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Dublin Core
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July 2018 List
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July 2018 List
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<a href="http://doi.org/10.1186/s12904-018-0324-2" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12904-018-0324-2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014
Publisher
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BMC Palliative Care.
Date
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2018
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Friedel M; Brichard B; Fonteyne C; Renard M; Misson JP; Vandecruys E; Tonon C; Verfaillie F; Hendrijckx G; Andersson N; Ruysseveldt I; Moens K; Degryse JM; Aujoulat I
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<a href="http://doi.org/10.1186/s12904-018-0324-2" target="_blank" rel="noreferrer noopener">10.1186/s12904-018-0324-2</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
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BACKGROUND: Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it's implementation is challenging. In Belgium, five paediatric liaison teams (PLTs) deliver palliative care. A Royal Decree issued in 2010 provides the legal framework that defines the PLTs' missions, as ensuring continuity of curative and palliative care between the hospital and home for children diagnosed with life-limiting conditions. This national study describes how PLTs ensure continuity of care by describing their activities and the characteristics of the children they cared for from 2010 to 2014. METHODS: Thematic analysis of open-ended questions was performed and descriptive statistics of aggregated data issued from annual reports, collected by the Belgian Ministry of Public Health through the Cancer Plan was used. A review panel of PLT members discussed the results and contributed to their interpretation. RESULTS: Between 2010 and 2014, 3607 children and young adults (0-21 years) were cared for by the 5 Belgian PLTs (mean of 721/per year). Of these children, 50% were diagnosed with an oncological disease, 27% with a neurological or metabolic disease. Four hundred and twenty eight (428) children had died. For 51% of them, death took place at home. PLT activities include coordination; communication; curative and palliative care; education; research and fundraising. Different perceptions of what constitutes a palliative stage, heterogeneity in reporting diagnosis and the current lack of specific valid indicators to report PPC activities were found. CONCLUSION: PLTs are offering highly individualised, flexible and integrated care from diagnosis to bereavement in all care settings. Improvements in data registration and implementation of outcome measures are foreseen.
2018
Andersson N
Aujoulat I
BMC Palliative Care.
Brichard B
Degryse JM
Fonteyne C
Friedel M
Hendrijckx G
July 2018 List
Misson JP
Moens K
Renard M
Ruysseveldt I
Tonon C
Vandecruys E
Verfaillie F