COVID-19: Impact on Pediatric Palliative Care
Covid-19; Palliative Care; Pediatrics
Context: Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. Objective(s): To explore the impact of the COVID-19 pandemic and lockdowns on this population. Method(s): Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners. Result(s): COVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom's first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress. Conclusion(s): Continued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays. Copyright © 2022 American Academy of Hospice and Palliative Medicine
Scott HM; Coombes L; Braybrook D; Roach A; Hardardottir D; Bristowe K; Ellis-Smith C; Higginson I; Gao W; Bluebond-Langner M; Farsides B; Murtagh FE; Fraser LK; Harding R
Journal of Pain and Symptom Management
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1016/j.jpainsymman.2022.02.330" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2022.02.330</a>
Using satisfaction to measure the quality of palliative care: A review of the literature
2003
Aspinal F; Addington-Hall JM; Hughes R; Higginson I
Journal Of Advanced Nursing
2003
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1046/j.1365-2648.2003.02624.x" target="_blank" rel="noreferrer">10.1046/j.1365-2648.2003.02624.x</a>
The need for palliative care for patients with non-cancer diseases: a review of the evidence
Humans; Health Services Needs and Demand; Research Design; Patient Education as Topic; Palliative Care/psychology; Psychological; Stress; Terminal Care/psychology
The palliative care needs of patients with cancer are understood and managed well by specialist palliative care services. Patients dying of non-cancer diseases are rarely offered these services. A literature review was conducted to determine the physical and psychosocial problems of patients dying from non-cancer diseases. Studies were identified using a systematic keyword search of six electronic databases. Fourteen studies were identified and assessed according to rigour of design. Findings suggest that some patients dying of non-cancer have needs comparable with those dying of cancer. Low response rates, subject bias, and measurement bias mean that findings should be viewed with caution. More prospective, rigorously designed research is necessary to identify which patients with non-cancer diagnoses may benefit from specialist palliative care.
2001
Luddington L; Cox S; Higginson I; Livesley B
International Journal Of Palliative Nursing
2001
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.12968/ijpn.2001.7.5.12635" target="_blank" rel="noreferrer">10.12968/ijpn.2001.7.5.12635</a>