Browse Items (734 total)
- Tags: Infant
End-of- Life Decision-making For Newborns: A 12-year Experience In Hong Kong. Archives Of Disease In Childhood Fetal & Neonatal Edition
Neonatal end-of-life decisions could be influenced by cultural and ethnic backgrounds. These practices have been well described in the West but have not been systematically studied in an Asian population.
OBJECTIVES
To determine: (1)…
Tags: 2016, April 2016 List, Archives of Disease in Childhood, Cause Of Death, Chan LC, Cheung HM, Decision Making, Ethics, Female, Hong Kong, Humans, Infant, Infant Mortality/trends, Infant Newborn, Lam HS, Ma TP, Male, Ng PC, Palliative Care, Poon TC, Retrospective Studies, Terminal Care/trends, Withholding Treatment/trends
Delivery Room Deaths Of Extremely Preterm Babies: An Observational Study
Many extremely preterm neonates die in the delivery room (DR) after decisions to withhold or withdraw life-sustaining treatments or after failed resuscitation. Specific palliative care is then recommended but sparse data exist about the…
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, August 2016 List, Birth, Challenge, Comfort Care, Death, Decision Making, Delivery Room, Delivery Rooms, Dying, Epipage-2, Extreme Prematurity, Infant, Management, Palliative Care, Pediatrics, Perinatal Palliative Care, Perspectives, Weeks Gestation, X Durrmeyer
End of Life Care for Infants, Children and Young People with Life Limiting Conditions: Summary of Nice Guidance
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult
Opinions Of Paediatricians Who Teach Neonatal Resuscitation About Resuscitation Practices On Extremely Preterm Infants In The Delivery Room.
Objective To describe the opinions of paediatricians who teach resuscitation in Brazil regarding resuscitation practices in the delivery room (DR) of preterm infants with gestational ages of 23–26 weeks.
Methods Cross-sectional study with…
Tags: 2016, Attitudes, Biomedical, Born, Care And Treatment, Clinical Ethics, Cpr (first Aid), Decision Making, Decision-making, End Of Life, Ethical Aspects, Ethics, Ethics Medical, Health, Infant, Journal of Medical Ethics, July 2016 List, Management, Methods, Neonatology, Obstetricians, Perinatal Mortality, Practice Guidelines (medicine), Ruth Guinsburg, Social Issues, Social Sciences, Viability
Factors Influencing The Uptake Of Neonatal Bereavement Support Services – Findings From Two Tertiary Neonatal Centres In The Uk
Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing factors.
Method
The medical…
Tags: 2016, Autopsy, Bereavement, Bereavement Follow Up, BMC Palliative Care, Charanjit Kaur, Death, England, Ethnicity, Female, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal, Jayanta Banerjee, June 2016 List, Male, Narendra Aladangady, Neonatal, Parents/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Perinatal Care/utilization, Rahul Roy, Referral And Consultation/utilization, Social Support, Socio-economic, Socioeconomic Factors, Sridhar Ramaiah, Stillbirth/psychology
Trisomy 18: A Survey Of Opinions, Attitudes, And Practices Of Neonatologists
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
A Descriptive Report Of End-of-life Care Practices Occurring In Two Neonatal Intensive Care Units
In Canada and other developed countries, the majority of neonatal deaths occur in tertiary neonatal intensive care units. Most deaths occur following the withdrawal of life-sustaining treatments.
AIM:
To explore neonatal death events and…
Tags: 2016, Analgesics, Anesthesia, Death, Decision Making, End Of Life, End Of Life Care, Health Care Sciences & Services, Infant, Intensive Care, Journal of Palliative Medicine, Joynt C, Kain N, Lam V, March 2016 List, Medicine General & Internal, Neonatal, Neonatal Intensive Care Unit, Newborns, Nicu, Palliative Care, Patterns, Perspectives, Public Environmental & Occupational Health, Support Implementation, van Manen MA, Withdrawal
An Order Protocol For Respiratory Distress/acute Pain Crisis In Pediatric Palliative Care Patients: Medical And Nursing Staff Perceptions
An order protocol for distress (OPD), including respiratory distress and acute pain crisis, has been established for pediatric palliative care patients at Sainte-Justine Hospital (SJH). After discussion with the patient/his or her family,…
Tags: 2016, Acute Pain/therapy, Adolescent, Adult, Advance Directives, Aged, Attitude Of Health Personnel, Bidet G, Canada, Child, Child Preschool, Daoust L, Ducruet T, Duval M, Female, Humans, Humbert N, Infant, Infant Newborn, Journal of Palliative Medicine, Male, March 2016 List, Medical Staff Hospital/psychology, Middle Aged, Nursing Staff Hospital/psychology, Palliative Care/standards, Pediatric Nursing/standards, Practice Guidelines As Topic, Respiratory Distress Syndrome Adult/therapy, Surveys And Questionnaires, Toledano B, Young Adult
Impact Of A Palliative Care Program On End-of- Life Care In A Neonatal Intensive Care Unit.
Evaluate changes in end-of-life care following initiation of a palliative care program in a neonatal intensive care unit.
STUDY DESIGN:
Retrospective study comparing infant deaths before and after implementation of a Palliative Care…
Tags: 2016, Benzodiazepines/therapeutic Use, Brandon D, Cause Of Death, Cotten CM, Female, Goldberg RN, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Male, March 2016 List, Morphine/therapeutic Use, Palliative Care, Resuscitation Orders, Retrospective Studies, Simmons C, Smith PB, Terminal Care, Withholding Treatment/trends, Younge N
Ethical Dilemmas In Postnatal Treatment Of Severe Congenital Hydrocephalus.
Tags: 2016, Cambridge Quarterly of Healthcare Ethics, Children, Decision Making/ethics, Ethics Medical, Female, Humans, Hydrocephalus, Hydrocephalus/diagnosis, Hydrocephalus/therapy, Infant, Infant Premature, Intensive Care Neonatal/ethics, Male, May 2016 List, Medical Ethics, Medical Futility, Medical Futility/ethics, Neonatal Intensive Care Unit, Postnatal Care/ethics, Quality Of Life, Severity Of Illness Index, Ventriculoperitoneal Shunt/ethics, Wilkinson D, Withdrawing Treatment, Withholding Treatment/ethics
Methadone Conversion In Infants
And Children: Retrospective Cohort Study Of 199 Pediatric Inpatients.
Methadone administration has increased in pediatric clinical settings. This review is an attempt to ascertain an equianalgesic dose ratio for methadone in the pediatric population using standard adult dose conversion…
Tags: 2016, Administration Oral, Adolescent, Age Factors, Analgesics Opioid, Analgesics Opioid/administration & Dosage, Analgesics Opioid/adverse Effects, Child, Child Preschool, Consciousness/drug Effects, Drug Administration Schedule, Drug Dosage Calculations, Drug Monitoring, Drug Overdose/etiology, Drug Substitution, Fife A, Flood A, Friedrichsdorf SJ, Hospitals Pediatric, Humans, Infant, Infant Newborn, Inpatients, Intubation Intratracheal, Journal of opioid management, May 2016 List, Methadone, Methadone/administration & Dosage, Methadone/adverse Effects, Minnesota, Pain/diagnosis, Pain/drug Therapy, Pharmacy Service Hospital, Postier A, Respiration Artificial, Retrospective Studies, Risk Factors, Substance Withdrawal Syndrome/etiology, Substances, Tertiary Care Centers, Time Factors, Treatment Outcome
Adequacy Of Palliative Care In A Single Tertiary Neonatal Unit
Little is…
Limiting And Withdrawing Life Support In The Picu: For Whom Are These Options Discussed?
Tags: 2016, Berg RA, Carcillo J, Child, Child Preschool, Critical Care/methods, Dalton H, Dean JM, Female, Funai T, Harrison R, Holubkov R, Humans, Infant, Intensive Care Units Pediatric, Keele L, Length Of Stay, Life Support Care/utilization, Logistic Models, Male, Meert KL, Morrison W, Newth CJ, November 2016 List, Pediatric Critical Care Medicine, Pollack M, Prospective Studies, Resuscitation Orders, Severity Of Illness Index, Shanley T, Terminal Care/methods, Wessel DL
Staff Efficiency Trends Among Pediatric Hospices, 2002-2011.
Tags: 2016, Adolescent, California, Child, Child Preschool, Cozad MJ, Efficiency Organizational/statistics & Numerical Data, Female, Forecasting, Hospice Care/statistics & Numerical Data, Hospice Care/trends, Hospices/trends, Hospitals Pediatric, Hospitals Pediatric/statistics & Numerical Data, Humans, Infant, Infant Newborn, Lindley LC, Male, Mixer SJ, November 2016 List, Nursing Economic$, Personnel Staffing And Scheduling/statistics & Numerical Data, Personnel Staffing And Scheduling/trends, Workload/statistics & Numerical Data, Young Adult
A Survey Of Perinatal Palliative Care Programs In The United States: Structure, Processes, And Outcomes.
Perinatal palliative care (PPC) programs are proliferating nationwide, but little is known about their structure, process, or desired outcomes, to inform future program development.
OBJECTIVE:
To explicate structure, processes, and…
Delivery Room Practices For Extremely Preterm Infants: The Harms Of The Gestational Age Label.
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, Children's Rights, Delivery Rooms, Ethics, Europe/epidemiology, Gestational Age, Humans, Infant, Infant Extremely Premature, Infant Mortality, Intensive Care Neonatal, Janvier A, Lantos J, Neonatology, October 2016 List, Palliative Care, Prognosis, Resuscitation, Survival Rate
Modelling Neonatal Care Pathways For Babies Born Preterm: An Application Of Multistate Modelling.
Tags: 2016, Abrams KR, Babies, Barker L, Collaboration, Competing Risks, Data Analysis, Death, Draper ES, Funding, Health Sciences, Infant, Intensive Care, Length, Manktelow BN, Modi N, Multidisciplinary Sciences, October 2016 List, PLoS One, Population, Premature Babies, Seaton SE, Stay, Survival, Time, Variables
Perceptions Of The Pediatric Hospice Experience Among English- And Spanish-speaking Families
Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the…
Tags: 2016, Adolescent, Adult, Attitude To Death/ethnology, Caregivers/psychology, Child, Child Preschool, Communication, Ethnic Groups/psychology, European Continental Ancestry, Family/psychology, Female, Funes M, Group/psychology, Hispanic Americans/psychology, Hospice Care/psychology, Humans, Infant, Journal of Palliative Medicine, Lee SC, Male, Marks E, Martinez-Puente LM, Middle Aged, Neoplasms/nursing, Neoplasms/psychology, October 2016 List, Thienprayoon R, Winick N, Young Adult
Practical Recommendations For Diagnosis And Management Of Respiratory Muscle Weakness In Late-onset Pompe Disease
Tags: 2016, Adult, Barrot Cortés E, Boentert M, Confalonieri M, Cough Assistance, Glycogen Storage Disease Type Ii/diagnosis, Glycogen Storage Disease Type Ii/pathology, Glycogen Storage Disease Type Ii/therapy, Humans, Infant, International Journal of Molecular Sciences, Jones HN, Mechanical Ventilation, Mellies U, Muscle Weakness/pathology, Muscle Weakness/therapy, Neuromuscular Disorders, October 2016 List, Pompe Disease, Prigent H, Respiratory Function Tests, Respiratory Insufficiency/therapy, Respiratory Muscle Weakness, Respiratory Muscles/pathology, Simonds AK, Surveys And Questionnaires, Várdi K, Wenninger S
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Parental Involvement In Neonatal Critical Care Decision-making.
Tags: 2016, Aladangady N, Analysis, Biomedical, Communication, Consultation, Conversation, Conversation Analysis, Conversational Analysis, Cooperation, Decision Making, Decision-making, Decisions, End, End Of Life, End Of Life Care, Ethics, Gallagher K, Infant, Infants (newborn), Intensive Care, Interrogatives, Life, Marlow N, Medical Authority, Medicine, Neonatal, Palliative Care, Palliative Treatment, Parent And Child, Parental Involvement, Parenting, Parents, Participation, Physicians, Public, Public Environmental & Occupational Health, Recommendations, Resistance, September 2016 List, Shared Decision, Shaw C, Social Sciences, Sociology, Sociology of Health & Illness, Stokoe E, Training
Neonatal Palliative Care-alice's Journey
Tags: 2016, Bereavement, Bereavement Support, Child, Doctor Patient Relation, Halkett C, Holistic Care, Human, Infant, Infant Newborn, May 2017 List, Medical Staff, Memory, Murdoch E, Newborn, Newborn Intensive Care, Nursing Staff, Palliative Care, Palliative Medicine, Palliative Therapy, Patient Referral, Pilot Projects, Rodger E, Sibling, Terminal Care
Limiting And Withdrawing Life Support In The Picu: For Whom Are These Options Discussed?
Tags: 2016, Berg RA, Carcillo J, Child, Child Preschool, Critical Care/mt [methods], Dalton H, Dean JM, Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Female, Funai T, Harrison R, Holubkov R, Humans, Infant, Intensive Care Units Pediatric, January 2017 List, Keele L, Length Of Stay, Life Support Care/ut [utilization], Logistic Models, Male, Meert KL, Morrison W, Newth CJ, Pediatric Critical Care Medicine, Pollack M, Prospective Studies, Resuscitation Orders, Severity Of Illness Index, Shanley T, Terminal Care/mt [methods], Wessel DL
Neonatal Death In The Emergency Department: When End-of-life Care Is Needed At The Beginning Of Life
Pediatric Primary Care Involvement In End-of-life Care For Children
Tags: 2017, Adolescent, Age Factors, American Journal of Hospice and Palliative Medicine, California, Child, Child Preschool, Female, Home Care Services/sn [statistics & Numerical Data], Hospice Care/sn [statistics & Numerical Data], Humans, Infant, Lindley LC, Male, Nageswaran S, Primary Health Care/sn [statistics & Numerical Data], Retrospective Studies, September 2017 List, Terminal Care/sn [statistics & Numerical Data], Young Adult
Surgical Intervention In Trisomy 18-supporting Pallative Care
Tags: 2017, Archives of Disease in Childhood, Birth Weight, Clinical Article, Cragie R, Diagnosis, Edi-Osagie N, Female, Gastrointestinal Symptom, Heart, Hospital, Human, Infant, Intestine Obstruction, Male, Masood Y, Meningomyelocele, Palliative Therapy, Pathology, Pregnancy, Prognosis, September 2017 List, Spiers H, Surgery, Tracheoesophageal Fistula, Trisomy 18
[parental Mourning After A Perinatal Loss]
Parent Experience Of Neonatal Encephalopathy: The Need For Family-centered Outcomes
End-of-life Decisions For Extremely Preterm Infants - A Matter Of Language, Gender And Education?
Tags: 2017, Acta Paediatrica, April 2017 List, Artificial Ventilation, Bührer C, Editorial, Education, Ethical Decision Making, Female, France, Gender, Germany, Human, Human Experiment, Infant, Italy, Language, Male, Physician Attitude, Prematurity, Prematurity/dm [disease Management], Priority Journal, Quality Of Life, Shared Decision-making, Switzerland, Terminal Care
Problems And Hopes Perceived By Mothers, Fathers And Physicians Of Children Receiving Palliative Care
Tags: 2015, Adolescent, Carroll K W, Child, Decision Making, Faerber J A, Father, Female, Feudtner C, Health Expectations, Hexem K R, Hill D L, Hope, Human, Human Relation, Infant, Kang T, Male, Miller V A, Mother, Newborn, Palliative Therapy, Physician, Preschool Child, Problem Solving, Psychology, Quality Of Life, September 2017 List, Young Adult
Experiences In Palliative Home Care Of Infants With Life-limiting Conditions.
The aim of this study was to determine the distinct issues neonates/infants with life-limiting conditions and their families face during palliative home care and to enable physicians/caregivers to carefully address their needs. Data on…
Tags: 2015, Borkhardt A, Caregivers, December 2016 List, European Journal of Pediatrics, Female, Germany, Höll J, Home Care, Home Care Services/statistics & Numerical Data, Hospitals Pediatric, Humans, Infant, Infant Mortality, Infant Newborn, Infants, Jansen G, Kuhlen M, Life-limiting Conditions, Male, Neonates, Palliative Care, Palliative Care/statistics & Numerical Data, Patient Comfort/statistics & Numerical Data, Sabir H, Terminal Care/statistics & Numerical Data
On The Child's Own Initiative: Parents Communicate With Their Dying Child About Death
Tags: 2015, Adolescent, Adult, Attitude To Death, Behavioral Research, Child, Child Behavior, Child Care/psychology, Child Preschool, Death studies, Female, Henter JI, Humans, Infant, Jalmsell L, Kontio T, Kreicbergs U, Male, March 2016 List, Neoplasms/psychology, Neoplasms/therapy, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Qualitative Research, Stein M, Sweden, Terminally Ill/psychology
The Relationship Between The Nursing Environment And Delivering Culturally Sensitive Perinatal Hospice Care
Tags: 2015, Delivery of Health Care, End-of-life Care, Female, Fetal Death, Fornehed Mary Lou, Hospice And Palliative Care Nursing, Hospice Organisation, Hospices/statistics & Numerical Data, Humans, Infant, International Journal of Palliative Nursing, Lindley L, May 2017 List, Mixer Sandra J, Nursing Administration, Nursing Leadership, Nursing Staff, Perinatal Care, Perinatal Death, Pregnancy, Retrospective Studies, Surveys And Questionnaires, Transcultural Nursing, United States, Wallace Heather, Wool Charlotte, Workplace
End-of-life Practices Among Tertiary Care Picus In The United States: A Multicenter Study
Tags: 2015, Adolescent, Berg RA, Carcillo J, Cause Of Death, Child, Child Preschool, Clark A, Dalton H, Dean JM, Doctor A, Female, Harrison R, Holubkov R, Hospital Mortality, Humans, Infant, Intensive Care Units Pediatric, Jenkins T L, July 2017 List, Keele L, Length Of Stay, Male, Meert KL, Morrison W, Newth CJL, Pediatric Critical Care Medicine, Pollack M, Practice Patterns Physicians', Prospective Studies, Shanley T, Terminal Care/methods, Terminal Care/statistics & Numerical Data, Tertiary Healthcare, Tissue And Organ Procurement/statistics & Numerical Data, United States, Wessel DL
Consistency in end of life care
Tags: 2016, Adolescent, Allen D, August 2017 List, Child, Child Preschool, Communication, Decision Making, Hospice And Palliative Care Nursing/ Standards, Humans, Infant, Nurse-patient Relations, Nursing Children and Young People, Patient Participation, Pediatric Nursing/ Standards, Practice Guidelines As Topic
Children with life-shortening conditions are denied the support they need, says charity
Mortality, length of stay, bloodstream and respiratory viral infections in a pediatric intensive care unit
Tags: 2017, Asthma, Bacterial Coinfection, Chan PK, Cheung KL, Child, Child Health Services, Child Preschool, Critical Care, Female, Fung WM, Hon KL, Hong Kong/epidemiology, Hospitalization, Humans, Infant, Intensive Care Units Pediatric, Journal of Critical Care, Koh PL, Length Of Stay, Leukemia, Leung TF, Li CK, Li CY, Li S, Liu PK, Logistic Models, Luk MP, Lymphoma, Male, November 2017 List, Odds Ratio, Pediatric Intensive Care, Respiratory Tract Infections/complications/ Epidemiology/microbiology/mortality, Respiratory Virus, Retrospective Studies, Risk Factors, Sepsis/complications/ Epidemiology/microbiology/mortality, Survival Analysis, Tsang KY, Yeung HL