1
40
2
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2023 List
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March List 2023
URL Address
<a href="http://doi.org/https://dx.doi.org/10.1002/pbc.29952" target="_blank" rel="noreferrer noopener"> http://doi.org/https://dx.doi.org/10.1002/pbc.29952</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Bereaved Parents' Perspective on Communication of Transition to Palliative Care in Pediatric Oncology - Hungarian Experience
Publisher
An entity responsible for making the resource available
Pediatric Blood and Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Bereavement; Child; childhood cancer; clinical article; communication protocol; conference abstract; consultation; Female; genetic transcription; Human; Hungary; Male; nonverbal communication; Palliative Therapy; semi structured interview; Terminal Care
Creator
An entity primarily responsible for making the resource
Foldesi E; Zorgo S; Nyiro J; Hegedus K; Hauser P
Description
An account of the resource
Background and Aims: Transition to palliative care (PC) is a critical aspect of pediatric oncology requiring a high level of communication skills from doctors, which could be best judged by parents of children died in cancer. Our aim was to explore parents' perspectives regarding the timing of the consultation on implementing PC, as well as facets of verbal and non-verbal communication in Hungary. Method(s): Semi-structured interviews were conducted with parents who had lost their child to cancer within the past 1-5 years. Interview transcripts (n=23) were scrutinized with Interpretative Phenomenological Analysis. Result(s): Parents frequently associated palliation with end-of-life care and clearly delimited the transition to PC after curative treatments had been exhausted. Parents were ambivalent regarding using the word "death" during this consultation and often did not receive information on what to expect (e.g., regarding symptoms) and who to turn to for further information or support (e.g., concerning bereavement). Conclusion(s): Although significant progress could be observed in the organization of pediatric palliative care in Hungary, there is still no widely accepted communication method for communication of transition to sole PC. There is a need for a culturally-sensitive approach to refining recommendations on word-use and communication protocol in pediatric PC also in Hungary.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/https://dx.doi.org/10.1002/pbc.29952" target="_blank" rel="noreferrer noopener">https://dx.doi.org/10.1002/pbc.29952</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Bereavement
Child
Childhood Cancer
Clinical Article
communication protocol
conference abstract
Consultation
Female
Foldesi E
genetic transcription
Hauser P
Hegedus K
Human
Hungary
Male
March List 2023
Nonverbal Communication
Nyiro J
Palliative Therapy
Pediatric Blood and Cancer
Semi Structured Interview
Terminal Care
Zorgo S
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2018 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1007/s00431-018-3170-6" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1007/s00431-018-3170-6</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The timing and circumstances of the implementation of pediatric palliative care in Hungarian pediatric oncology
Publisher
An entity responsible for making the resource available
European Journal of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
child death; parent; family; terminal care; priority journal; psychologist; doctor patient relation; constructive feedback; childhood cancer; cancer palliative therapy; cohort analysis; oncologist; structured interview; human; article; female; male; adult; exploratory research; time to treatment; ambivalence; data analysis software; Hungarian (citizen); Hungary
Creator
An entity primarily responsible for making the resource
Nyiro J; Zorgo S; Eniko F; Hegedus K; Hauser P
Description
An account of the resource
Despite the continuous improvement of pediatric palliative care, medical professionals still face various barriers regarding its implementation; our aim was to investigate this question in Hungarian pediatric oncology practice. Structured interviews were carried out in person with physicians from the Hungarian Pediatric Oncology Group (n = 22). Codes were generated inductively with the aid of Atlas.ti 6.0 software. Most physicians placed the palliative care discussion at the end of curative treatment (n = 21) and preferred to conduct it in a team setting (n = 18), mainly in the presence of a psychologist. Preparing parents for the child's death can occur during the palliative care discussion (n = 3), in the child's final days/h (n = 6), gradually (n = 10), or never (n = 3). There are words consciously utilized and avoided during this discussion, with the word "death" proving to be the most ambivalent (utilized n = 5, avoided n = 6). Conclusions: There is no widely accepted unified practice among pediatric oncologists concerning the implementation of palliative care in Hungary. Despite the international recommendation, the common practice of timing is still at the end of curative treatment. Physicians rely on multidisciplinary teamwork, where the psychologist's role is the most prominent in this discussion.What is Known:* There is an international consensus that palliative care should commence at the diagnosis of a pediatric malignant disease regardless of illness outcome.* Barriers to the early implementation of palliative care in pediatric oncology involve resource-based and attitudinal factors.What is New:* In Hungary, where pediatric oncologists are sole decision-makers, early implementation of palliative care is rare.* There is a strong preference among physicians for working within a team, while also asserting that presence of team members may decrease the level of intimacy.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/%2010.1007/s00431-018-3170-6" target="_blank" rel="noreferrer noopener">10.1007/s00431-018-3170-6</a>
2018
Adult
ambivalence
Article
Cancer Palliative Therapy
Child Death
Childhood Cancer
Cohort Analysis
constructive feedback
Data Analysis Software
Doctor Patient Relation
Eniko F
European Journal of Pediatrics
Exploratory Research
Family
Female
Hauser P
Hegedus K
Human
Hungarian (citizen)
Hungary
Male
Nyiro J
Oncologist
Oncology 2018 List
Parent
Priority Journal
Psychologist
Structured Interview
Terminal Care
time to treatment
Zorgo S