Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space
Female; Hospitalization; Humans; Aged; Self Concept; Patient-Centered Care; Cost-Benefit Analysis; Social Environment; Geography; Psychology; Non-U.S. Gov't; Research Support; Caregivers/psychology; Home Nursing/economics/psychology; Delivery of Health Care/trends; Social; Social Change; Social Responsibility; Women/psychology
Changes in health care service delivery have resulted in the transfer of care from formal spaces such as hospitals and institutions towards informal settings such as home. Due to the degree of this transfer, it is increasingly important for geographers to explore the experience and meaning of these changing geographies of care in order to reveal and understand the impact and effect on particular individuals and places. Recognizing that the home environment not only designates a dwelling but also represents a multitude of meanings (such as personal identity, security and privacy) that likely vary according to class, ethnicity and family size (among other socio-demographic variables), it presents a complex site for study. This paper suggests research directions to further understand the role of caregiving in contributing to the experience and meaning of the home environment by informal caregivers, the majority of which are women. Using a political economy approach, this paper first reviews the reorganization of health care services and discusses how this is reshaping the experience of informal caregivers at home. A review of the place identity literature contextualizes the specific discussion of the literature on the meaning of home, both of which are then critically examined. Next, the concept of therapeutic landscapes is discussed as an idealized framework to explore the health-promoting properties of home on informal caregivers. Questions for research are outlined before conclusions highlight how research on home space can allow a better understanding of the impact and effect of caregiving on family caregivers and the places where they live. Such research can inform the changes and trends in health care service policy.
2002
Williams A
Social Science & Medicine
2002
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/s0277-9536(01)00209-x" target="_blank" rel="noreferrer">10.1016/s0277-9536(01)00209-x</a>
Economic and psychologic costs for maternal caregivers of gastrostomy-dependent children
Child; Female; Humans; Adult; Socioeconomic Factors; Cost of Illness; quality of life; Depression/etiology; Mothers/psychology; Caregivers/economics/psychology; Enteral Nutrition/economics/psychology; Gastrostomy/economics/psychology; Home Nursing/economics/psychology
OBJECTIVE: To examine the economic and psychologic costs of care provided by maternal caregivers to children with gastrostomy tube (GT) feedings. STUDY DESIGN: We conducted a 3-site study of primary maternal caregivers of 101 chronically ill children, with (n = 50) and without (n = 51) enteral nutrition support by GT to determine the time spent providing technical care, nontechnical care, and health care management and to assess depressive mood and quality of life. Associated costs were determined. RESULTS: Caregivers spent 339.7 +/- 34.1 (SEM) min/d to provide all care. Children with a GT required more than twice as much care time as children without a GT: 484.5 +/- 54.6 versus 197.8 +/- 30.6 min/d ( P < .0001). The mean annual total value of home care by the primary caregiver for a child with a GT was 37,232 dollars, compared with 15,004 dollars for the child without a GT. Caregivers of children with GT were no more depressed or less satisfied with their lives than caregivers of children without GT. CONCLUSIONS: Use of a GT for enteral nutrition support is associated with significant increased care time by the primary caregiver but not at additional psychologic cost compared with caring for chronically ill children.
2004
Heyman MB; Harmatz P; Acree M; Wilson L; Moskowitz JT; Ferrando S; Folkman S
The Journal Of Pediatrics
2004
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.jpeds.2004.06.023" target="_blank" rel="noreferrer">10.1016/j.jpeds.2004.06.023</a>