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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2023 Special Edition 1 - Parent Perspectives List
Text
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Citation List Month
2023 SE1 - Parent Perspectives
URL Address
<a href="http://doi.org/10.1097/mlr.0000000000001588" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1097/mlr.0000000000001588</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Short-term Focused Feedback: A Model to Enhance Patient Engagement in Research and Intervention Delivery
Publisher
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Medical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Creator
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Sauers-Ford H; Statile AM; Auger KA; Wade-Murphy S; Gold JM; Simmons JM; Shah SS
Description
An account of the resource
BACKGROUND: Our grant from the Patient-Centered Outcomes Research Institute (PCORI) focused on the use of nurse home visits postdischarge for primarily pediatric hospital medicine patients. While our team recognized the importance of engaging parents and other stakeholders in our study, our project was one of the first funded to address transitions of care issues in patients without chronic illness; little evidence existed about how to engage acute stakeholders longitudinally. OBJECTIVE: This manuscript describes how we used both a short-term focused feedback model and longitudinal engagement methods to solicit input from parents, home care nurses, and other stakeholders throughout our 3-year study. RESULTS: Short-term focused feedback allowed the study team to collect feedback from hundreds of stakeholders. Initially, we conducted focus groups with parents with children recently discharged from the hospital. We used this feedback to modify our nurse home visit intervention, then used quality improvement methods with continued short-term focus feedback from families and nurses delivering the visits to adjust the visit processes and content. We also used their feedback to modify the outcome collection. Finally, during the randomized controlled trial, we added a parent to the study team to provide longitudinal input, as well as continued to solicit short-term focused feedback to increase recruitment and retention rates. CONCLUSION: Research studies can benefit from soliciting short-term focused feedback from many stakeholders; having this variety of perspectives allows for many voices to be heard, without placing an undue burden on a few stakeholders.
Identifier
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<a href="http://doi.org/10.1097/mlr.0000000000001588" target="_blank" rel="noreferrer noopener">10.1097/mlr.0000000000001588</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2023 SE1 - Parent Perspectives
Academies and Institutes
Aftercare/psychology
Auger KA
Gold JM
House Calls
Medical Care
Patient Outcome Assessment
Patient Participation
Pediatric
Psychology
Sauers-Ford H
Shah SS
Simmons JM
Stakeholder Participation
Statile AM
statistics & numerical data
statistics & numerical data Child Focus Groups Hospitals
statistics & numerical data Humans Parents/psychology Patient Discharge
Time Factors
Transitional Care
Wade-Murphy S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/bmj.38740.614954.55" target="_blank" rel="noreferrer">http://doi.org/10.1136/bmj.38740.614954.55</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Factors influencing death at home in terminally ill patients with cancer: systematic review
Publisher
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Bmj (clinical Research Ed.)
Date
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2006
Subject
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Humans; Attitude to Death; Health Services Accessibility; Death; Risk Factors; Patient Satisfaction; Time Factors; Residence Characteristics; House Calls; social support; Hospitalization/statistics & numerical data; Terminally Ill/statistics & numerical data; location of death; Neoplasms/psychology/therapy; Home Care Services/standards/statistics & numerical data/utilization; Terminal Care/psychology/statistics & numerical data/utilization
Creator
An entity primarily responsible for making the resource
Gomes B; Higginson IJ
Description
An account of the resource
OBJECTIVES: To determine the relative influence of different factors on place of death in patients with cancer. DATA SOURCES: Four electronic databases-Medline (1966-2004), PsycINFO (1972-2004), CINAHL (1982-2004), and ASSIA (1987-2004); previous contacts with key experts; hand search of six relevant journals. REVIEW METHODS: We generated a conceptual model, against which studies were analysed. Included studies had original data on risk factors for place of death among patients, > 80% of whom had cancer. Strength of evidence was assigned according to the quantity and quality of studies and consistency of findings. Odds ratios for home death were plotted for factors with high strength evidence. RESULTS: 58 studies were included, with over 1.5 million patients from 13 countries. There was high strength evidence for the effect of 17 factors on place of death, of which six were strongly associated with home death: patients' low functional status (odds ratios range 2.29-11.1), their preferences (2.19-8.38), home care (1.37-5.1) and its intensity (1.06-8.65), living with relatives (1.78-7.85), and extended family support (2.28-5.47). The risk factors covered all groups of the model: related to illness, the individual, and the environment (healthcare input and social support), the latter found to be the most important. CONCLUSIONS: The ne of factors that influence where patients with cancer die is complicated. Future policies and clinical practice should focus on ways of empowering families and public education, as well as intensifying home care, risk assessment, and training practitioners in end of life care.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmj.38740.614954.55" target="_blank" rel="noreferrer">10.1136/bmj.38740.614954.55</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Attitude To Death
Backlog
Bmj (clinical Research Ed.)
Death
Gomes B
Health Services Accessibility
Higginson IJ
Home Care Services/standards/statistics & numerical data/utilization
Hospitalization/statistics & numerical data
House Calls
Humans
Journal Article
Location Of Death
Neoplasms/psychology/therapy
Patient Satisfaction
Residence Characteristics
Risk Factors
Social Support
Terminal Care/psychology/statistics & numerical data/utilization
Terminally Ill/statistics & numerical data
Time Factors