1
40
3
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
May 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163221082423" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163221082423</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Development of a research-based classification of approaches to paediatric palliative medicine service provision within children's and young adults' hospices: A mixed methods study
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Children; Classification; Hospices; Pediatric palliative care; Young adults
Creator
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Frost J; Hunt J; Hewitt-Taylor J; Lapwood S
Description
An account of the resource
Background: Globally, pioneers in children's palliative care influenced this speciality's development through individual initiatives leading to diverse models of care. Children's and young adults' hospices have now been established around the world. However, service provision varies widely leading to inequities both within countries and internationally. Aim(s): To describe and classify existing approaches to paediatric palliative medicine in children's and young adults' hospices across the UK. Design(s): A mixed methods study conducted by telephone interview. Setting/participants: Thirty-one leaders of children's hospice care, representing 28 services, 66% of UK children's and young adults' hospice organisations. Result(s): A geographic-specialist classification was developed through integration of findings, enabling hospices to be classified as Regional specialist, Regional non-specialist, Local specialist and Local non-specialist. Both qualitative and quantitative data demonstrated diversity and inequity in paediatric palliative medicine provision. Of 159 doctors (63.5% of whom were general practitioners) working in participating hospices only 27.5% had specialist training in paediatric palliative medicine. The majority of participating hospices (67.9%) did not have involvement from a paediatric palliative medicine consultant. Conclusion(s): Internationally, the integration of specialist children's palliative care teams with existing services is a current challenge. Despite differing approaches to children's palliative care world-wide, models of care which facilitate integration of specialist children's palliative care could benefit a range of countries and contexts. The geographic-specialist classification could be used to inform recommendations for a networked approach to paediatric palliative medicine within children's and young adults' hospices to promote equity for children with life-limiting and life-threatening conditions. Copyright © The Author(s) 2022.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163221082423" target="_blank" rel="noreferrer noopener">10.1177/02692163221082423</a>
2022
Children
Classification
Frost J
Hewitt-Taylor J
Hospices
Hunt J
Lapwood S
May 2022 List
Palliative Medicine
Pediatric Palliative Care
Young Adults
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="https://journals.rcni.com/nursing-children-and-young-people/enhancing-quality-of-life-in-children-with-cystic-fibrosis-through-holistic-nursing-aop-ncyp.2016.e753" target="_blank" rel="noreferrer">https://journals.rcni.com/nursing-children-and-young-people/enhancing-quality-of-life-in-children-with-cystic-fibrosis-through-holistic-nursing-aop-ncyp.2016.e753</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
How holistic nursing can enhance the quality of life of children with cystic fibrosis
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adolescent; Child Health; Cystic Fibrosis; Cystic Fibrosis/ Nursing/psychology; Family/psychology; Female; Holistic Nursing/ Methods; Humans; Life-limiting Illness; Paediatrics; Quality Of Life; Respiratory System; Siblings/psychology; Well-being
Creator
An entity primarily responsible for making the resource
Tointon K; Hunt J
Description
An account of the resource
Cystic fibrosis (CF) is one of the most common life-limiting genetic conditions. Ellen Bolton (not her real name) is a teenager with one of the rarer presentations of CF. This case study explores the experiences of Ellen and her family. It discusses the effects of CF on the patient and her family, and how it affects their quality of life (QoL) and well-being.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://dx.doi.org/10.7748/ncyp.2016.e753" target="_blank" rel="noreferrer"><span>http://dx.doi.org/</span><span>10.7748</span><span>/</span><span>ncyp</span><span>.</span><span>2016</span><span>.</span><span>e753</span></a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adolescent
August 2017 List
Child Health
Cystic Fibrosis
Cystic Fibrosis/ Nursing/psychology
Family/psychology
Female
Holistic Nursing/ Methods
Humans
Hunt J
life-limiting illness
Nursing Children and Young People
Paediatrics
Quality Of Life
Respiratory System
Siblings/psychology
Tointon K
Well-being
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.65.6.641" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.65.6.641</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative care for children with cancer--home, hospital, or hospice?
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
1990
Subject
The topic of the resource
Child; Humans; Palliative Care; Terminal Care; Home Nursing; Non-U.S. Gov't; Research Support; patient care team; Neoplasms/therapy; location of death
Creator
An entity primarily responsible for making the resource
Goldman A; Beardsmore S; Hunt J
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/adc.65.6.641" target="_blank" rel="noreferrer">10.1136/adc.65.6.641</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1990
1990
Archives of Disease in Childhood
Backlog
Beardsmore S
Child
Goldman A
Home Nursing
Humans
Hunt J
Journal Article
Location Of Death
Neoplasms/therapy
Non-U.S. Gov't
Palliative Care
Patient Care Team
Research Support
Terminal Care