1
40
1
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.2217/nmt-2017-0019" target="_blank" rel="noreferrer noopener">http://doi.org/10.2217/nmt-2017-0019</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A survey-based study identifies common but unrecognized symptoms in a large series of juvenile Huntington's disease
Publisher
An entity responsible for making the resource available
Neurodegenerative Disease Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
adolescent; priority journal; health survey; human; pain; article; child; female; male; controlled study; adult; clinical article; sleep disorder; Huntington chorea; pruritus; psychosis; tic; auditory hallucination; CAG repeat; juvenile; leg pain; skin irritation; visual hallucination; sleep disturbance/disorders; Juvenile Huntington disease; trajectory; characteristics
Creator
An entity primarily responsible for making the resource
Moser A D; Epping E; Espe-Pfeifer P; Martin E; Zhorne L; Mathews K; Nance M; Hudgell D; Quarrell O; Nopoulos P
Description
An account of the resource
Aim: The symptoms of Huntington's disease are well known, yet the symptoms of juvenile Huntington's disease (JHD) are less established due to its rarity. The study examined a cluster of symptoms considered to be common, but under-recognized in JHD: pain, itching, sleeping difficulties, psychosis and tics. Materials & methods: A symptom survey was constructed using the online tool Qualtrics and dispersed to JHD caregivers through websites. Results: A total of 33 surveys were completed. Disrupted sleep was the most prevalent symptom (87%), followed by tics (78%), pain (69%), itching (60%) and psychosis (39%). Conclusion: Despite limitations, the study supports that there are symptoms in the JHD population that are not considered classic, however, are common and significant for patients and caregivers.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2217/nmt-2017-0019" target="_blank" rel="noreferrer noopener">10.2217/nmt-2017-0019</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adolescent
Adult
Article
auditory hallucination
CAG repeat
characteristics
Child
Clinical Article
Controlled Study
Epping E
Espe-Pfeifer P
Female
Health Survey
Hudgell D
Human
Huntington chorea
juvenile
Juvenile Huntington disease
leg pain
Male
Martin E
Mathews K
Moser A D
Nance M
Neurodegenerative Disease Management
Nopoulos P
Pain
Priority Journal
pruritus
psychosis
Quarrell O
skin irritation
sleep disorder
sleep disturbance/disorders
tic
Trajectory
visual hallucination
Zhorne L