death in the neonatal intensive care unit: a systematic review of qualitative studies
Exploring perinatal death with midwifery students' using a collaborative art project
Tags: 2017, Affective Learning, Artist, Atkinson S, August 2017 List, Barry M, Bradshaw C, Brett M, Collaborative Artwork, Education Nursing, Female, Grief, Humans, Infant Newborn, Ireland, Midwifery Students, Midwifery/ Education, Mothers/psychology, New C, Noonan M, Nurse Education Today, Parents, Perinatal Death, Pregnancy, Quinn C, Students Nursing
Extremely Premature Birth And The Choice Of Neonatal Intensive Care Versus Palliative Comfort Care: An 18-year Single- Center Experience.
Review all live births 22 0/7 through 26 6/7 weeks gestation born 1996 through 2013 at our institution to describe the decision process and immediate outcomes of palliative comfort care (PCC) versus neonatal intensive care (NICU) and…
Tags: 2016, Adult, Counseling, Decision Making, Female, Gestational Age, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Kaempf JW, March 2016 List, Oregon, Palliative Care/organization & Administration, Perinatal Care/ethics, Perinatal Care/methods, Pregnancy, Premature Birth/nursing, Resuscitation, Retrospective Studies, Tomlinson MW, Tuohey J, Young Adult
Factors Influencing The Uptake Of Neonatal Bereavement Support Services – Findings From Two Tertiary Neonatal Centres In The Uk
Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing factors.
Method
The medical…
Tags: 2016, Autopsy, Bereavement, Bereavement Follow Up, BMC Palliative Care, Charanjit Kaur, Death, England, Ethnicity, Female, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal, Jayanta Banerjee, June 2016 List, Male, Narendra Aladangady, Neonatal, Parents/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Perinatal Care/utilization, Rahul Roy, Referral And Consultation/utilization, Social Support, Socio-economic, Socioeconomic Factors, Sridhar Ramaiah, Stillbirth/psychology
Family Conferences In The Neonatal Icu: Observation Of Communication Dynamics And Contributions.
OBJECTIVES:
Clinicians in the neonatal ICU must engage in clear and compassionate communication with families. Empirical, observational studies of neonatal ICU family conferences are needed to develop counseling best practices and to train…
Tags: 2016, Arnold RM, Boss RD, Communication, Critical Illness/psychology, December 2016 List, Decision Making, Donohue PK, Empathy, Female, Humans, Infant Newborn, Intensive Care Units Neonatal, Larson SM, Male, Parents/psychology, Pediatric Critical Care Medicine, Professional-family Relations, Qualitative Research, Roter DL, Terminal Care/psychology
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Identifying the Know-Do Gap in Evidence-Based Neonatal Care Practices among Informal Health Care Providers-A Cross-Sectional Study from Ujjain, India
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adult, Baghel SS, BMC Health Services Research, Clinical Competence, Cross-sectional Studies, Diwan V, Evidence-based Practice, Health Personnel/psychology/statistics & numerical data, Humans, India, Infant Care, Infant Newborn, Informal healthcare providers, Knowledge, Lundborg CS, Middle Aged, Mungai IG, Neonatal Care, Pathak A, Sharma M, Soni S, Tamhankar AJ, Vagela S
Impact Of A Palliative Care Program On End-of- Life Care In A Neonatal Intensive Care Unit.
Evaluate changes in end-of-life care following initiation of a palliative care program in a neonatal intensive care unit.
STUDY DESIGN:
Retrospective study comparing infant deaths before and after implementation of a Palliative Care…
Tags: 2016, Benzodiazepines/therapeutic Use, Brandon D, Cause Of Death, Cotten CM, Female, Goldberg RN, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Male, March 2016 List, Morphine/therapeutic Use, Palliative Care, Resuscitation Orders, Retrospective Studies, Simmons C, Smith PB, Terminal Care, Withholding Treatment/trends, Younge N
Impact of research participation on parents of seriously ill children.
Tags: 2014, Adolescent, Adult, Andrews GS, Biomedical Research, Cadell S, Charting the territory, Child, Child Health Services, Child Preschool, Feichtinger L, Female, Humans, Infant, Infant Newborn, Journal of Palliative Medicine, Male, Middle Aged, Palliative Care, Parents/psychology, Severity Of Illness Index, Siden H, Smit QT, Steele R, Surveys And Questionnaires, Young Adult
Integrating a Palliative Approach into the Healthcare provided by the French-African Pediatric Oncology Group's Pilot Units. Insights from a 3-year Training Program
Tags: 2021, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Africa, Archives de Pediatrie, Aubier F, Calmanti S, Child, Child Preschool, Doucot MS, Edan C, Education Medical Continuing/methods/organization & administration, France, French-speaking Africa, Gagnepain-Lacheteau A, Hessissen L, Humans, Infant, Infant Newborn, International Cooperation, Medical Oncology/education, Moreira C, Oncology, Pain Management, Palliative Care, Patient Care Team, Patte C, Pediatrics, Pediatrics/education, Poulain P, Thinlot C, Training, Viallard ML, Yao AJJ
Living With Loss: Study Protocol for a Randomized Controlled Trial Evaluating an Internet-Based Perinatal Bereavement Program for Parents Following Stillbirth and Neonatal Death
Tags: 2022, April List 2023, Astell C, Australia, Bereavement, Boyle FM, Callander E, Clinical Trials, Crocker S, Dean J, Ellwood D, Female, Flenady V, Grief, Horey D, Infant Newborn, Internet, Jackson C, Lancaster A, Loughnan SA, Male, Parents, Perinatal Death, Pregnancy, Prevention and Control, Psychosocial Factors, Quality Of Life, scales, Shand A, Trials
Location of death among children with life-threatening conditions: a national population-based observational study using the Canadian Vital Statistics Database (2008-2014)
Methadone Conversion In Infants
And Children: Retrospective Cohort Study Of 199 Pediatric Inpatients.
Methadone administration has increased in pediatric clinical settings. This review is an attempt to ascertain an equianalgesic dose ratio for methadone in the pediatric population using standard adult dose conversion…
Tags: 2016, Administration Oral, Adolescent, Age Factors, Analgesics Opioid, Analgesics Opioid/administration & Dosage, Analgesics Opioid/adverse Effects, Child, Child Preschool, Consciousness/drug Effects, Drug Administration Schedule, Drug Dosage Calculations, Drug Monitoring, Drug Overdose/etiology, Drug Substitution, Fife A, Flood A, Friedrichsdorf SJ, Hospitals Pediatric, Humans, Infant, Infant Newborn, Inpatients, Intubation Intratracheal, Journal of opioid management, May 2016 List, Methadone, Methadone/administration & Dosage, Methadone/adverse Effects, Minnesota, Pain/diagnosis, Pain/drug Therapy, Pharmacy Service Hospital, Postier A, Respiration Artificial, Retrospective Studies, Risk Factors, Substance Withdrawal Syndrome/etiology, Substances, Tertiary Care Centers, Time Factors, Treatment Outcome
More Than Medication: Perinatal Palliative Care
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Decision Making/ethics, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal, Maternal-fetal Relations/psychology, November 2016 List, Palliative Care/ethics, Palliative Care/legislation & Jurisprudence, Palliative Care/psychology, Parental Consent/ethics, Parental Consent/legislation & Jurisprudence, Parental Consent/psychology, Patient Rights/ethics, Patient Rights/legislation & Jurisprudence, Perinatal Care/ethics, Perinatal Care/legislation & Jurisprudence, Perinatal Care/standards, Personhood, Professional-family Relations, Resuscitation Orders/ethics, Resuscitation Orders/legislation & Jurisprudence, Resuscitation Orders/psychology
Mortality trends for pediatric life-threatening conditions.
Tags: 2014, Adolescent, British Columbia, Cause Of Death, Chavoshi N, Child, Child Mortality/trends, Child Preschool, Female, Hospice, Hospice Care/statistics & Numerical Data, Humans, Illness, Infant, Infant Newborn, Life-threatening Conditions, Male, Miller T, Mortality, Palliative, Palliative Care/statistics & Numerical Data, Pediatric, Pediatrics, Siden H, The American Journal of Hospice & Palliative Care