1 40 1 Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month May 2017 List Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Parent Experience Of Neonatal Encephalopathy: The Need For Family-centered Outcomes Publisher An entity responsible for making the resource available Journal Of Child Neurology Date A point or period of time associated with an event in the lifecycle of the resource 2017 Subject The topic of the resource 2017; Anoxia; Hypoxic-ischemic Encephalopathy; Infant; Infant Newborn; Ischemia; Neonatal Development; Neonatal Encephalopathy; Parent; Therapeutic Hypothermia; Therapeutic Processes Creator An entity primarily responsible for making the resource Lemmon M E; Donohue PK; Parkinson C; Northington FJ; Boss RD Description An account of the resource We aimed to characterize the parent experience of caring for an infant with neonatal encephalopathy. In this mixed-methods study, we performed semistructured interviews with parents whose infants were enrolled in an existing longitudinal cohort study of therapeutic hypothermia between 2011 and 2014. Thematic saturation was achieved after 20 interviews. Parent experience of caring for a child with neonatal encephalopathy was characterized by 3 principal themes. Theme 1: Many families described cumulative loss and grief throughout the perinatal crisis, critical neonatal course, and subsequent missed developmental milestones. Theme 2: Families experienced entangled infant and broader family interests. Theme 3: Parents evolved into and found meaning in their role as an advocate. These data offer insight into the lived experience of parenting an infant with neonatal encephalopathy. Primary data from parents can serve as a useful framework to guide the development and interpretation of parent-centered outcomes. (PsycINFO Database Record (c) 2017 APA, all rights reserved) Identifier An unambiguous reference to the resource within a given context 10.1177/0883073816680747 Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2017 Anoxia Boss RD Donohue PK Hypoxic-ischemic Encephalopathy Infant Infant Newborn Ischemia Journal of Child Neurology Lemmon M E May 2017 List Neonatal Development Neonatal Encephalopathy Northington FJ Parent Parkinson C Therapeutic Hypothermia Therapeutic Processes