Browse Items (734 total)
- Tags: Infant
Concurrent validity of the Functional Independence Measure for Children (WeeFIM) and the Pediatric Evaluation of Disabilities Inventory in children with developmental disabilities and acquired brain injuries
Tags: 2001, Astbury W, Backlog, Brain Injuries, Child, Developmental Disabilities, Disability Evaluation, Disabled Children, Female, Foreman S, Health Status Indicators, Humans, Infant, Ireland P, Journal Article, Male, Ottenbacher KJ, PEDI Study, Physical & Occupational Therapy In Pediatrics, Preschool, Psychometrics, Shephard K, Spinal Dysraphism, Ziviani J
Patterns of paediatric end-of-life care: A chart review across different care settings in Switzerland
Tags: 103-90-2 (paracetamol), 2018, Adolescent, Aebi C, Ansari M, Article, Baer R, Bergstraesser E, Bernet V, Bmc Pediatrics, Brazzola P, Bucher HU, Buder R, Cagnazzo S, Cardiology, Cause Of Death, Child, Child Care, Child Death, Cignacco E, Cohort Analysis, community care, Dinten B, Dorsaz A, Drug Use, Elmer F, Engberg S, Enriquez R, Eskola K, Fahrni-Nater P, Female, Finkbeiner G, Frey B, Frey U, Greiner J, Hassink RI, Health Care Utilization, Home Care, Hospital Admission, Human, Infant, Intensive Care Unit, invasive procedure, Keller S, Kretschmar O, Kroell J, Laubscher B, Leibundgut K, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Malaer R, Male, Medical Record Review, Meyer A, narcotic analgesic agent, Nelle M, Neonatology, Neuhaus T, Neurology, Newborn, Niggli F, October 2018 List, Oncology, Paracetamol, Perrenoud G, Pfammatter JP, Plecko B, Popovic MB, Ramelet AS, Resuscitation, Retrospective Study, Rupf D, Sennhauser F, September 2018 List, Stade C, Steinlin M, Stoffel L, Stuessi C, Switzerland, Terminal Care, Thomas K, Treatment Withdrawal, Von der Weid N, von Vigier R, Vonarburg C, Wagner B, Wernz B, Wieland J, Zimmermann K
Pediatric Palliative Care for Children with Cancer in a Children's Tertiary Hospital in China: Six-Year Experience of a Pediatric Palliative Care Service
Childhood idiopathic thrombocytopenic purpura in the Nordic countries: epidemiology and predictors of chronic disease
Tags: 2005, Acta Paediatrica, Acute Disease/epidemiology, Adolescent, Backlog, Child, Chronic Disease/epidemiology, Female, Finland/epidemiology, Hedlund-Treutiger I, Hemorrhage/epidemiology/etiology, Henter JI, Humans, Iceland/epidemiology, Idiopathic/complications/diagnosis/epidemiology, Incidence, Infant, Jonsson OG, Journal Article, Male, Newborn, Nonparametric, NOPHO ITP, Preschool, Prognosis, Prospective Studies, Purpura, Rajantie J, Risk Factors, Scandinavia/epidemiology, Statistics, Tedgard U, Thrombocytopenic, Wesenberg F, Zeller B
Palliative care of children with brain tumors: a parental perspective
Tags: 2010, Activities of Daily Living, Adaptation, Adolescent, Adult, Archives Of Pediatrics & Adolescent Medicine, Attitude To Death, Attitudes, Backlog, Bannister SL, Brain Neoplasms, Cairney A, Cataudella D, Child, Elizabeth L, Female, Focus Groups, Health Knowledge, home care services, Humans, Infant, Journal Article, Male, Middle Aged, Palliative Care, Parents, PEDI Study, Practice, Preschool, Psychological, Qualitative Research, Spirituality, Young Adult, Zelcer S
Modern approach to children with osteogenesis imperfecta
Tags: 2003, Backlog, Biopsy, Bone Density/physiology, Child, Clodronate, Combined Modality Therapy, Diphosphonates/therapeutic use, Fassier F, Female, Glorieux FH, Humans, Immunohistochemistry, Infant, Journal Article, Journal Of Pediatric Orthopaedics. Part B / European Paediatric Orthopaedic Society, Pediatric Orthopaedic Society Of North America, Male, Needle, Orthopedic Fixation Devices, Orthopedic Procedures/instrumentation/methods, Osteogenesis Imperfecta/pathology/therapy, Physical Therapy Modalities, Preschool, Prognosis, Risk Assessment, Severity Of Illness Index, Treatment Outcome, Zeitlin L
A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment
Tags: 2004, Adolescent, Analgesics/administration & dosage, Backlog, Child, DeVita MA, Euthanasia, Female, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Neuromuscular Blockade, Palliative Care, Parents/psychology, Passive, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Retrospective Studies, Time Factors, Zawistowski CA
Acute onset of X-linked adrenoleukodystrophy mimicking encephalitis
Tags: 1994, Acute Disease, Adrenoleukodystrophy/diagnosis/drug therapy/genetics, Backlog, Brain & Development, Diagnosis, Differential, Donati MA, Encephalitis/diagnosis, Erucic Acids/therapeutic use, Fanelli F, Fatty Acids/blood, Fonda C, Humans, Infant, Journal Article, Linkage (Genetics), Male, Pazzaglia R, Q3 Scoping Review Results, Tomography, Tucci F, X Chromosome, X-Ray Computed, Zammarchi E
Vulnerability and Agency across Treatment-Seeking Journeys for Acutely Ill Children: How Family Members Navigate Complex Healthcare Before, During and After Hospitalisation in A Rural Kenyan Setting
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Acute Disease, Adult, agency, Berkley JA, Caregivers, Charo A, Child Health, Child Mortality, Child Preschool, Childhood acute illness, Cohort Studies, Continuity Of Patient Care, Delivery of Health Care/standards, Family, Family Characteristics, Female, Health Facilities, Hospitalization, Humans, Infant, International Journal for Equity in Health, Kelley M, Kenya/epidemiology, Kimani MN, Male, Marsh V, Molyneux S, Muraya K, Njeru RW, Prospective Studies, Qualitative Research, Rural Population, Sanga G, Sarma H, Social Support, Treatment-seeking, Uddin MF, VULNERABILITY, Vulnerable Populations, Walson JL, Zakayo SM
Sleep disordered breathing in a cohort of children with achondroplasia: correlation between clinical and instrumental findings
Tags: 2017, achondroplasia, Achondroplasia/co [Complications], Achondroplasia/ge [Genetics], Age Factors, Antoniazzi F, Cantalupo G, characteristics, Child, Child Preschool, Cohort Studies, EC 2-7-10-1 (FGFR3 protein human), EC 2-7-10-1 (Receptor Fibroblast Growth Factor Type 3), feeding difficulties, Female, Gasperi E, Humans, Incidence, Infant, Lo Tartaro P, Male, Minerva Pediatrica, Piacentini G, Polysomnography/mt [Methods], Receptor Fibroblast Growth Factor Type 3/ge [Genetics], respiratory sleep disorder, Sleep Apnea Syndromes/di [Diagnosis], Sleep Apnea Syndromes/ep [Epidemiology], Sleep Apnea Syndromes/et [Etiology], Surveys And Questionnaires, Trajectory, Zaffanello M
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Impact Of A Palliative Care Program On End-of- Life Care In A Neonatal Intensive Care Unit.
Evaluate changes in end-of-life care following initiation of a palliative care program in a neonatal intensive care unit.
STUDY DESIGN:
Retrospective study comparing infant deaths before and after implementation of a Palliative Care…
Tags: 2016, Benzodiazepines/therapeutic Use, Brandon D, Cause Of Death, Cotten CM, Female, Goldberg RN, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Male, March 2016 List, Morphine/therapeutic Use, Palliative Care, Resuscitation Orders, Retrospective Studies, Simmons C, Smith PB, Terminal Care, Withholding Treatment/trends, Younge N
Evaluation of heart murmurs in children: cost-effectiveness and practical implications
Tags: 2002, Adolescent, Backlog, Cardiology/economics, Child, Child welfare, Comparative Study, Cost-Benefit Analysis/economics, Decision Support Techniques, Echocardiography/economics, Electrocardiography/economics, Heart Murmurs/diagnosis/economics/epidemiology, Humans, Infant, Infant Welfare, Journal Article, Kimball TR, Kotagal UR, Mrus JM, Newborn, Non-U.S. Gov't, Pediatrics/economics, Preschool, Prevalence, Radiography, Referral and Consultation/economics, Research Support, Sensitivity and Specificity, The Journal Of Pediatrics, Thoracic/economics, Tsevat J, Yi MS
Adaptational process of parents of pediatric oncology patients
Tags: 2000, Adaptation, Adolescent, Adult, Aged, Backlog, Caregivers/psychology, Chen ML, Child, Data Collection, Family Health, Family Relations, Female, Humans, Infant, Journal Article, Lee TT, Li W, Male, Middle Aged, Neoplasms/psychology, Non-U.S. Gov't, Parents/psychology, Pediatric Hematology And Oncology, Preschool, Psychological, Religion, Research Support, Social Support, Stress, Taiwan/ethnology, Yeh CH
Doing our best and doing no harm: A focused ethnography of staff moral experiences of providing palliative care at a Médecins Sans Frontières pediatric hospital in Cox's Bazar, Bangladesh
Age-dependent change in behavioral feature in Rubinstein-Taybi syndrome
Tags: 2012, Adolescent, Adult, Age, Aggression, aggressive behavior, anxiety, Behavior, behavioral problems, characteristics, Child, Congenital Anomalies, Depression, Factors, Female, Humans, Infant, Kosaki K, Kosaki R, Kurosawa K, Male, Mizuno S, Okamoto N, Preschool, Rubinstein-Taybi Syndrome, Rubinstein-Taybi Syndrome/di [Diagnosis], Sato Y, Surveys And Questionnaires, Takahashi T, Trajectory, Yagihashi T, Young Adult
Delivery Room Deaths Of Extremely Preterm Babies: An Observational Study
Many extremely preterm neonates die in the delivery room (DR) after decisions to withhold or withdraw life-sustaining treatments or after failed resuscitation. Specific palliative care is then recommended but sparse data exist about the…
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, August 2016 List, Birth, Challenge, Comfort Care, Death, Decision Making, Delivery Room, Delivery Rooms, Dying, Epipage-2, Extreme Prematurity, Infant, Management, Palliative Care, Pediatrics, Perinatal Palliative Care, Perspectives, Weeks Gestation, X Durrmeyer
Natural history of trisomy 13
Tags: 1994, Adult, Archives of Disease in Childhood, Backlog, Burn J, Chromosomes, Congenital/diagnosis/genetics/mortality, England/epidemiology, Female, Fetal Diseases/diagnosis, Heart Defects, Human, Humans, Hunter S, Incidence, Infant, Journal Article, Longitudinal Studies, Male, Neural Tube Defects/diagnosis/genetics/mortality, Newborn, Pair 13, Pregnancy, Prenatal Diagnosis, Syndrome, Trisomy, Wright MJ, Wyllie JP
Pediatric organ donation and transplantation
Use of methadone in the morphine-tolerant burned paediatric patient
Death in the neonatal intensive care unit: changing patterns of end of life care over two decades
Tags: 2006, Archives of Disease in Childhood. Fetal and Neonatal Edition, Backlog, Campbell NT, Cause of Death/trends, Chromosome Aberrations, Dargaville PA, Diseases/mortality, Fitzsimons JJ, Hospital Mortality/trends, Humans, Infant, Infant Mortality/trends, Intensive Care, Intensive Care Units, Journal Article, Loughnan PM, McDougall PN, Medical Audit, Mills JF, Neonatal/trends, Neural Tube Defects/mortality, Newborn, Premature, Prognosis, Terminal Care/trends, Victoria/epidemiology, Wilkinson DJ, Withholding Treatment/trends
Ethical Dilemmas In Postnatal Treatment Of Severe Congenital Hydrocephalus.
Tags: 2016, Cambridge Quarterly of Healthcare Ethics, Children, Decision Making/ethics, Ethics Medical, Female, Humans, Hydrocephalus, Hydrocephalus/diagnosis, Hydrocephalus/therapy, Infant, Infant Premature, Intensive Care Neonatal/ethics, Male, May 2016 List, Medical Ethics, Medical Futility, Medical Futility/ethics, Neonatal Intensive Care Unit, Postnatal Care/ethics, Quality Of Life, Severity Of Illness Index, Ventriculoperitoneal Shunt/ethics, Wilkinson D, Withdrawing Treatment, Withholding Treatment/ethics
Morbidity and mortality in medium chain acyl coenzyme A dehydrogenase deficiency
Tags: 1994, Acyl-CoA Dehydrogenase, Adolescent, Archives of Disease in Childhood, Backlog, Child, Deficiency Diseases/epidemiology, Fatty Acid Desaturases/deficiency, Hammond J, Hemiplegia/complications, Humans, Inborn Errors/epidemiology/mortality, Incidence, Infant, Journal Article, Lipid Metabolism, Morbidity, New South Wales/epidemiology, Newborn, Preschool, Prognosis, Q3 Scoping Review Results, Silink M, Wilcken B
Parents of children diagnosed with cancer: work situation and sick leave, a five-year post end-of-treatment or a child's death follow-up study
Tags: 2016, Acta Oncologica, Adolescent, Adult, Bereavement, Cernvall M, Child, Child Preschool, Fathers/psychology/statistics & numerical data, Female, Follow-up Studies, Hoven E, Humans, Infant, Infant Newborn, Ljungman G, Ljungman L, Male, Mothers/psychology/statistics & numerical data, Neoplasms/economics/mortality/psychology/therapy, Oncology 2018 List, Sick Leave/statistics & numerical data, Survival Rate, Survivors, Sweden, Treatment Outcome, von Essen L, Wikman A
Cultural and religious considerations in pediatric palliative care
Pediatric patients receiving palliative care in Canada: results of a multicenter review
Tags: 2007, Archives Of Pediatrics & Adolescent Medicine, Backlog, Beaune L, Bishop M, Canada, Child, Congenital Abnormalities/mortality, Cross-sectional Studies, Daoust L, Davies D, Drouin DJ, Farran RP, Humans, Humbert N, Infant, Journal Article, Nalewajek F, Neoplasms/mortality, Nervous System Diseases/mortality, Palliative Care/utilization, Preschool, Rattray M, Retrospective Studies, Rugg M, Widger K
Gaining an Empathetic Insight into Parenting: Evaluating Infant Simulator Dolls for Professional Learning
Supporting the family after the death of a child.
Tags: 2012, Adolescent, AIM, Backlog, Child, Chronic Disease, Counseling, Death, Disabled Children, Grief, Guidelines As Topic, Guilt, HEALTH COMMITTEE ON PSYCHOSOCIAL ASPECTS OF CHILD AND FAMILY, Humans, IM, Infant, Journal Article, Mortality, Parenting, Parents, Pediatrics, Physician's Role, Premature, Preschool, Professional-family Relations, sibling bereavement, Siblings, Social Support, Substance-Related Disorders, Sudden, Sudden Infant Death, Suicide, Wender E
The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Africa Central, Africa Western, Bereavement, Child, Child Mortality, Child Preschool, Demography, Female, Humans, Infant, Infant Newborn, Intimate partner violence, Intimate Partner Violence/statistics & numerical data, Male, Marriage/statistics & numerical data, Middle Aged, Parents/psychology, Risk Factors, Smith-Greenaway E, Weitzman A, West and Central Africa, Young Adult
Integrating palliative care in pediatrics
Treatment of obstructive sleep apnea in achondroplasia: evaluation of sleep, breathing, and somatosensory-evoked potentials
Tags: 1995, achondroplasia, Achondroplasia/co [Complications], adenotonsillectomy, Adolescent, Adult Child, American Journal Of Medical Genetics, breathing difficulties, Child, CPAP, Everett F, Evoked Potentials, Fagan E R, Female, Humans, Infant, losing weight, Male, Middle Aged, physical interventions, Preschool, Respiration, respiratory disturbance index, Sillence D O, Sleep Apnea Syndromes/et [Etiology], Sleep Apnea Syndromes/th [Therapy], Sullivan C E, surgical interventions, Tonsillectomy, Waters K A, Weight Loss
Children with palliative care needs in Papua New Guinea, and perspectives from their parents and health care workers: a qualitative study
Tags: 2023, 2023 SE5 - Low Resource Setting, acute lymphoblastic leukemia/di [Diagnosis], Adolescent, Adult, Anga G, Article, BMC Palliative Care, bronchiectasis/di [Diagnosis], Cerebral Palsy/di [Diagnosis], Child, Child Health Care, Clinical Article, congenital heart disease/di [Diagnosis], congenital malformation/di [Diagnosis], Controlled Study, Descriptive Research, Duke T, dyspnea/co [Complication], Female, germ cell tumor/di [Diagnosis], Guillain Barre syndrome/di [Diagnosis], health care need, Health Care Personnel, Health Care Quality, hemosiderosis/di [Diagnosis], Human, Human immunodeficiency virus infection/di [Diagnosis], Infant, Interview, job experience, Kilalang C, knowledge gap, Male, malignant neoplasm/di [Diagnosis], Medical Record, Melanesia, neuroblastoma/di [Diagnosis], Only Child, Pacific Islands, Pain/co [complication], Palliative Care, Palliative Therapy, Papua New Guinea, Parent, pediatric ward, Preschool Child, pulmonary hypertension/di [Diagnosis], Pulsan F, Qualitative Research, retinoblastoma/di [Diagnosis], School Child, thalassemia/di [Diagnosis], Thematic Analysis, tuberculosis/di [Diagnosis], Vince JD, Watch V
Task force 1: the changing profile of congenital heart disease in adult life
Tags: 2001, Adolescent, Adolescent Transitions, Adult, Aged, Backlog, Child, Congenital/mortality/rehabilitation, Cross-sectional Studies, Danielson GK, Dore A, Female, Great Britain/epidemiology, Harris L, Heart Defects, Hoffman JI, Humans, Incidence, Infant, Journal Article, Journal of the American College of Cardiology, Liberthson R, Male, Middle Aged, Newborn, Patient Care Team, Preschool, Prognosis, Somerville J, Survival Rate, United States/epidemiology, Warnes CA, Webb GD, Williams RG
Childhood and adolescent cancer statistics, 2014
Tags: 2014, Adolescent, American Cancer Society, Backlog, Ca: A Cancer Journal For Clinicians, Centers for Disease Control and Prevention (U.S.), Child, DeSantis C, Female, Humans, Incidence, Infant, Jemal A, Journal Article, Kohler B, Male, National Cancer Institute (U.S.), Neoplasms, Newborn, Preschool, Registries, Risk Factors, Robbins A, SEER Program, Survival Analysis, United States, Ward E, Young Adult
Empowerment through photo novella: portraits of participation
Tags: 1994, Adult, Asia, Backlog, Burris MA, Child, China, Communication, Community Participation, Comparative Study, Cross-cultural Comparison, Demographic Factors, Developing Countries, Eastern Asia, Economic Factors, Female, Films, Health Education, Health Education Quarterly, Health Policy/trends, Health Services Needs and Demand/trends, Humans, Infant, Journal Article, Life Style, Male, Mass Media, Non-U.S. Gov't, Organization And Administration, Photography, Population, Population Characteristics, Power (psychology), Preschool, Research Support, Rural Health/trends, Rural Population--women, Socioeconomic Factors, Summary Report, Wang C, Women's Health Services/trends, Women's Status
When paediatricians and families can't agree
Death in the intensive care nursery: physician practice of withdrawing and withholding life support
Tags: 1997, Backlog, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Life Support Systems, Medical Futility, Newborn, Partridge JC, Passive, Pediatric, Pediatrics, Quality Of Life, San Francisco, University of California, Very Low Birth Weight, Wall SN
A two-step multidisciplinary approach to treat recurrent esophageal strictures in children with epidermolysis bullosa dystrophica
Tags: 2015, Adolescent, Boschin M, Child, Child Preschool, Combined Modality Therapy, Dilatation/methods, Endoscopy, epidermolysis bullosa, Epidermolysis Bullosa Dystrophica/complications, Esophageal Stenosis/etiology/therapy, feeding difficulties, Female, Follow-up Studies, Frosch M, Gastrostomy, Gottschalk A, growth improvement, Hahnenkamp K, Humans, Infant, Laukoetter M, Male, Mennigen R, Nutrition, orthograde balloon dilation, Recurrence, retrograde dilation, Senninger N, surgical intervention, Treatment Outcome, Tubergen D, Vowinkel T
Congenital malformations of the central nervous system in a 1-year birth cohort followed to the age of 14 years
Tags: 1986, Abnormalities, Adolescent, Backlog, Central Nervous System/abnormalities, Child, Child's Nervous System, Disabled Persons, Follow-up Studies, Humans, Hydrocephalus/congenital, Infant, Journal Article, Meningomyelocele/diagnosis, Multiple/diagnosis, Newborn, Preschool, Q3 Scoping Review Results, Rantakallio P, von Wendt L