Browse Items (920 total)
- Tags: Human
A qualitative phenomenological study of nurses' experiences in caring for infants and children with life-limiting and life-threatening conditions
Tags: 2023, Article, August List 2024, avoidance behavior, Bassola B, care behavior, Child, Child Care, Cilluffo S, Destrebecq A, Emotion, Emotional Intelligence, Female, Human, Human Experiment, Infant, Interview, Journal of Pediatric Nursing, Lusignani M, Male, Neonatal Intensive Care Unit, Nurse, Nursing Care, Ongari E, Pediatric Nursing, Phenomenology, Physiological stress, Psychologist, Qualitative Research, Targa A, Terzoni S
A qualitative study of health care professionals’ views and experiences of paediatric advance care planning
Tags: 2018, Adolescence, Advance Care Planning, Attitude Of Health Personnel, BMC Palliative Care, Child, Community -- England, Conversation, Death, Documentation, England, Family Attitudes, Hospices -- England, Hospital, Hospitals, Human, Infant, Jack BA, Knighting K, Medical Staff, Mitchell TK, Multidisciplinary Care Team, Newborn, O'Brien MR, Palliative Care, Pediatric Care -- Psychosocial Factors, Preschool, Qualitative Studies, Semi-Structured Interview, September 2018 List, Silverio SA, Terminal Care, Thematic Analysis, Time Factors
A Qualitative Study of Parents' Experiences of Bonding in End-of-Life Care in a Neonatal Intensive Care Unit
Tags: 2023, Adult, Article, Child, Clinical Article, Content Analysis, Decision Making, Diagnosis, Edner A, February List 2024, Funkquist EL, Health Care Personnel, Human, Infant, Interview, Journal of Perinatal & Neonatal Nursing, Lindquist A, Neonatal Intensive Care Unit, Newborn, Newborn Intensive Care, Parent, parenthood, Pilot Study, Powerlessness, Qualitative Research, shame, Terminal Care
A scoping review of palliative care for children in low- and middle-income countries
Tags: 2017, Analgesia, Article, Bereavement Support, BMC Palliative Care, Bouesseau MC, Child, Child Health Care, community program, Developing World 2018 List, emotionality, Feasibility Study, government, Health Care Access, Health Care Availability, health care need, Health Care Personnel, Health Care Quality, Hospice Care, Human, low income country, Marston J, middle income country, Mori R, Palliative Therapy, paramedical education, pharmaceutical care, psychosocial care, Sasaki H, Systematic Review, Terminal Care
A shared decision-making model in pediatric palliative care: a qualitative study of healthcare providers
Tags: 2023, Adult, Article, BMC Palliative Care, Cai S, Cheng L, Child, conceptual model, Controlled Study, Decision Making, Family Centered Care, February List 2024, Health Care Personnel, Human, Knowledge, Male, Nurse, Palliative Therapy, Peng X, pharmaceutics, Phenomenology, Physician, Qualitative Research, Semi Structured Interview, shared decision making, Social Worker, Wang R, Zhou X
A simple system for symptom assessment in pediatric palliative care patients with cancer: A preliminary report
Tags: 2018, Anorexia, Bruera E, Caregiver, Charone M, Child, conference abstract, Controlled Study, Dibaj S, Fatigue, Female, Health Care Quality, Human, insomnia, Irritability, Journal of Clinical Oncology. Conference, Liu D, Loss Of Appetite, Madden K, Major Clinical Study, Male, Malignant Neoplasm, Mills S, nervousness, Oncology 2019 List, Pain, Palliative Therapy, Symptom Assessment, Williams J L
A survey-based study identifies common but unrecognized symptoms in a large series of juvenile Huntington's disease
Tags: 2017, Adolescent, Adult, Article, auditory hallucination, CAG repeat, characteristics, Child, Clinical Article, Controlled Study, Epping E, Espe-Pfeifer P, Female, Health Survey, Hudgell D, Human, Huntington chorea, juvenile, Juvenile Huntington disease, leg pain, Male, Martin E, Mathews K, Moser A D, Nance M, Neurodegenerative Disease Management, Nopoulos P, Pain, Priority Journal, pruritus, psychosis, Quarrell O, skin irritation, sleep disorder, sleep disturbance/disorders, tic, Trajectory, visual hallucination, Zhorne L
A Systematic Review of Race/Ethnicity and Parental Treatment Decision-Making.
Tags: 2018, Boss EF, Caregivers, Clinical, Clinical Pediatrics, Databases, Decision Making, Ethnic Groups, Harris VC, Health Resource Utilization, Human, Lee AH, Links AR, October 2018 List, Parental Attitudes, Patient Compliance, Pediatrics, Physician Attitudes, Race Factors, Schoo DP, September 2018 List, Systematic Review, Terminally Ill Patients, Tunkel DE, Walsh J
A team around the child' professionals' experiences of unmet needs, access and expectations in children's palliative care services, a phenomenological study in the UK
Tags: 2023, anxiety, Article, care behavior, Child, Constantinou G, Cook EJ, Expectation, genetic transcription, Human, Journal Of Child Health Care, May List 2023, Only Child, Palliative Care, palliative nursing, Pediatrics, Phenomenology, Randhawa G, Respite Care, responsibility, Semi Structured Interview, Tolliday E
A three pronged approach to improving advance care planning and end of life decision making for patients with life limiting conditions admitted to picu
Aberrant sleep patterns in children with the Rett syndrome
Tags: 1990, Adolescence, Adult, Aging, Backlog, Bauman L, Brain & Development, Child, Female, Fisher W, Human, Infant, Journal Article, Kiesewetter K, Moser H, Piazza CC, Preschool, Rett Syndrome/co [Complications], Rett Syndrome/dt [Drug Therapy], Sleep Disorders/co [Complications], Sleep Stages/ph [Physiology]
Aberrant sleep patterns in children with the Rett syndrome
Tags: 1990, Adolescence, Adolescent, Adult, Aging, Bowman L, Brain and Development, characteristics, Child, Child Preschool, Female, Fisher W, Human, Humans, Infant, Kiesewetter K, Moser H, NET Files, Piazza C C, Rett syndrome, Rett Syndrome/co [Complications], Rett Syndrome/complications/drug therapy, Rett Syndrome/dt [Drug Therapy], Sleep Disorders/co [Complications], sleep disturbance/disorders, Sleep Stages/ph [Physiology], Sleep Stages/physiology, Sleep Wake Disorders/complications, Trajectory
Access to paediatric palliative care in children and adolescents with complex chronic conditions: A retrospective hospital-based study in Brussels, Belgium
Tags: 2019, Adolescent, Article, Aujoulat I, Belgium, BMJ Paediatrics Open, Bouckenaere D, Brichard B, Cardiovascular Disease, Child, Chronic Disease, complex chronic condition, congenital disorder, Data Base, De Clercq E, December 2019 List, Female, Fonteyne C, Friedel M, gastrointestinal disease, Genetic Disorder, Gilson A, groups by age, Guillet A, Health Care Access, hematologic disease, Hospital, Hospital Admission, hospitalized adolescent, Hospitalized Child, Human, Icd-9, immune deficiency, Infant, Lahaye M, Length Of Stay, Mahboub A, Major Clinical Study, Male, Malignant Neoplasm, Metabolic Disorder, Morbidity, Neurologic Disease, Newborn, Palliative Therapy, Patient Care, Patient Referral, pediatric patient, pediatric ward, Priority Journal, Respiratory Tract Disease, Retrospective Study, urinary tract disease, Wojcik T
Access to Pediatric Palliative Care in the Neonatal Intensive Care Unit by Minorities and Rural-Dwellers in the Deep South: Patterns of Care from 2009-2017 (S816)
Tags: 2019, African American, Alabama, Bakitas M, Boss R, Buckingham S, Caucasian, Child, conference abstract, Controlled Study, Currie E, Data Analysis Software, Dionne-Odom J, Ejem D, Female, Hospice, Hospitalization, hospitalized infant, Human, Infant, Journal of Pain and Symptom Management, Louisiana, Major Clinical Study, Male, March 2019 List, McKillip K, Medicaid, Medical Record Review, Mississippi, Mortality, Neonatal Intensive Care Unit, Palliative Therapy, Perna S, Prematurity, Resuscitation, Retrospective Study, Statistics, time of death, travel, Wolfe J
Accessibility and challenges of perinatal palliative care in Poland
Tags: 2023, Baranowska B, budget, Female, fetus malformation/di [Diagnosis], Health Care Access, Human, Kaptacz I, Law, midwife, obstetric procedure, October List 2035, Palliative Care, Palliative Medicine in Practice, Palliative Therapy, Perinatal Care, perinatal period, Poland, pregnant woman, Prenatal Diagnosis, primary medical care, Psychologist, Review, Sys D, Szlendak B, Tataj-Puzyna U, Węgrzynowska M
Addressing Psychosocial Support in Children with Cancer in Low- and Middle-Income Countries
Tags: 2019, Bansal D, Cancer Mortality, Cancer Palliative Therapy, childhood cancer/dm [Disease Management], Developing World 2019 List, Health Care Personnel, health practitioner, Human, Indian Journal Of Pediatrics, low income country, middle income country, Note, Patient Care, patient counseling, Psychologist, psychosocial care, Quality Of Life, Social Worker, tertiary health care, Totadri S
Addressing spirituality in pediatric hospice and palliative care
Tags: 2002, Adult, Backlog, Brenner P, Child, Child Psychology, Davies B, Family/psychology, Holistic Health, Human, Journal Article, Journal Of Palliative Care, Needs Assessment, Nursing Assessment, Orloff S, Palliative Care/methods/psychology/standards, Pastoral Care/methods/standards, Pediatrics/methods, Practice Guidelines, Religion and Medicine, Religion and Psychology, Spirituality, Sumner L, Worden W
Advance care planning and outcome in pediatric palliative home care
Tags: 2018, Advance Care Planning, Article, Balzer S, Borkhardt A, Child, Controlled Study, Danneberg M, Death, Female, Gagnon G, Hoell JI, Home Care, Hospice, Human, Janßen G, June 2018 List, Kuhlen M, Life Sustaining Treatment, Major Clinical Study, Male, medical order, Oncotarget, Palliative Therapy, Resuscitation, Retrospective Study, Trocan L, Weber HL
Advance Care Planning and Parent-Reported End-of-Life Outcomes in the Neonatal Intensive Care Unit
Tags: 2023, Advance Care Planning, American Journal of Perinatology, Article, Child, Cummings C, Decision Making, DeCourcey DD, Expectation, Human, Infant, Infant Newborn, July List 2023, Lin M, Neonatal Intensive Care Unit, outcome assessment, rank sum test, Satisfaction, Sayeed S, shared decision making, Vitcov G, Williams D, Wolfe J
Advance care planning for adolescent patients with life-threatening neurological conditions: A survey of Japanese paediatric neurologists
Tags: 2017, Adult, Advance Care Planning, Article, Artificial Ventilation, BMJ Paediatrics Open, Cross-sectional Study, do not resuscitate order, Family, Female, Health Care Survey, hematologist, Human, Japan, Kizawa Y, living will, Male, Middle Aged, Neurologic Disease, neurologist, November 2018 List, Pediatrician, Priority Journal, Prognosis, Shintaku H, Terminal Care, Yotani N
Advanced care planning in cystic fibrosis
Tags: 2017, 7782-44-7 (oxygen), Altstein L, Bach K, chest tube, Child, Clinical Article, Comfort, Cystic Fibrosis, durable power of attorney, Female, Forced Expiratory Volume, Friedman D, Georgiopoulos A, hemoptysis, Hospitalization, Human, Islam S, January 2018 List, Lifespan, Linnemann RW, living will, Male, Moskowitz SM, Outpatient, oxygen, Palliative Therapy, Pediatric Pulmonology, Pilot Study, pneumothorax, Practice Guideline, School Child, St John A, thinking, Yonker LM
Advances in pediatric psychooncology
Tags: 2020, Adult, Attention, Bereavement, cancer center, Cancer Patient, Child, Childhood Cancer, chimeric antigen receptor T-cell immunotherapy, Current Opinion In Pediatrics, Devine K A, Distress Syndrome, evidence based practice center, hereditary tumor syndrome, Human, Infant, Oncology 2020 List, outcome assessment, Palliative Therapy, patient reported outcome, Psycho-Oncology, psychosocial care, Review, Sibling, Survivorship, Thompson A L, toddler, Wiener L, Young Adult
African American and Latino bereaved parent health outcomes after receiving perinatal palliative care: A comparative mixed methods case study
Tags: 2019, Adult, Anticipatory Grieving, anxiety, Applied Nursing Research, Bereavement, Blacks -- Psychosocial Factors, Comparative Studies, Côté-Arsenault D, Denney-Koelsch E M, Depression, Descriptive Statistics, February 2020 List, Female, Fetal Abnormalities -- Diagnosis, Funding Source, Health Status, Hispanics -- Psychosocial Factors, Human, Interviews, Kavanaugh K, Male, McCoy T P, Multimethod Studies, Palliative Care, Parental Attitudes, Patient Satisfaction, Perinatal Care, Perinatal Death -- Psychosocial Factors, Psychological Well-being, Qualitative Studies, Quantitative Studies, Questionnaires, scales, Self Report, Summated Rating Scaling, surveys, Treatment Outcomes
Aggressiveness of care at the end of life in children with cancer: A nationwide cohort study
Tags: 2017, Aggression, aggressiveness, Annals of Oncology, Cancer Staging, Cardoso A, Cause Of Death, Child, Cohort Analysis, Cohort Studies, developmental stage, Female, Gomes B, Hospitalization, Human, Icd-9, immunotherapy, Intensive Care Unit, Lacerda A, Lopes S, Major Clinical Study, Male, Martins BD, Morbidity, Multicenter Study, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Portugal, Prevalence, Quality Of Life, Resuscitation, School Child, total parenteral nutrition, vascular access
Aims And Tasks In Parental Caregiving For Children Receiving Palliative Care At Home: A Qualitative Study
Tags: 2017, Bosman DK, Child, Child Parent Relation, Clinical Article, Colenbrander DA, Controlled Study, European Journal of Pediatrics, Family Life, Grootenhuis MA, Home Care, Human, Interview, Kars MC, March 2017 List, Palliative Therapy, Personal Experience, Qualitative Research, Schouten-Van Meeteren AYN, Sound, Symptom, Thematic Analysis, van Delden JJ, Verberne LM
All-cause mortality rates and home deaths decreased in children with life-limiting diagnoses in Denmark between 1994 and 2014
Tags: 2018, accident, Acta Paediatrica, International Journal of Paediatrics, Adolescent, Adult, all cause mortality, Article, automutilation, Child, Childhood Mortality, Chromosome Aberration, Congenital Malformation, Death, Denmark, Ekholm O, Epidemiology, Home, Human, Infant, Infant Mortality, International Classification of Diseases, Lykke C, Neoplasm, November 2018 List, Olsen M, Perinatal Death, Priority Journal, Schmiegelow K, Sjogren P
An alternative in terminal care: results of the National Hospice Study
Tags: 1986, Adult, Aged, Backlog, Birnbaum H, Cancer Care Facilities, Comparative Study, Costs And Cost Analysis, Female, Greer DS, Health, Health Services Research, home care services, Hospices/classification/economics/organization & administration, Hospitalization, Human, Insurance, Journal Article, Journal Of Chronic Diseases, Kidder D, Male, Medicare/economics, Middle Age, Models, Mor V, Morris JN, Neoplasms/physiopathology/psychology/therapy, Non-P.H.S., Non-U.S. Gov't, Outcome And Process Assessment (health Care), Pain/epidemiology, Quality Of Life, Reimbursement/economics, Sherwood S, Support, Terminal Care/economics/organization & administration, Theoretical, U.S. Gov't, United States
An Audit Analysing The Standard Of Patient Care And Service Provision In Sppc At A Tertiary Hospital And Hospice
Tags: 2023, Archives of Disease in Childhood, Child, Clinical Article, conference abstract, Coulson-Smith P, Durrant E, Female, Hospice Care, Hospices, Human, Male, manager, October List 2030, Palliative Therapy, Patient Care, patient coding, Patient Referral, Place Of Death, Renton K, Sample Size, staff training, tertiary care center, Warlow T
An economic examination of private insurance claims among adolescents and young adults who were enrolled in hospice during the last year of life
Tags: 2018, Adolescent, Adolescent Health, Medicine and Therapeutics, Adult, Article, Cohrs AC, December 2018 List, Emergency Ward, Female, Health Care Utilization, Hospice Care, Hospital Patient, hospital service, Human, Keim-Malpass J, Length Of Stay, Leslie DL, Lindley LC, Male, preliminary data, primary medical care, private health insurance, Retrospective Study, Young Adult
An Exploratory Study into the Experience of Health Care Professionals Caring for Adolescents and Young Adults with Incurable Cancer
Tags: 2019, Adolescent, Adult, Article, Australia, Berger I, cancer center, challenges, enablers, Exploratory Research, Health Care Personnel, Health care professionals, Human, incurable disease, Joubert L, Journal of adolescent and young adult oncology., multidisciplinary, Oncology 2019 List, Semi Structured Interview, Thompson K, Young Adult
An innovative hybrid palliative care fellowship program: empowering pediatricians and enhancing care for children in resource-limited settings
Tags: 2023, 2023 SE5 - Low Resource Setting, Archives of Disease in Childhood, Bangladesh, Brown S, Canada, career, Child, Child Health, clinical examination, conference abstract, Controlled Study, Doherty M, Female, Human, India, Leadership, Learning, Major Clinical Study, Male, mentor, Palat G, Palliative Care, Palliative Therapy, Pediatrician, Pediatrics, Philippines, resource limited setting, rigor, Rotation, running, Shah A, Skill, Southeast Asia, Teaching, Total Quality Management
An interdisciplinary care model to establishing palliative care for children and adolescents with cancer
Tags: 2018, Adolescent, cancer model, Cancer Patient, Case Study, Child, Childhood Cancer, conference abstract, Constipation, Counseling, Dyspnea, Education, Fatigue, Health Care Quality, Hospice, Hsu PY, Human, Lin FR, Oncology 2018 List, oncology ward, Pain, Palliative Therapy, Pediatric Blood and Cancer, Satisfaction, Social Worker, Taiwan, Terminal Care
An overview of National Hospice Study findings
Tags: 1986, Backlog, Comparative Study, Costs And Cost Analysis, Greer DS, Home Nursing, Hospices/economics, Human, Journal Article, Journal Of Chronic Diseases, Mor V, Non-P.H.S., Non-U.S. Gov't, Palliative Care, Psychological, Public Policy, Quality Of Life, Stress, Support, Terminal Care/economics, U.S. Gov't, United States
An update on the leukodsytrophies
Tags: 2001, Adult, Backlog, Boespflug-Tanguy O, Brain Diseases, Child, Current Opinion in Neurology, Diagnosis, Differential, Diseases/diagnosis/genetics, Glial Fibrillary Acidic Protein/genetics, Hereditary Central Nervous System Demyelinating, Human, Inborn/diagnosis/genetics, Journal Article, Metabolic, Myelin Proteolipid Protein/genetics, P.H.S., Schiffmann R, Support, U.S. Gov't
Analysis Of Death And Palliative Care In A Neonatal Intensive Care Unit
Tags: 2017, Analgesia, Analgesic Agent, Article, Ceccon M E J, Clinical Article, De Barbosa S M M, Descriptive Research, Female, Follow Up, Hospitalization, Human, Male, Marcola L, Neonatal Intensive Care Unit, Newborn, Newborn Death, October 2017 List, Pain Assessment, Palliative Therapy, Polastrini R T V, Prematurity, Resuscitation, Retrospective Study, Revista Paulista de Pediatria, Sedation, Sedative Agent, Zoboli I
Angels in the Clouds: Stillbirth and Virtual Cemeteries on 50 YouTube Videos
Tags: 2021, April 2021 List, Bacqué MF, Burial Practices, Descriptive Statistics, Human, Laurenti Dimanche AC, Mothers -- Psychosocial Factors, music, Omega: Journal Of Death & Dying, Perinatal Death, Photography, Qualitative Studies, Religion and Religions, Sani L, social media, User-Computer Interface, videorecording
Anticonvulsant drugs for management of pain: a systematic review
Tags: 1995, Anticonvulsants/ae [Adverse Effects], Anticonvulsants/tu [Therapeutic Use], Backlog, British Medical Journal, Carbamazepine/ae [Adverse Effects], Carbamazepine/tu [Therapeutic Use], Carroll D, Clonazepam/ae [Adverse Effects], Clonazepam/tu [Therapeutic Use], Diabetic Neuropathies/dt [Drug Therapy], Human, Jadad AR, Journal Article, McQuay H, Moore A, Non-U.S. Gov't, Pain/dt [drug Therapy], Phenytoin/ae [Adverse Effects], Phenytoin/tu [Therapeutic Use], Support, Treatment Outcome, Trigeminal Neuralgia/dt [Drug Therapy], Valproic Acid/ae [Adverse Effects], Valproic Acid/tu [Therapeutic Use], Wiffen P
Anxiety and depression in bereaved parents after losing a child due to life-limiting diagnoses: A Danish nationwide questionnaire survey
Tags: 2019, Adult, anxiety, Article, Bereavement, Center for Epidemiological Studies Depression Scale, Child, Controlled Study, Denmark, Depression, Education, Ekholm O, Father, Female, Human, Journal of Pain and Symptom Management., Lykke C, Major Clinical Study, Male, Mother, Olsen M, Palliative Therapy, Questionnaire, Schmiegelow K, September 2019 List, single (marital status), Sjogren P, Young Adult
Approaches to community-based palliative care provision by children's hospices in the UK
Tags: 2019, Advance Care Planning, Article, Child, Child Health, Controlled Study, Female, Human, Human Experiment, Internet, Major Clinical Study, Male, November 2019 List, Nursing children and young people., out-of-hours care, palliative nursing, prescription, Questionnaire, registered nurse, Tatterton MJ, Telephone, workforce