Browse Items (675 total)
- Tags: Infant
Withholding and withdrawing treatment in pediatric intensive care. Update of the GFRUP recommendations
Tags: 2021, Archives of Pediatrics, Birsan S, Bordet F, Botte A, Brissaud O, Child, Cremer R, de Saint Blanquat L, Guilbert J, Hubert P, Infant, June 2021 List, Le Reun C, Le Roux B, Michel F, Millasseau F, Palliative Care, Pediatric Critical Care, Resuscitation Orders, Sinet M, Treatment Withdrawal, Treatment withholding
Being a parent: Findings from a grounded theory of memory-making in neonatal end-of-life care
The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions
Tags: 2021, Child, Child Preschool, Cross Infection/prevention & control, Cross-sectional Studies, Drug Resistance Multiple, Female, Hartenstein-Pinter A, Hasan C, Hospital Units, Humans, hygiene, Infant, Infection Control/organization & administration, Inservice Training, International Journal of Palliative Nursing, Interviews As Topic, Male, May 2021 List, Nursing Assessment, Paediatrics, Palliative Care, Parents, Patient Isolation, Patient Safety, Quality Of Life, Schmidt P, Social Participation, Stening K, Stereotyping, Surveys And Questionnaires, Terminally Ill, Wager J, Zernikow B
Perceived Infant Well-Being and Self-Reported Distress in Neonatal Nurses
The grief ritual of extracting and donating human milk after perinatal loss
Experiences from the first 10 years of a perinatal palliative care program: A retrospective chart review
Tags: 2021, April 2021 List, Central Nervous System Diseases, Descriptive Statistics, Doherty ME, Early Intervention, Gestational Age, Grandmaison Dumond L, Human, Infant, Infant High Risk, Neonatologists, Paediatrics & Child Health, Palliative Care -- In Infancy and Childhood, Perinatal Care, Perinatal Death, Power L, Prenatal Diagnosis, Program Evaluation, Record Review, Referral And Consultation, Retrospective Design, Stoppels N, Terminal Care, Treatment Outcomes, Williams R, Work Experiences
Insights into the perception that research ethics committees are a barrier to research with seriously ill children: A study of committee minutes and correspondence with researchers studying seriously ill children
Tags: 2020, Adolescent, April 2021 List, Bluebond-Langner M, Butler AE, Child, Child Preschool, Content Analysis, Ethics Committees, Ethics Committees Research, Female, Human Experimentation/ethics, Humans, Infant, Infant Newborn, Male, Palliative Medicine, Research, Research Design, Terminally Ill, United Kingdom, Vincent K
Prediction of Acquired Morbidity Using Illness Severity Indices in Pediatric Intensive Care Patients
Tags: 2020, Adolescent, Allen JC Jr, Child, Child Preschool, Critical Care, Hospital Mortality, Humans, Infant, Infant Newborn, Intensive Care Units Pediatric, Lee JH, March 2021 List, Morbidity, Ong C, Pediatric Critical Care Medicine, Retrospective Studies, Risk Factors, Senna S, Severity Of Illness Index, Singapore/epidemiology, Sultana R, Wong JJ
Validation of an Electronic Pediatric Index of Mortality 2 Score in a Mixed Quaternary PICU
Parent-Reported Symptoms and Medications Used Among Children With Severe Neurological Impairment
Tags: 2020, Adolescence, Blackmer AB, Central Nervous System Agents -- Therapeutic Use, Child, Child Preschool, Comorbidity, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Fairclough DL, Feinstein JA, Female, Feudtner C, Funding Source, Gregoire LA, Health Resource Utilization, Holstein J, Human, Infant, JAMA Network Open, Kempe A, Male, March 2021 List, Nervous System Diseases -- Epidemiology -- In Adolescence, Nervous System Diseases -- Epidemiology -- In Infancy and Childhood, Nervous System Diseases -- Symptoms, Peripheral Nervous System Agents -- Therapeutic Use, Polypharmacy, Record Review, Samay S, scales, Severity of Illness, Valuck RJ
A Tertiary Care-based Complex Care Program: Improving Care for Children With Medical Complexity
Tags: 2020, Aredas BL, Caregivers/psychology, Case Management/organization & administration, Child, Child Preschool, Dye M, Emergency Service Hospital/statistics & numerical data, English R, February 2021 List, Galligan MM, Hogan AK, Hospitalization/statistics & numerical data, Humans, Infant, Infant Newborn, Leach KF, Length Of Stay, Medical Care, Multiple Chronic Conditions/therapy, Patient Acceptance Of Health Care/statistics & Numerical Data, Patient Care Team/organization & administration, Patient Satisfaction, Quality Improvement/organization & administration, Rubin D, Stack NJ, Tertiary Healthcare/economics/organization & administration
Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Advances in pediatric psychooncology
Tags: 2020, Adult, Attention, Bereavement, cancer center, Cancer Patient, Child, Childhood Cancer, chimeric antigen receptor T-cell immunotherapy, Current Opinion In Pediatrics, Devine K A, Distress Syndrome, evidence based practice center, hereditary tumor syndrome, Human, Infant, Oncology 2020 List, outcome assessment, Palliative Therapy, patient reported outcome, Psycho-Oncology, psychosocial care, Review, Sibling, Survivorship, Thompson A L, toddler, Wiener L, Young Adult
Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
Tags: 2020, Adolescent, Adult, Asphyxia Neonatorum/*therapy, Checklist, Clinical Competence, Cross-sectional Studies, Desalew A, Developing World 2020 List, Education, Ethiopia, Female, Geda B, Humans, Infant, Male, Mezmur H, Middle Aged, Midwifery/*education, Mulatu T, Neonatal Nursing/*education, Newborn, Nursing/statistics & numerical data, PLoS One, Pregnancy, Resuscitation/*methods, Shiferaw K, Sintayehu Y, Tiruye G, Young Adult
Adverse Events During Intrahospital Transport of Critically Ill Children: A Systematic Review
COVID-19 Pandemic Restrictions and the Use of Technology for Pediatric Palliative Care in the Acute Care Setting
Tags: 2020, Betacoronavirus, Bettini EA, Coronavirus Infections/epidemiology, Female, Hospice And Palliative Care Nursing, Humans, Infant, Infection Control, Intensive Care Units Pediatric, January 2021 List, Journal of Hospice and Palliative Nursing, Palliative Care, Pandemics, Parents, Pneumonia Viral/epidemiology, Terminally Ill, Videoconferencing, Visitors to Patients
Death of an Infant: Accessing the Voices of Bereaved Mothers to Create Healing
Undernutrition at PICU Admission Is Predictor of 60-Day Mortality and PICU Length of Stay in Critically Ill Children
Tags: 2020, Adolescent, Anthropometry, Barbosa E, Body Mass Index, Brazil/epidemiology, Bresolin N L, Child, Child Nutrition Disorders/*mortality, Critical Illness/*mortality, Female, Hauschild D B, Humans, Infant, Intensive Care Units, Journal of the Academy of Nutrition and Dietetics, Kawai K, Length Of Stay, Length of Stay/*statistics & numerical data, Male, malnutrition, Mehta N M, Moreno Y M F, Mortality, November 2020 List, Nutritional Status, Patient Admission/*statistics & numerical data, Patient Discharge/statistics & Numerical Data, Pediatric Intensive Care Unit, Pediatric/*statistics & numerical data, Predictive Value of Tests, Preschool, Proportional Hazards Models, Prospective Studies, Regression Analysis, Time Factors, Ventura J C
Italian Nurses' Attitudes Towards Neonatal Palliative Care: A Cross-Sectional Survey
Rapid response in the COVID-19 pandemic: a Delphi study from the European Pediatric Dialysis Working Group
Tags: 2020, Adolescent, Ariceta G, Aufricht C, Child, Chronic/complications/*therapy, Coronavirus Infections/complications/prevention & control/*therapy, COVID-19, Delphi, Delphi Technique, dialysis, Edefonti A, Eibensteiner F, Europe, Evidence-based Medicine, Humans, Infant, Infection Control, Jankauskiene A, Klaus G, Paglialonga F, Pandemics, Pandemics/prevention & control, Pediatric Nephrology, Pneumonia, Preschool, Ranchin B, Renal Dialysis, Renal Insufficiency, Ritschl V, Schmitt C P, September 2020 List, Shroff R, Stamm T, Stefanidis C J, Transplantation, Verrina E, Viral/complications/prevention & control/*therapy, Vondrak K, Walle J V, Zurowska A
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Tags: 2019, Adult, August 2020 List, Female, Fetal Diseases/diagnosis/*mortality, George T, Hospice, Humans, Infant, Journal of Palliative Medicine, Kamrath H J, Mothers/*psychology, Needle J, Newborn, O'Connor-Von S, Osterholm E, Palliative Care, Palliative Care/*organization & Administration, Patient Care Planning/*organization & administration, Perinatal, Perinatal Care/*organization & administration, prenatal, Prenatal Diagnosis, Retrospective Studies, Stover-Haney R
Behavioral Observation of Infants with Life-Threatening or Life-Limiting Illness
Characteristics and Outcomes of Critical Illness in Children With Feeding and Respiratory Technology Dependence
Tags: 2019, Adolescent, Artificial/adverse effects/*statistics & numerical data, Berg R A, Biomedical Technology, Carcillo J, Case-Control Studies, Child, Critical Care/*methods, Critical Illness/therapy, Dalton H, Dean J M, Health Care/*statistics & numerical data, Heneghan J A, Humans, Infant, Intensive Care Units, July 2020 List, Meert K L, Newborn, Newth C J L, outcome assessment, Parenteral Nutrition, Pediatric Critical Care Medicine, Pediatric/statistics & Numerical Data, Pollack M M, Preschool, Prospective Studies, Reeder R W, Respiration, Severity Of Illness Index, Tamburro R, Total/adverse effects/*statistics & numerical data
Creating evidence: Findings from a grounded theory of memory-making in neonatal bereavement care in Australia
Nurses' Perceptions of the Palliative Care Needs of Neonates With Multiple Congenital Anomalies
Tags: 2020, Abnormalities, Age Factors, Şener Taplak A, Consent (Research), Content Analysis, Data Analysis Software, Descriptive Statistics, Educational Status, Feedback, Female, Gürol A, Health Services Needs and Demand – In Infancy and Childhood, Human, Infant, Intensive Care Units, Interviews, Journal of Hospice and Palliative Nursing, June 2020 List, Male, Multiple, Neonatal, Neonatal Intensive Care Nursing, Newborn, Nurse Attitudes – Evaluation, Palliative Care, Polat S, Quality Of Life, Questionnaires, Semi-Structured Interview, Thematic Analysis, Time Factors
End-of-life care in the pediatric intensive care unit: Survey in Japan
Tags: 2019, Adolescent, April 2020 List, Attitude Of Health Personnel, Child, Clinical Decision-Making/mt [Methods], Health Care Surveys, Humans, Infant, Intensive Care Units, Japan, Kurosawa H, Niitsu T, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Palliative Care/st [standards], Pediatric/sn [Statistics & Numerical Data], Pediatric/st [Standards], Pediatrics International, Physicians'/sn [Statistics & Numerical Data], Physicians'/st [Standards], Practice Patterns, Practice Patterns Physicians'/*ethics, Preschool, Seino Y, Shiima Y, Terminal Care/mt [methods], Terminal Care/sn [statistics & Numerical Data], Terminal Care/st [standards]
Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
Introduction of triggers for palliative care consultation improve utilization and and satisfaction within a level 4 NICU
Healthcare professionals' experiences of perinatal loss: A systematic review
Tags: 2019, Abortion, Adult, April 2020 List, Bernaudo A, Di Fini G, Female, Gandino G, Health Personnel/*psychology, Healthcare Professionals, Humans, Infant, Journal Of Health Psychology, Maternal Health Services/*manpower, neonatal units, Newborn, Perinatal Death, Perinatal Loss, Pregnancy, psychological experiences, Spontaneous/*psychology, Stillbirth, Stillbirth/*psychology, Vanni I, Veglia F
Feasibility and Acceptability of Recruiting Very Young Hospitalized Children Receiving Palliative Care to an Integrative Therapy Study (S743)
Tags: 2020, Adolescent, Allmendinger-Goertz K, Child, conference abstract, Controlled Study, Critically Ill Patient, Feasibility Study, Female, Follow Up, Foster Care, Friebert S, Hospitalized Child, Human, Ibach M, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Pilot Study, Reiki, Shaner V, Thrane S
Parent-Reported Outcomes of Prognostic Communication in Hospitalized Children with Advanced Heart Disease (S762)
Tags: 2020, Adult, Blume E, Cardiology, Caucasian, Child, Cohort Analysis, conference abstract, Controlled Study, Conversation, Decision Making, Expectation, Female, Feraco A, Goldberg S, heart single ventricle, high school, Hospitalization, Hospitalized Child, Human, Infant, Intubation, Journal of Pain and Symptom Management, Length Of Stay, Major Clinical Study, Male, March 2020 List, married person, Medical Record Review, Miller M K, Morell E, Mother, Prognosis, Prospective Study, pulmonary hypertension, pulmonary vein stenosis, Recall, Reichman J, Sahakian L, Sleeper L, Young Adult
Transition to a Primary Palliative Care Model in the NICU (FR441B)
Tags: 2020, Baxter R, Brown H, Bruner A, Comfort, conference abstract, Controlled Study, Documentation, Education, Female, Hospice, Human, Human Experiment, Infant, Journal of Pain and Symptom Management, Male, March 2020 List, Needs Assessment, Neonatologist, Nurse, Palliative Therapy, Satisfaction
Impact of parental socioeconomic factors on childhood cancer mortality: a population-based registry study
Tags: 2018, Acta Oncologica, Adolescent, Child, Female, Finland/epidemiology, Humans, Income, Infant, Madanat-Harjuoja L, Male, Malila N, Mortality, Neoplasms/*mortality/therapy, Oncology 2019 List, Parents, Pitkaniemi J, Preschool, Rantanen M, Registries, Socioeconomic Factors, Taskinen M, Tolkkinen A, Young Adult
Legacy Artwork in Pediatric Oncology: The Impact on Bereaved Caregivers' Psychological Functioning and Grief
Tags: 2019, Adolescent, Adult, Article, Barnett M, Bereavement, Brief Symptom Inventory, Caregiver, Child, Childhood Cancer, Clinical Article, Complicated Grief, Controlled Study, Female, Grief, Health Care Personnel, Human, Infant, Journal of Palliative Medicine, Madan-Swain A, Male, mental function, Oncology 2019 List, Perception, prolonged grief, Questionnaire, Reynolds N C, Schaefer M R, Spencer S K, support group, time of death
Burden of treatment in the face of childhood cancer: A quantitative study using medical records of deceased children
Tags: 2018, Acheson E, Adaptation, Adolescent, burden of treatment, Central Nervous System Neoplasms/therapy, Child, Death, Elger B S, European Journal of Cancer Care (Engl), Family, Female, Hengartner H, Hospitalization, Humans, Infant, inpatient stays, Kuhne T, Length Of Stay, leukaemia, Leukemia/therapy, Male, Medical Records, Neoplasms/*therapy, Newborn, Oncology 2019 List, Paediatric oncology, Place Of Death, Preschool, Psychological, Rakic M, Retrospective Studies, Rischewski J, Rost M, Switzerland, Terminal Care, Wangmo T
Children's and Parents' Conceptualization of Quality of Life in Children With Brain Tumors: A Meta-Ethnographic Exploration
Tags: 2019, Adaptation, Adolescent, Anthropology, Beecham E, Bluebond-Langner M, Brain Neoplasms/*psychology, Cancer, Child, Children, Coping, Cultural, enduring, Experiences, Female, Hargrave D, Health, Humans, Illness and Disease, Infant, Langner R, lived experience, Male, meta-ethnogrpahy, Metasynthesis, Method: interpretive methods, Oncology 2019 List, Parents/*psychology, Preschool, Psychological, psychosocial aspects, Qualitative Health Research, Qualitative Research, qualitative. Geographic: Taiwan, Quality Of Life, Quality of Life/*psychology, Resilience, Resistance, Survivorship, Young Adult
Physicians' standpoints on end-of-life decisions at the neonatal intensive care units in Jordan
Center, Gestational Age, and Race Impact End-of-Life Care Practices at Regional Neonatal Intensive Care Units
Tags: 2019, Article, Asselin J, Bartman T, Black person, Brozanski B, Cause Of Death, Central Nervous System, Child, Coghill C H, Cohort Analysis, Controlled Study, Datta A, DiGeronimo R, do not resuscitate order, Drug Withdrawal, Durand D, Dykes F, Evans J, February 2020 List, Female, Fry J T, Gestational Age, Grover T, Human, Infant, injury, Journal of Pediatrics, Leuthner S R, Life Sustaining Treatment, Major Clinical Study, Male, Matoba N, Murthy K, Natarajan G, Neonatal Intensive Care Unit, Newborn, Newborn Death, Niehaus J Z, Padula M, Pallotto E, Piazza A, Reber K, Retrospective Study, Schlegel A B, Shah A, Short B, Sullivan K M, Terminal Care, Zaniletti I
Bereaved Parents' Perceptions of Infant Suffering in the NICU
Tags: 2019, Article, Baughcum A E, Clinical Decision Making, Father, February 2020 List, Female, Fortney C A, Gerhardt C A, Human, Infant, Journal of Pain and Symptom Management, Keim M C, Male, Moscato E L, Mother, Neonatal Intensive Care Unit, Patient Referral, Perception, Qualitative Analysis, telephone interview, Wellbeing, Winning A M