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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.pcl.2007.06.002" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.pcl.2007.06.002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Issues related to providing quality pediatric palliative care in the community
Publisher
An entity responsible for making the resource available
Pediatric Clinics Of North America
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Humans; Pediatrics; Health; Insurance; Palliative Care/standards; Community Health Services/standards; Home Care Services/standards; Hospice Care/standards; Quality of Health Care/standards; Reimbursement
Creator
An entity primarily responsible for making the resource
Carroll JM; Torkildson C; Winsness JS
Description
An account of the resource
The medical practitioner in the community is in a unique position to assist children and their families from the time of diagnosis with a life-threatening condition through to the end of life. The purpose of this article is to inform medical practitioners who care for children with complex, chronic, and life-limiting conditions about pediatric palliative care in the community. It is intended as a guide to improve understanding about (1) the misconceptions and barriers surrounding the provision of care in the community for children with chronic, complex, and life-limiting conditions; (2) the availability of services for care in the community; (3) challenges concerning out-of hospital do-not-attempt-resuscitation orders for children; and (4) reimbursement issues that impact the provision of care.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pcl.2007.06.002" target="_blank" rel="noreferrer">10.1016/j.pcl.2007.06.002</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Backlog
Carroll JM
Child
Community Health Services/standards
Health
Home Care Services/standards
Hospice Care/standards
Humans
Insurance
Journal Article
Palliative Care/standards
Pediatric Clinics of North America
Pediatrics
Quality of Health Care/standards
Reimbursement
Torkildson C
Winsness JS
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
Publisher
An entity responsible for making the resource available
Palliative & Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adult; Cross-sectional Studies; Death; Dyspnea/diagnosis; Dyspnea/psychology; Female; Home Care Services/standards; Humans; Male; Pain/diagnosis; Pain/psychology; Palliative Care/methods; Palliative Care/psychology; Parents/psychology; Pediatrics/methods; Perception; Quality Of Life/psychology; Retrospective Studies; Surveys And Questionnaires; Symptom Assessment/psychology
End-of-life Symptoms; Pediatric Palliative Home Care; Symptom Perception
Creator
An entity primarily responsible for making the resource
Vollenbroich R; Borasio GD; Duroux A; Grasser M; Brandstatter M; Fuhrer M
Description
An account of the resource
OBJECTIVE:
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and end-of-life care for children.
METHODS:
In this retrospective, cross-sectional study, parents were surveyed at the earliest three months after their child's death. All children were cared for by a specialized home pediatric palliative care team that provides a 24/7 medical on-call service. Questionnaires assessed symptom prevalence and intensity during the child's last month of life as perceived by parents, symptom perception, and treatment by medical staff. The responses were correlated with essential palliative care outcome measures (e.g., satisfaction with the care provided, quality-of-life of affected children and parents, and peacefulness of the dying phase).
RESULTS:
Thirty-eight parent dyads participated (return rate 84%; 35% oncological disorders). According to parental report, dyspnea (61%) and pain (58%) were the dominant symptoms with an overall high symptom load (83%). Pain, agitation, and seizures could be treated more successfully than other symptoms. Successful symptom perception was achieved in most cases and predicted the quality of symptom treatment (R 2, 0.612). Concordant assessment of symptom severity between parents and healthcare professionals (HCPs) improved the satisfaction with the care provided (p = 0.037) as well as the parental quality-of-life (p = 0.041). Even in cases with unsuccessful symptom control, parents were very satisfied with the SHPPC team's care (median 10; numeric rating scale 0-10) and rated the child's death as highly peaceful (median 9). Significance of the results: The quality and the concordance of symptom perception between parents and HCPs essentially influence parental quality-of-life as well as parental satisfaction and constitute a predictive factor for the quality of symptom treatment and palliative care.
Identifier
An unambiguous reference to the resource within a given context
DOI: 10.1017/S1478951515000462
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adult
Borasio GD
Brandstatter M
Cross-sectional Studies
Death
Duroux A
Dyspnea/diagnosis
Dyspnea/psychology
End-of-life Symptoms
Female
Führer M
Grasser M
Home Care Services/standards
Humans
Male
November 2016 List
Pain/diagnosis
Pain/psychology
Palliative & Supportive Care
Palliative Care/methods
Palliative Care/psychology
Parents/psychology
Pediatric Palliative Home Care
Pediatrics/methods
Perception
Quality Of Life/psychology
Retrospective Studies
Surveys And Questionnaires
Symptom Assessment/psychology
Symptom Perception
Vollenbroich R