1
40
56
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Dublin Core
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Title
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February 2024 List
Text
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Citation List Month
February List 2024
URL Address
<a href="http://doi.org/10.1186/s12904-023-01280-8" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1186/s12904-023-01280-8</a>
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Title
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Balancing pandemic public health restrictions and family support at the end of life: palliative care and bereavement experiences of parents whose child died during the COVID-19 pandemic
Publisher
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BMC Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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child; Canada; terminal care; article; controlled study; female; human; male; chronic disease; social support; palliative therapy; interview; parental attitude; health care policy; health care access; health service; adolescent; infant; physical activity; public health; qualitative research; coping behavior; coronavirus disease 2019; risk assessment; health status; personal experience; bereavement support; health care facility; family support; pandemic; infection control
Creator
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Rapoport A; Nicholas DB; Zulla RT
Description
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Background: Little is known about the impact of the COVID-19 pandemic on families of children with chronic life-limiting conditions who died during the COVID-19 pandemic. Methods: In this qualitative study, parents of a child (< 18 years) who died during the COVID-19 pandemic from an underlying chronic medical condition were interviewed to explore how the pandemic impacted end-of-life care and bereavement experiences. Parents of children followed by the pediatric palliative care service were recruited from a large children's hospital in eastern Canada. Results: Twenty bereaved parents, consisting of 12 mothers and 8 fathers, participated in individual interviews between January and December 2021. Findings identified impacts of the COVID-19 pandemic on children's end-of-life care, experiences in hospital and at home, and family bereavement processes and experiences. Most parents experienced substantial worry about their child's physical status and the additional risk of COVID-19 given her/his vulnerability. Parents also struggled to navigate public health protocols as they attended to their child's needs and their family's desire for engagement and support. Key facilitators that helped families cope included a strong network of formal and informal supports. Conclusion: Implications highlight the need to critically reflect on pandemic care in the context of co-occurring end-of-life processes. Findings amplify the need to balance necessary infection control practices with access to essential supports for families.
Identifier
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<a href="http://doi.org/10.1186/s12904-023-01280-8" target="_blank" rel="noreferrer noopener">10.1186/s12904-023-01280-8</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Adolescent
Article
Bereavement Support
BMC Palliative Care
Canada
Child
Chronic Disease
Controlled Study
Coping Behavior
coronavirus disease 2019
family support
February List 2024
Female
Health Care Access
health care facility
Health Care Policy
Health Service
Health Status
Human
Infant
Infection Control
Interview
Male
Nicholas DB
Palliative Therapy
Pandemic
Parental Attitude
Personal Experience
physical activity
Public Health
Qualitative Research
Rapoport A
Risk Assessment
Social Support
Terminal Care
Zulla RT
-
Dublin Core
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Title
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September 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.1177/02692163231172891" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1177/02692163231172891</a>
Dublin Core
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Title
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My Life Is a Mess but I Cope': An Analysis of the Language Children with Life-limiting and Life Threatening Illnesses Use to Describe their Own Condition
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Child; child; controlled study; female; human; male; preschool child; emotion; clinical article; interview; Only Child; human experiment; human tissue; malignant neoplasm; thematic analysis; conference abstract; health status; literature; language; ambivalence; discourse analysis
Creator
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Bristowe K; Braybrook D; Scott HM; Coombes L; Harardottir D; Roach A; Ellis-Smith C; Fraser L; Downing J; Murtagh FE; Harding R
Description
An account of the resource
Background/aims: Children with life-limiting and life-threatening conditions are rarely involved in research. Engaging them directly enables them to express the meaning of their condition in their own words. This study aimed to explore the language children use to describe their condition and its impact on their life, to inform strategies for engaging children about their priorities. <br/>Method(s): Semi-structured, qualitative interviews with purposively sampled children with life-limiting and life-threatening conditions. Data were analysed using thematic analysis, discourse analysis and the discourse dynamics approach to identify figurative language. <br/>Result(s): Participants: 26 children (6 cancer; 20 non-cancer) aged 5-17. <br/>Finding(s): Children as young as five provided rich descriptions of their condition, including: diverse negative emotions often contextualised by what they 'can't do' ('can't do anything', 'can't go anywhere'), and comparisons to healthy ('normal', 'usual') peers, with their condition singling them out ('the one that has something,' 'the sick one'). Others expressed ambivalence ('doesn't bother me', 'not really fussed') or acceptance using idiomatic phrases ('I can live with that', 'you're still you, you haven't gone anywhere'). Metaphor were common, including familiar journey and battle metaphors, and novel usages related to zombies, gaming, superheroes, toys and animals. Children used medical jargon related to their condition, combined with preferred words for their body ('tummy', 'belly', 'butt') and had capacity to create comparatives and superlatives to describe symptom severity (no hurt, hurt a bit, a whole lot, like crazy, really hurt, worse, better). <br/>Conclusion(s): Children make deliberate language choices when describing their condition, and can express holistic needs, and changes in health status. Clinicians should observe and mirror children's language to enhance discussions about priorities.
Identifier
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<a href="http://doi.org/10.1177/02692163231172891" target="_blank" rel="noreferrer noopener">10.1177/02692163231172891</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
ambivalence
Braybrook D
Bristowe K
Child
Clinical Article
conference abstract
Controlled Study
Coombes L
discourse analysis
Downing J
Ellis-Smith C
Emotion
Female
Fraser L
Harardottir D
Harding R
Health Status
Human
Human Experiment
Human Tissue
Interview
Language
literature
Male
Malignant Neoplasm
Murtagh FE
Only Child
Palliative Medicine
Preschool Child
Roach A
Scott HM
September List 2027
Thematic Analysis
-
Dublin Core
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Title
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2019 Oncology List
Text
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Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1200/JCO.2019.37.15_suppl.e21532" target="_blank" rel="noreferrer noopener">http://doi.org/10.1200/JCO.2019.37.15_suppl.e21532</a>
Dublin Core
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Title
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Perceptions on good death among parents of pediatric patients with hematology-oncology disease in advance
Publisher
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Journal of Clinical Oncology
Date
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2019
Subject
The topic of the resource
cancer patient; child; conference abstract; controlled study; female; health status; hematology; human; interdisciplinary education; leukemia; living will; lymphoma; middle school; outpatient department; pediatric patient; perception; quality of life; questionnaire; stress; terminal care
Creator
An entity primarily responsible for making the resource
Kim J Y; Park B K
Description
An account of the resource
Background: It is difficult to perceive the preparation of a good death for children because of its social and cultural issues. Among the children with serious diseases, they can be alienated and the whole processes are done by the decision of the parent's proxy even when they have to prepare for death. The purpose of this study was to examine the perception of "Good Death" in advance among parents of pediatric patients with hematology-oncology diseases.
Identifier
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<a href="http://doi.org/10.1200/JCO.2019.37.15_suppl.e21532" target="_blank" rel="noreferrer noopener">10.1200/JCO.2019.37.15_suppl.e21532</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Cancer Patient
Child
conference abstract
Controlled Study
Female
Health Status
Hematology
Human
interdisciplinary education
Journal Of Clinical Oncology
Kim J Y
Leukemia
living will
Lymphoma
middle school
Oncology 2019 List
outpatient department
Park B K
pediatric patient
Perception
Quality Of Life
Questionnaire
Stress
Terminal Care
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2020 List
URL Address
<a href="http://doi.org/10.1016/j.apnr.2019.151200" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.apnr.2019.151200</a>
Dublin Core
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Title
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African American and Latino bereaved parent health outcomes after receiving perinatal palliative care: A comparative mixed methods case study
Publisher
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Applied Nursing Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Adult; Anticipatory Grieving; Anxiety; Bereavement; Blacks -- Psychosocial Factors; Comparative Studies; Depression; Descriptive Statistics; Female; Fetal Abnormalities -- Diagnosis; Funding Source; Health Status; Hispanics -- Psychosocial Factors; Human; Interviews; Male; Multimethod Studies; Palliative Care; Parental Attitudes; Patient Satisfaction; Perinatal Care; Perinatal Death -- Psychosocial Factors; Psychological Well-Being; Qualitative Studies; Quantitative Studies; Questionnaires; Scales; Self Report; Summated Rating Scaling; Surveys; Treatment Outcomes
Creator
An entity primarily responsible for making the resource
Côté-Arsenault D; Denney-Koelsch E M; McCoy T P; Kavanaugh K
Description
An account of the resource
Death of one's infant is devastating to parents, negatively impacting couple relationships and their own health. The impact of a prenatally diagnosed life-limiting fetal condition (LLFC) on parents of minority status is unclear. This comparative mixed methods case study examined the person characteristics, quality of perinatal palliative care (PPC) received and parent health outcomes. Bereaved couples, 11 mothers and 3 fathers of minority or mixed races (11 African American and Latino, 1 White Latino and 2 White parents) completed the survey; 7 were interviewed. Parents rated their general health close to good , physical health close to normal but mental health lower than the population norm. Clinical caseness (abnormal levels) of anxiety were reported in 50% of parents whereas depression scores were normal. The experience of fetal diagnosis and infant death had a negative impact on the health of 40% of participants however, parents could not identify what specifically caused their health problems. Most were satisfied with their PPC but some shared that original providers were not supportive of pregnancy continuation. After the baby's death, 71% reported closer / stronger couple relationships. Two contrasting cases are presented. Once parents found PPC, their baby was treated as a person, they spent time with their baby after birth, and found ways to make meaning through continuing bonds. Despite high overall satisfaction with PPC, bereaved parents were deeply impacted by their infant's death. Mixed methods case study design illuminated the complicated journeys of parents continuing their pregnancy with a LLFC. • The impact of race and ethnicity on response to perinatal loss is not well known. • Perinatal death can have long-lasting, negative effect on the parents' health. • Perinatal palliative care exists for fetal life-limiting conditions. • The majority of parents reported worsening or new health problems after the loss. • Parents found that perinatal palliative care greatly improved their experience.
Identifier
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<a href="http://doi.org/10.1016/j.apnr.2019.151200" target="_blank" rel="noreferrer noopener">10.1016/j.apnr.2019.151200</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adult
Anticipatory Grieving
anxiety
Applied Nursing Research
Bereavement
Blacks -- Psychosocial Factors
Comparative Studies
Côté-Arsenault D
Denney-Koelsch E M
Depression
Descriptive Statistics
February 2020 List
Female
Fetal Abnormalities -- Diagnosis
Funding Source
Health Status
Hispanics -- Psychosocial Factors
Human
Interviews
Kavanaugh K
Male
McCoy T P
Multimethod Studies
Palliative Care
Parental Attitudes
Patient Satisfaction
Perinatal Care
Perinatal Death -- Psychosocial Factors
Psychological Well-being
Qualitative Studies
Quantitative Studies
Questionnaires
scales
Self Report
Summated Rating Scaling
surveys
Treatment Outcomes
-
Dublin Core
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
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URL Address
<a href="http://doi.org/10.1016/j.pediatrneurol.2010.01.002" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.pediatrneurol.2010.01.002</a>
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Title
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Health-related quality of life in children with Friedreich ataxia
Publisher
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Pediatric Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Adolescent Child Female; Friedreich Ataxia/pp [Physiopathology]; Friedreich Ataxia/px [Psychology]; Friedreich ataxia; Health Status; Humans; Male; Quality of Life/px [Psychology]; tool development; scale development; fatigue; alertness
Creator
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Paulsen E K; Friedman L S; Myers L M; Lynch D R
Description
An account of the resource
The use of health-related quality of life scales as outcome measures in clinical trials is increasing. Although such measures have been validated in adults with Friedreich ataxia, they have not been studied in children with this disorder. The health-related quality of life of children with Friedreich ataxia was assessed using the PedsQL 4.0 Generic Core Module and Multidimensional Fatigue Scale. The scores from the Friedreich ataxia cohort were compared to those of control groups (children without a chronic disease). Minimal missing responses support the feasibility of using the PedsQL 4.0 in the Friedreich ataxia population. The scales demonstrated internal consistency, and concordance was observed between child and proxy scores. Children with Friedreich ataxia and their proxies reported lower health-related quality of life than did controls in the Core and Fatigue scales. A modest relationship was seen between markers of disease status and health-related quality of life, providing support for the idea that children with Friedreich ataxia have a lower health-related quality of life than those without a chronic disease. Additional studies are needed to examine the relationship between health-related quality of life and disease markers and to further establish the validity of the PedsQL 4.0 in this population.Copyright 2010 Elsevier Inc. All rights reserved.
Identifier
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<a href="http://doi.org/10.1016/j.pediatrneurol.2010.01.002" target="_blank" rel="noreferrer noopener">10.1016/j.pediatrneurol.2010.01.002</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2010
Adolescent Child Female
alertness
Fatigue
Friedman L S
Friedreich ataxia
Friedreich Ataxia/pp [Physiopathology]
Friedreich Ataxia/px [Psychology]
Health Status
Humans
Lynch D R
Male
Myers L M
Paulsen E K
Pediatric Neurology
Quality Of Life/px [psychology]
scale development
tool development
-
Dublin Core
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1111/j.1365-2788.2008.01047.x" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/j.1365-2788.2008.01047.x</a>
Dublin Core
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Title
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Health and sleep problems in Cornelia de Lange Syndrome: a case control study
Publisher
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Journal of Intellectual Disability Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Male; Severity of Illness Index; Case-Control Studies; Comorbidity; Surveys and Questionnaires; Humans; Adolescent; Prevalence; Female; Health Status; De Lange Syndrome/epidemiology/psychology; Ear Diseases/epidemiology/psychology; Eye Diseases/epidemiology/psychology; Gastrointestinal Diseases/epidemiology/psychology; Hernia/epidemiology/psychology; Intellectual Disability/epidemiology/psychology; Self-Injurious Behavior/epidemiology/psychology; Skin Diseases/epidemiology/psychology; Sleep Wake Disorders/epidemiology; Stomatognathic Diseases/epidemiology/psychology; behavioral problems; sleep disturbance; De Lange syndrome; trajectory; characteristics; self-injury
Creator
An entity primarily responsible for making the resource
Hall S; Arron K; Sloneem J; Oliver C
Description
An account of the resource
BACKGROUND: Self-injury, sleep problems and health problems are commonly reported in Cornelia de Lange Syndrome (CdLS) but there are no comparisons with appropriately matched participants. The relationship between these areas and comparison to a control group is warranted. METHOD: 54 individuals with CdLS were compared with 46 participants with intellectual disability (ID) of mixed aetiology who were similar in terms of degree of ID, mobility, age and gender using informant-based measures of health problems, sleep and self-injury. RESULTS: Participants with CdLS experienced significantly more current and lifetime health problems with eye problems and gastrointestinal disorders prominent. Although 55% of those with CdLS experienced sleep problems this prevalence was not different from the comparison group. Sleep disorder was not associated with self-injury in the CdLS group, skin problems were associated with severity of self-injury but not presence. DISCUSSION: People with CdLS experience a range of significant health problems and have more health concerns than others with the same degree of ID. Although this has been well documented in the past, the current high prevalence of health concerns indicates the need for regular health assessment and appropriate intervention.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2788.2008.01047.x" target="_blank" rel="noreferrer noopener">10.1111/j.1365-2788.2008.01047.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2008
Adolescent
Arron K
behavioral problems
Case-Control Studies
characteristics
Comorbidity
De Lange syndrome
De Lange Syndrome/epidemiology/psychology
Ear Diseases/epidemiology/psychology
Eye Diseases/epidemiology/psychology
Female
Gastrointestinal Diseases/epidemiology/psychology
Hall S
Health Status
Hernia/epidemiology/psychology
Humans
Intellectual Disability/epidemiology/psychology
Journal Of Intellectual Disability Research
Male
Oliver C
Prevalence
Self-Injurious Behavior/epidemiology/psychology
self-injury
Severity Of Illness Index
Skin Diseases/epidemiology/psychology
sleep disturbance
Sleep Wake Disorders/epidemiology
Sloneem J
Stomatognathic Diseases/epidemiology/psychology
Surveys And Questionnaires
Trajectory
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
December 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2018 List
URL Address
<a href="http://doi.org/10.1016/j.jadohealth.2018.06.021" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1016/j.jadohealth.2018.06.021</a>
Dublin Core
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Title
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Youth With Chronic Conditions and Risky Behaviors: An Indirect Path
Publisher
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Journal of Adolescent Health.
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
adolescent; health status; structural equation modeling; education; major clinical study; student; wellbeing; vision; statistical analysis; human; article; female; male; controlled study; daily life activity; chronic disease; high risk behavior; juvenile; psychological adjustment; eating; gambling; internet addiction; substance use
Creator
An entity primarily responsible for making the resource
Gubelmann A; Berchtold A; Barrense-Dias Y; Akre C; Newman CJ; Suris J C
Description
An account of the resource
Purpose: To compare risk behaviors between youths living with a chronic condition (CC) and their healthy peers, controlling for condition severity. Methods: Data were drawn from the baseline wave of the GenerationFRee study (students aged 15-24 years in postmandatory education) during the 2014-2015 school year. The sample (N = 5,179) was divided into youths with CC without limitations (N = 536; 10.4%), youths with limitations (N = 114; 2.2%), and a control group (CG; N = 4,529; 87.4%). Groups were compared on internalizing (perceived health status, vision of their future, emotional wellbeing) and externalizing behaviors (substance use, gambling, excessive internet use, disordered eating, violent and antisocial acts) controlling for potential confounders. Statistical analyses were carried out through structural equation modeling. Results are given as unstandardized coefficients. Results: Overall, CC youths showed an association with internalizing behaviors (coefficient: .78) but not with externalizing behaviors. In fact, the connection with externalizing behaviors was indirect via the internalizing behaviors (.32). CC Youths reporting psychological issues were more likely to adopt every externalizing behavior. Analyzing separately youths with CC limiting daily life activities and those without limitations, the results did not change substantially. However, the association with internalizing behaviors was much higher for those reporting limitations (2.18 vs. .42). Conclusions: Our results show that the link between suffering from a CC and adopting risk behaviors is indirect through internalizing behaviors. Health professionals should address emotional wellbeing and perception of the future rather than focus exclusively on the effects of risk behaviors on specific diseases.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jadohealth.2018.06.021" target="_blank" rel="noreferrer noopener">10.1016/j.jadohealth.2018.06.021</a>
2018
Adolescent
Akre C
Article
Barrense-Dias Y
Berchtold A
Chronic Disease
Controlled Study
daily life activity
December 2018 List
Eating
Education
Female
gambling
Gubelmann A
Health Status
high risk behavior
Human
internet addiction
Journal of Adolescent Health.
juvenile
Major Clinical Study
Male
Newman CJ
psychological adjustment
statistical analysis
structural equation modeling
Student
substance use
Suris J C
vision
Wellbeing
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2018 List
URL Address
<a href="http://doi.org/10.1186/s13052-018-0531-8" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s13052-018-0531-8</a>
Dublin Core
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Title
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Comparison of mothers and grandmothers physical and mental health and functioning within 6 months after child NICU/PICU death
Publisher
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Italian Journal of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Attitude to Death; Bereavement; Blacks; Checklists; Chi Square Test; Cross Sectional Studies; Depression; Employment Status; Grandparents Psychosocial Factors; Grief; Health Status; Hispanics; Human; Intensive Care Units; Interviews; Mental Health; Mothers Psychosocial Factors; Neonatal; Paired T-Tests; Pediatric; Physical Fitness; Post-Traumatic; Psychological Tests; Psychosocial; Stress Disorders; Support
Creator
An entity primarily responsible for making the resource
Youngblut JM; Brooten D
Description
An account of the resource
Losing a child is devastating for parents and grandparents. Family and friends generally focus on comforting and supporting the bereaved parents, unintentionally ignoring the bereaved grandparents. Grandmothers and grandfathers often struggle with wanting to help their adult children (deceased child’s parents) without usurping the parents’ responsibilities and decisions regarding the deceased child. Research on mothers’ and grandmothers’ health at about the same time after the same child’s death in the neonatal or pediatric intensive care unit is lacking. The aim of this study was to compare mothers and grandmothers on physical health, mental health, and functioning in the first 1–6 months after the same child’s death in a neonatal or pediatric intensive care unit.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/s13052-018-0531-8" target="_blank" rel="noreferrer noopener">10.1186/s13052-018-0531-8</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here.
2018
Attitude To Death
Bereavement
Blacks
Brooten D
Checklists
Chi Square Test
Cross Sectional Studies
Depression
Employment Status
Grandparents Psychosocial Factors
Grief
Health Status
Hispanics
Human
Intensive Care Units
Interviews
Italian Journal of Pediatrics
Mental Health
Mothers Psychosocial Factors
Neonatal
October 2018 List
Paired T-Tests
Pediatric
Physical Fitness
Post-traumatic
Psychological Tests
psychosocial
September 2018 List
Stress Disorders
Support
Youngblut JM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/dmcn.12530" target="_blank" rel="noreferrer">http://doi.org/10.1111/dmcn.12530</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Sleep disturbances in children, adolescents, and young adults with severe psychomotor impairment: impact on parental quality of life and sleep
Publisher
An entity responsible for making the resource available
Developmental Medicine And Child Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; retrospective studies; Young Adult; Adult; Parents; Questionnaires; caregivers; Sleep Disorders; Health Status; Psychomotor Disorders; quality of life; Preschool; Newborn
Creator
An entity primarily responsible for making the resource
Tietze AL; Zernikow B; Michel E; Blankenburg M
Description
An account of the resource
AIM: In childhood, severe psychomotor impairment (SPMI) is associated with profound sleep disturbances. With the help of newly developed and validated measures, we systematically assessed how much a child's sleep disturbance affects parental sleep and quality of life (QoL) in this specific patient group. METHOD: Parents and their children with SPMI were enrolled from three outpatient centers and one in-patient center in Germany. We administered a set of questionnaires to the parents that addressed their child's sleep quality, the sleep disturbance-related parental burden, and the impact on both parental sleep and QoL. Additional questionnaires were used to gather data describing our sample group to allow for comparison with published norms. RESULTS: Parents of 214 children, adolescents, and young adults with SPMI (114 males, 100 females; mean age 10y 5mo, SD 5y 6mo, range 0.1-25y) responded to the questionnaire set (response rate of 66%). We found severe impairment of parental health status and QoL. More than 50% of the parents suffered from a sleep disorder (e.g. prolonged sleep latency, shortened sleep duration). Sleep disturbances in children, adolescents, and young adults correlated strongly with parental sleep disturbances, parental impairment of physical and mental functioning, parental social functioning, and parental working ability. INTERPRETATION: Sleep-related difficulties have a significant sociomedical impact on the parents of children, adolescents, and young adults with complex neurological diseases. Typically, parents are severely affected in various aspects of daily living. There is a need for novel diagnostic and therapeutic approaches that match the complex sociomedical needs of these patients and their families.
2014-12
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/dmcn.12530" target="_blank" rel="noreferrer">10.1111/dmcn.12530</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adolescent
Adult
Backlog
Blankenburg M
Caregivers
Child
Developmental Medicine and Child Neurology
Female
Health Status
Humans
Infant
Journal Article
Male
Michel E
Newborn
Parents
Preschool
Psychomotor Disorders
Quality Of Life
Questionnaires
Retrospective Studies
Sleep Disorders
Tietze AL
Young Adult
Zernikow B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.semarthrit.2012.09.003" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.semarthrit.2012.09.003</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The interaction of physical function and emotional well-being in rheumatoid arthritis--what is the impact on disease activity and coping?
Publisher
An entity responsible for making the resource available
Seminars In Arthritis And Rheumatism
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Humans; Emotions; Health Status; Disability Evaluation; Health Behavior; quality of life; Adaptation; Psychological; Arthritis; Rheumatoid; Social Support and Chronic Pain; Exercise
Creator
An entity primarily responsible for making the resource
Englbrecht M; Kruckow M; Araujo E; Rech J; Schett G
Description
An account of the resource
OBJECTIVE: To evaluate the impact of the interaction of physical function and emotional well-being on disease-related parameters and coping with rheumatoid arthritis. METHODS: A cross-sectional survey among 177 RA patients included demographic and disease-related variables as well as the following patient-reported outcome measures: Health Assessment Questionnaire-Disability Index (HAQ-DI) (physical function), Mental Component Summary Scale of the SF-36 (MCSS) for emotional well-being, Rheumatoid Arthritis Disease Activity Index (RADAI), and Coping with Rheumatoid Arthritis Questionnaire (C-RAQ). Based on HAQ-DI and MCSS, six categories representing various levels of physical and emotional impairment were formed. Multivariate analysis of variance and a subsequent discriminant analysis were used to evaluate whether demographic and disease-related variables and coping strategies differed between these categories. RESULTS: Patients with moderate to high impairment of physical function and emotional well-being reported significantly higher disease activity and a more frequent use of distancing and active problem solving coping strategies than patients with low-level impairment (p<0.001-0.043). Furthermore, these patients reported experiencing significantly higher levels of helplessness (p<0.001-0.032). Results from the discriminant analysis highlighted a combination of disease activity and helplessness to differentiate best between patients with either low or high impairment of physical function and emotional well-being (p<0.001). CONCLUSION: Aside from perceived disease activity, helplessness, and distancing as well as active problem solving allowed for a good discrimination between the different levels of impairment of physical function and emotional well-being. Encouraging and educating patients on how to cognitively reframe their current situation might play a key role in reducing the level of helplessness resulting from impairments of physical function and emotional well-being.
2013-04
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.semarthrit.2012.09.003" target="_blank" rel="noreferrer">10.1016/j.semarthrit.2012.09.003</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Adaptation
Araujo E
Arthritis
Backlog
Disability Evaluation
Emotions
Englbrecht M
Exercise
Health Behavior
Health Status
Humans
Journal Article
Kruckow M
Psychological
Quality Of Life
Rech J
Rheumatoid
Schett G
Seminars In Arthritis And Rheumatism
Social Support and Chronic Pain
-
Text
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Citation List Month
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URL Address
<a href="http://doi.org/10.1002/pon.3053" target="_blank" rel="noreferrer">http://doi.org/10.1002/pon.3053</a>
<a href="http://ovidsp.tx.ovid.com.ezproxy.library.ubc.ca/sp-3.12.0b/ovidweb.cgi?&S=JEGHFPHFGCDDCKFGNCMKKEOBCHJNAA00&Complete+Reference=FL.S.sh.75.6%7C3%7C1" target="_blank" rel="noreferrer">http://ovidsp.tx.ovid.com.ezproxy.library.ubc.ca/sp-3.12.0b/ovidweb.cgi?&S=JEGHFPHFGCDDCKFGNCMKKEOBCHJNAA00&Complete+Reference=FL.S.sh.75.6%7c3%7c1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier: Psychological health in siblings who lost a brother or sister to cancer
Publisher
An entity responsible for making the resource available
Psycho-oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Child; Female; Humans; Male; Young Adult; bereavement; Neoplasms; Cohort Studies; Adult; Questionnaires; Follow-Up Studies; Self Concept; Siblings; Health Status; Mental Health; Sweden; Case-Control Studies; Adaptation; Psychological; sibling bereavement; Sleep Initiation and Maintenance Disorders
Creator
An entity primarily responsible for making the resource
Eilegård A; Steineck G; Nyberg T; Kreicbergs U
Identifier
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<a href="http://doi.org/10.1002/pon.3053" target="_blank" rel="noreferrer">10.1002/pon.3053</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2013-03
2013
Adaptation
Adult
Backlog
Bereavement
Case-Control Studies
Child
Cohort Studies
Eilegård A
Female
Follow-up Studies
Health Status
Humans
Journal Article
Kreicbergs U
Male
Mental Health
Neoplasms
Nyberg T
Psycho-Oncology
Psychological
Questionnaires
Self Concept
sibling bereavement
Siblings
Sleep Initiation and Maintenance Disorders
Steineck G
Sweden
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s11126-006-9034-7" target="_blank" rel="noreferrer">http://doi.org/10.1007/s11126-006-9034-7</a>
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Title
A name given to the resource
Posttraumatic growth in treatment-seeking female assault victims
Publisher
An entity responsible for making the resource available
The Psychiatric Quarterly
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Adult; Health Status; Outcome Assessment (Health Care); Life Change Events; Reproducibility of Results; Personality Inventory; Diagnostic and Statistical Manual of Mental Disorders; Adaptation; Psychological; Models; Parent caregivers; Depressive Disorder/diagnosis/psychology; Psychiatric Status Rating Scales; Stress Disorders; Post-Traumatic/diagnosis/psychology; Educational Status; Patient Acceptance of Health Care/psychology; Rape/psychology; Violence/psychology
Creator
An entity primarily responsible for making the resource
Grubaugh AL; Resick PA
Description
An account of the resource
The importance of measuring growth outcomes following a traumatic event has been highlighted in recent literature (e.g., Linley, Joseph: Journal of Traumatic Stress 17:11-21, 2004). Although reports of growth are abundant, the relationship between growth outcomes and post-trauma distress remains unclear, with studies yielding conflicting results regarding this relationship. The purpose of the present study was to explore the interrelationships among growth outcomes and measures of depression and posttraumatic stress disorder (PTSD) among 100 female treatment-seeking physical and sexual assault victims. Although the majority of women reported some degree of growth in this study, and growth scores were comparable to those from other samples, measures of depression and PTSD were not significantly related to growth scores. The implication of these findings and future direction for research are discussed.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s11126-006-9034-7" target="_blank" rel="noreferrer">10.1007/s11126-006-9034-7</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adaptation
Adult
Backlog
Depressive Disorder/diagnosis/psychology
Diagnostic and Statistical Manual of Mental Disorders
Educational Status
Female
Grubaugh AL
Health Status
Humans
Journal Article
Life Change Events
Models
Outcome Assessment (health Care)
Parent caregivers
Patient Acceptance of Health Care/psychology
Personality Inventory
Post-Traumatic/diagnosis/psychology
Psychiatric Status Rating Scales
Psychological
Rape/psychology
Reproducibility of Results
Resick PA
Stress Disorders
The Psychiatric Quarterly
Violence/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.ejpn.2007.06.004" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ejpn.2007.06.004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parental perception of cold extremities and other accompanying symptoms in children with cerebral palsy
Publisher
An entity responsible for making the resource available
European Journal Of Paediatric Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Data Collection; Parents; Questionnaires; Health Status; adolescent; Preschool; Pain/etiology; Q3 Literature Search; Body Temperature/physiology; Cerebral Palsy/complications/physiopathology; Constipation/etiology; Extremities/blood supply/physiology; Muscle Tonus/physiology; Sleep Disorders/etiology
Creator
An entity primarily responsible for making the resource
Svedberg LE; Englund E; Malker H; Stener-Victorin E
Description
An account of the resource
Cold extremities have been noted in non-walking children with cerebral damage compared with healthy controls. Whether this is a general problem in children with cerebral palsy (CP) and associated with other symptoms is unknown. This study describes accompanying symptoms such as cold extremities, constipation, pain, sleeping disorders and impaired well-being in children with CP as well as treatment the children have undergone. Associations between cold extremities and other symptoms borne by the children were analysed and discussed. From information in postal surveys received from parents of children with CP, 107 children (60 boys and 47 girls) aged 5-13 years, mean 11 years 8 months (SD 2 years 11 months), were described and analysed. Besides neurological impairments, many children had cold extremities and pain, sleeping disorders, constipation, and impaired well-being. Most children had had one or more of these symptoms for over 1 year but the symptoms were largely untreated. Non-walkers generally had more symptoms than walkers. Although pain, constipation, and sleeping disorders may have different underlying causes in children with CP, these symptoms might also be mediated or aggravated by dysfunction in the autonomic nervous system. To improve the child's well-being, early recognition and treatment of accompanying symptoms is important.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ejpn.2007.06.004" target="_blank" rel="noreferrer">10.1016/j.ejpn.2007.06.004</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adolescent
Adult
Backlog
Body Temperature/physiology
Cerebral Palsy/complications/physiopathology
Child
Constipation/etiology
Data Collection
Englund E
European Journal of Paediatric Neurology
Extremities/blood supply/physiology
Female
Health Status
Humans
Journal Article
Male
Malker H
Muscle Tonus/physiology
Pain/etiology
Parents
Preschool
Q3 Scoping Review Results
Questionnaires
Sleep Disorders/etiology
Stener-Victorin E
Svedberg LE
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1037/0893-3200.22.2.203" target="_blank" rel="noreferrer">http://doi.org/10.1037/0893-3200.22.2.203</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Long-term effects of the death of a child on parents' adjustment in midlife
Publisher
An entity responsible for making the resource available
Journal Of Family Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Female; Humans; Male; Grief; Adult; Follow-Up Studies; Middle Aged; Death; Health Status; Longitudinal Studies; Wisconsin; Time; Stress; adolescent; Adaptation; Psychological; bereavement; Parents/psychology; Psychiatric Status Rating Scales; Marriage/psychology; Bereavement Leave Policy Paper; Depressive Disorder/diagnosis/etiology/psychology; Family Conflict/psychology; Psychological/diagnosis/etiology/psychology
Creator
An entity primarily responsible for making the resource
Rogers CH; Floyd FJ; Seltzer MM; Greenberg J; Hong J
Description
An account of the resource
The death of a child is a traumatic event that can have long-term effects on the lives of parents. This study examined bereaved parents of deceased children (infancy to age 34) and comparison parents with similar backgrounds (n = 428 per group) identified in the Wisconsin Longitudinal Study. An average of 18.05 years following the death, when parents were age 53, bereaved parents reported more depressive symptoms, poorer well-being, and more health problems and were more likely to have experienced a depressive episode and marital disruption than were comparison parents. Recovery from grief was associated with having a sense of life purpose and having additional children but was unrelated to the cause of death or the amount of time since the death. The results point to the need for detection and intervention to help those parents who are experiencing lasting grief.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1037/0893-3200.22.2.203" target="_blank" rel="noreferrer">10.1037/0893-3200.22.2.203</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adaptation
Adolescent
Adult
Backlog
Bereavement
Bereavement Leave Policy Paper
Death
Depressive Disorder/diagnosis/etiology/psychology
Family Conflict/psychology
Female
Floyd FJ
Follow-up Studies
Greenberg J
Grief
Health Status
Hong J
Humans
Journal Article
Journal Of Family Psychology
Longitudinal Studies
Male
Marriage/psychology
Middle Aged
Parents/psychology
Psychiatric Status Rating Scales
Psychological
Psychological/diagnosis/etiology/psychology
Rogers CH
Seltzer MM
Stress
Time
Wisconsin
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1038/sj.bjc.6604420" target="_blank" rel="noreferrer">http://doi.org/10.1038/sj.bjc.6604420</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Psychological distress in cancer patients assessed with an expert rating scale
Publisher
An entity responsible for making the resource available
British Journal Of Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Female; Humans; Male; Adult; Aged; Middle Aged; Health Status; Sex Factors; Psychometrics; adolescent; 80 and over; Psychological; Stress; Psychiatric Status Rating Scales; Neoplasms/psychology
Creator
An entity primarily responsible for making the resource
Herschbach P; Book K; Brandl T; Keller M; Lindena G; Neuwohner K; Marten-Mittag B
Description
An account of the resource
The purpose of this study was to investigate psychosocial stress in a large sample of cancer patients using an expert rating scale. Specific aims were to analyse the relevance of setting variables (type of clinic, contact initiative, therapy) and gender. A total of 6365 patients were assessed in 105 institutions. Univariate and multivariate statistical analysis of setting variables indicated that patients treated in palliative care settings showed highest distress scores compared to patients recruited from hospitals and outpatient clinics (P<0.001). Significant differences were also found for contact initiative (P<0.001); lowest distress was found in patients who were recruited by routine contact. Patients who asked for psychosocial support or who were recruited by the medical staff showed the highest distress scores. The analysis of therapy groups showed that patients receiving radiotherapy or surgery were not more distressed than patients without therapy. The most distressing treatment was chemotherapy. Gender had differential effects on clinic type (P<0.001) and contact initiative (P<0.001) but not on treatment and diagnosis. Expert rating scales are an important complement for self-assessment questionnaires to evaluate psychological distress of cancer patients in psychosocial studies as well as in routine medical care.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1038/sj.bjc.6604420" target="_blank" rel="noreferrer">10.1038/sj.bjc.6604420</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
80 And Over
Adolescent
Adult
Aged
Backlog
Book K
Brandl T
British Journal Of Cancer
Female
Health Status
Herschbach P
Humans
Journal Article
Keller M
Lindena G
Male
Marten-Mittag B
Middle Aged
Neoplasms/psychology
Neuwohner K
Psychiatric Status Rating Scales
Psychological
Psychometrics
Sex Factors
Stress
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/JCO.2007.15.2835" target="_blank" rel="noreferrer">http://doi.org/10.1200/JCO.2007.15.2835</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Impact of caring for a child with cancer on parents' health-related quality of life
Publisher
An entity responsible for making the resource available
Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Canada; Questionnaires; Health Status; quality of life; adolescent; Preschool; Caregivers/psychology; infant; Parents/psychology; Neoplasms/nursing
Creator
An entity primarily responsible for making the resource
Klassen AF; Klaassen R; Dix D; Pritchard S; Yanofsky R; O'Donnell ME; Scott A; Sung L
Description
An account of the resource
PURPOSE: To compare the health-related quality of life (QOL) of parents of children who are undergoing treatment for cancer with that of Canadian population norms and to identify important parent and child predictors of parental QOL. PATIENTS AND METHODS: A total of 411 respondents of 513 eligible parents were recruited from five pediatric oncology centers in Canada between November 2004 and February 2007. Parents were asked to complete a questionnaire booklet that included a measure of adult QOL (SF-36), a measure of child health status (functional status IIR), and questions to assess health-promoting self-care actions (eg, sleep, diet, and exercise habits) and characteristics of the child with cancer (eg, relapse status, time since diagnosis, prognosis, treatment intensity). RESULTS: Compared with population norms, parents of children with cancer reported poorer physical and psychosocial QOL in all psychosocial domains (effect sizes range, -0.71 to -1.58) and in most physical health domains (effect sizes range, -0.08 to -0.63). Parent characteristics associated with better parental QOL included better eating, exercise and sleep habits, younger age, and higher income. Child characteristics associated with better parental QOL included better child health status (functional status IIR scores), lower treatment intensity, and longer time since diagnosis. CONCLUSION: Parents of children with cancer report poorer QOL compared with population norms. Interventions directed at parents should be included as part of the treatment plan for a child with cancer. Modifiable variables associated with poorer parental QOL, such as sleep quality and diet and exercise habits, indicate those parents most likely to experience poor QOL and may be potential areas for intervention.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/JCO.2007.15.2835" target="_blank" rel="noreferrer">10.1200/JCO.2007.15.2835</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adolescent
Backlog
Canada
Caregivers/psychology
Child
Dix D
Female
Health Status
Humans
Infant
Journal Article
Journal Of Clinical Oncology
Klaassen R
Klassen AF
Male
Neoplasms/nursing
O'Donnell ME
Parents/psychology
Preschool
Pritchard S
Quality Of Life
Questionnaires
Scott A
Sung L
Yanofsky R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2008-0582" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2008-0582</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Hidden consequences of success in pediatrics: parental health-related quality of life--results from the Care Project
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Health Care Surveys; Parents; Middle Aged; Health Status; Family Health; quality of life; adolescent; Preschool; infant; Chronic disease; retrospective studies; caregivers
Creator
An entity primarily responsible for making the resource
Hatzmann J; Heymans HS; Ferrer-i-Carbonell A; van Praag BM; Grootenhuis MA
Description
An account of the resource
CONTEXT: The number of parents who care for a chronically ill child is increasing. Because of advances in medical care, parental caring tasks are changing. A detailed description of parental health-related quality of life will add to the understanding of the impact of caring for a chronically ill child. This will contribute to pediatric family care. OBJECTIVE: Our goal was to determine the health-related quality of life of parents of chronically ill children compared with parents of healthy schoolchildren. DESIGN, SETTING, AND PARTICIPANTS: A survey of 533 parents of children with chronic conditions (10 diagnosis groups, children aged 1-19 years, diagnosed >1 year ago, living at home) and 443 parents of schoolchildren was conducted between January 2006 and September 2007. Parents were approached through Emma Children's Hospital (which has a tertiary referral and a regional function) and through parent associations. The comparison group included parents of healthy schoolchildren. Health-related quality of life was assessed with the TNO-AZL Questionnaire for Adult's Health Related Quality of Life. MAIN OUTCOME MEASURE: Health-related quality of life measures gross and fine motor function, cognitive functioning, sleep, pain, social functioning, daily activities, sexuality, vitality, positive and depressive emotions, and aggressiveness. The health-related quality of life of the study group was compared with that of the comparison group, and effect sizes were estimated. The percentages of parents at risk for a low health-related quality of life were compared with the 25th percentile scores of the comparison group. RESULTS. Parents of chronically ill children had a significantly lower health-related quality of life. Subgroup analysis showed lower health-related quality of life on sleep, social functioning, daily activities, vitality, positive emotions, and depressive emotions in disease-specific groups. On average, 45% of the parents were at risk for health-related quality-of-life impairment. CONCLUSIONS: Parents of chronically ill children report a seriously lower health-related quality of life, which should receive attention and supportive care if necessary. A family-centered approach in pediatrics is recommended.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2008-0582" target="_blank" rel="noreferrer">10.1542/peds.2008-0582</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adolescent
Adult
Backlog
Caregivers
Child
Chronic Disease
Family Health
Female
Ferrer-i-Carbonell A
Grootenhuis MA
Hatzmann J
Health Care Surveys
Health Status
Heymans HS
Humans
Infant
Journal Article
Male
Middle Aged
Parents
Pediatrics
Preschool
Quality Of Life
Retrospective Studies
van Praag BM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jacc.2006.03.041" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jacc.2006.03.041</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Estimates of life expectancy by adolescents and young adults with congenital heart disease
Publisher
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Journal Of The American College Of Cardiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Female; Humans; Male; Adult; Logistic Models; Questionnaires; Health Status; Awareness; Health Behavior; Practice; adolescent; Attitudes; Adolescent Transitions; Health Knowledge; Heart Defects; Life Expectancy; Congenital/epidemiology
Creator
An entity primarily responsible for making the resource
Reid GJ; Webb GD; Barzel M; McCrindle BW; Irvine MJ; Siu SC
Description
An account of the resource
OBJECTIVES: This study sought to determine what adolescents and young adults with moderate to complex congenital heart disease (CHD) believe their life span to be and to examine correlates of their beliefs. BACKGROUND: Patients with moderate to complex CHD have a shortened life expectancy. Patients' perceptions of their life expectancy have not been examined. METHODS: Young adults and older adolescents with moderate or complex CHD (n = 296) estimated their own life expectancy and that of healthy peers, and rated their health status and risk of CHD complications. Adults with CHD discussed reasons for life expectancy ratings in an interview. RESULTS: Patients with CHD expected to live to age 75 +/- 11 years, only 4 years less than their healthy peers. Over 85% of patients expected to live longer than our estimates of their life expectancy. Poorer health status and higher perceived risk of CHD complications related to shorter perceived life expectancy. Young adults lacked awareness and understanding of CHD-specific risks, and their life expectancy perceptions often related to risk factors for coronary artery disease. CONCLUSIONS: Patients with moderate to complex CHD expect to live almost as long as their healthy peers. For most patients, this is unlikely. The implications of these beliefs on health behaviors and life choices are unknown, but should be examined. Nevertheless, patients need accurate information delivered in a sensitive manner to make informed life choices regarding education, careers, and family.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jacc.2006.03.041" target="_blank" rel="noreferrer">10.1016/j.jacc.2006.03.041</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Adolescent Transitions
Adult
Attitudes
Awareness
Backlog
Barzel M
Congenital/epidemiology
Female
Health Behavior
Health Knowledge
Health Status
Heart Defects
Humans
Irvine MJ
Journal Article
Journal of the American College of Cardiology
Life Expectancy
Logistic Models
Male
McCrindle BW
Practice
Questionnaires
Reid GJ
Siu SC
Webb GD
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jadohealth.2005.03.011" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jadohealth.2005.03.011</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood
Publisher
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The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Humans; Adult; Peer Group; Netherlands; Health Status; Life Change Events; Survivors; quality of life; adolescent; Adolescent Transitions; Risk-Taking; Chronic disease; Chronic/complications/psychology/rehabilitation; Esophageal Atresia/complications/psychology/rehabilitation; Hirschsprung Disease/complications/psychology/rehabilitation; Kidney Failure; Neoplasms/complications/psychology/rehabilitation
Creator
An entity primarily responsible for making the resource
Stam H; Hartman EE; Deurloo JA; Groothoff J; Grootenhuis MA
Description
An account of the resource
PURPOSE: To assess the course of life of young adults who grew up with a chronic or life-threatening disease, and to compare their course of life with that of peers from the general population. Optimal transition from pediatric to adult health care requires knowledge of the psychosocial history of patients grown up with a pediatric disease. METHODS: A total of 508 young adults from the general Dutch population and 650 patients, aged 18-30 years, participated: 348 survivors of childhood cancer, 93 patients with anorectal malformations, 72 patients with Hirschsprung's disease, 61 patients with oesophageal atresia, 76 patients with end-stage renal disease. They completed the Course of Life Questionnaire, which retrospectively assesses the achievement of developmental milestones (autonomy, psychosexual and social development), and risk behavior (antisocial behavior, substance use and gambling). RESULTS: The young adults grown up with a chronic or life-threatening disease proved to have achieved significantly fewer milestones, or at older age than their peers, in all course-of-life domains. The course of life of young adults grown up with esophageal atresia was not delayed compared with that of their peers, whereas that of survivors of childhood cancer and patients with end-stage renal disease was delayed most. CONCLUSIONS: Health care providers should help to minimize the harm for children who grow up with a chronic or life-threatening disease by encouraging parents to stimulate social contacts and autonomy. Attention should especially be directed at children and adolescents growing up with childhood cancer or with end-stage renal disease.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jadohealth.2005.03.011" target="_blank" rel="noreferrer">10.1016/j.jadohealth.2005.03.011</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Adolescent Transitions
Adult
Backlog
Chronic Disease
Chronic/complications/psychology/rehabilitation
Deurloo JA
Esophageal Atresia/complications/psychology/rehabilitation
Grootenhuis MA
Groothoff J
Hartman EE
Health Status
Hirschsprung Disease/complications/psychology/rehabilitation
Humans
Journal Article
Kidney Failure
Life Change Events
Neoplasms/complications/psychology/rehabilitation
Netherlands
Peer Group
Quality Of Life
Risk-Taking
Stam H
Survivors
The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1017/S0012162206000776" target="_blank" rel="noreferrer">http://doi.org/10.1017/S0012162206000776</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Medical, surgical, and health outcomes of gastrostomy feeding
Publisher
An entity responsible for making the resource available
Developmental Medicine And Child Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; Male; Prospective Studies; Health Status; Psychology; adolescent; Preschool; infant; Nutritional Status; Nutritional Failure; Anthropometry; disabled children; Cognition Disorders/epidemiology; Diet Records; Gastrostomy/statistics & numerical data; Motor Skills Disorders/epidemiology; Postoperative Complications/epidemiology
Creator
An entity primarily responsible for making the resource
Craig GM; Carr LJ; Cass H; Hastings RP; Lawson M; Reilly S; Ryan M; Townsend J; Spitz L
Description
An account of the resource
A prospective controlled study with repeated measures before and after surgery examined the medical, surgical, and health outcomes of gastrostomy for children with disabilities at a tertiary paediatric referral centre in the North Thames area, UK. Anthropometric measures included weight, mid-upper-arm and head circumference. Five-day prospective food diaries were completed and data on physical health and surgical outcomes recorded. Seventy-six children participated and underwent gastrostomy (44 males, 32 females; median age 3 y 4 mo, range 4 mo-17 y 5 mo), and 35/76 required an anti-reflux procedure. Categories of disability were: cerebral palsy (32/76), syndrome of chromosomal or other genetic origin (25/76), slowly progressive degenerative disease (11/76), and unconfirmed diagnosis (8/76). Most children had gross motor difficulties (99%) and were non-ambulant (83%). Oromotor problems were identified in 78% of children, 69% aspirated, and 65% were fed nasogastrically before surgery. The mean weight before surgery was -2.84 standard deviation score (SDS; SD 2.21, range -9.8 to 3.4). Two-thirds of children achieved catch-up growth postoperatively: weight-for-age (mean difference 0.51 SDS, 95% CI 0.23-0.79, p=0.001) and mid-upper arm circumference (mean difference 1.12 cm, 95% confidence interval 0.50-1.75, p=0.001). Health gains included a reduction in drooling, secretions, vomiting, and constipation. Major surgical complications were found in 13/74 children. The study provides evidence that catch-up growth and health gains are possible following gastrostomy.
2006
Identifier
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<a href="http://doi.org/10.1017/S0012162206000776" target="_blank" rel="noreferrer">10.1017/S0012162206000776</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Anthropometry
Backlog
Carr LJ
Cass H
Child
Cognition Disorders/epidemiology
Craig GM
Developmental Medicine and Child Neurology
Diet Records
Disabled Children
Female
Gastrostomy/statistics & numerical data
Hastings RP
Health Status
Humans
Infant
Journal Article
Lawson M
Male
Motor Skills Disorders/epidemiology
Nutritional Failure
Nutritional Status
Postoperative Complications/epidemiology
Preschool
Prospective Studies
Psychology
Reilly S
Ryan M
Spitz L
Townsend J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1017/S0012162206001745" target="_blank" rel="noreferrer">http://doi.org/10.1017/S0012162206001745</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Initial development and validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD).
Publisher
An entity responsible for making the resource available
Developmental Medicine And Child Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; Male; Questionnaires; Health Status; Severity of Illness Index; Longitudinal Studies; Activities of Daily Living; Reproducibility of Results; quality of life; adolescent; Preschool; caregivers; Cerebral Palsy/classification/nursing/psychology; Disabled Persons/psychology/rehabilitation
Creator
An entity primarily responsible for making the resource
Narayanan UG; Fehlings D; Weir S; Knights S; Kiran S; Campbell K
Description
An account of the resource
This paper reports the development and validation of a disease-specific measure of health status and well-being of children with severe cerebral palsy (CP). The Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) was constructed from recommendations from caregivers, healthcare providers, and review of other measures. Items spanning six domains are rated on an ordinal scale. Standardized scores (0-100) are reported for each domain and in total. Primary caregivers (n = 77) of 45 males and 32 females between 5 and 18 years of age (mean age 13 y 5 mo [SD 3 y 4 mo]) with CP, categorized by the Gross Motor Function Classification System (GMFCS) level, completed the CPCHILD. Caregivers of children with severe CP (GMFCS Levels IV and V) also completed a second administration of the CPCHILD 2 weeks after the first. The mean CPCHILD score for children with severe CP was 56.2 (SD 15.7; range 24-93). The mean CPCHILD scores for children in GMFCS Levels I to V were 22.0, 38.2, 23.0, 44.5, and 59.3 respectively (p < 0.001). Reliability was tested in 41/52 caregivers who reported no change in health status between the two administrations of the CPCHILD. The intraclass correlation coefficient was 0.94 (95% confidence interval 0.90-0.97). The CPCHILD seems to be a reliable and valid measure of caregivers' perspectives on the health status, functional limitations, and well-being of these children.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/S0012162206001745" target="_blank" rel="noreferrer">10.1017/S0012162206001745</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Activities of Daily Living
Adolescent
Backlog
Campbell K
Caregivers
Cerebral Palsy/classification/nursing/psychology
Child
Developmental Medicine and Child Neurology
Disabled Persons/psychology/rehabilitation
Fehlings D
Female
Health Status
Humans
Journal Article
Kiran S
Knights S
Longitudinal Studies
Male
Narayanan UG
Preschool
Quality Of Life
Questionnaires
Reproducibility of Results
Severity Of Illness Index
Weir S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1037/0022-006X.74.5.797" target="_blank" rel="noreferrer">http://doi.org/10.1037/0022-006X.74.5.797</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A meta-analytic review of benefit finding and growth
Publisher
An entity responsible for making the resource available
Journal Of Consulting And Clinical Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Humans; Attitude; Health Status; Affect; Adaptation; Psychological; Parent caregivers; Stress Disorders; Quality of Life/psychology; Post-Traumatic/psychology
Creator
An entity primarily responsible for making the resource
Helgeson VS; Reynolds KA; Tomich PL
Description
An account of the resource
The authors conducted a meta-analysis to examine the relations of benefit finding to psychological and physical health as well as to a specific set of demographic, stressor, personality, and coping correlates. Results from 87 cross-sectional studies reported in 77 articles showed that benefit finding was related to less depression and more positive well-being but also more intrusive and avoidant thoughts about the stressor. Benefit finding was unrelated to anxiety, global distress, quality of life, and subjective reports of physical health. Moderator analyses showed that relations of benefit finding to outcomes were affected by the amount of time that had passed since stressor onset, the benefit finding measured used, and the racial composition of the sample.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1037/0022-006X.74.5.797" target="_blank" rel="noreferrer">10.1037/0022-006X.74.5.797</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Affect
Attitude
Backlog
Health Status
Helgeson VS
Humans
Journal Article
Journal Of Consulting And Clinical Psychology
Parent caregivers
Post-Traumatic/psychology
Psychological
Quality Of Life/psychology
Reynolds KA
Stress Disorders
Tomich PL
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2005.00459.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2005.00459.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; Neoplasms; Emotions; Siblings; Age Factors; Health Status; Child welfare; Sex Factors; Cognition Disorders; quality of life; Adaptation; Psychological; sibling bereavement
Creator
An entity primarily responsible for making the resource
Houtzager BA; Grootenhuis MA; Hoekstra-Weebers JE; Last BF
Description
An account of the resource
BACKGROUND: The aim of the present study is to describe the quality of life (QoL) of siblings of children with cancer and to predict it according to their health before the diagnosis of cancer in the ill child and their ways of coping with the illness. METHODS: Participants were 83 siblings from 56 families-46 girls and 37 boys, aged 7-18. The assessment took place 1 month to 8 weeks after the diagnosis of cancer in the ill child. The siblings' QoL was assessed with the TNO-AZL children's quality of life questionnaire (TACQOL). Coping strategies were assessed with the Cognitive Coping Strategies Scale for siblings (CCSS-s). Physical problems and eating and sleeping problems that existed before the ill child was diagnosed were determined in a structured interview with the parents. RESULTS: A substantial number of siblings reported impaired cognitive and emotional QoL compared to the reference group. School-aged siblings (7-11 years) reported more trouble with motor functioning than peers. The coping strategy 'predictive control' (maintaining positive expectations regarding the illness) positively predicted siblings' QoL. The presence of health problems before diagnosis was negatively associated with siblings' QoL. Older siblings reported more negative emotions, while girls reported lower social QoL and reliance on 'interpretative control' (trying to understand the illness) was associated with fewer positive emotions. CONCLUSIONS: During the first 2 months after the diagnosis of cancer in a brother or sister, siblings have relatively lower QoL than peers. Health problems that existed before diagnosis may be a predictor of later adjustment problems. Positive expectations about the course of the illness appear to protect siblings from distress. Information about the illness is a delicate issue that requires parental guidance.
2005-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2214.2005.00459.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2005.00459.x</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adaptation
Adolescent
Age Factors
Backlog
Child
Child welfare
Child: Care, Health and Development
Cognition Disorders
Emotions
Female
Grootenhuis MA
Health Status
Hoekstra-Weebers JE
Houtzager BA
Humans
Journal Article
Last BF
Male
Neoplasms
Psychological
Quality Of Life
Sex Factors
sibling bereavement
Siblings
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1471-2288-6-49" target="_blank" rel="noreferrer">http://doi.org/10.1186/1471-2288-6-49</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Structural equation and log-linear modeling: a comparison of methods in the analysis of a study on caregivers' health
Publisher
An entity responsible for making the resource available
Bmc Medical Research Methodology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Male; Adult; Logistic Models; Questionnaires; Self Concept; Socioeconomic Factors; Ontario; Health Status; Linear Models; Adaptation; Psychological; Family/psychology; social support; disabled children; Cerebral Palsy; Telemeres; Caregivers/psychology/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Zhu B; Walter SD; Rosenbaum P; Russell DJ; Raina P
Description
An account of the resource
BACKGROUND: In this paper we compare the results in an analysis of determinants of caregivers' health derived from two approaches, a structural equation model and a log-linear model, using the same data set. METHODS: The data were collected from a cross-sectional population-based sample of 468 families in Ontario, Canada who had a child with cerebral palsy (CP). The self-completed questionnaires and the home-based interviews used in this study included scales reflecting socio-economic status, child and caregiver characteristics, and the physical and psychological well-being of the caregivers. Both analytic models were used to evaluate the relationships between child behaviour, caregiving demands, coping factors, and the well-being of primary caregivers of children with CP. RESULTS: The results were compared, together with an assessment of the positive and negative aspects of each approach, including their practical and conceptual implications. CONCLUSION: No important differences were found in the substantive conclusions of the two analyses. The broad confirmation of the Structural Equation Modeling (SEM) results by the Log-linear Modeling (LLM) provided some reassurance that the SEM had been adequately specified, and that it broadly fitted the data.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1471-2288-6-49" target="_blank" rel="noreferrer">10.1186/1471-2288-6-49</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Adult
Backlog
Bmc Medical Research Methodology
Caregivers/psychology/statistics & numerical data
Cerebral Palsy
Child
Cross-sectional Studies
Disabled Children
Family/psychology
Female
Health Status
Humans
Journal Article
Linear Models
Logistic Models
Male
Ontario
Psychological
Questionnaires
Raina P
Rosenbaum P
Russell DJ
Self Concept
Social Support
Socioeconomic Factors
Telemeres
Walter SD
Zhu B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/jco.2005.03.9628" target="_blank" rel="noreferrer">http://doi.org/10.1200/jco.2005.03.9628</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Health-related quality of life among child and adolescent survivors of childhood cancer.
Publisher
An entity responsible for making the resource available
Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; Male; Canada; Health Status; Longitudinal Studies; Survivors; Case-Control Studies; quality of life; adolescent; Neoplasms/psychology/therapy; Leukemia/psychology; Central Nervous System Neoplasms/psychology; Cranial Irradiation/adverse effects; Lymphoma/psychology
Creator
An entity primarily responsible for making the resource
Speechley KN; Barrera M; Shaw AK; Morrison HI; Maunsell E
Description
An account of the resource
PURPOSE: The main objective was to compare parent-reported health-related quality of life (HRQL) of child and adolescent survivors of childhood cancer to that of controls who had no history of cancer. METHODS: We assessed HRQL of 800 child and adolescent survivors younger than 16 years and 923 randomly selected, age- and sex-matched controls from the general population in a national multicenter retrospective cohort study using the Child Health Questionnaire parent report. Participation was 69% among survivors and 57% among controls. RESULTS: Survivors had means that were consistently lower than controls on the HRQL physical summary (PH; 49.9 v 55.3; P <.005), psychosocial summary (PS; 49.4 v 52.6; P < .005), and all but one of the eight subscale scores. Clinically important survivor-control differences in means on PH were found for survivors of CNS tumors, bone tumors, lymphoma, leukemia, soft tissue sarcoma and Wilms' tumor (differences: -8.7, -7.0, -6.3, -5.4, -4.4, -3.8/100, respectively); on PS, survivors of CNS tumors were most compromised (-6.1/100). Survivor-control differences in both PH and PS were also large for survivors treated with radiation only (-5.8 and -11.9/100, respectively), or radiation combined with surgery (-6.6 and -5.9/100, respectively), or radiation combined with both surgery and chemotherapy (-7.8 and -5.1/100, respectively). Cranial radiation was associated with the most compromised HRQL. CONCLUSION: According to parents, HRQL for survivors was somewhat poorer, overall, than for controls. Survivors of CNS tumors, lymphoma, and leukemia and those patients treated with cranial radiation were reported to have poorest HRQL. These findings support development of guidelines for levels of follow-up care for particular groups of survivors.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/jco.2005.03.9628" target="_blank" rel="noreferrer">10.1200/jco.2005.03.9628</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Backlog
Barrera M
Canada
Case-Control Studies
Central Nervous System Neoplasms/psychology
Child
Cranial Irradiation/adverse effects
Female
Health Status
Humans
Journal Article
Journal Of Clinical Oncology
Leukemia/psychology
Longitudinal Studies
Lymphoma/psychology
Male
Maunsell E
Morrison HI
Neoplasms/psychology/therapy
Quality Of Life
Shaw AK
Speechley KN
Survivors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2004-2127" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2004-2127</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Quality-adjusted life-years lack quality in pediatric care: a critical review of published cost-utility studies in child health
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Humans; Pediatrics; Decision Support Techniques; Health Status; Quality-Adjusted Life Years; adolescent; infant; Cost-Benefit Analysis/standards; Costs and Cost Analysis/standards; Health Services Research/standards
Creator
An entity primarily responsible for making the resource
Griebsch I; Coast J; Brown J
Description
An account of the resource
OBJECTIVES: Cost-utility analysis in which health benefits are quantified in terms of quality-adjusted life-years (QALYs) has now become the standard type of cost-effectiveness analysis. These studies are potentially influential in determining the extent of funding for particular pediatric interventions, and so their methodologic quality is extremely important. The objective of this study was twofold: first, to critically appraise published cost-utility analyses of interventions in child and adolescent health care in terms of the methods used to derive QALYs and, second, to discuss unresolved methodologic issues that are pertinent to the measurement of QALYs in pediatric populations. METHODS: A comprehensive search using computerized databases (including Medline, Embase, Econlit, and databases specific to economic evaluation), Web searches, and citation tracking was undertaken to identify cost-utility studies of interventions that were aimed at those who were younger than 16 years and published before April 2004. The methods of individual studies were compared with the recognized published guidelines of the US Panel on Cost-Effectiveness in Health and Medicine and the National Institute for Clinical Excellence in England and Wales, which recommend the use of a generic health state classification system (eg, Health Utility Index, EuroQol-5D), a choice-based valuation method (eg, standard gamble or time trade-off) and preferences of the general public in estimating QALYs. Studies therefore were categorized and evaluated according to the methods used to describe the health state, the valuation technique, and source of preferences. RESULTS: Fifty-four studies were reviewed, 34 (63%) of which were published in the past 5 years. A generic health status classification instrument was used in 22 (35%) cases; the remainder developed study-specific health state descriptions or elicited preferences directly from patients or proxies. In 3 (5%) cases, sources were unclear. Preference weights were elicited using choice-based techniques in 28 (42%) cases, either as tariffs for health status classification instruments (17 cases) or by directly valuing health state descriptions or patient health (11 cases). Preferences of the general public were used in only 23 (37%) cases. Four studies aggregated QALYs for mother/child or parents/child pairs without giving any theoretical justification. Although there was an increasing tendency for studies to use generic health status classification instruments, choice-based methods, and preferences of the general public, the majority of studies still did not adhere to these standard recommendations even in the period between January 2000 and March 2004. Despite increasing standardization in the methods advocated for economic evaluation over the past 10 years, there remains extensive variation in the actual methods used by researchers to calculate QALYs for children and adolescents. It is unclear whether these results suggest poor practice or a set of positive (or reactive) choices made by analysts in a methodologically uncertain area in which specific guidance is lacking regarding how to address the complexities of pediatric outcomes within the QALY framework. Many aspects of QALY measurement in children are not yet fully developed. In particular, there is (1) a lack of appropriate health state classification instruments that take account of the dynamics of child development, (2) a lack of health state classification instruments for use in children and infants who are younger than 5 years, and (3) the need to understand fully the role of proxies for measuring and valuing child health. Additional research efforts are also required to develop methods that account for the health benefits of parents or caregivers of the child and to consider the implications of combining different forms of utility measurement in childhood and adulthood. CONCLUSIONS: Although variations from standard recommendations may be attributable to poor practice among researchers who are either unaware of these recommendations or choose not to follow them, they could equally be the result of attempts to make research more rigorous and more defensible than it might be if the standard recommendations were followed. There are 4 potential approaches to conducting cost-utility analysis in pediatric populations: (1) the explicit development of a generic instrument designed to be applicable across both child and adult populations (likely to be difficult in practice), (2) insistence on use of a generic instrument developed for adults, (3) the use of generic instruments specifically developed for children without being concerned about comparability with interventions aimed at adults, and (4) abandoning attempts to use single outcome measures that combine mortality with quality weights. In the absence of a clear way forward, it is suggested that an expert panel be convened to debate and further consider these potential solutions and recommendations for best practice and future research. In the interim, comparisons of the relative cost-effectiveness reported as cost per QALY gained across interventions for different diseases and populations should be treated with extreme caution.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2004-2127" target="_blank" rel="noreferrer">10.1542/peds.2004-2127</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adolescent
Backlog
Brown J
Child
Coast J
Cost-Benefit Analysis/standards
Costs and Cost Analysis/standards
Decision Support Techniques
Griebsch I
Health Services Research/standards
Health Status
Humans
Infant
Journal Article
Pediatrics
Quality-Adjusted Life Years
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2006-0439" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2006-0439</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Physical and mental health of mothers caring for a child with Rett syndrome
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Emotions; Mother-Child Relations; Middle Aged; Family Relations; Health Status; Mental Health; Family Health; adolescent; Preschool; Caregivers/psychology; Psychological; Stress; social support; disabled children; Telemeres; Employment; Fractures; Bone/etiology/nursing; Rett Syndrome/complications/nursing
Creator
An entity primarily responsible for making the resource
Laurvick CL; Msall ME; Silburn S; Bower C; de Klerk N; Leonard H
Description
An account of the resource
OBJECTIVES: Our goal was to investigate the physical and mental health of mothers who care for a child with Rett syndrome. METHODS: We assessed maternal physical and mental health by using the SF-12 version 1 physical component summary and mental component summary scores as the outcome measures of interest. Mothers (n = 135) of children with Rett syndrome completed the SF-12 measure as part of the Australian Rett Syndrome Study in 2002. The analysis investigated linear relationships between physical and mental health scores and maternal, family, and child characteristics. RESULTS: Mothers ranged in age from 21 to 60 years and their children from 3 to 27 years. Nearly half of these mothers (47.4%) indicated that they worked full-time or part-time outside the home, and 41% had a combined family (gross) income of <40,000 Australian dollars. The resultant model for physical health demonstrated that the following factors were positively associated with better maternal physical health: the mother working full-time or part-time outside the home, having some high school education, having private health insurance, the child not having breathing problems in the last 2 years, the child not having home-based structured therapy, and high scores on the Family Resource Scale (indicating adequacy of time resources for basic and family needs). The resultant model for mental health demonstrated that the following factors were positively associated with better maternal mental health: the mother working full-time or part-time outside the home, the child not having a fracture in the last 2 years, lesser reporting of facial stereotypes and involuntary facial movements, being in a well-adjusted marriage, and having low stress scores. CONCLUSIONS: Our study suggests that the most important predictors of maternal physical and emotional health are child behavior, caregiver demands, and family function.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2006-0439" target="_blank" rel="noreferrer">10.1542/peds.2006-0439</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Adult
Backlog
Bone/etiology/nursing
Bower C
Caregivers/psychology
Child
de Klerk N
Disabled Children
Emotions
Employment
Family Health
Family Relations
Female
Fractures
Health Status
Humans
Journal Article
Laurvick CL
Leonard H
Male
Mental Health
Middle Aged
Mother-child Relations
Msall ME
Pediatrics
Preschool
Psychological
Rett Syndrome/complications/nursing
Silburn S
Social Support
Stress
Telemeres
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=15872147" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=15872147</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The impact on health-related quality of life from non-steroidal anti-inflammatory drugs, methotrexate, or steroids in treatment for juvenile idiopathic arthritis
Publisher
An entity responsible for making the resource available
Journal of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; Male; Follow-Up Studies; Health Status; Multivariate Analysis; quality of life; adolescent; Preschool; PedPal Lit; infant; Comparative Study; Arthritis; Anti-Inflammatory Agents; Antirheumatic Agents/adverse effects/therapeutic use; Glucocorticoids/adverse effects/therapeutic use; Juvenile Rheumatoid/drug therapy; Methotrexate/adverse effects/therapeutic use; Methylprednisolone/adverse effects/therapeutic use; Non-Steroidal/adverse effects/therapeutic use
Creator
An entity primarily responsible for making the resource
Riddle R; Ryser CN; Morton AA; Sampson JD; Browne RH; Punaro MG; Gatchel RJ
Description
An account of the resource
OBJECTIVE: To assess and compare the impact of medication treatments on health-related quality of life (HRQOL), family function, and medical status in children with juvenile idiopathic arthritis (JIA). METHODS: Fifty-seven children diagnosed with JIA were assessed by a pediatric rheumatologist and placed into one of three treatment groups: (1) non-steroidal anti-inflammatory; (2) methotrexate; or (3) steroids via IV methylprednisolone. Questionnaires were administered at baseline and 4-month follow-up. The attending pediatric rheumatologist provided additional medical information. RESULTS: Data document the impact of JIA on HRQOL, particularly on physical and pain domains. Steroid patients experienced improved HRQOL at follow-up relative to other groups, despite reporting more problems with side effects. CONCLUSION: These results demonstrate positive benefits of steroids in treating JIA children, despite the greatest incidence of adverse side effects.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Anti-Inflammatory Agents
Antirheumatic Agents/adverse effects/therapeutic use
Arthritis
Backlog
Browne RH
Child
Comparative Study
Female
Follow-up Studies
Gatchel RJ
Glucocorticoids/adverse effects/therapeutic use
Health Status
Humans
Infant
Journal Article
Journal of Pediatric Psychology
Juvenile Rheumatoid/drug therapy
Male
Methotrexate/adverse effects/therapeutic use
Methylprednisolone/adverse effects/therapeutic use
Morton AA
Multivariate Analysis
Non-Steroidal/adverse effects/therapeutic use
PedPal Lit
Preschool
Punaro MG
Quality Of Life
Riddle R
Ryser CN
Sampson JD
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16421901" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16421901</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Evaluation of health status and health-related quality of life in a cohort of Italian children following treatment for a primary brain tumor
Publisher
An entity responsible for making the resource available
Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Questionnaires; Italy; Survivors; adolescent; Non-U.S. Gov't; Research Support; PedPal Lit; quality of life; Health Status; Brain Neoplasms/psychology/therapy
Creator
An entity primarily responsible for making the resource
Cardarelli C; Cereda C; Masiero L; Viscardi E; Faggin R; Laverda A; Bisogno G; Perilongo G
Description
An account of the resource
BACKGROUND: This study is a pilot experience aiming to investigate the compliance of an institutional cohort of Italian children treated for a malignant disease and their families in completing the health utilities index2, (HUI2) and the effectiveness of this measured in terms of their health status (HS) and health-related quality of life (HRQL). It specifically, it aimed to compare the HS and the HRQL, as expressed by the HUI2 global utility score, in cohorts of patients who had brain tumors, extra-cerebral solid tumors, or leukemia/lymphoma. PROCEDURE: Fifty survivors of brain tumors, between 8 and 30 years at the time of the assessment ("self") and/or their parents ("proxy"), attending the Pediatric Oncology Out Patient clinic of Padua, Italy, completed the HUI2 questionnaire. Eighty-nine children with acute leukemia/lymphoma and 74 with extra-cerebral solid tumors and/or their parents were also assessed. RESULTS: The mean "self" and "proxy" HUI2 global utility scores in the brain tumor patients were 0.87 and 0.84, respectively, while in the cohorts of children with other solid tumors and leukemia/lymphoma, there were 0.94, 0.91, 0.96, and 0.92, respectively. The differences between the HUI2 global utility scores in the "self" and "proxy" assessment within each cohort of children were not statistically significant. In decreasing order of frequency, the attributes affected most commonly were: "emotion," "pain," "sensation," and "cognition" both by "self" and "proxy" assessment. CONCLUSIONS: In this Italian population of childhood cancer survivors the HUI2 questionnaire proved to be a user-friendly tool, which provided information regarding HS and HRQL. A larger cohort of cancer children is needed to confirm the efficacy of the HUI2 questionnaire in distinguishing groups of children on this basis by disease category.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Adult
Backlog
Bisogno G
Brain Neoplasms/psychology/therapy
Cardarelli C
Cereda C
Child
Faggin R
Female
Health Status
Humans
Italy
Journal Article
Laverda A
Male
Masiero L
Non-U.S. Gov't
Pediatric Blood & Cancer
PedPal Lit
Perilongo G
Quality Of Life
Questionnaires
Research Support
Survivors
Viscardi E
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16517277" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16517277</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Procedural sedation and analgesia in children
Publisher
An entity responsible for making the resource available
Lancet
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Health Status; Preschool; PedPal Lit; infant; Pediatrics/standards; Practice Guidelines; Analgesia/classification; Analgesics/administration & dosage/classification/pharmacology; Conscious Sedation/classification; Hypnotics and Sedatives/administration &; dosage/classification/pharmacology
Creator
An entity primarily responsible for making the resource
Krauss B; Green SM
Description
An account of the resource
Procedural sedation and analgesia for children--the use of sedative, analgesic, or dissociative drugs to relieve anxiety and pain associated with diagnostic and therapeutic procedures--is now widely practised by a diverse group of specialists outside the operating theatre. We review the principles underlying safe and effective procedural sedation and analgesia and the spectrum of procedures for which it is currently done. We discuss the decision-making process used to determine appropriate drug selection, dosing, and sedation endpoint. We detail the pharmacopoeia for procedural sedation and analgesia, reviewing the pharmacology and adverse effects of these drugs. International differences in practice are described along with current areas of controversy and future directions.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Analgesia/classification
Analgesics/administration & dosage/classification/pharmacology
Backlog
Child
Conscious Sedation/classification
dosage/classification/pharmacology
Green SM
Health Status
Humans
Hypnotics and Sedatives/administration &
Infant
Journal Article
Krauss B
Lancet
Pediatrics/standards
PedPal Lit
Practice Guidelines
Preschool
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16538790" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16538790</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Surviving cancer in childhood can mean lifelong health issues
Publisher
An entity responsible for making the resource available
Lancet Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Adult; Follow-Up Studies; Health Status; adolescent; PedPal Lit; Pain/etiology; Graft vs Host Disease; Survivors; Cataract/etiology; Hearing Loss/etiology; Hematopoietic Stem Cell Transplantation/adverse effects; Vision Disorders/etiology
Creator
An entity primarily responsible for making the resource
Senior K
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2006
2006
Adolescent
Adult
Backlog
Cataract/etiology
Child
Follow-up Studies
Graft vs Host Disease
Health Status
Hearing Loss/etiology
Hematopoietic Stem Cell Transplantation/adverse effects
Humans
Journal Article
Lancet Oncology
Pain/etiology
PedPal Lit
Senior K
Survivors
Vision Disorders/etiology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/cncr.11833" target="_blank" rel="noreferrer">http://doi.org/10.1002/cncr.11833</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Children, cancer, and nutrition--A dynamic triangle in review
Publisher
An entity responsible for making the resource available
Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; infant; Prognosis; Nutritional Support; Health Status; Survival Analysis; Incidence; Preschool; Non-U.S. Gov't; Research Support; infant; Nutritional Status; Newborn; Nutritional Failure; Child welfare; Developing Countries; Malnutrition/epidemiology/physiopathology; Neoplasms/complications/therapy; Nutrition Assessment
Creator
An entity primarily responsible for making the resource
Sala A; Pencharz P; Barr RD
Description
An account of the resource
The overall cure rate for cancer in childhood now exceeds 70% and is projected to reach 85% by the year 2010 in industrialized countries. Therefore, major attention is being placed on reducing the side effects of therapy. However, 85% of the world's children live in developing countries, where access to adequate care often is limited and health status frequently is influenced adversely by prevalent infectious diseases and malnutrition. Despite several confounding factors (different definitions of nutritional status, the wide variety of measures used for its assessment, the selection biases by disease and stage, treatment protocols of variable dose intensity and efficacy, small sample sizes of the studies conducted in the last 20 years), it is accepted that the prevalence of malnutrition at diagnosis averages 50% in children with cancer in developing countries; whereas, in industrialized countries, it is related to the type of tumor and the extent of the disease, ranging from < 10% in patients with standard-risk acute lymphoblastic leukemia to 50% in patients with advanced neuroblastoma. The importance of nutritional status in children with cancer is related to its possible influence on the course of the disease and survival. Some authors have described decreased tolerance of chemotherapy associated with altered metabolism of antineoplastic drugs, increased infection rates, and poor clinical outcome in malnourished children. In this article, the authors review methods of nutritional assessment and the pathogenesis of nutritional morbidity in children with cancer as well as correlations of nutritional status with diagnosis, treatment, and outcome.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/cncr.11833" target="_blank" rel="noreferrer">10.1002/cncr.11833</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Backlog
Barr RD
Cancer
Child
Child welfare
Developing Countries
Health Status
Humans
Incidence
Infant
Journal Article
Malnutrition/epidemiology/physiopathology
Neoplasms/complications/therapy
Newborn
Non-U.S. Gov't
Nutrition Assessment
Nutritional Failure
Nutritional Status
Nutritional Support
Pencharz P
Preschool
Prognosis
Research Support
Sala A
Survival Analysis
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s00431-003-1179-x" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00431-003-1179-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Chronic illness, life style and emotional health in adolescence: results of a cross-sectional survey on the health of 15-20-year-olds in Switzerland
Publisher
An entity responsible for making the resource available
European Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Cross-Sectional Studies; Female; Humans; Male; Health Status; Mental Health; adolescent; Adolescent Transitions; Risk-Taking; Chronic Disease/epidemiology; Life Style; Switzerland/epidemiology
Creator
An entity primarily responsible for making the resource
Miauton L; Narring F; Michaud PA
Description
An account of the resource
The objective was to evaluate the prevalence of chronic conditions (CC) in adolescents in Switzerland; to describe their behaviour (leisure, sexuality, risk taking behaviour) and to compare them to those in adolescents who do not have CC in order to evaluate the impact of those conditions on their well-being. The data were obtained from the Swiss Multicentre Adolescent Survey on Health, targeting a sample of 9268 in-school adolescents aged 15 to 20 years, who answered a self-administered questionnaire. Some 11.4% of girls and 9.6% of boys declared themselves carriers of a CC. Of girls suffering from a CC, 25% (versus 13% of non carriers; P=0.007) and 38% of boys (versus 25%; P=0.002) proclaimed not to wear a seatbelt whilst driving. Of CC girls, 6.3% (versus 2.7%; P=0.000) reported within the last 12 months to have driven whilst drunk. Of the girls, 43% (versus 36%; P=0.004) and 47% (versus 39%; P=0.001) were cigarette smokers. Over 32% of boys (versus 27%; P=0.02) reported having ever used cannabis and 17% of girls (versus 13%; P=0.013) and 43% of boys (versus 36%; P=0.002) admitted drinking alcohol. The burden of their illness had important psychological consequences: 7.7% of girls (versus 3.4%; P=0.000) and 4.9% of boys (versus 2.0%; P=0.000) had attempted suicide during the previous 12 months. CONCLUSION: experimental behaviours are not rarer in adolescents with a chronic condition and might be explained by a need to test their limits both in terms of consumption and behaviour. Prevention and specific attention from the health caring team is necessary.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00431-003-1179-x" target="_blank" rel="noreferrer">10.1007/s00431-003-1179-x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Adolescent
Adolescent Transitions
Backlog
Chronic Disease/epidemiology
Cross-sectional Studies
European Journal of Pediatrics
Female
Health Status
Humans
Journal Article
Life Style
Male
Mental Health
Miauton L
Michaud PA
Narring F
Risk-Taking
Switzerland/epidemiology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s00520-002-0341-8" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00520-002-0341-8</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The impact of a palliative medicine consultation service in medical oncology.
Publisher
An entity responsible for making the resource available
Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; Adult; Prognosis; Eligibility Determination; Prospective Studies; Aged; Middle Aged; Resuscitation Orders; Health Status; adolescent; 80 and over; social support; DNAR; hospice care; Pain/dt [Drug Therapy]; Medical Oncology; Neoplasms/th [Therapy]; Palliative Care/ut [Utilization]; referral and consultation; Pain/et [Etiology]; Palliative Care/og [Organization & Administration]
Creator
An entity primarily responsible for making the resource
Homsi J; Walsh D; Nelson KA; LeGrand SB; Davis M; Khawam E; Nouneh C
Description
An account of the resource
This prospective study of consecutive patients describes the palliative medicine consult service in a tertiary level cancer center and its impact on patient care. All inpatients/outpatients referred to the Palliative Medicine Program in a 4-month period were enrolled. Data were collected at the initial consultation using standardized forms with spaces for: reason for the consultation, referring service, demographics and history, ECOG performance status, symptoms, prognosis and diagnostic tests, treatment, and care plan. In all, 240 patients were seen: 79% were referred for symptom management; 53% were referred from medical oncology; and 50% were women. Median patient age was 67 years (range 18-96). Median performance status was 2 (1-4). Most (84%) of the patients had cancer. The cancer sites were: lung in 26% of cases, colorectal in 8%, and breast in 7%. Inpatients accounted for 53% and outpatients, for 47% of the study population. The median number of symptoms per patient was 13 (2-30). The estimated survival was <2 weeks in 15%, 2-8 weeks in 38%, 2-6 months in 37%, and >6 months in 10%. The patients' goals were: improve symptoms for 84%, return home for 55%, and no further admissions for 5%. The support systems named by patients were: family in 89%, friends in 13%, and the community in 5%. Hospice care was discussed at the consultation with 38% of the patients, would have been inappropriate for 31%, was not discussed with 22%, and had been discussed before with 9%. In response to questions about psychosocial care, a caregiver was identified by 78%, a spokesperson by 75%, and durable power of attorney was referred to by 21%. The DNR status was discussed on consult by 57%, had already been discussed with 30%, and was not discussed with 13%. Plan of care foresaw outpatient follow-up for 40%, inpatient follow-up for 32%, and transfer to palliative medicine for 27%. In 39% of cases the consults were considered late referrals. New medications suggested were opioids for 46% of patients, antiemetics for 28%, a bowel regimen for 24%, steroids for 15%, and others for 51%. (1) Palliative medicine consultation involves common complex medical, psychological, and social problems. (2) Complex symptomatology in this population is confirmed. (3) Multiple interventions were suggested even at the initial consultation. (4) Important issues such as DNR (do not resuscitate) status, support system, treatment goals, and eligibility for hospice care had often not been addressed.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00520-002-0341-8" target="_blank" rel="noreferrer">10.1007/s00520-002-0341-8</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
80 And Over
Adolescent
Adult
Aged
Backlog
Davis M
DNAR
Eligibility Determination
Female
Health Status
Homsi J
Hospice Care
Humans
Journal Article
Khawam E
LeGrand SB
Male
Medical Oncology
Middle Aged
Nelson KA
Neoplasms/th [therapy]
Nouneh C
Pain/dt [drug Therapy]
Pain/et [Etiology]
Palliative Care/og [Organization & Administration]
Palliative Care/ut [Utilization]
Prognosis
Prospective Studies
Referral And Consultation
Resuscitation Orders
Social Support
Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer
Walsh D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0140-6736(03)12387-2" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0140-6736(03)12387-2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Mortality in parents after death of a child in Denmark: A nationwide follow-up study.
Publisher
An entity responsible for making the resource available
Lancet
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Follow-Up Studies; Death; Health Status; Longitudinal Studies; Risk Factors; Life Change Events; Time Factors; Incidence; Proportional Hazards Models; Registries; Population Surveillance; adolescent; Preschool; bereavement; infant; cause of death; Denmark/epidemiology; Parents/psychology; Sex Distribution; mortality; SSHRC CURA
Creator
An entity primarily responsible for making the resource
Li J; Precht DH; Mortensen PB; Olsen J
Description
An account of the resource
BACKGROUND: Little is known about the effect of parental bereavement on physical health. We investigated whether the death of a child increased mortality in parents. METHODS: We undertook a follow-up study based on national registers. From 1980 to 1996, we enrolled 21062 parents in Denmark who had a child who had died (exposed cohort), and 293745 controls--ie, parents whose children were alive, and whose family structure matched that of the exposed cohort. Natural deaths were defined with ICD8 codes 0000-7969 and ICD10 codes A00-R99, and unnatural deaths with codes 8000-9999 and V01-Y98. We used Cox's proportional-hazards regression models to assess the mortality rate of parents up to 18 years after bereavement. FINDINGS: We observed an increased overall mortality rate in mothers whose child had died (hazards ratio 1.43, 95% CI 1.24-1.64; p<0.0001). An excess mortality from natural causes (1.44, 1.15-1.78; p<0.0001) was noted in mothers only during the 10th-18th year of follow-up. Mothers had increased mortality rates from unnatural causes throughout follow-up, with the highest rate recorded during the first 3 years (3.84, 2.48-5.88; p<0.0001). Bereaved fathers had only an early excess mortality from unnatural causes (1.57, 1.06-2.32; p=0.04). Mothers who lost a child due to an unnatural death or an unexpected death had a hazard ratio of 1.72 (1.38-2.15; p=0.0040) and 1.67 (1.37-2.03; p=0.0037), respectively. INTERPRETATION: The death of a child is associated with an overall increased mortality from both natural and unnatural causes in mothers, and an early increased mortality from unnatural causes in fathers.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0140-6736(03)12387-2" target="_blank" rel="noreferrer">10.1016/s0140-6736(03)12387-2</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Adolescent
Adult
Backlog
Bereavement
Cause Of Death
Child
Death
Denmark/epidemiology
Female
Follow-up Studies
Health Status
Humans
Incidence
Infant
Journal Article
Lancet
Li J
Life Change Events
Longitudinal Studies
Male
Mortality
Mortensen PB
Olsen J
Parents/psychology
Population Surveillance
Precht DH
Preschool
Proportional Hazards Models
Registries
Risk Factors
Sex Distribution
SSHRC CURA
Time Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1023/B:JOTS.0000038481.17167.0d" target="_blank" rel="noreferrer">http://doi.org/10.1023/B:JOTS.0000038481.17167.0d</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Changes in mothers' basic beliefs following a child's bone marrow transplantation: the role of prior trauma and negative life events
Publisher
An entity responsible for making the resource available
Journal Of Traumatic Stress
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Female; Hospitalization; Humans; Male; Adult; Attitude to Health; Mother-Child Relations; Health Status; Longitudinal Studies; Mental Health; P.H.S.; Research Support; U.S. Gov't; Adaptation; Psychological; Psychological; Stress; Bone Marrow Transplantation/psychology; Wounds and Injuries/psychology
Creator
An entity primarily responsible for making the resource
Rini C; Manne S; DuHamel KN; Austin J; Ostroff J; Boulad F; Parsons SK; Martini R; Williams S; Mee L; Sexson S; Redd WH
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1023/B:JOTS.0000038481.17167.0d" target="_blank" rel="noreferrer">10.1023/B:JOTS.0000038481.17167.0d</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
This longitudinal study examined the relation between life stress and basic beliefs about self-worth and the benevolence and meaningfulness of the world among mothers of children undergoing bone marrow transplantation (BMT). One hundred mothers completed study measures during the child's hospitalization for BMT and 1 year later. Prior trauma and recent negative events were associated with basic beliefs during hospitalization and also with changes in basic beliefs in the subsequent year, with distress mediating some of these relations. Findings also demonstrated relations between basic beliefs and physical and mental functioning. However, each basic belief exhibited different relations with study variables, suggesting the need to investigate them separately.
2004
Adaptation
Adult
Attitude To Health
Austin J
Backlog
Bone Marrow Transplantation/psychology
Boulad F
Child
DuHamel KN
Female
Health Status
Hospitalization
Humans
Journal Article
Journal Of Traumatic Stress
Longitudinal Studies
Male
Manne S
Martini R
Mee L
Mental Health
Mother-child Relations
Ostroff J
P.H.S.
Parsons SK
Psychological
Redd WH
Research Support
Rini C
Sexson S
Stress
U.S. Gov't
Williams S
Wounds and Injuries/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/01460860490884165" target="_blank" rel="noreferrer">http://doi.org/10.1080/01460860490884165</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Caregiving stress, immune function, and health: implications for research with parents of medically fragile children
Publisher
An entity responsible for making the resource available
Issues In Comprehensive Pediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Health Status; Stress; Caregivers/psychology; Chronic disease; Parents/psychology; Immunity; New telomeres; Psychological/immunology
Creator
An entity primarily responsible for making the resource
Kuster PA; Merkle CJ
Description
An account of the resource
Caregiving stress has been associated with considerable demands imposed on parents responsible for the physical and emotional care of medically fragile children. With health care advances in medicine and technology, there are a growing number of children with chronic conditions and disabilities (i.e., the medically fragile) surviving longer and being cared for almost exclusively in the home by parents. The physical strains, financial constraints, emotional effects, and social isolation experienced by parents caring for children with such complex medical needs may ultimately impact their physical and emotional health. Stress associated with the caregiving of older adults has been shown to negatively impact on health and immune functioning with the potential for associated morbidity. Studies exploring the relationship of stress with biological markers of immune functioning in parents have not been widely conducted. Therefore, there is a great opportunity in parent-child health for researchers to investigate implications of stress on immune functioning and health outcomes in parents caring for medically fragile children at home. The purpose of this review article will be to provide an overview of the literature related to caregiving stress and immune functioning and to discuss implications for research in this area with parents of medically fragile children.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/01460860490884165" target="_blank" rel="noreferrer">10.1080/01460860490884165</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Backlog
Caregivers/psychology
Child
Chronic Disease
Health Status
Humans
Immunity
Issues In Comprehensive Pediatric Nursing
Journal Article
Kuster PA
Merkle CJ
New telomeres
Parents/psychology
Psychological/immunology
Stress
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/0269905021000010096" target="_blank" rel="noreferrer">http://doi.org/10.1080/0269905021000010096</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parental stress and burden following traumatic brain injury amongst children and adolescents.
Publisher
An entity responsible for making the resource available
Brain Injury
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; England; Questionnaires; Follow-Up Studies; Health Status; Longitudinal Studies; Mental Health; Cost of Illness; Analysis of Variance; Health Education; Family Health; Family Characteristics; Stress; adolescent; Preschool; Non-U.S. Gov't; Research Support; Adaptation; Psychological; Comparative Study; Parents/psychology; poverty; Brain Injuries/economics/psychology; Psychological/etiology
Creator
An entity primarily responsible for making the resource
Hawley CA; Ward AB; Magnay AR; Long J
Description
An account of the resource
PRIMARY OBJECTIVES: To assess parental stress following paediatric traumatic brain injury (TBI), and examine the relationship between self-reported problems, parental stress and general health. RESEARCH DESIGN: Parents of 97 children admitted with a TBI (49 mild, 19 moderate, 29 severe) to North Staffordshire National Health Service Trust, and parents of 31 uninjured children were interviewed and assessed. METHODS AND PROCEDURES: Structured interviews were carried out with families, and parents assessed on the Parenting Stress Index (PSI/SF) and General Health Questionnaire (GHQ-12) at recruitment, and repeated 12 months later. MAIN OUTCOMES AND RESULTS: Forty parents (41.2%) of children with TBI exhibited clinically significant stress. Regardless of injury severity, parents of injured children suffered greater stress than control parents as measured by the PSI/SF (p = 0.001). There was a highly significant relationship between number of problems reported and level of parental stress (p = 0.001). Financial burden was related to severity of TBI. At follow-up, one third of parents of children with severe TBI scored > or =18 on the GHQ-12, signifying poor psychological health. CONCLUSIONS: The parents of a child with serious TBI should be screened for abnormal levels of stress. Parental stress and family burden may be alleviated by improved information, follow-up and support.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/0269905021000010096" target="_blank" rel="noreferrer">10.1080/0269905021000010096</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Adaptation
Adolescent
Adult
Analysis of Variance
Backlog
Brain Injuries/economics/psychology
Brain Injury
Child
Comparative Study
Cost Of Illness
England
Family Characteristics
Family Health
Female
Follow-up Studies
Hawley CA
Health Education
Health Status
Humans
Journal Article
Long J
Longitudinal Studies
Magnay AR
Male
Mental Health
Non-U.S. Gov't
Parents/psychology
Poverty
Preschool
Psychological
Psychological/etiology
Questionnaires
Research Support
Stress
Ward AB
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/07481180302885" target="_blank" rel="noreferrer">http://doi.org/10.1080/07481180302885</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Do positive psychological states shed light on recovery from bereavement? Findings from a 3-year longitudinal study
Publisher
An entity responsible for making the resource available
Death Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Humans; Male; United States; California; Health Status; Longitudinal Studies; Depression; Adaptation; Psychological; bereavement; Caregivers/psychology; social support; Homosexuality; Male/psychology; HIV Infections/mortality/psychology
Creator
An entity primarily responsible for making the resource
Moskowitz JT; Folkman S; Acree M
Description
An account of the resource
The purpose of the current study was to document the course and 1-month post-bereavement predictors of both positive and negative psychological states in bereaved gay male caregivers for 3 years following the death of their partners. The results show that although the patterns of post-bereavement depressive mood and positive psychological states were similar, some of their predictors differed. Given that the processes that produce positive psychological states are not the same as those that produce negative states, our findings support the inclusion of both positive and negative psychological states in studies of post-bereavement adjustment.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/07481180302885" target="_blank" rel="noreferrer">10.1080/07481180302885</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Acree M
Adaptation
Backlog
Bereavement
California
Caregivers/psychology
Death studies
Depression
Folkman S
Health Status
HIV Infections/mortality/psychology
Homosexuality
Humans
Journal Article
Longitudinal Studies
Male
Male/psychology
Moskowitz JT
Psychological
Social Support
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1467-6494.2004.00299.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1467-6494.2004.00299.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Coping through emotional approach: a new look at emotion, coping, and health-related outcomes
Publisher
An entity responsible for making the resource available
Journal Of Personality
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; Adult; Emotions; Health Status; Outcome Assessment (Health Care); Psychometrics; Stress; Adaptation; Psychological
Creator
An entity primarily responsible for making the resource
Austenfeld Jennifer L; Stanton AL
Description
An account of the resource
Researchers studying stress and coping processes have attempted to identify which coping strategies are most adaptive in stressful encounters. A generally accepted conclusion has been that emotion-focused coping processes are associated with dysfunctional outcomes. Studies from our and other research teams challenge the "bad reputation" of emotion-focused coping by demonstrating that items measuring emotion-focused strategies in published coping questionnaires are confounded with distress and self-deprecation. We have developed and validated new instruments to assess coping though acknowledging, understanding, and expressing emotion, that is, coping through emotional approach. Longitudinal and experimental studies using these new scales have documented the adaptive potential of emotional-approach coping in the context of several types of stressors, including infertility, breast cancer, and chronic pain. However, characteristics of the environmental context, stressful experience, and individual are important moderators of the relations of emotional-approach coping and health-related outcomes. Potential mediators and moderators of coping through emotional approach, clinical relevance of the construct, and directions for research are discussed.
2004-12
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1467-6494.2004.00299.x" target="_blank" rel="noreferrer">10.1111/j.1467-6494.2004.00299.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adaptation
Adult
Austenfeld Jennifer L
Backlog
Emotions
Health Status
Humans
Journal Article
Journal Of Personality
Outcome Assessment (health Care)
Psychological
Psychometrics
Stanton AL
Stress