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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2023 Special Edition 5 - Low Resource Setting List
Text
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Citation List Month
2023 SE5 - Low Resource Setting
URL Address
<a href="http://doi.org/10.1002/pon.6002" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1002/pon.6002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Unmet palliative care needs of a child with cancer in Indonesia
Publisher
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Psycho-Oncology
Date
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2023
Subject
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Humans; Child; Palliative Care; Neoplasms/th [Therapy]; Neoplasms; Only Child; Hospice and Palliative Care Nursing; Indonesia
Creator
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Vassileva S; Pangarso AWS; Mulatsih S; Sitaresmi M; Kaspers G; Mostert S
Description
An account of the resource
Key points Childhood cancer survival varies greatly between high-income (80%) versus Low and middle-income countries (LMIC) (<20%). To bridge this gap, provision of aggressive curative treatment has been prioritized in latter countries. Palliative care (PC), by contrast, has received little or no attention When children who can no longer be cured from cancer continue aggressive treatment, they may suffer unnecessarily from pain, discomfort and low quality-of-life during prolonged periods In many LMIC, families are often not given the opportunity to participate in decision-making whether they want to extend the life of their children or focus on relieving pain and discomfort This case report illustrates difficulties that Indonesian families may face when their child is diagnosed with cancer, receives intensive chemotherapy despite poor prognosis and severe side-effects, and is not informed about choices of treatment children have during final illness This study highlights the importance to start PC immediately at diagnosis. Both physical and psychosocial wellbeing of patients need to be closely monitored through regular symptom burden assessments. Training on open communication in PC is required in universities and hospitals to enable shared decision-making and improve quality-of-life of children and their families
Identifier
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<a href="http://doi.org/10.1002/pon.6002" target="_blank" rel="noreferrer noopener">10.1002/pon.6002</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
2023 SE5 - Low Resource Setting
Child
Hospice And Palliative Care Nursing
Humans
Indonesia
Kaspers G
Mostert S
Mulatsih S
Neoplasms
Neoplasms/th [therapy]
Only Child
Palliative Care
Pangarso AWS
Psycho-Oncology
Sitaresmi M
Vassileva S
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2019 Developing World List
Text
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Citation List Month
Developing World 2019 List
URL Address
<a href="http://doi.org/10.1080/09699260.2019.1646033" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/09699260.2019.1646033</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Integrating palliative care to improve the care of children living with HIV in Indonesia
Publisher
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Progress in Palliative Care
Date
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2019
Subject
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article; child; Children; HIV care; hiv/aids; human; Human immunodeficiency virus; Human immunodeficiency virus infected patient; Indonesia; nonhuman; Palliative care; palliative therapy; Pediatric; public health; quality of life; Quality of life; Rural; scale up; world health organization
Creator
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Limardi S; Saunders R; Tasia Y; Hong P W
Description
An account of the resource
There is a significant gap in the provision of palliative care for children living with HIV (CLHIV) in Indonesia. While Indonesia has one of the highest rates of HIV infection amongst children in Asia, there is limited availability and access to palliative care services for CLHIV, especially for those living in rural areas. This paper highlights the need to scale up the provision of pediatric palliative care services for CLHIV in the country through the integration of palliative care into existing HIV care. This integration would not only increase the accessibility of palliative care for CLHIV, but also improve the quality of HIV care by addressing and meeting individual needs, enhancing retention in HIV care and improving quality of life amongst CLHIV. An effective integration of palliative care may be achieved by adopting World Health Organization's Public Health Strategy for Palliative Care, with adaptations made to accommodate the unique geographical and cultural contexts of Indonesia. Copyright _ 2019, _ 2019 Informa UK Limited, trading as Taylor & Francis Group.
Identifier
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<a href="http://doi.org/10.1080/09699260.2019.1646033" target="_blank" rel="noreferrer noopener">10.1080/09699260.2019.1646033</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Article
Child
Children
Developing World 2019 List
HIV care
hiv/aids
Hong P W
Human
Human Immunodeficiency Virus
Human immunodeficiency virus infected patient
Indonesia
Limardi S
Nonhuman
Palliative Care
Palliative Therapy
Pediatric
Progress In Palliative Care
Public Health
Quality Of Life
Rural
Saunders R
scale up
Tasia Y
World Health Organization