Consensus statement: collaborative clinical research on end-of-life care in pediatric oncology
Clinical Research; Collaboration; Collaborative; Pediatric oncology
2005
Stutzer CA; Drew D; Himelstein BP; Hinds PS; LaFond DA; Nuss SL; Rushton CH
Seminars In Oncology Nursing
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.soncn.2004.12.014" target="_blank" rel="noreferrer">10.1016/j.soncn.2004.12.014</a>
Palliative care for infants, children, adolescents, and their families
Child; Humans; infant; Palliative Care; Pediatrics; Professional-Family Relations; Health Services Accessibility; Professional-Patient Relations; Ethics; Medical; adolescent; Preschool; decision making; infant; Newborn; Parent caregivers
2006
Himelstein BP
Journal Of Palliative Medicine
2006
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1089/jpm.2006.9.163" target="_blank" rel="noreferrer">10.1089/jpm.2006.9.163</a>
Pediatric Palliative Care
Child; Humans; Grief; Religion; Death and Euthanasia; Terminally Ill/psychology; hospice care; Pediatrics/methods; Palliative Care/ethics/methods/psychology
Each year in the United States, approximately 50,000 children die and 500,000 children cope with life-threatening conditions. Worldwide these numbers are in the millions.1,2 Such children and their families require comprehensive, compassionate, and developmentally appropriate palliative care. Palliative care is a philosophy of care that evolved from the hospice philosophy to meet the gaps in care for seriously ill and dying patients. The aims of pediatric palliative care should best intersect with the aims of curing and healing, and this approach should be instituted when diagnosis, intervention, and treatment are not limited to a disease process, but rather become . . .
2004-04
Himelstein BP; Hilden JM; Boldt AM; Weissman DE
New England Journal Of Medicine
2004
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1056/NEJMra030334" target="_blank" rel="noreferrer">10.1056/NEJMra030334</a>
Perceptions of the term palliative care
Female; Humans; Male; United States; Palliative Care; Adult; Data Collection; Parents; Health Personnel; Attitude; Hospitals; Wisconsin; Pediatric
OBJECTIVES: To assess parents' and health care providers' perceptions of the name and description of a pediatric palliative care (PPC) program. METHODS: Survey conducted at three pediatric health care sites; asked respondents (parents and staff) about their likelihood to use a program identified either as palliative care or supportive care, as well as their understanding and feelings about the program before and after reading a program description. RESULTS: Response rate was 89% (195/220); 184 were considered evaluable. Parent respondents in the supportive care group scored significantly higher (Mann-Whitney test, p = 0.003) on "likelihood to use program" (mean score, 4.22, n = 60) than those in the palliative care group (mean score, 3.58, n = 45) before each read the program description. However, this group difference disappeared (p = 0.582) after reading the description (mean scores 4.50, 4.38, respectively; n = 48, n = 40, respectively). The name palliative care evoked more negative emotions compared to the supportive care name in parents, and reading the program description led to more positive feelings. In staff, reading the program description significantly increased likelihood to use the program for those in the Palliative Care group only (4.22 to 4.44; p < 0.05; n = 41). Staff also had more positive feelings about the program called supportive care, and rated this name best most frequently. CONCLUSION: Better definition of and explanation to families and health care providers about what palliative care programs offer may improve perceptions about palliative care and increase program utilization.
2006
Boldt MA; Yusuf F; Himelstein BP
Journal Of Palliative Medicine
2006
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1089/jpm.2006.9.1128" target="_blank" rel="noreferrer">10.1089/jpm.2006.9.1128</a>