Browse Items (685 total)
- Tags: Human
Angels in the Clouds: Stillbirth and Virtual Cemeteries on 50 YouTube Videos
Tags: 2021, April 2021 List, Bacqué MF, Burial Practices, Descriptive Statistics, Human, Laurenti Dimanche AC, Mothers -- Psychosocial Factors, music, Omega: Journal Of Death & Dying, Perinatal Death, Photography, Qualitative Studies, Religion and Religions, Sani L, social media, User-Computer Interface, videorecording
Experiences from the first 10 years of a perinatal palliative care program: A retrospective chart review
Tags: 2021, April 2021 List, Central Nervous System Diseases, Descriptive Statistics, Doherty ME, Early Intervention, Gestational Age, Grandmaison Dumond L, Human, Infant, Infant High Risk, Neonatologists, Paediatrics & Child Health, Palliative Care -- In Infancy and Childhood, Perinatal Care, Perinatal Death, Power L, Prenatal Diagnosis, Program Evaluation, Record Review, Referral And Consultation, Retrospective Design, Stoppels N, Terminal Care, Treatment Outcomes, Williams R, Work Experiences
Parent-Reported Symptoms and Medications Used Among Children With Severe Neurological Impairment
Tags: 2020, Adolescence, Blackmer AB, Central Nervous System Agents -- Therapeutic Use, Child, Child Preschool, Comorbidity, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Fairclough DL, Feinstein JA, Female, Feudtner C, Funding Source, Gregoire LA, Health Resource Utilization, Holstein J, Human, Infant, JAMA Network Open, Kempe A, Male, March 2021 List, Nervous System Diseases -- Epidemiology -- In Adolescence, Nervous System Diseases -- Epidemiology -- In Infancy and Childhood, Nervous System Diseases -- Symptoms, Peripheral Nervous System Agents -- Therapeutic Use, Polypharmacy, Record Review, Samay S, scales, Severity of Illness, Valuck RJ
The Phenomenon of Bereaved Parenting: An Integrative Review of Literature
Tags: 2021, Bereavement, Communication, Conflict (Psychology), Coping, Emotions, Family Role, Grief, Haylett WJ, Human, March 2021 List, Omega: Journal Of Death & Dying, Parental Role, Parenting, Parents -- Psychosocial Factors, Psychology, Science, Scott Tilley D, Social Work, Survivors, Systematic Review
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Advances in pediatric psychooncology
Tags: 2020, Adult, Attention, Bereavement, cancer center, Cancer Patient, Child, Childhood Cancer, chimeric antigen receptor T-cell immunotherapy, Current Opinion In Pediatrics, Devine K A, Distress Syndrome, evidence based practice center, hereditary tumor syndrome, Human, Infant, Oncology 2020 List, outcome assessment, Palliative Therapy, patient reported outcome, Psycho-Oncology, psychosocial care, Review, Sibling, Survivorship, Thompson A L, toddler, Wiener L, Young Adult
Oral and dental considerations in pediatric cancers
Tags: 2020, Adolescent, Cancer metastasis reviews, cancer prevention, cancer screening, Cancer Survival, cancer survivor, Cancer Therapy, Child, Childhood Cancer, Chrisentery-Singleton T E, Complication, Counseling, dental procedure, English (language), Female, Human, immunosuppressive treatment, Male, Medline, mouth infection, mucosa inflammation, occupation, Oncology 2020 List, Pain, Palliative Therapy, pediatric dentist, Practice Guideline, Prevention, Review, Ritwik P, Survival Rate, Systematic Review, tooth malformation, vulnerable population
The Experiences of Bereaved Parents After the Loss of a Child to Cancer: A Qualitative Metasynthesis
Tags: 2020, Alvarenga W de A, Bereavement, Child, Childhood Neoplasms – Mortality, de Montigny F, Death – Psychosocial Factors – In Infancy and Childhood, Human, Journal Of Pediatric Oncology Nursing, Leite A C A B, Life Experiences, Meta Synthesis, Nascimento L C, Neris R R, Oncology 2020 List, Parental Attitudes, Parents – Psychosocial Factors, Polita N B, Qualitative Studies, Silva-Rodrigues F M
Customized pediatric palliative care: Integrating oncological and palliative care priorities
Tags: 2020, Acta Paediatrica, Ambroset S, Armiraglio M, Article, Cancer Patient, Cancer Prognosis, Cancer Staging, Cancer Therapy, Casiraghi G, Central Nervous System Tumor, Child, Childhood Cancer, Clerici C, Clinical Article, Cohort Analysis, Controlled Study, Female, Grossi A, Hospice, Human, Human Tissue, Intensive Care Unit, Lonati G, Male, Massimino M, Oncology 2020 List, Palliative Therapy, Phase 1 Clinical Trial (topic), Podda M, Prognosis, Rizzi B, Sarcoma, Schiavello E, Visconti G
Unrealistic parental expectations for cure in poor-prognosis childhood cancer
Tags: 2020, Article, Bagatell R, Baker J N, Cancer, Cancer Palliative Therapy, Cancer Prognosis, Cancer Recurrence, cancer risk, Child, Childhood Cancer, Clinical Decision Making, Cohn S L, Cohort Analysis, confidence interval, Controlled Study, Cronin A M, Diller L R, Expectation, Female, Glade Bender J, Granger M M, High Risk Population, Human, Interpersonal Communication, Levine A, Mack J W, Major Clinical Study, Male, Marachelian A, Medical Record, Neuroblastoma, Odds Ratio, Oncology 2020 List, parental behavior, Park J, Patient Care, pediatric patient, Priority Journal, Prospective Study, Quality Of Life, Questionnaire, Rosenberg A, Shusterman S, Taddei S, theoretical model, Twist C J, Uno H
Enhancing Connections-Palliative Care: A Quasi-Experimental Pilot Feasibility Study of a Cancer Parenting Program
Tags: 2020, Adolescent, Advanced Cancer, Almulla H A, Alzawad Z, anxiety, Article, Child, Child Parent Relation, Controlled Study, Depression, Disease Course, Distress Syndrome, Feasibility Study, Griffith K A, Hospice, Human, Journal of Palliative Medicine, Lewis F M, Loggers E T, Metastasis, Nurse, Oncology 2020 List, Palacios R, Palliative Therapy, Phillips F, Preschool Child, program impact, psychological adjustment, Self Concept, Shands M E, Skill, Telephone, Tercyak K P, tumor-related gene, Zahlis E H
Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial
Tags: 2020, Adolescent, Article, Bona K, Bradford M C, cancer center, cancer specific quality of life, Child, Connor-Davidson Resilience Scale, Controlled Study, Coping Behavior, environmental resilience, Female, Hope Scale, Human, Lau N, Major Clinical Study, Male, McCauley E, Oncology 2020 List, outcome assessment, Palliative Medicine, Palliative Therapy, patient-reported outcome, Pediatric Quality of Life Inventory, Post Hoc Analysis, Psychological Distress Scale, psychosocial development, Quality Of Life, Randomized Controlled Trial, Rosenberg A R, School Child, Scott S, Socioeconomics, Steineck A, stress management, Total Quality Management, Treatment Outcome, Yi-Frazier J P, Young Adult
Seven Types of Uncertainty When Clinicians Care for Pediatric Patients With Advanced Cancer
Tags: 2020, Advanced Cancer, Article, Cancer Patient, Cancer Prognosis, care behavior, Child, Childhood Cancer, Controlled Study, DiDomenico C, Feudtner C, Hill D L, Human, Journal of Pain and Symptom Management, Oncologist, Oncology 2020 List, Organization, Palliative Therapy, Parikh S, Patient Referral, pediatric patient, Pediatrics, Qualitative Analysis, Semi Structured Interview, Szymczak J E, Uncertainty, Walter J K
Maternal Grief: A Qualitative Investigation of Mothers' Responses to the Death of a Child From Cancer
Tags: 2020, Adaptation, Attitude To Death, Bailey S, Bereavement, Childhood Neoplasms – Mortality, Complicated Grief, Coping, Female, Gerrish N J, Grief, Human, Interviews, Mothers – Psychosocial Factors, Omega: Journal Of Death & Dying, Oncology 2020 List, Phenomenological Research, Psychological, Qualitative Studies, Self Concept, Social Environment
Massage therapy for symptom reduction and improved quality of life in children with cancer in palliative care: A pilot study
Tags: 2020, Adolescent, Article, Carcinoma, Child, Clinical Article, Complementary Therapies in Medicine, Controlled Study, Expectation, Female, Follow Up, Genik L M, Human, Leukemia, Lymphoma, Male, Marshall S, Massage, McMurtry C M, Oncology 2020 List, Pain, Pain Measurement, Palliative Therapy, patient worry, Pilot Study, Quality Of Life, Quantitative Study, Rapoport A, Sarcoma, Stinson J
Defining the Boundaries of Palliative Care in Pediatric Oncology
Tags: 2020, Article, Boss R D, Cancer Patient, Child, Childhood Cancer, Comfort, Content Analysis, Controlled Study, Cuviello A, Donohue P K, Female, genetic transcription, Human, Interview, Journal of Pain and Symptom Management, Major Clinical Study, Male, Mental Health, Nurse Practitioner, Oncology 2020 List, Palliative Therapy, pediatric oncologist, Quality Of Life, Raisanen J C, Skill, standardization, Terminal Care, Wiener L
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancer
Tags: 2020, Adolescent, Adult, Advanced Cancer, Advanced Practice Nurse, Aged, al-Awamer A, Article, Avery J, Canada, Cancer Palliative Therapy, care behavior, clinician parent communication difficulty, counter transference, D'Agostino N M, Experience, Family, Female, Geist A, Gupta A, Health Personnel Attitude, Human, Journal of Oncology Practice, Kassam A, Kawaguchi S K, Mahtani R, Male, Mazzotta P, medical oncologist, Mosher P J, Oncology 2020 List, Perception, Physician, psychiatrist, Qualitative Research, radiation oncologist, Samadi M, Semi Structured Interview, Srikanthan A, Tam S, tertiary care center, Thematic Analysis, theoretical study, Young Adult, Zimmermann C
Transforming a Face-to-Face Legacy Intervention to a Web-Based Legacy Intervention for Children With Advanced Cancer
Tags: 2020, Adolescent, Advanced Cancer, Akard T F, Article, Cancer Recurrence, cancer resistance, Caregiver, Child, Dietrich M S, Female, Friedman D L, Gerhardt C A, Gilmer M J, Given B, Hendricks-Ferguson V, Hinds P S, Human, Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, Major Clinical Study, Male, Oncology 2020 List, Palliative Therapy, Satisfaction, Wray S
Pediatric oncology nursing research in low- and middle-income countries
Tags: 2020, Afungchwi G M, Alqudimat M R, alternative medicine, Burkitt lymphoma, cancer incidence, Cancer Survival, Caregiver, Caregiver Burden, caregiver burnout, Challinor J M, Cytotoxicity, Day S W, Developing World 2020 List, economic status, Fatigue, geographic distribution, gross national income, Health Care Personnel, high income country, Human, immune status, Impact of Events Scale, Infant Mortality, Kaposi sarcoma, lifestyle, low income country, malnutrition, Methodology, middle income country, nurse training, Nursing Care, Nursing Practice, nursing science, Nutrition, Pain, Palliative Therapy, Pediatric Oncology, pediatric oncology nursing, PostTraumatic Stress Disorder, Priority Journal, Quality Of Life, risk factor, Sepsis, Southeast Asian, Southern Europe, Stress, traditional medicine, treatment response
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino M K, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Female, Funding Source, Health Resource Utilization, Human, Hutchinson R, Male, McCaffery H, Midwestern United States, November 2020 List, Parental Attitudes – Evaluation, Patient Preference, Paul T K, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig L K, Shared, Spruit J L, Support, Terminal Care – In Infancy and Childhood
Hospital Practices for Parents Following Perinatal Loss
Tags: 2020, Bereavement, Descriptive Statistics, Female, Funding Source, Grief, Hospitals – Turkey, Human, Infant Mortality – Psychosocial Factors – Turkey, Kalanlar B, Male, Midwives, November 2020 List, Nurses, Omega: Journal Of Death & Dying, Parental Attitudes, Physicians, psychosocial, Purposive Sample, Questionnaires, Support, Turkey
State Variation in Posthospital Home Nursing for Commercially Insured Medically Complex Children
Tags: 2020, After Care, Child, Descriptive Statistics, Feudtner C, Geographic Factors, Guevara J P, Health – Economics, Health Care Costs, Health Services Accessibility, Home Nursing, Human, Insurance, Medically Fragile, October 2020 List, Patient Discharge, Pediatrics, Probability, Prospective Studies, Rasooly I R, Retrospective Design, Shults J
Outpatient liaison palliative care for children: Two Years' Experience of Non-profit Charitable Organization
Nurses' Perceptions of the Palliative Care Needs of Neonates With Multiple Congenital Anomalies
Tags: 2020, Abnormalities, Age Factors, Şener Taplak A, Consent (Research), Content Analysis, Data Analysis Software, Descriptive Statistics, Educational Status, Feedback, Female, Gürol A, Health Services Needs and Demand – In Infancy and Childhood, Human, Infant, Intensive Care Units, Interviews, Journal of Hospice and Palliative Nursing, June 2020 List, Male, Multiple, Neonatal, Neonatal Intensive Care Nursing, Newborn, Nurse Attitudes – Evaluation, Palliative Care, Polat S, Quality Of Life, Questionnaires, Semi-Structured Interview, Thematic Analysis, Time Factors
Trauma to Transformation: the lived experience of bereaved parents of children with chronic life-threatening illnesses in Singapore
Tags: 2020, Asia, Attitude To Death, Bereavement – Singapore, BMC Palliative Care, Chinese, Chong P H, Choo P Y, Critical Illness – Singapore, Dutta O, Ethnic Groups, Ganapathy S, Grounded Theory, Ho A H Y, Human, India – Ethnology, Interviews, June 2020 List, Life Experiences – Evaluation – Singapore, Low X C, Ng C, Palliative Care – Singapore, Parent-Child Relations – Singapore, Parents – Psychosocial Factors – Singapore, Pediatric Care – Singapore, Posttraumatic Growth, Psychological – Prevention and Control – Singapore, Psychological Well-being, psychosocial, Qualitative Studies, Rituals and Ceremonies, Singapore, Single Parent – Psychosocial Factors, Spouses – Psychosocial Factors, Support, Tan-Ho G
Emergencies in Pediatric Palliative Care: A Survey of Ambulance Officers to Understand the Interface between Families and Ambulance Services
Tags: 2020, Agar M, ambulance, Article, Attitude, Child, Comfort, Controlled Study, Counseling, E-mail, Emergency Health Service, Herbert A, Human, Journal of Palliative Medicine, Malcolm K, May 2020 List, medical documentation, Mott C, Palliative Therapy, pediatric patient, Perception, Queensland, Resuscitation, Sansone H, writing
Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study
Tags: 2020, Adolescent, Adult, Advance Care Planning, Article, Attention, Blume E D, Child, Clinical Article, Cousino M K, Cross-sectional Study, Decision Making, Female, heart graft, Human, Lowery R, Male, May 2020 List, Miller V A, Palliative Medicine, Patient Participation, Pilot Study, Prognosis, Rottach N, School Child, Schumacher K R, Smith C, Uzark K, Young Adult
The Use of Concurrent Home Hospice for Pediatric Heart Failure Patients Awaiting Heart Transplant on Milrinone and/or Ventricular Assist Device
Tags: 2020, 78415-72-2 (milrinone), Adams V L, Body Weight, Burnette A L, Child, Clergy, conference abstract, Controlled Study, dietitian, Emergency Ward, Feeding, Follow Up, Heart Failure, heart graft, Henderson H T, Home Visit, Hospice, Hospital Admission, hospital discharge, hospital readmission, Human, inotropism, Journal of Heart and Lung Transplantation, May 2020 List, milrinone, money, Mortality, Outpatient, Palliative Therapy, Satisfaction, Savage A J, Social Worker, travel
Inter-Rater Reliability of the Phase of Illness Tool in Pediatric Palliative Care
Tags: 2020, Adult, Anderson A K, Article, Burke K, Child, Cohort Analysis, Controlled Study, Coombes L H, Feasibility Study, Female, Human, interrater reliability, Major Clinical Study, Male, May 2020 List, Palliative Therapy, pediatric patient, Petruckevitch A, Prospective Study, Reproducibility, The American journal of hospice & palliative care., Uncertainty
Factors associated with place of death for children in South Yorkshire: a retrospective cohort study
Tags: 2020, Alison L, anonymised data, April 2020 List, Article, BMJ Supportive & Palliative Care, Child, Cohort Analysis, Controlled Study, Ethnicity, Female, Gender, Home Care, Hospice Care, Human, Major Clinical Study, Male, Mayer A P T, Newborn, Newborn Death, Palliative Therapy, Pediatrics, Renton K, Retrospective Study, Yeomanson D
Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
Introduction of triggers for palliative care consultation improve utilization and and satisfaction within a level 4 NICU
Improving the frequency of symptom assessment in pediatric palliative care patients
Tags: 2018, April 2020 List, Awareness, Child, clinical evaluation, Comfort, conference abstract, E-mail, electronic medical record, Hospital Patient, Human, human cell, information technology, Mark M S, McKenna L, Outpatient, Palliative Therapy, Pediatrics, Quality Of Life, root cause analysis, stem cell, Symptom Assessment, Thienprayoon R, Total Quality Management
Healthcare utilization among children and young people with life-limiting conditions: Exploring palliative care needs using National Health Insurance claims data
Tags: 2692, April 2020 List, Article, Child, Controlled Study, Female, Health Care Utilization, Human, Kim C H, Kim M S, Lee J Y, Length Of Stay, Lim N G, Male, Malignant Neoplasm, Mortality Rate, national health insurance, Palliative Therapy, Prevalence, Retrospective Study, Scientific reports, Shin H Y, Song I G
Compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care (PC) providers in the U.S
Tags: 2018, April 2020 List, Awareness, Burnout, Child, Compassion Fatigue, conference abstract, coworker, Distress Syndrome, Education, Exhaustion, friend, Health Care Personnel, Human, injury, Kase S M, Life Sustaining Treatment, linear regression analysis, Palliative Therapy, Pediatrics, Prevalence, Questionnaire, risk factor, satisfaction with care, Self Care, Social Isolation, Waldman E D, Weintraub A S, Wellbeing
GPs' role in caring for children and young people with life-limiting conditions: a retrospective cohort study
Tags: 2020, accident, Adult, April 2020 List, Article, Attention, care behavior, Child, Clinical Article, Clinical Practice, Cohort Analysis, Consultation, England, Female, Fraser L K, general practice, Health Care Utilization, Hewitt C, Hospital Patient, Human, Icd-10, Jarvis S, Male, Mitchell S, Parslow R C, Patient Care, Primary Health Care, Read code, Retrospective Study, secondary health care, The British journal of general practice : the journal of the Royal College of General Practitioners.
Family attitudes toward genomic sequencing in children with cardiac disease
Tags: 2020, April 2020 List, Char D, Child, conference abstract, Confidentiality, consumer, Controlled Study, Deuitch N, Family Attitudes, family planning, Gal D, genetic discrimination, Grounded Theory, Health Care System, heart center, Heart Diseases -- Mortality, Human, Human Tissue, Insurance, interrater reliability, Journal Of Investigative Medicine, Magnus D, Perception, Privacy, Prognosis, Resource Allocation, Semi Structured Interview, sequence analysis, Surgery, Tang R, Transplantation, Trust, Uncertainty
Attachment to God as a Mediator of the Relationship Between Religious Affiliation and Adjustment to Child Loss
Tags: 2020, Adaptation, April 2020 List, Attachment Behavior – Evaluation – In Middle Age, Child Mortality – Psychosocial Factors, Female, Frei-Landau R, Grief – Evaluation, Hasson-Ohayon I, Human, Male, Middle Age, Models, Parental Attitudes, Psychological, Psychological – Evaluation – In Middle Age, Psychological Trauma: Theory, Research, Practice & Policy, Psychotherapy, Questionnaires, Religion and Psychology – Evaluation – In Middle Age, Silberg T, Tuval-Mashiach R
Palliative care in 9 children with neurodegeneration with brain iron accumulation
Tags: 2020, April 2020 List, Article, body mass, Bone Density, bone strength, botulinum toxin, Child, Clinical Article, contracture, Controlled Study, Dangel T, Densitometry, Dystonia, facilitation, Female, femur, Home Care, Hospice And Palliative Care Nursing, Human, hypersalivation, iron, Januszaniec A, ketogenic diet, Kmiec T, Male, Multidisciplinary team, neurodegeneration with brain iron accumulation, Neurological Sciences, Pain, Palliative Therapy, pathologic fracture, Prevention, Questionnaire, School Child, skeleton, Spasticity, Spine, Thorax, Wazny B
Paediatric long-term home ventilation: Should we rethink social inclusion for these children?
Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy