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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2020 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.01.013" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.01.013</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
An evaluation of By My Side: Peer support in written form is acceptable and useful for parents bereaved by childhood cancer
Publisher
An entity responsible for making the resource available
Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
child mortality; parents; bereavement; psychosocial support systems; peer group; neoplasm/mortality*
Creator
An entity primarily responsible for making the resource
Raharjo C; Hetherington K; Donovan L; Fardell J E; Russell V; Cohn R J; Morgan N; Siddiqui J; Wakefield C E
Description
An account of the resource
CONTEXT: Cancer is the leading cause of non-accidental death in childhood, with the death of a child representing a devastating loss for families. Peer support offers a valuable way to support parents' adjustment in bereavement. The By My Side book provides written peer support by sharing bereaved parents' stories to normalise grief experiences and reduce parents' isolation. It is available free of charge. AIM: This project evaluated the acceptability, relevance, emotional impact and usefulness of By My Side. DESIGN: Bereaved parents and healthcare professionals provided feedback via a questionnaire. We used descriptive statistics and qualitative analysis of open-ended responses to analyse the data. SETTING: /participants: We mailed a study invitation and evaluation questionnaire to parents and healthcare professionals who ordered a copy of By My Side. RESULTS: Twenty-four bereaved parents and seven healthcare professionals provided feedback. Parents thought the book's length (91.7%) and amount of information (83.3%) was 'just right'. 75% of parents reported that the book made them feel that their reactions to their child's death were normal/appropriate. Parents reported positive and negative emotional reactions to the book (e.g., 87.5% felt comforted, 87.5% felt sadness). All parents and healthcare professionals reported that the book provided useful information about grief. 83.4% of parents and 85.7% of healthcare professionals would recommend it to others. CONCLUSION: By My Side was acceptable and useful to bereaved parents and healthcare professionals. Results suggest that peer support in written form may help normalise aspects of grief and comfort parents bereaved by childhood cancer.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2020.01.013" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.01.013</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Bereavement
Child Mortality
Cohn R J
Donovan L
Fardell J E
Hetherington K
Journal of Pain and Symptom Management
Morgan N
neoplasm/mortality*
Oncology 2020 List
Parents
Peer Group
Psychosocial Support Systems
Raharjo C
Russell V
Siddiqui J
Wakefield C E
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1080/07481187.2019.1682087" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/07481187.2019.1682087</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Variables associated with grief and personal growth following the death of a child from cancer: A mixed method analysis
Publisher
An entity responsible for making the resource available
Death Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
bereavement; grief; Mixed methods; oncology; personal growth
Creator
An entity primarily responsible for making the resource
Donovan L A; Wakefield C E; Russell V; Fardell J; Mallitt K A; Hetherington K; Cohn R
Description
An account of the resource
This mixed method study explored parent and child characteristics that impact grief and personal growth in parents (n = 119) after a child dies from cancer in Australia. Medical components of a child's cancer care including radiation treatment, referral to palliative care, and location of death had a significant impact on levels of grief. Parents' gender, religious affiliation, and education level had a significant impact on levels of personal growth. This study further enhances our understanding of the impact of specific parent and child characteristics throughout a child's cancer treatment and end of life that may influence their families' experience of bereavement.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/07481187.2019.1682087" target="_blank" rel="noreferrer noopener">10.1080/07481187.2019.1682087</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Bereavement
Cohn R
Death studies
Donovan L A
Fardell J
Grief
Hetherington K
Mallitt K A
Mixed methods
Oncology
Oncology 2019 List
Personal Growth
Russell V
Wakefield C E