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Dublin Core
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Title
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October 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October List 2023
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2022.10.015" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.jpainsymman.2022.10.015</a>
Dublin Core
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Title
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End of Life in Pediatrics: The "Relief" of Poetry on Pain by Reaching Children's Spirituality
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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Pain; Humans; Child; Palliative Care; Pediatrics; Spirituality; Poetry; Only Child; Death; Humanities; Pediatrics; Spiritual Therapies
Creator
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Calandrino A
Description
An account of the resource
This article provides a brief overview on the role of poetry into the pediatric palliative and end-of-life care setting. Starting from examples, the author deepens possible applications to the world of children and offers a poem, from his direct experience, which deals with the cited thematic.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2022.10.015" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2022.10.015</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Calandrino A
Child
Death
Humanities
Humans
J Pain Symptom Manage
October List 2023
Only Child
Pain
Palliative Care
Pediatrics
Poetry
Spiritual therapies
Spirituality
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.1590/0034-7167-2022-0476" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1590/0034-7167-2022-0476</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Searching for human connection to transcend symbolisms in pediatric palliative care
Publisher
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Revista Brasileira de Enfermagem
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Humans; Child; Palliative Care; Adolescent; Qualitative Research; Health Personnel; Symbolism; Humanism; Palliative Care/methods; Humanities; Empathy
Creator
An entity primarily responsible for making the resource
Moreira-Dias PL; Franco LF; Bonelli MA; Ferreira EAL; Wernet M
Description
An account of the resource
OBJECTIVES: to present a theoretical model for the interactional context of health professionals and families of children and adolescents under palliative care. METHODS: qualitative study based on the theoretical frameworks of Grounded Theory and Symbolic Interactionism. Ten palliative care professionals took part in this study through semi-structured interviews employing snowball technique from 2020 to 2021. RESULTS: the comparative data analysis resulted in the theoretical model "Searching for human connection to transcend symbolisms in pediatric palliative care". It reveals symbolic elements that substantiate the construction of a collaborative context integrating two phenomena: "Overcoming boundaries and intertwining paths" and "Embracing suffering to weave meaningful experiences". Symbolisms in palliative care guide the behavior of families and professionals, which makes them the key factor to be managed. FINAL CONSIDERATIONS: symbolisms and suffering continually integrate the interactional experience of professionals. Empathy and compassion are fundamental elements to enable their connection with families.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1590/0034-7167-2022-0476" target="_blank" rel="noreferrer noopener">10.1590/0034-7167-2022-0476</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Adolescent
Bonelli MA
Child
Empathy
Ferreira EAL
Franco LF
Health Personnel
Humanism
Humanities
Humans
Moreira-Dias PL
Palliative Care
Palliative Care/methods
Qualitative Research
Revista Brasileira de Enfermagem
September List 2046
Symbolism
Wernet M
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
July 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July List 2023
URL Address
<a href="http://doi.org/10.1177/02692163231172244" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1177/02692163231172244</a>
Dublin Core
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Title
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You have a little human being kicking inside you and an unbearable pain of knowing there will be a void at the end': A meta-ethnography exploring the experience of parents whose baby is diagnosed antenatally with a life limiting or life-threatening condition
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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advance care planning; Antenatal diagnosis; family centred care; family nursing; hospice care; Humanism; Humanities; Humans; maternal-child nursing; palliative care; perinatal care
Creator
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Tatterton MJ; Fisher MJ
Description
An account of the resource
BACKGROUND: Parents of babies diagnosed with life limiting conditions in the perinatal period face numerous challenges. Considerations include the remainder of the pregnancy, delivery of the baby and decisions around care in the neonatal period. AIM: To increase understanding of how parents experience the diagnosis of a life-limiting or life-threatening condition, during pregnancy and following the birth of their baby, by answering the question: 'what is known about the perinatal experiences of parents of babies with a life-limiting or life-threatening diagnosis?' DESIGN: A meta-ethnography was conducted to synthesise findings from existing qualitative evidence. DATA SOURCES: British Nursing Database, CINAHL, Medline, PsycINFO and Embase databases were searched in January 2023. FINDINGS: Relationships between parents and their families and friends, and with professionals influence the needs and experiences of parents, which oscillate between positive and negative experiences, throughout parents' perinatal palliative care journey. Parents highlighted the need for control and a sense of normality relating to their parenting experience. Validation was central to the experience of parents at all stages of parenthood. Relationships between the parent and the baby were unwavering, underpinned with unconditional love. CONCLUSION: Professionals, family members and friendship groups influence the experience, validating parents and their baby's identity and supporting parents in having a sense of control and normality by demonstrating empathy, and providing time and clear communication.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163231172244" target="_blank" rel="noreferrer noopener">10.1177/02692163231172244</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Advance Care Planning
Antenatal diagnosis
Family centred care
Family Nursing
Fisher MJ
Hospice Care
Humanism
Humanities
Humans
July List 2023
Maternal-Child Nursing
Palliative Care
Palliative Medicine
Perinatal Care
Tatterton MJ
-
Dublin Core
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Title
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April 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2018 List
URL Address
<a href="http://doi.org/10.3389/fped.2018.00003" target="_blank" rel="noreferrer noopener">http://doi.org/10.3389/fped.2018.00003</a>
Dublin Core
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Title
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A Review of the Integrated Model of Care: An Opportunity to Respond to Extensive Palliative Care Needs in Pediatric Intensive Care Units in Under-Resourced Settings
Publisher
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Frontiers in Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Humanities; pediatric intensive care; Child; Health Resources; Humans; Intensive Care Units; Only Child; Palliative Care; Pediatric; pediatric palliative care; child; consultative model; Humanism; integrated model of care; low-resource settings; pediatric critical care; Pediatric Palliative Screening Scale
Creator
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Grunauer M; Mikesell C
Description
An account of the resource
It is estimated that 6.3 million children who die annually need pediatric palliative care (PPC) and that only about 10% of them receive the attention they need because about 98% of them live in under-resourced settings where PPC is not accessible. The consultative model and the integrated model of care (IMOC) are the most common strategies used to make PPC available to critically ill children. In the consultative model, the pediatric intensive care unit (PICU) team, the patient, or their family must request a palliative care (PC) consultation with the external PC team for a PICU patient to be evaluated for special care needs. While the consultation model has historically been more popular, issues related to specialist availability, referral timing, staff's personal biases, misconceptions about PC, and other factors may impede excellent candidates from receiving the attention they need in a timely manner. Contrastingly, in the IMOC, family-centered care, PC tasks, and/or PC are a standard part of the treatment automatically available to all patients. In the IMOC, the PICU team is trained to complete critical and PC tasks as a part of normal daily operations. This review investigates the claim that the IMOC is the best model to meet extensive PPC needs in PICUs, especially in low-resource settings; based on an extensive review of the literature, we have identified five reasons why this model may be superior. The IMOC appears to: (1) improve the delivery of PPC and pediatric critical care, (2) allow clinicians to better respond to the care needs of patients and the epidemiological realities of their settings in ways that are consistent with evidence-based recommendations, (3) facilitate the universal delivery of care to all patients with special care needs, (4) maximize available resources, and (5) build local capacity; each of these areas should be further researched to develop a model of care that enables clinicians to provide pediatric patients with the highest attainable standard of health care. The IMOC lays out a pathway to provide the world's sickest, most vulnerable children with access to PPC, a human right to which they are entitled by international legal conventions.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3389/fped.2018.00003" target="_blank" rel="noreferrer noopener">10.3389/fped.2018.00003</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2018 List
Child
consultative model
Frontiers in Pediatrics
Grunauer M
Health Resources
Humanism
Humanities
Humans
integrated model of care
Intensive Care Units
low-resource settings
Mikesell C
Only Child
Palliative Care
Pediatric
Pediatric Critical Care
Pediatric Intensive Care
Pediatric Palliative Care
Pediatric Palliative Screening Scale
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Succession Planning In Children's Palliative Care Services
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Palliative Therapy; Board Of Trustees; Child; Education; Family; Hospice; Human; Human Experiment; Humanism; Humanities; Humans; Intelligence; Leadership; Only Child; Organization; Palliative Care; Retirement; Skill; Staff; Work
Creator
An entity primarily responsible for making the resource
Dickson G
Description
An account of the resource
The children's palliative care sector requires a specific set of knowledge and skills in its workforce. Maintaining high levels of competence and leadership can be challenging if staff move out of the sector, retire or several key people leave. Succession planning can been described as: "any effort designed to ensure the continued effective performance of an organisation by making provision for the development, replacement, and strategic application of key people over time." 1 We produced a guidance document which signposts organisations towards actions to take in building a sustainable workforce. Succession planning done successfully will promote continuity in leadership positions, increased retention and loyalty of staff. The guidance document helps provider organisations identify the risks to the organisation and the challenges facing them in future planning - then suggests some solutions. This Guide was produced with contributions from experts with a national and international perspective, including human resources professionals, higher education and statutory services. It was shared with all leaders in the sector including Chief Executives of Children's Hospice and Palliative Care organisations and put on the Together for Short Lives website The Guide was well received with good feedback from within the sector. Suggestions to activate included: * Gathering workforce intelligence for the whole workforce, including age, job descriptions and skills required * Match competence levels to job roles to identify gaps and strengths * Identify key posts and leadership positions * Explore creative solutions; e.g. partial retirement * Invest in time for Boards of trustees to discuss the plan and identify risks to their organisations These activities will ensure children's palliative care organisations will continue to deliver the best care and support to children and families so they continue to make the most of their precious time together.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Board Of Trustees
Child
Dickson G
Education
Family
Hospice
Human
Human Experiment
Humanism
Humanities
Humans
Intelligence
Leadership
May 2017 List
Only Child
Organization
Palliative Care
Palliative Medicine
Palliative Therapy
Retirement
Skill
Staff
Work