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Text
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URL Address
<a href="http://doi.org/10.1089/10966210360510082" target="_blank" rel="noreferrer">http://doi.org/10.1089/10966210360510082</a>
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Title
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Issues in end-of-life care: patient, caregiver, and clinician perceptions
Publisher
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Journal Of Palliative Medicine
Date
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2003
Subject
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Female; Humans; Male; Cohort Studies; Adult; Attitude of Health Personnel; Interpersonal Relations; Aged; Middle Aged; Attitude to Death; Physicians; Qualitative Research; Quality of Health Care; Cost of Illness; Washington; 80 and over; Non-U.S. Gov't; Research Support; Caregivers/psychology; Interviews; Family/psychology; Palliative Care/psychology; Terminal Care/psychology; Patients/psychology
Creator
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Farber SJ; Egnew TR; Herman-Bertsch JL; Taylor TR; Guldin GE
Description
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CONTEXT: Review of published research indicates the need to better incorporate patient and caregiver perceptions when providing end-of-life (EOL) care. Although considerable research regarding patient and caregiver experience of EOL has been done, little research has studied patients, caregivers, and clinicians as a connected system. OBJECTIVE: To study the perceptions of patients, caregivers, and physicians who are already connected with one another in an EOL care experience. DESIGN: Qualitative study consisting of in-depth, open-ended, face-to-face interviews and content analysis. SETTING: Community family practice residency programs in rural and urban settings in the Affiliated Family Practice Residency Network of the Department of Family Medicine, University of Washington School of Medicine. PARTICIPANTS: Forty-two patients and 39 caregivers facing EOL were interviewed either alone or together after referral by their physicians. Additionally, results of previously published findings from interviews with 39 family practice faculty were included. OUTCOME MEASURES: Perceptions of participants on EOL issues. RESULTS: Participants identified four primary issues related to their experience of EOL care: awareness of impending death, management/coping with daily living while attempting to maintain the management regimen, relationship fluctuations, and the personal experiences associated with facing EOL. Participants expected their physicians to be competent and to provide a caring relationship. CONCLUSIONS: Awareness of these crucial patient and caregiver EOL issues and expectations and how they differ from clinician perspectives can assist clinicians to appropriately explore and address patient/caregiver concerns and thereby provide better quality EOL care.
2003
Identifier
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<a href="http://doi.org/10.1089/10966210360510082" target="_blank" rel="noreferrer">10.1089/10966210360510082</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2003
80 And Over
Adult
Aged
Attitude Of Health Personnel
Attitude To Death
Backlog
Caregivers/psychology
Cohort Studies
Cost Of Illness
Egnew TR
Family/psychology
Farber SJ
Female
Guldin GE
Herman-Bertsch JL
Humans
Interpersonal Relations
Interviews
Journal Article
Journal of Palliative Medicine
Male
Middle Aged
Non-U.S. Gov't
Palliative Care/psychology
Patients/psychology
Physicians
Qualitative Research
Quality Of Health Care
Research Support
Taylor TR
Terminal Care/psychology
Washington