1
40
2
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2005.00459.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2005.00459.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; Neoplasms; Emotions; Siblings; Age Factors; Health Status; Child welfare; Sex Factors; Cognition Disorders; quality of life; Adaptation; Psychological; sibling bereavement
Creator
An entity primarily responsible for making the resource
Houtzager BA; Grootenhuis MA; Hoekstra-Weebers JE; Last BF
Description
An account of the resource
BACKGROUND: The aim of the present study is to describe the quality of life (QoL) of siblings of children with cancer and to predict it according to their health before the diagnosis of cancer in the ill child and their ways of coping with the illness. METHODS: Participants were 83 siblings from 56 families-46 girls and 37 boys, aged 7-18. The assessment took place 1 month to 8 weeks after the diagnosis of cancer in the ill child. The siblings' QoL was assessed with the TNO-AZL children's quality of life questionnaire (TACQOL). Coping strategies were assessed with the Cognitive Coping Strategies Scale for siblings (CCSS-s). Physical problems and eating and sleeping problems that existed before the ill child was diagnosed were determined in a structured interview with the parents. RESULTS: A substantial number of siblings reported impaired cognitive and emotional QoL compared to the reference group. School-aged siblings (7-11 years) reported more trouble with motor functioning than peers. The coping strategy 'predictive control' (maintaining positive expectations regarding the illness) positively predicted siblings' QoL. The presence of health problems before diagnosis was negatively associated with siblings' QoL. Older siblings reported more negative emotions, while girls reported lower social QoL and reliance on 'interpretative control' (trying to understand the illness) was associated with fewer positive emotions. CONCLUSIONS: During the first 2 months after the diagnosis of cancer in a brother or sister, siblings have relatively lower QoL than peers. Health problems that existed before diagnosis may be a predictor of later adjustment problems. Positive expectations about the course of the illness appear to protect siblings from distress. Information about the illness is a delicate issue that requires parental guidance.
2005-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2214.2005.00459.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2005.00459.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adaptation
Adolescent
Age Factors
Backlog
Child
Child welfare
Child: Care, Health and Development
Cognition Disorders
Emotions
Female
Grootenhuis MA
Health Status
Hoekstra-Weebers JE
Houtzager BA
Humans
Journal Article
Last BF
Male
Neoplasms
Psychological
Quality Of Life
Sex Factors
sibling bereavement
Siblings
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pon.759" target="_blank" rel="noreferrer">http://doi.org/10.1002/pon.759</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Quality of life and psychological adaptation in siblings of paediatric cancer patients, 2 years after diagnosis
Publisher
An entity responsible for making the resource available
Psycho-oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; retrospective studies; Neoplasms; Siblings; quality of life; Adaptation; Psychological; sibling bereavement
Creator
An entity primarily responsible for making the resource
Houtzager BA; Grootenhuis MA; Caron HN; Last BF
Description
An account of the resource
Several studies have been conducted on sibling psychosocial adaptation to cancer in a brother or sister, but little is known on how the long-term adaptation of siblings to the illness develops. The concept quality of life has primarily been applied in research on the effects of chronic illness on the affected patient, but has not yet been studied in siblings. AIMS: To investigate the prevalence of self-reported psychosocial problems in siblings of pediatric cancer patients, 2 years after the onset of the illness. MEASUREMENTS: Two Dutch quality of life questionnaires, the TACQOL and the DUCATQOL are used, as well as generic non-health-related measures of emotional and behaviour problems (CBCL-YSR) and anxiety (STAI-C). PARTICIPANTS: Participants were 103 siblings aged 7-18 years old. Fifty seven Siblings participated in a prospective and 46 in a retrospective study group. RESULTS: Siblings aged 7-11 report lower overall quality of life than children in the norm group. No differences in mean scores were found on any of the other domains that were investigated. When the prevalence of problems was investigated, however, relatively more siblings compared to normative data had scores in the impaired group based on the 20th percentile norm. A relatively high number of siblings aged 7-11 reported impaired emotional (42%), social (34%) and total quality of life (47%) (DUCATQOL) and physical problems (26%) (TACQOL). Relatively many adolescent siblings (26%) reported significant internalising problems on the CBCL-YSR. CONCLUSIONS: Although acute emotional distress reactions seem to have normalised in most siblings as has been suggested in the literature, emotional distress of having a brother or sister with cancer may continue beyond diagnosis for a subgroup of children. Young siblings seem to be affected in their quality of life, whereas a subgroup of adolescent siblings experience clinically relevant internalising problems. The results support the use of quality of life measures for siblings. Predictors of long-term adaptation in siblings need to be investigated.
2004-08
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pon.759" target="_blank" rel="noreferrer">10.1002/pon.759</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adaptation
Adolescent
Backlog
Caron HN
Child
Female
Grootenhuis MA
Houtzager BA
Humans
Journal Article
Last BF
Male
Neoplasms
Psycho-Oncology
Psychological
Quality Of Life
Retrospective Studies
sibling bereavement
Siblings