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Text
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URL Address
<a href="http://doi.org/10.1542/peds.2003-0654-f" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2003-0654-f</a>
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Title
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Circumstances surrounding the deaths of hospitalized children: opportunities for pediatric palliative care.
Publisher
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Pediatrics
Date
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2004
Subject
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Child; Female; Hospitalization; Humans; infant; Male; Palliative Care; Terminal Care; Terminally Ill; Withholding Treatment; Hospital Mortality; Length of Stay; Longitudinal Studies; Academic Medical Centers; adolescent; Preschool; Non-U.S. Gov't; Research Support; infant; Newborn; retrospective studies; Hospitalized; Pain/diagnosis/drug therapy
Creator
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Carter BS; Howenstein M; Gilmer MJ; et al
Description
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OBJECTIVES: Little is known regarding the assessment and treatment of symptoms during end-of-life (EOL) care for children. This study was conducted to describe the circumstances surrounding the deaths of hospitalized terminally ill children, especially pain and symptom management by the multidisciplinary pediatric care team. DESIGN: Patients in the neonatal intensive care unit, pediatric critical care unit, or general pediatric units of Vanderbilt Children's Hospital who were hospitalized at the time of death, between July 1, 2000, and June 30, 2001, were identified. Children eligible for the survey had received inpatient EOL care at the hospital for at least 24 hours before death. A retrospective medical record review was completed to describe documentation of care for these children and their families during the last 72 hours of life. RESULTS: Records of children who had received inpatient EOL care were identified (n = 105). A majority (87%) of children were in an intensive care setting at the time of death. Most deaths occurred in the pediatric critical care unit (56%), followed by the neonatal intensive care unit (31%). Pain medication was received by 90% of the children in the last 72 hours of life, and 55% received additional comfort care measures. The presence of symptoms other than pain was infrequently documented. CONCLUSIONS: The duration of hospitalization for most children dying in this inpatient setting was sufficient for provision of interdisciplinary pediatric palliative care. Management of pain and other symptoms was accomplished for many children. The documentation of pain and symptom assessment and management can be improved but requires new tools.
2004
Identifier
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<a href="http://doi.org/10.1542/peds.2003-0654-f" target="_blank" rel="noreferrer">10.1542/peds.2003-0654-f</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Academic Medical Centers
Adolescent
Backlog
Carter BS
Child
et al
Female
Gilmer MJ
Hospital Mortality
Hospitalization
Hospitalized
Howenstein M
Humans
Infant
Journal Article
Length Of Stay
Longitudinal Studies
Male
Newborn
Non-U.S. Gov't
Pain/diagnosis/drug therapy
Palliative Care
Pediatrics
Preschool
Research Support
Retrospective Studies
Terminal Care
Terminally Ill
Withholding Treatment