1
40
1
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="http://doi.org/10.1080/24694193.2017.1330371" target="_blank" rel="noreferrer">http://doi.org/10.1080/24694193.2017.1330371</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Experience of Decision Making in the Care of Children with Palliative Care Needs: The Experiences of Jordanian Mothers
Publisher
An entity responsible for making the resource available
Comprehensive Child and Adolescent Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Children With Life-threatening Or Life-limiting Illnesses; Decision Making; End Of Life; Healthcare Providers; Pediatric Palliative Care
Creator
An entity primarily responsible for making the resource
Atout M; Hemingway P; Seymour J
Description
An account of the resource
The purpose of this study was to explore the experience of decision making in the care of children with palliative care needs in Jordan, from the perspective of their mothers. This study employed a collective qualitative case study approach. Data were collected in 3 pediatric wards in a Jordanian hospital. The study used 2 data collection methods: participant observation (197 observational hours) and 56 semi-structured interviews with 24 mothers, 12 physicians and 20 nurses. The findings show how Jordanian mothers seek to transfer the role of decision making to physicians, as they perceive themselves to be unable to make decisions about critical issues related to the treatment of their children. Mothers had a widespread apprehension of "future guilt," especially when they feared that any decisions they might make could have an adverse impact on their children. Contrary to the predominant pattern, some mothers took a proactive approach towards decision making about their children's treatment. These mothers requested detailed information from primary physicians and sought different sources of knowledge such as second opinions, reading online resources, or talking to other parents who had a child with similar circumstances. The study concludes that mothers prefer to involve physicians in decisions about their children's healthcare and treatment to eliminate their fear of probable future guilt; this modifies any tendency to autonomously decide for their children. These findings are underpinned by the Jordanian culture in which doctors' opinions are highly regarded.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/24694193.2017.1330371" target="_blank" rel="noreferrer">10.1080/24694193.2017.1330371</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Atout M
Children With Life-threatening Or Life-limiting Illnesses
Comprehensive Child and Adolescent Nursing
Decision Making
End Of Life
Healthcare Providers
Hemingway P
Pediatric Palliative Care
Seymour J