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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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June 2020 List
Text
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Citation List Month
June 2020 List
URL Address
<a href="http://doi.org/10.1186/s12904-020-00555-8" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12904-020-00555-8</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Trauma to Transformation: the lived experience of bereaved parents of children with chronic life-threatening illnesses in Singapore
Publisher
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BMC Palliative Care
Date
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2020
Subject
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Asia; Attitude to Death; Bereavement – Singapore; Chinese; Critical Illness – Singapore; Ethnic Groups; Grounded Theory; Human; India – Ethnology; Interviews; Life Experiences – Evaluation – Singapore; Palliative Care – Singapore; Parent-Child Relations – Singapore; Parents – Psychosocial Factors – Singapore; Pediatric Care – Singapore; Posttraumatic Growth; Psychological – Prevention and Control – Singapore; Psychological Well-Being; Psychosocial; Qualitative Studies; Rituals and Ceremonies; Singapore; Single Parent – Psychosocial Factors; Spouses – Psychosocial Factors; Support
Creator
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Dutta O; Tan-Ho G; Choo P Y; Low X C; Chong P H; Ng C; Ganapathy S; Ho A H Y
Description
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Background: In 2016, over 6.6 million children died globally, and 245 children died in Singapore. Chronic illnesses are prevalent causes of child mortality around the world. Despite growing research that examines the lived experience of parents bereaved by their child's chronic life-threatening illness, there is no such study within the Asian context. Methods: To bridge this knowledge gap, meaning-oriented, strength-focused interviews were conducted with 25 parental units (i.e. 6 couples, 13 lone mothers, 4 lone fathers, and 2 primary parental figures) who lost their child to chronic life-threatening illness in Singapore (N = 31), including those of Chinese (n = 17), Malay (n = 10) and Indian ethnicities (n = 4), between August 2017 and April 2018. Results: Data analysis adhering to the grounded theory approach revealed 7 themes and 25 sub-themes that were organized into a Trauma-to-Transformation Model of Parental Bereavement. This model shows the major milestones in participants' lived experience of their child's chronic life-threatening illness and death, starting from the diagnosis of their child's chronic life-threatening illness and the subsequent emotional turmoil (Theme 1), the mourning of their child's death and the losses which accompanied the death (Theme 3) and participants' experience of posttraumatic growth through reflection of their journey of caregiving and child loss (Theme 5). The model further describes the deliberate behaviors or 'rituals' that helped participants to regain power over their lives (Theme 2), sustain an intimate bond with their child beyond death (Theme 4), and transcend their loss by deriving positive outcomes from their experience (Theme 6). Finally, the model denotes that the lived experiences and well-being of participants were embedded within the health-and-social-care ecosystem, and in turn impacted by it (Theme 7). Conclusion: These themes and their corresponding sub-themes are discussed, with recommendations for enhancing culturally sensitive support services for grieving Asian parents around the globe.
Identifier
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<a href="http://doi.org/10.1186/s12904-020-00555-8" target="_blank" rel="noreferrer noopener">10.1186/s12904-020-00555-8</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Asia
Attitude To Death
Bereavement – Singapore
BMC Palliative Care
Chinese
Chong P H
Choo P Y
Critical Illness – Singapore
Dutta O
Ethnic Groups
Ganapathy S
Grounded Theory
Ho A H Y
Human
India – Ethnology
Interviews
June 2020 List
Life Experiences – Evaluation – Singapore
Low X C
Ng C
Palliative Care – Singapore
Parent-Child Relations – Singapore
Parents – Psychosocial Factors – Singapore
Pediatric Care – Singapore
Posttraumatic Growth
Psychological – Prevention and Control – Singapore
Psychological Well-being
psychosocial
Qualitative Studies
Rituals and Ceremonies
Singapore
Single Parent – Psychosocial Factors
Spouses – Psychosocial Factors
Support
Tan-Ho G
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2020 List
URL Address
<a href="http://doi.org/10.1136/bmjopen-2019-032582" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/bmjopen-2019-032582</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Thematic analysis of spousal interaction patterns among Asian parents of children with chronic life-threatening illness
Publisher
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BMJ Open
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
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Asia; bereavement; paediatric palliative care; qualitative research; spousal relationship; thematic analysis
Creator
An entity primarily responsible for making the resource
Ho A H Y; Dutta O; Tan-Ho G; Choo P Y; Low X C; Chong P H; Ng C; Ganapathy S
Description
An account of the resource
OBJECTIVE: This is the first known study which examines the evolutionary nature of spousal interaction patterns among Asian parents of children with chronic life-threatening illness, from the time of providing care to their child through bereavement. This study is informed by earlier findings that when a child is diagnosed with a chronic life-threatening illness, parents are faced with multiple stressors, leaving them with little time to invest in their spousal relationship. PARTICIPANTS AND SETTING: A constructivist-phenomenological research paradigm was adopted and meaning-oriented interviews were conducted with 20 parental units (i.e., 6 couples, 12 lone mothers and 2 lone fathers) of Chinese, Malay and Indian ethnicities who lost their child to chronic life-threatening illness in Singapore. RESULTS: Qualitative thematic analysis of the data revealed four themes, which describe the evolutionary nature of spousal interaction patterns among Asian parents of children with chronic life-threatening illness, from caregiving through bereavement. Findings reveal participants' tendency to concentrate on pragmatic, solution-focused communication during the period of caregiving (pragmatic interaction), avoid discussion about their emotional pain as a means of protecting their spouse (partner-oriented self-regulation), respect and acknowledge their spouse's personal coping strategies (empathic responding) and show greater appreciation and emotional expression within the spousal relationship after their child's death (affective appreciation). CONCLUSION: Engaging in pragmatic discussions, deferring emotion-focused and potentially distressing conversations, and acknowledging their spouse's need for personal space are important coping strategies for Asian couples facing their child's chronic life-threatening illness and in the immediate aftermath of his/her death. Bereaved couples who have processed their grief individually feel ready to share their reflections with their spouse, deriving meaning and greater relational closeness through such disclosure. These findings are discussed from a cultural lens, with recommendations for healthcare professionals working with Asian parents of children with chronic life-threatening illness.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmjopen-2019-032582" target="_blank" rel="noreferrer noopener">10.1136/bmjopen-2019-032582</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Asia
Bereavement
Bmj Open
Chong P H
Choo P Y
Dutta O
Ganapathy S
Ho A H Y
January 2020 List
Low X C
Ng C
paediatric palliative care
Qualitative Research
spousal relationship
Tan-Ho G
Thematic Analysis