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Text
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URL Address
<a href="http://doi.org/10.1186/1472-6963-7-38" target="_blank" rel="noreferrer">http://doi.org/10.1186/1472-6963-7-38</a>
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Title
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Investigating the cost-effectiveness of videotelephone based support for newly diagnosed paediatric oncology patients and their families: design of a randomised controlled trial
Publisher
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Bmc Health Services Research
Date
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2007
Subject
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Child; Humans; Adult; Parent-Child Relations; Research Design; Australia; Cost-Benefit Analysis; Patient Satisfaction; Cost of Illness; Oncology Service; quality of life; adolescent; Preschool; Study Design; Randomized Controlled Trials/methods; Health Services Accessibility/economics; Rural Health Services/economics; Ambulatory Care/economics; Child Health Services/economics; Hospital/economics; Neoplasms/economics/therapy; Telemedicine/economics/instrumentation; Videoconferencing/economics
Creator
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Bensink M; Wootton R; Irving H; Hallahan A; Theodoros D; Russell T; Scuffham P; Barnett AG
Description
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BACKGROUND: Providing ongoing family centred support is an integral part of childhood cancer care. For families living in regional and remote areas, opportunities to receive specialist support are limited by the availability of health care professionals and accessibility, which is often reduced due to distance, time, cost and transport. The primary aim of this work is to investigate the cost-effectiveness of videotelephony to support regional and remote families returning home for the first time with a child newly diagnosed with cancer METHODS/DESIGN: We will recruit 162 paediatric oncology patients and their families to a single centre randomised controlled trial. Patients from regional and remote areas, classified by Accessibility/Remoteness Index of Australia (ARIA+) greater than 0.2, will be randomised to a videotelephone support intervention or a usual support control group. Metropolitan families (ARIA+ < or = 0.2) will be recruited as an additional usual support control group. Families allocated to the videotelephone support intervention will have access to usual support plus education, communication, counselling and monitoring with specialist multidisciplinary team members via a videotelephone service for a 12-week period following first discharge home. Families in the usual support control group will receive standard care i.e., specialist multidisciplinary team members provide support either face-to-face during inpatient stays, outpatient clinic visits or home visits, or via telephone for families who live far away from the hospital. The primary outcome measure is parental health related quality of life as measured using the Medical Outcome Survey (MOS) Short Form SF-12 measured at baseline, 4 weeks, 8 weeks and 12 weeks. The secondary outcome measures are: parental informational and emotional support; parental perceived stress, parent reported patient quality of life and parent reported sibling quality of life, parental satisfaction with care, cost of providing improved support, health care utilisation and financial burden for families. DISCUSSION: This investigation will establish the feasibility, acceptability and cost-effectiveness of using videotelephony to improve the clinical and psychosocial support provided to regional and remote paediatric oncology patients and their families.
2007
Identifier
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<a href="http://doi.org/10.1186/1472-6963-7-38" target="_blank" rel="noreferrer">10.1186/1472-6963-7-38</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2007
Adolescent
Adult
Ambulatory Care/economics
Australia
Backlog
Barnett AG
Bensink M
BMC Health Services Research
Child
Child Health Services/economics
Cost Of Illness
Cost-Benefit Analysis
Hallahan A
Health Services Accessibility/economics
Hospital/economics
Humans
Irving H
Journal Article
Neoplasms/economics/therapy
Oncology Service
Parent-child Relations
Patient Satisfaction
Preschool
Quality Of Life
Randomized Controlled Trials/methods
Research Design
Rural Health Services/economics
Russell T
Scuffham P
Study Design
Telemedicine/economics/instrumentation
Theodoros D
Videoconferencing/economics
Wootton R