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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.2009.163931" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.2009.163931</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Transition to adult services for children and young people with palliative care needs: a systematic review
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Humans; Young Adult; adolescent; Palliative Care/organization & administration; Models; Continuity of Patient Care/organization & administration; Adolescent Health Services/organization & administration; Delivery of Health Care/organization & administration; Organizational; Evidence-Based Medicine/methods; Health Services Research/methods/standards
Creator
An entity primarily responsible for making the resource
Doug M; Adi Y; Williams J; Paul M; Kelly D; Petchey R; Carter YH
Description
An account of the resource
OBJECTIVE: To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs. DESIGN: Systematic review. SETTING: Child and adult services and interface between healthcare providers. PATIENTS: Young people aged 13-24 years with palliative care conditions in the process of transition. MAIN OUTCOME MEASURES: Young people and their families' experiences of transition, the process of transition between services and its impact on continuity of care and models of good practice. RESULTS: 92 studies included. Papers on transition services were of variable quality when applied to palliative care contexts. Most focussed on common life-threatening and life-limiting conditions. No standardised transition program identified and most guidelines used to develop transition services were not evidence-based. Most studies on transition programs were predominantly condition-specific (eg, cystic fibrosis (CF), cancer) services. CF services offered high-quality transition with the most robust empirical evaluation. There were differing condition-dependent viewpoints on when transition should occur but agreement on major principles guiding transition planning and probable barriers. There was evidence of poor continuity between child and adult providers with most originating from within child settings. CONCLUSIONS: Palliative care was not, in itself, a useful concept for locating transition-related evidence. It is not possible to evaluate the merits of the various transition models for palliative care contexts, or their effects on continuity of care, as there are no long-term outcome data to measure their effectiveness. Use of validated outcome measures would facilitate research and service development.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/adc.2009.163931" target="_blank" rel="noreferrer">10.1136/adc.2009.163931</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adi Y
Adolescent
Adolescent Health Services/organization & administration
Archives of Disease in Childhood
Backlog
Carter YH
Continuity Of Patient Care/organization & Administration
Delivery of Health Care/organization & administration
Doug M
Evidence-Based Medicine/methods
Health Services Research/methods/standards
Humans
Journal Article
Kelly D
Models
Organizational
Palliative Care/organization & Administration
Paul M
Petchey R
Williams J
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11441622" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11441622</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Measuring the quality of dying
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Attitude to Health; Attitude of Health Personnel; Attitude to Death; Family/psychology; Human; quality of life; Kidney Failure; Research Design/standards; Quality of Health Care; Chronic/psychology; Health Services Research/methods/standards; Terminal Care/psychology/standards
Creator
An entity primarily responsible for making the resource
Moss AH
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2001
2001
Attitude Of Health Personnel
Attitude To Death
Attitude To Health
Backlog
Chronic/psychology
Family/psychology
Health Services Research/methods/standards
Human
Journal Article
Journal of Palliative Medicine
Kidney Failure
Moss AH
Quality Of Health Care
Quality Of Life
Research Design/standards
Terminal Care/psychology/standards