Browse Items (920 total)
- Tags: Human
The conceptual understanding of pediatric palliative care: A Swiss healthcare perspective
Experiences from the first 10 years of a perinatal palliative care program: A retrospective chart review
Tags: 2021, April 2021 List, Central Nervous System Diseases, Descriptive Statistics, Doherty ME, Early Intervention, Gestational Age, Grandmaison Dumond L, Human, Infant, Infant High Risk, Neonatologists, Paediatrics & Child Health, Palliative Care -- In Infancy and Childhood, Perinatal Care, Perinatal Death, Power L, Prenatal Diagnosis, Program Evaluation, Record Review, Referral And Consultation, Retrospective Design, Stoppels N, Terminal Care, Treatment Outcomes, Williams R, Work Experiences
Quantification of walking-based physical activity and sedentary time in individuals with Rett syndrome
Tags: 2017, Adolescent, Adult, characteristics, Controlled Study, Cross-sectional Study, Data Base, Developmental Medicine and Child Neurology, Downs J, Female, Hill K, Human, Leonard H, linear regression analysis, Major Clinical Study, Model, Newton N, Quantitative Study, Rett syndrome, scoliosis, Seizure, tone and motor problems, Trajectory, Wakefulness, Walking, Wong K
Parent-Reported Symptoms and Medications Used Among Children With Severe Neurological Impairment
Tags: 2020, Adolescence, Blackmer AB, Central Nervous System Agents -- Therapeutic Use, Child, Child Preschool, Comorbidity, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Fairclough DL, Feinstein JA, Female, Feudtner C, Funding Source, Gregoire LA, Health Resource Utilization, Holstein J, Human, Infant, JAMA Network Open, Kempe A, Male, March 2021 List, Nervous System Diseases -- Epidemiology -- In Adolescence, Nervous System Diseases -- Epidemiology -- In Infancy and Childhood, Nervous System Diseases -- Symptoms, Peripheral Nervous System Agents -- Therapeutic Use, Polypharmacy, Record Review, Samay S, scales, Severity of Illness, Valuck RJ
Rett's syndrome: Characterization of respiratory patterns and sleep
Tags: 1987, abnormal respiratory problems, abnormal sleep patterns, Annals Of Neurology, ataxia, Autism, breathing difficulties, Central Nervous System, characteristics, Child, Dementia, Diagnosis, etiology, Frost Jr J D, Glaze D G, heredity, Human, hyperpnea, Major Clinical Study, Percy A K, Priority Journal, Respiratory System, Rett syndrome, Seizure, Sleep, sleep disturbance, Trajectory, Zoghbi H Y
Mothers of angels: (re)living the death of the child as a coping strategy
Tags: 2020, Adult, Anna Nery School Journal of Nursing / Escola Anna Nery Revista de Enfermagem, Attitude To Death, Child, Coping, Data Analysis Software, de Azevedo Mazza V, Death -- In Infancy and Childhood, Descriptive Research, Exploratory Research, Focus Groups, Gramazio Soares L, Hardiness, Human, Kuchla É, March 2020 List, Mother-child Relations, Mothers -- Psychosocial Factors, Padilha Mattei A, Qualitative Studies, Raimondo Ferraz M I, Thematic Analysis
The Phenomenon of Bereaved Parenting: An Integrative Review of Literature
Tags: 2021, Bereavement, Communication, Conflict (Psychology), Coping, Emotions, Family Role, Grief, Haylett WJ, Human, March 2021 List, Omega: Journal Of Death & Dying, Parental Role, Parenting, Parents -- Psychosocial Factors, Psychology, Science, Scott Tilley D, Social Work, Survivors, Systematic Review
A demanding act of love: Barriers and challenges in communication and decision-making for infants at the limits of viability
The codesign of an interdisciplinary team-based intervention regarding initiating palliative care in pediatric oncology
Tags: 2018, Article, Bone Marrow Transplantation, Casas JA, Child, Childhood Cancer, Clinical Article, DiDomenico C, Feasibility Study, Female, Feudtner C, frustration, Hill DL, Human, Male, Oncology 2018 List, Palliative Therapy, solid malignant neoplasm, Supportive Care In Cancer, Szymczak JE, Uncertainty, Walter JK
Getting a Seat at the Table: An Iterative Development Process to Improve Available Benchmark Data for Pediatric Palliative Care Programs (S778)
Tags: 2020, administrative personnel, Child, conference abstract, Controlled Study, District of Columbia, Friebert S, Hospital Patient, Human, Humphrey L, Journal of Pain and Symptom Management, Klick J, March 2020 List, Palliative Therapy, Perception, phase 1 clinical trial, Program Development, Rogers M, Williams C, workflow
Enhancing Connections-Palliative Care: A Quasi-Experimental Pilot Feasibility Study of a Cancer Parenting Program
Tags: 2020, Adolescent, Advanced Cancer, Almulla H A, Alzawad Z, anxiety, Article, Child, Child Parent Relation, Controlled Study, Depression, Disease Course, Distress Syndrome, Feasibility Study, Griffith K A, Hospice, Human, Journal of Palliative Medicine, Lewis F M, Loggers E T, Metastasis, Nurse, Oncology 2020 List, Palacios R, Palliative Therapy, Phillips F, Preschool Child, program impact, psychological adjustment, Self Concept, Shands M E, Skill, Telephone, Tercyak K P, tumor-related gene, Zahlis E H
Children With Intellectual Disability and Hospice Utilization: The Moderating Effect of Residential Care
Tags: 2018, California, Child, December 2018 List, Female, Hospice Care, Hospital Admission, Human, intellectual impairment/th [Therapy], Lindley LC, Long Term Care, Male, Medicaid, Organization And Management, Patient Preference, Statistics And Numerical Data, Terminal Care, The American Journal of Hospice & Palliative Care, United States, utilization
Key Findings of the Structures and Processes of Inpatient Pediatric Palliative Care Programs (S737)
Tags: 2020, Burnout, Child, Clergy, conference abstract, Controlled Study, Female, Friebert S, Health Care Delivery, Health Care System, Heitner R, Hospital Patient, Human, Journal of Pain and Symptom Management, Klick J, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Physician, Practice Guideline, registered nurse, Rogers M, Social Worker, Williams C
Evaluation of End-of-Life Care Programs at Emily's House Children's Hospice
Angels in the Clouds: Stillbirth and Virtual Cemeteries on 50 YouTube Videos
Tags: 2021, April 2021 List, Bacqué MF, Burial Practices, Descriptive Statistics, Human, Laurenti Dimanche AC, Mothers -- Psychosocial Factors, music, Omega: Journal Of Death & Dying, Perinatal Death, Photography, Qualitative Studies, Religion and Religions, Sani L, social media, User-Computer Interface, videorecording
Functional and gait assessment in children and adolescents affected by Friedreich's ataxia: A one-year longitudinal study
Tags: 2016, Adolescent, Article, assessment of humans, Bella G D, Bertini E, Castelli E, characteristics, Child, Clinical Article, Controlled Study, Female, Friedreich's ataxia, functional assessment, Gait, Gait Analysis and the Scale for the Assessment and Rating of Ataxia, Gazzellini S, Human, Lispi M L, longitudinal study, Male, Petrarca M, Pisano A, PLoS One, Preschool Child, Reliability, step length, stride length, tone and motor problems, Trajectory, Vasco G, Walking, walking velocity, Zazza M
Advances in pediatric psychooncology
Tags: 2020, Adult, Attention, Bereavement, cancer center, Cancer Patient, Child, Childhood Cancer, chimeric antigen receptor T-cell immunotherapy, Current Opinion In Pediatrics, Devine K A, Distress Syndrome, evidence based practice center, hereditary tumor syndrome, Human, Infant, Oncology 2020 List, outcome assessment, Palliative Therapy, patient reported outcome, Psycho-Oncology, psychosocial care, Review, Sibling, Survivorship, Thompson A L, toddler, Wiener L, Young Adult
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Trends in the aggressiveness of pediatric cancer near the end-of-life
Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult
Are we on the same page? Exploring pediatric patients' involvement with advance care planning
Tags: 2023, Aasen ERHV, acquired immune deficiency syndrome, Adolescent, Adult, Advance Care Planning, Caregiver, Child, Cystic Fibrosis, Emotion, Female, Human, Journal of Pain and Symptom Management, June 2022 List, Lee A, Male, Medline, Neurology, oSovik ML, outcome assessment, Palliative Therapy, Patient Participation, pediatric patient, Randomized Controlled Trial (topic), Review, Stordal K, Systematic Review, Young Adult
Palliative care: an international view
The efficacy of educational interventions on neonatal intensive care unit nurses knowledge and attitude toward neonatal palliative care
Tags: 2023, Abuhammad S, adjuvant therapy, Adult, Aggression, analgesic activity, anxiety, Article, Attitude, care behavior, Chronic Pain, cocaine, Controlled Study, Death, Demographics, drowsiness, drug dependence, Education Program, Educational Status, El-Bashir M, Elayyan M, electrolyte disturbance, Electronic Journal of General Medicine, emotional deprivation, Family, Fatigue, Female, Grief, Hospital Admission, Human, Human Experiment, Infant Newborn, Intestine, Jordan, June 2022 List, Knowledge, Male, Marriage, Morphine, Nausea And Vomiting, Neonatal Intensive Care Unit, neonatal intensive care unit attitude scale, Nurse, Nursing, Opiate, Pain, Palliative Care, Palliative Therapy, pethidine, pretest posttest design, Prognosis, Questionnaire, Respiration Depression, scoring system, Sedation, work experience
Use of paclitaxel to successfully treat children, adolescents, and young adults with Kaposi sarcoma in southwestern Tanzania
Tags: 2021, 2023 SE5 - Low Resource Setting, Adinani H, Adolescent, Adult, antiretroviral therapy, antiretrovirus agent/dt [Drug Therapy], Article, Bacha J, bleomycin/cb [Drug Combination], bleomycin/dt [Drug Therapy], bleomycin/iv [Intravenous Drug Administration], Campbell L, cancer combination chemotherapy, Cancer Palliative Therapy, Cancer Recurrence, Cancer Survival, Child, Children, Cohort Analysis, dexamethasone/dt [Drug Therapy], doxorubicin/cb [Drug Combination], doxorubicin/dt [Drug Therapy], drug contraindication, El-Mallawany NK, Female, Follow Up, Human, Human immunodeficiency virus infection/dt [Drug Therapy], Kaposi sarcoma/dt [Drug Therapy], lack of drug effect, long term survival, Major Clinical Study, Male, Mehta P, multiple cycle treatment, Paclitaxel, paclitaxel/dt [Drug Therapy], Quality Of Life, Retrospective Study, Slone J, Tanzania, treatment duration, Treatment Outcome, Treatment Planning, trend study, vincristine/cb [Drug Combination], vincristine/dt [Drug Therapy], vincristine/iv [Intravenous Drug Administration], virus load, Young Adult
Challenges and opportunities in providing palliative care services to children with a life-limiting illness: A systematic review
A One Day Paediatric Palliative Care Study Day Improves Skills
Changes in Siblings Over Time After the Death of a Brother or Sister From Cancer
Tags: 2019, Adolescence, Adult, Akard T F, Barrera M, Bereavement, Cancer Nursing, Child, Content Analysis, Davies B, Dietrich M S, Fathers -- Psychosocial Factors, Female, Fortney C A, Gerhardt C A, Gilmer M J, Human, Male, McNemar's Test, Middle Age, Mothers -- Psychosocial Factors, Multimethod Studies, Neoplasms -- Mortality, Oncology 2019 List, Prospective Studies, Semi-Structured Interview, Siblings -- Psychosocial Factors, Skeens M A, Vannatta K, Wray S
Transforming a Face-to-Face Legacy Intervention to a Web-Based Legacy Intervention for Children With Advanced Cancer
Tags: 2020, Adolescent, Advanced Cancer, Akard T F, Article, Cancer Recurrence, cancer resistance, Caregiver, Child, Dietrich M S, Female, Friedman D L, Gerhardt C A, Gilmer M J, Given B, Hendricks-Ferguson V, Hinds P S, Human, Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, Major Clinical Study, Male, Oncology 2020 List, Palliative Therapy, Satisfaction, Wray S
Facebook Advertisements Recruit Parents of Children With Cancer for an Online Survey of Web-Based Research Preferences
Tags: 2014, Adolescent, advertizing, Akard TF, Article, Backlog, Cancer Nursing, Cancer Palliative Therapy, Cancer Patient, Cancer Recurrence, Cancer Research, Caregiver, Child, Childhood Cancer, click, computer, Diseases, Facebook, Female, Gilmer Mary Jo, Health Survey, Human, Income, Information Processing, Internet, Interpersonal Communication, Journal Article, legal guardian, Major Clinical Study, Male, mobile phone, Neoplasm, Nurse, Oncology, Only Child, Palliative Therapy, Parent, Parental Attitude, participant recruitment, Patient, Population, Priority Journal, Sample Size, School Child, social media, social network, Video Recording, Wray S
The effect of web-based pediatric palliative care education on the palliative care knowledge level and practices of nursing students
Improving cancer care for children in the developing world: Challenges and strategies
Tags: 2017, Accreditation, Al Lamki Z, Antineoplastic Agent, Awareness, Cancer Diagnosis, Cancer Recurrence, Cancer Registry, Cancer Research, Cancer Survival, Cancer Therapy, Child Care, Childhood Cancer, Clinical Effectiveness, Clinical Trial (topic), Cost Effectiveness Analysis, Country Economic Status, Cultural Factor, Current Pediatric Reviews, Delayed Diagnosis, Diagnostic Error, Family Therapy, Health Care Availability, Health Care Cost, Health Care Personnel, Human, Job Change, Medical Education, Medical Technology, Palliative Therapy, Patient Abandonment, Patient Referral, Poverty, Priority Journal, Program Sustainability, Review, Sepsis, Stratification, Toxicity
Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative study
Tags: 2023, 2023 SE3 - Oncology, Abdal-Rahman M, Adolescent, Adult, advanced cancer/dm [Disease Management], Ahmed F, Al-Awady S, Alajarmeh S, Alarjeh G, Alnassan A, Alrjoub W, Article, Attitude To Health, Boufkhed S, Caregiver, Child, Cross-sectional Study, doctor patient relationship, Female, Frontiers in Oncology, Guo P, Harding R, Health Care Personnel, Health Care Policy, health care practice, Human, Human Experiment, implicit bias, Information Dissemination, Jordan, Jordanian, Kutluk T, Male, Medical Information, myelodysplastic syndrome, myeloproliferative disorder, Palliative Therapy, pediatric patient, Qualitative Research, refugee, reticuloendothelial tumor, Semi Structured Interview, Shamieh O, Yurdusen S
Interactive Processes in Grief and Couples' Adjustment After the Death of a Child
Tags: 2019, Albuquerque S, Bereavement, Emotions, Empathy, Ferreira L C, Grief, Grounded Theory, Human, Infant Death -- Psychosocial Factors, Interpersonal Relations, Journal Of Family Issues, May 2019 List, Narciso I, Parents -- Psychosocial Factors, Pereira M, Semi-Structured Interview, Support Psychosocial
Child Death And Deterioration Review Group
Tags: 2017, Adoption, Adverse Drug Reaction, Alderton M, Archives of Disease in Childhood, Case Study, Cause Of Death, Child, Child Death, Clinical Article, Controlled Study, Deterioration, Female, Health Care Quality, Human, Learning, Male, Nursing Staff, Palliative Therapy, Perception, Pryde K, September 2017 List, Side Effect, Student, Trust
Neonatal organ donation: Retrospective audit into potential donation in a single neonatal unit
Tags: 2023, Ali F, Article, August List 2023, Brain Injury, Cause Of Death, Chant K, Conversation, cooling, Documentation, eligibility, England, Gallagher K, Human, Human Tissue, Infant, Infant, Newborn, Neonatal Intensive Care Unit, Newborn, Newborn Death, Newborn Intensive Care, Nurse, Nursing In Critical Care, organ donor, Patient Referral, Scales A, Sellwood M, Surgery, Terminal Care, Transplantation
Palliative care in an underserved community: Striving and thriving
Tags: 2018, Alladin A R, April 2020 List, Awareness, Bereavement Support, bone marrow, Cancer Patient, Cantwell G P, Caribbean, Child, Childhood Cancer, conference abstract, Congenital Malformation, coordination compound, Ethnic Group, Europe, Female, Heart, Hispanic, Hospice, Hospital Patient, Human, Japan, Juanico K, kidney, liver, Major Clinical Study, Male, Medicaid, Memory, Middle East, Music Therapy, Nares M, Neonatal Intensive Care Unit, Newborn, nursing education, Pain, Palliative Therapy, Pastoral Care, Pediatrics, Perception, Posthumous Care, Resident, Sibling, Social Work, Terminal Care, terminally Ill Patient, Webster-Carrion A
The need of patients living with cancer for palliative care
Tags: 2023, 2023 SE3 - Oncology, Abdalrahim MS, Adolescence, Adult, Aged, Aged 80 And Over, Alnajar MK, Amro K, anxiety, cancer patients, Chi Square Test, Convenience Sample, Cross Sectional Studies, Darawad MW, Data Analysis Software, Depression, Descriptive Research, Descriptive Statistics, Farhan M, Health Services Accessibility, Health Services Needs And Demand, Human, International Journal of Palliative Nursing, Jordan, Middle Age, Mosleh SM, Neoplasms, Nursing, Palliative Care, Palliative Care Nursing, Patient Attitudes, Psychological Distress, Psychometrics, Questionnaires, Self Report, Spiritual Care, Stress Psychological
Assessing the Need for Pediatric Palliative Care in the Six Arab Gulf Cooperation Council Countries
Pediatric chronic patients at outpatient clinics: A study in a Latin American University Hospital
Tags: 2017, Adolescent, Adult, Alveno RA, Cardiology, Carneiro-Sampaio M, Carvalho WB, Child, Chronic Patient, Controlled Study, Cross Sectional Study, Death, December 2017 List, Emergency Health Service, Emergency Ward, Endocrinology, Farhat SCL, Female, Hematology, Hojo ES, Hospital Admission, Hospitalization, Human, Intensive Care Unit, Jornal De Pediatria., Kidney Transplantation, Major Clinical Study, Male, Miranda CV, Nephrology, Neurology, Odone-Filho V, Oncology, Outpatient, Pain, Passone CG, Physician, Psychiatry, Rheumatology, Silva CA, Tannuri U, University Hospital, Waetge AR
Efficacy of psychotropic drugs for reducing self-injurious behavior in the developmental disabilities
Tags: 1993, Adrenergic beta-Antagonists/tu [Therapeutic Use], Aman MG, Annals Of Clinical Psychiatry : Official Journal Of The American Academy Of Clinical Psychiatrists, Anti-Anxiety Agents/tu [Therapeutic Use], Antidepressive Agents/cl [Classification], Antidepressive Agents/tu [Therapeutic Use], Antipsychotic Agents/ad [Administration & Dosage], Antipsychotic Agents/pd [Pharmacology], Antipsychotic Agents/tu [Therapeutic Use], Backlog, Comparative Study, Dopamine/me [Metabolism], Female, Human, Journal Article, Lithium Carbonate/tu [Therapeutic Use], Male, Mental Retardation/co [Complications], Mental Retardation/di [Diagnosis], Naloxone/tu [Therapeutic Use], Naltrexone/tu [Therapeutic Use], P.H.S., Receptors, Self-Injurious Behavior/co [Complications], Self-Injurious Behavior/dt [Drug Therapy], Support, Treatment Outcome, U.S. Gov't