Browse Items (2310 total)
- Tags: Humans
End-of- Life Decision-making For Newborns: A 12-year Experience In Hong Kong. Archives Of Disease In Childhood Fetal & Neonatal Edition
Neonatal end-of-life decisions could be influenced by cultural and ethnic backgrounds. These practices have been well described in the West but have not been systematically studied in an Asian population.
OBJECTIVES
To determine: (1)…
Tags: 2016, April 2016 List, Archives of Disease in Childhood, Cause Of Death, Chan LC, Cheung HM, Decision Making, Ethics, Female, Hong Kong, Humans, Infant, Infant Mortality/trends, Infant Newborn, Lam HS, Ma TP, Male, Ng PC, Palliative Care, Poon TC, Retrospective Studies, Terminal Care/trends, Withholding Treatment/trends
Ethical Issues In Neonatal Intensive Care Units.
Exploring The Spiritual Needs Of Families With Seriously Ill Children
Tags: 2016, Adolescent, August 2016 List, Child, Cultural Characteristics, Family/psychology, Female, Ferrell B, Humans, International Journal of Palliative Nursing, Male, Needs Assessment, Nursing, Nursing Assessment, Palliative Care, Pediatrics, Professional-family Relations, Qualitative, Qualitative Research, Spirituality
Predictors Of Intention To Refer To Pediatric Palliative Or Hospice Care
Tags: 2016, Adult, Age Factors, American Journal of Hospice and Palliative Medicine, Andersen, Attitude Of Health Personnel, Attitude To Death, August 2016 List, Behavioral Model, Continental Population Groups, Female, Health Service Use, Hospice, Hospice Care/psychology, Hospitals Pediatric/statistics & Numerical Data, Humans, Intensive Care Units Neonatal/statistics & Numerical Data, Intention, Male, Middle Aged, N E Conner, N Uddin, Nurse, Nurses Pediatric/psychology, Palliative Care, Palliative Care/psychology, Pediatrics, Referral, Referral And Consultation/statistics & Numerical Data, Regression Analysis, Sex Factors
A Survey Of Key Opinion Leaders On Ethical Resuscitation Practices In 31 European Countries.
Europe is a patchwork of 47 countries with legal, cultural, religious, and economic differences. A prior study suggested variation in ethical resuscitation/end-of-life practices across Europe. This study aimed to determine whether this…
Tags: 2016, Adult, Askitopoulou H, Bioethics, Bossaert L, Cardiac Arrest, Cardioulmonary Resuscitation/ethics, Child, Child Preschool, December 2016 List, Emergency Care, End-of-life Care, Ethics Medical, Europe, Female, Greif R, Haywood K, Heart Arrest/therapy, Humans, Leadership, Linear Models, Male, Mentzelopoulos SD, Perkins GD, Raffay V, Resuscitation, Surveys And Questionnaires, Terminal Care/ethics, Van de Voorde P, Xanthos T
End of Life Care for Infants, Children and Young People with Life Limiting Conditions: Summary of Nice Guidance
Family Conferences In The Neonatal Icu: Observation Of Communication Dynamics And Contributions.
OBJECTIVES:
Clinicians in the neonatal ICU must engage in clear and compassionate communication with families. Empirical, observational studies of neonatal ICU family conferences are needed to develop counseling best practices and to train…
Tags: 2016, Arnold RM, Boss RD, Communication, Critical Illness/psychology, December 2016 List, Decision Making, Donohue PK, Empathy, Female, Humans, Infant Newborn, Intensive Care Units Neonatal, Larson SM, Male, Parents/psychology, Pediatric Critical Care Medicine, Professional-family Relations, Qualitative Research, Roter DL, Terminal Care/psychology
Life Transitions Of Adolescents And Young Adults With Life-limiting Conditions
A systematic review was conducted to appraise and classify evidence related to the life transitions of adolescents and young adults with life-limiting conditions.
Methods:
The databases searched were MEDLINE, CINAHL, PsycINFO, CancerLit, and…
Tags: 2016, Adaptation Psychological, Adolescent, Adolescent Development, Adolescents, Adult, Brain Neoplasms, Child, Cystic Fibrosis, December 2016 List, Disease Progression, Emotions, Family, Health Status, Humans, International Journal of Palliative Nursing, Jindal-Snape, Johnston, Life Transitions, Life-limiting Conditions, Mental Health, Muscular Dystrophy Duchenne, Neurodegenerative Diseases, Pringle J, Terminally Ill, Young Adult, Young Adults
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult
The Experiences Of Families Living With The Anticipatory Loss Of A School-age Child With Spinal Muscular Atrophy – The Parents’ Perspectives
To probe into parents’ anticipatory loss of school-age children with Type I or II spinal muscular atrophy.
Background
Spinal muscular atrophy is a rare disorder that causes death. Children die early due to either gradual atrophy…
Tags: 2016, Adult, Anticipatory Loss, Child, Female, Grief, Humans, Interviews As Topic, Journal of Clinical Nursing, July 2016 List, Male, Middle Aged, Muscular Atrophy Spinal/nursing, Muscular Atrophy Spinal/psychology, Nurse's Role, Parents/psychology, School-age Children, Spinal Muscular Atrophy, Taiwan, Yang
Factors Influencing The Uptake Of Neonatal Bereavement Support Services – Findings From Two Tertiary Neonatal Centres In The Uk
Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing factors.
Method
The medical…
Tags: 2016, Autopsy, Bereavement, Bereavement Follow Up, BMC Palliative Care, Charanjit Kaur, Death, England, Ethnicity, Female, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal, Jayanta Banerjee, June 2016 List, Male, Narendra Aladangady, Neonatal, Parents/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Perinatal Care/utilization, Rahul Roy, Referral And Consultation/utilization, Social Support, Socio-economic, Socioeconomic Factors, Sridhar Ramaiah, Stillbirth/psychology
Helping Families Cope With The Severe Stress Of Dravet Syndrome.
A child with Dravet syndrome shakes family life to the core. Dravet syndrome usually has three phases: (1) up to 1-1½ years: with episodes of febrile status epilepticus but normal development; (2) age 1½ to ~6-10 years: with frequent…
Tags: 2016, Camfield C, Camfield P, Canadian Journal of Neurological Sciences, Dravet Syndrome, Epilepsies, Epilepsies Myoclonic/physiopathology, Epilepsies Myoclonic/psychology, Family, Family Health, Female, Help, Humans, June 2016 List, Male, Management, Myoclonic/nursing, Nolan K, Stress Psychological/etiology, Support, Transition To Adult Care
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
An Order Protocol For Respiratory Distress/acute Pain Crisis In Pediatric Palliative Care Patients: Medical And Nursing Staff Perceptions
An order protocol for distress (OPD), including respiratory distress and acute pain crisis, has been established for pediatric palliative care patients at Sainte-Justine Hospital (SJH). After discussion with the patient/his or her family,…
Tags: 2016, Acute Pain/therapy, Adolescent, Adult, Advance Directives, Aged, Attitude Of Health Personnel, Bidet G, Canada, Child, Child Preschool, Daoust L, Ducruet T, Duval M, Female, Humans, Humbert N, Infant, Infant Newborn, Journal of Palliative Medicine, Male, March 2016 List, Medical Staff Hospital/psychology, Middle Aged, Nursing Staff Hospital/psychology, Palliative Care/standards, Pediatric Nursing/standards, Practice Guidelines As Topic, Respiratory Distress Syndrome Adult/therapy, Surveys And Questionnaires, Toledano B, Young Adult
Development And Evaluation Of A Palliative Care Curriculum For Cystic Fibrosis Healthcare Providers.
Primary palliative care refers to basic skills that all healthcare providers can employ to improve quality of life for patients at any stage of disease. Training in these core skills is not commonly provided to clinicians caring for…
Tags:
2016, Altstein
LL, Attitude Of Health Personnel, Buxton D, Curriculum, Cystic Fibrosis, Cystic Fibrosis/psychology, Cystic Fibrosis/therapy, Disease Management, Education, End-of-life Care, Female, Friedman D, Georgiopoulos AM, Health Personnel/education, Health Personnel/psychology, Humans, Journal of Cystic Fibrosis, Linnemann RW, Male, March 2016 List, Middle Aged, Needs Assessment, O’Malley PJ, Palliative Care, Palliative Care/methods, Palliative Care/psychology, Quality Of Life, Surveys And Questionnaires, Terminal Care/methods, Terminal Care/psychology, United States
Dying At Lifes Beginning: Experiences Of Parents And Health Professionals In Switzerland When An ’in Utero' Diagnosis Incompatible With Life Is Made.
The disclosure of a diagnosis during pregnancy of a fetal malformation, which is incompatible with life, normally comes completely unexpectedly to the parents. Although a body of international literature has considered the topic, most of…
Tags: 2016, Attitude Of Health Personnel, Decision Making, Female, Fetal Congenital Malformation, Fetus/abnormalities, Fleming V, Gaps, Genetic Counseling/psychology, Humans, Iljuschin I, Interviews As Topic, Male, March 2016 List, Maurer F, Midwifery, Parents/psychology, Parpan F, Pehlke-Milde J, Pregnancy, Prenatal-diagnosis, Surveys And Questionnaires, Switzerland, Temporality, Thematic Analysis
Extremely Premature Birth And The Choice Of Neonatal Intensive Care Versus Palliative Comfort Care: An 18-year Single- Center Experience.
Review all live births 22 0/7 through 26 6/7 weeks gestation born 1996 through 2013 at our institution to describe the decision process and immediate outcomes of palliative comfort care (PCC) versus neonatal intensive care (NICU) and…
Tags: 2016, Adult, Counseling, Decision Making, Female, Gestational Age, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Kaempf JW, March 2016 List, Oregon, Palliative Care/organization & Administration, Perinatal Care/ethics, Perinatal Care/methods, Pregnancy, Premature Birth/nursing, Resuscitation, Retrospective Studies, Tomlinson MW, Tuohey J, Young Adult
Impact Of A Palliative Care Program On End-of- Life Care In A Neonatal Intensive Care Unit.
Evaluate changes in end-of-life care following initiation of a palliative care program in a neonatal intensive care unit.
STUDY DESIGN:
Retrospective study comparing infant deaths before and after implementation of a Palliative Care…
Tags: 2016, Benzodiazepines/therapeutic Use, Brandon D, Cause Of Death, Cotten CM, Female, Goldberg RN, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Male, March 2016 List, Morphine/therapeutic Use, Palliative Care, Resuscitation Orders, Retrospective Studies, Simmons C, Smith PB, Terminal Care, Withholding Treatment/trends, Younge N
Neonatal Deaths: Prospective Exploration Of The Causes And Process Of End-of- Life Decisions.
To determine the causes and process of death in neonates in Canada.
DESIGN:
Prospective observational study.
SETTING:
Nineteen tertiary level neonatal units in Canada.
PARTICIPANTS:
942 neonatal deaths (215 full-term and 727…
Tags: 2016, Andrews W, Archives of Disease in Childhood, Asphyxia Neonatorum/mortality, Canada/epidemiology, Cause Of Death, Chromosome Aberrations, Clinical Decision-making, Congenital Abnormalities/mortality, Ethics, Hellmann J, Humans, Hypoxia-ischemia Brain/mortality, Infant Extremely Premature, Infant Newborn, Infant Premature, Intensive Care Units Neonatal, Intracranial Hemorrhages/mortality, Knighton R, Lee SK, Lung Diseases/mortality, March 2016 List, Mortality, Neonatology, Palliative Care, Patient Care Team, Payot A, Practice Patterns Physicians'/statistics & Numerical Data, Prospective Studies, Shah P, Term Birth, Withholding Treatment/statistics & Numerical Data
Palliative Care Research - A Systematic Review Of Foci, Designs And Methods Of Research Conducted In Sweden Between 2007 And 2012.
In 2007, a literature review was undertaken of palliative care research from Sweden during the 1970s-2006, paving the way for a follow-up study to explore the recent developments. The aim was to systematically examine palliative care…
Tags: 2016, Adolescent, Adult, Aged, Aged 80 And Over, Carlander I, Child, End-of-life Care, Female, Henoch I, History 21st Century, Holm M, Humans, James I, Kenne Sarenmalm E, Lundh Hagelin C, Male, March 2016 List, Middle Aged, Palliative Care, Research Design, Research Designs, Research Methods, Review, Scandinavian journal of caring sciences, Sweden, Young Adult
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
“the Nice Thing About Doctors Is That You Can Sometimes Get A Day Off School”: An Action Research Study To Bring Lived Experiences From Children, Parents And Hospice Staff Into Medical Students’ Preparation For Practice.
Patient and public involvement in healthcare is important to ensure services meet their needs and priorities. Increasingly, patient experiences are being used to educate healthcare professionals. The potential contribution to medical…
Tags: 2016, Adolescent, BMJ Supportive & Palliative Care, Child, Clinical Competence/standards, Education And Training, Education Medical/standards, Female, Focus Groups, Health Services Research, Hospice Care, Hospice Care/standards, Humans, Male, May 2016 List, Palliative Care, Pediatrics, Pediatrics/education, Pediatrics/standards, Physician-patient Relations, Qualitative Research, Spalding J, Yardley S
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
Elective Ventilation To Facilitate Organ Donation In Infants With Anencephaly: Perinatal Professionals’ Views And An Ethical Analysis.
Following the elective ventilation and referral for organ donation of an infant with anencephaly, we sought local perinatal professionals' views of this practice.
METHODS:
Anonymous online survey: demographics, ethical viewpoints and potential…
Tags: 2016, Anencephaly/diagnosis, Anencephaly/therapy, Attitude Of Health Personnel, Brierley J, Ethical Analysis, Ethics, Female, Humans, International Journal of Paediatrics, Jivraj A, London, Major Congenital Anomaly, Male, May 2016 List, Neonates, Organ Donation, Palliative Care/ethics, Palliative Care/methods, Perinatal Care/ethics, Perinatal Care/methods, Pregnancy, Prenatal-diagnosis, Respiration Artificial/ethics, Scales A, Tissue And Organ Procurement/ethics
Ethical Dilemmas In Postnatal Treatment Of Severe Congenital Hydrocephalus.
Tags: 2016, Cambridge Quarterly of Healthcare Ethics, Children, Decision Making/ethics, Ethics Medical, Female, Humans, Hydrocephalus, Hydrocephalus/diagnosis, Hydrocephalus/therapy, Infant, Infant Premature, Intensive Care Neonatal/ethics, Male, May 2016 List, Medical Ethics, Medical Futility, Medical Futility/ethics, Neonatal Intensive Care Unit, Postnatal Care/ethics, Quality Of Life, Severity Of Illness Index, Ventriculoperitoneal Shunt/ethics, Wilkinson D, Withdrawing Treatment, Withholding Treatment/ethics
Methadone Conversion In Infants
And Children: Retrospective Cohort Study Of 199 Pediatric Inpatients.
Methadone administration has increased in pediatric clinical settings. This review is an attempt to ascertain an equianalgesic dose ratio for methadone in the pediatric population using standard adult dose conversion…
Tags: 2016, Administration Oral, Adolescent, Age Factors, Analgesics Opioid, Analgesics Opioid/administration & Dosage, Analgesics Opioid/adverse Effects, Child, Child Preschool, Consciousness/drug Effects, Drug Administration Schedule, Drug Dosage Calculations, Drug Monitoring, Drug Overdose/etiology, Drug Substitution, Fife A, Flood A, Friedrichsdorf SJ, Hospitals Pediatric, Humans, Infant, Infant Newborn, Inpatients, Intubation Intratracheal, Journal of opioid management, May 2016 List, Methadone, Methadone/administration & Dosage, Methadone/adverse Effects, Minnesota, Pain/diagnosis, Pain/drug Therapy, Pharmacy Service Hospital, Postier A, Respiration Artificial, Retrospective Studies, Risk Factors, Substance Withdrawal Syndrome/etiology, Substances, Tertiary Care Centers, Time Factors, Treatment Outcome
Parental Decision-making On
Utilisation Of Out-of- Home Respite In Children’s Palliative Care: Findings Of
Qualitative Case Study Research - A Proposed New Model.
Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the…
Tags: 2016, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Children, Connaire K, Decision Making, Female, Humans, Ireland/epidemiology, Ling J, Longitudinal Studies, Male, May 2016 List, McCarron M, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Payne S, Pediatrics, Qualitative Research, Quality Of Health Care, Respite, Respite Care, Social Support, Terminally Ill/psychology
Perceptions Of Palliative Care In The Nicu.
The American Academy of Pediatrics supports palliative care (PC) for all children with life-threatening illnesses. Thus, many neonatal intensive care unit (NICU) patients and their families could benefit from PC. Our study…
Tags: 2016, Advances in Neonatal Care, Communication, Continuity Of Patient Care, Emotions, Falck AJ, Female, Humans, Hussey-Gardner B, Infant Newborn, Intensive Care Units Neonatal, Interviews As Topic, Male, May 2016 List, Moorthy S, Mothers/psychology, Palliative Care/utilization, Privacy, Qualitative Research, Social Support
Short Break And Emergency Respite Care: What Options For Young People With Life-limiting Conditions?
Service providers face difficult decisions about how best to develop services for the increasing numbers of young people with life-limiting conditions who require palliative care.
OBJECTIVE:
To explore alternative short break and…
Tags: 2016, Adolescent, Adult, Emergency Medical Services, Focus Groups, Humans, International Journal of Palliative Nursing, Interviews As Topic, Jack BA, Knighting K, Life-limiting Conditions, May 2016 List, Mitchell TK, O’Brien MR, Palliative Care, Respite Care, Short Breaks, Terminally Ill, Transition, Young Adult, Young People
The Development And Evaluation Of A Holistic Needs Assessment Within Children’s Palliative Care.
What Are Palliative Care Physicians For Adults Taught On Palliative Care For Children? Paediatric Aspects In Palliative Care Curricula For Adults.
Children suffering from life limiting diseases are frequently cared for by adult palliative care teams due to missing paediatric structures in that field. However it is questionable whether palliative care curricula for physicians…
When Parents Face The Death Of Their Child: A Nationwide Cross-sectional Survey Of Parental Perspectives On Their Child’s End- Of Life Care.
Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the…
Tags:
2016, Attitude Of Health Personnel, Attitude To Death, Bergstraesser E, BMC Palliative Care, Chantal Grandjean, Cross-sectional Studies, Death, Decision Making, End Of Life, Engberg S, Eva Cignacco
K, Female, Humans, Infant Newborn, Male, Marfurt-Russenberger, May 2016 List, Nicolas Von der Weid, Parental Perspectives, Parents/psychology, Patricia Fahrni-Nater, Pediatrics, Pediatrics/standards, Perception, Questionnaire Survey, Ramelet AS, Resuscitation Orders/psychology, Surveys And Questionnaires, Switzerland, Terminal Care, Terminal Care/standards, Von der Weid N, Zimmermann K
An Evidence-based Infant Safe Sleep Program To Reduce Sudden Unexplained Infant Deaths
Limiting And Withdrawing Life Support In The Picu: For Whom Are These Options Discussed?
Tags: 2016, Berg RA, Carcillo J, Child, Child Preschool, Critical Care/methods, Dalton H, Dean JM, Female, Funai T, Harrison R, Holubkov R, Humans, Infant, Intensive Care Units Pediatric, Keele L, Length Of Stay, Life Support Care/utilization, Logistic Models, Male, Meert KL, Morrison W, Newth CJ, November 2016 List, Pediatric Critical Care Medicine, Pollack M, Prospective Studies, Resuscitation Orders, Severity Of Illness Index, Shanley T, Terminal Care/methods, Wessel DL
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and…
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross-sectional Studies, Death, Duroux A, Dyspnea/diagnosis, Dyspnea/psychology, End-of-life Symptoms, Female, Führer M, Grasser M, Home Care Services/standards, Humans, Male, November 2016 List, Pain/diagnosis, Pain/psychology, Palliative & Supportive Care, Palliative Care/methods, Palliative Care/psychology, Parents/psychology, Pediatric Palliative Home Care, Pediatrics/methods, Perception, Quality Of Life/psychology, Retrospective Studies, Surveys And Questionnaires, Symptom Assessment/psychology, Symptom Perception, Vollenbroich R
More Than Medication: Perinatal Palliative Care
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Decision Making/ethics, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal, Maternal-fetal Relations/psychology, November 2016 List, Palliative Care/ethics, Palliative Care/legislation & Jurisprudence, Palliative Care/psychology, Parental Consent/ethics, Parental Consent/legislation & Jurisprudence, Parental Consent/psychology, Patient Rights/ethics, Patient Rights/legislation & Jurisprudence, Perinatal Care/ethics, Perinatal Care/legislation & Jurisprudence, Perinatal Care/standards, Personhood, Professional-family Relations, Resuscitation Orders/ethics, Resuscitation Orders/legislation & Jurisprudence, Resuscitation Orders/psychology
Protocol: Evaluating The Impact Of A Nation-wide Train-the-trainer Educational Initiative To Enhance The Quality Of Palliative Care For Children With Cancer
There are identified gaps in the care provided to children with cancer based on the self-identified lack of education for health care professionals in pediatric palliative care and in the perceptions of bereaved parents who describe…
Tags: 2016, Adolescent, BMC Palliative Care, Bouffet E, Canada, Cancer Quality Care, Child, Child Preschool, Curriculum/standards, Education Knowledge Translation, Friedrichsdorf SJ, Greenberg M, Health Personnel/education, Humans, Husain A, Liben S, Neoplasms/therapy, November 2016 List, Palliative Care, Palliative Care/methods, Palliative Care/standards, Pediatrics, Pediatrics/methods, Pole JD, Program Evaluation, Quality Of Life/psychology, Rapoport A, Siden H, Teaching/standards, Whitlock JA, Widger K, Wolfe J
Staff Efficiency Trends Among Pediatric Hospices, 2002-2011.
Tags: 2016, Adolescent, California, Child, Child Preschool, Cozad MJ, Efficiency Organizational/statistics & Numerical Data, Female, Forecasting, Hospice Care/statistics & Numerical Data, Hospice Care/trends, Hospices/trends, Hospitals Pediatric, Hospitals Pediatric/statistics & Numerical Data, Humans, Infant, Infant Newborn, Lindley LC, Male, Mixer SJ, November 2016 List, Nursing Economic$, Personnel Staffing And Scheduling/statistics & Numerical Data, Personnel Staffing And Scheduling/trends, Workload/statistics & Numerical Data, Young Adult
Delivery Room Practices For Extremely Preterm Infants: The Harms Of The Gestational Age Label.
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, Children's Rights, Delivery Rooms, Ethics, Europe/epidemiology, Gestational Age, Humans, Infant, Infant Extremely Premature, Infant Mortality, Intensive Care Neonatal, Janvier A, Lantos J, Neonatology, October 2016 List, Palliative Care, Prognosis, Resuscitation, Survival Rate
End-of-life Decision-making For Children With Severe Developmental Disabilities: The Parental Perspective.
The objectives of this integrative review were to understand how parents of children with severe developmental disorders experience their involvement in end-of-life decision-making, how they prefer to be involved and what factors…
Tags: 2016, Critical Treatment Decision, de Vos MA, Decision Making, Decision-making, Developmental-disabilities, End Of Life, Ewals FV, Humans, Integrative Review, October 2016 List, Parents, Quality Of Life, Research in Developmental Disabilities, Severe Developmental Disorder, Severity Of Illness Index, Terminal Care, To Advocate, van Goudoever JB, Willems DL, Zaal-Schuller IH