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40
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Dublin Core
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Title
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September 2023 List
Text
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Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.3390/clinpract13030062" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/clinpract13030062</a>
Dublin Core
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Title
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"The Key Is to Value Every Little Achievement": A Qualitative Study of the Psychological Experience of Parent Caregivers in Paediatric Palliative Care
Publisher
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Clinics and Practice
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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Palliative Care; family; qualitative methods; chronic illness; experience; health psychology
Creator
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Nogueira AJ; Ribeiro MT
Description
An account of the resource
In Europe, Portugal has been identified as the country with the most rapid evolution of paediatric palliative care provision, which is a highly complex experience for families. The present descriptive-exploratory study seeks to contribute to the understanding of the psychological experience of life-limiting conditions in parent caregivers. A total of 14 families completed a sociodemographic and clinical data sheet and answered a structured online interview based on an incomplete narrative resulting from the Unwanted Guest Metaphor. A thematic analysis of the various narratives was performed through an inductive-deductive process. The results provide a holistic view of 10 essential dimensions in the parental psychological experience and contribute to the design of intervention methodologies in an eco-systemic approach. The importance of clear communication with health professionals, an awareness of the unpredictability of the disease, the desire for more self-care, the difficulty in understanding their children's needs and the threat implicit in everyday life are some of the main findings. This research emphasizes the importance of having opportunities of emotional expression and psychoeducation about anxiety' management, enhancing the perception of positive characteristics in children with palliative needs and creating time for the couple. The study has some limitations, such as the small sample size, and suggests that further research should explore the father's experience.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3390/clinpract13030062" target="_blank" rel="noreferrer noopener">10.3390/clinpract13030062</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Chronic Illness
Clinics and Practice
Experience
Family
Health Psychology
Nogueira AJ
Palliative Care
Qualitative Methods
Ribeiro MT
September List 2047
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2022 List
URL Address
<a href="http://doi.org/10.1177/13591045211055565" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/13591045211055565</a>
Dublin Core
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Title
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Implementation and evaluation of clinical supervision for support workers in a paediatric palliative care setting
Publisher
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Clinical Child Psychology and Psychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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burnout; paediatric palliative care; health psychology; staff wellbeing; support worker; clinical supervision; Hca; peer supervision
Creator
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Beavis J; McKenzie S; Davis L; Ellison N
Description
An account of the resource
Support workers represent a large proportion of the NHS workforce and yet their supervisory needs are often overlooked. This study focused specifically on a cohort of support workers in a community paediatric palliative care setting. Peer supervision was implemented for this group, initially face to face and then virtually. The experiences of clinical supervision for this group were investigated through responses to an online survey (n = 25) and two focus groups (n = 7). Survey data were analysed concurrently with a thematic analysis. The following themes and sub-themes were developed from transcribed focus groups: (1) Barriers to engagement (2) Being Listened to (3) What Worked Well: Logistics. Overall, delivery of supervision was effective to a mixed degree - though support workers appreciated a space to be listened to, their distrust of colleagues and other barriers impeded the capacity of supervision to achieve more than support and catharsis for this group. Future projects should focus on introducing more preliminary interventions to promote reflection and peer support for these groups as well as continue to consider the supervisory needs of support workers.
Identifier
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<a href="http://doi.org/10.1177/13591045211055565" target="_blank" rel="noreferrer noopener">10.1177/13591045211055565</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Beavis J
Burnout
Clinical Child Psychology And Psychiatry
Clinical supervision
Davis L
Ellison N
February 2022 List
Hca
Health Psychology
McKenzie S
paediatric palliative care
peer supervision
staff wellbeing
support worker
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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December 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2020 List
URL Address
<a href="http://doi.org/10.1177/1359104520961431" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1359104520961431</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Clinical Supervision for Support Workers in Paediatric Palliative Care: A Literature Review
Publisher
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Clinical Child Psychology and Psychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
burnout; Clinical supervision; complex health; health psychology; paediatric palliative care; staff wellbeing; support worker
Creator
An entity primarily responsible for making the resource
Beavis J; Davis L; McKenzie S
Description
An account of the resource
Providing home care to children with complex physical health needs is an emotionally challenging role. Extant literature and documents such as the Cavendish Review (2013) have reported that a large proportion of care for this population is carried out by non-registered staff (support workers). Provision of clinical supervision for nurses working in palliative care is increasing, however, supervision needs of support workers are commonly neglected. This paper sought to synthesise what is known about clinical supervision practices for support workers in paediatric palliative care (PPC). A literature review was conducted in accordance with integrative review guidelines. 315 papers were identified initially, 15 studies were included in this review. Four commonalities were identified: importance of team cohesion, varying degrees of formality, self-awareness and practicalities. Support workers received varying forms of supervision and some facilitators faced organisational difficulties involving staff in supervision. Support workers who received staff support generally appreciated it in recognition that their work is complex and emotionally difficult. This paper highlighted that further research should investigate the efficacy of clinical supervision as a method of reducing stress and burnout for support workers. Any implementation of supervision should involve a considered approach to training and supervision to ensure fidelity.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1359104520961431" target="_blank" rel="noreferrer noopener">10.1177/1359104520961431</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Beavis J
Burnout
Clinical Child Psychology And Psychiatry
Clinical supervision
complex health
Davis L
December 2020 List
Health Psychology
McKenzie S
paediatric palliative care
staff wellbeing
support worker
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1037/0278-6133.9.3.266" target="_blank" rel="noreferrer">http://doi.org/10.1037/0278-6133.9.3.266</a>
<a href="http://search.ebscohost.com/login.aspx?direct=true&db=pdh&AN=1990-25815-001&site=ehost-live&scope=site" target="_blank" rel="noreferrer">http://search.ebscohost.com/login.aspx?direct=true&db=pdh&AN=1990-25815-001&site=ehost-live&scope=site</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Quality of social support and associated social and psychological functioning in women with rheumatoid arthritis
Publisher
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Health Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
1990
Subject
The topic of the resource
social support; Mental Health; Social Support and Chronic Pain; Adjustment; Rheumatoid Arthritis; 21–65 yr old females with rheumatoid arthritis; quality of social support; social & psychological functioning; Social Interaction
Creator
An entity primarily responsible for making the resource
Goodenow C; Reisine ST; Grady KE
Description
An account of the resource
Investigated the relationship between health status, social integration, qualitative aspects of social support, and social and psychological functioning in 194 women (aged 21–65 yrs) with rheumatoid arthritis. Ss completed a telephone interview that included measures of these variables. Even after controlling for the influences of current physical limitations and social integration, qualitative dimensions of social support as measured by the Quality of Social Support Scale, a scale developed for this study, explained a significant proportion of the variance in home and family functioning and in depression. This demonstrates the importance of social support to both social and psychological functioning with a chronic, painful, and disabling disease. (PsycINFO Database Record (c) 2013 APA, all rights reserved)
1990
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1037/0278-6133.9.3.266" target="_blank" rel="noreferrer">10.1037/0278-6133.9.3.266</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1990
21–65 yr old females with rheumatoid arthritis
Adjustment
Backlog
Goodenow C
Grady KE
Health Psychology
Journal Article
Mental Health
quality of social support
Reisine ST
Rheumatoid Arthritis
social & psychological functioning
Social Interaction
Social Support
Social Support and Chronic Pain
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1037//0278-6133.17.5.445" target="_blank" rel="noreferrer">http://doi.org/10.1037//0278-6133.17.5.445</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Experimental evidence for stages of health behavior change: the precaution adoption process model applied to home radon testing
Publisher
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Health Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Subject
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Female; Humans; Male; Adult; Questionnaires; Aged; Middle Aged; Age Factors; Cognition; Health Behavior; Random Allocation; Air Pollutants; health promotion; Radioactive; Radon/analysis
Creator
An entity primarily responsible for making the resource
Weinstein ND; Lyon JE; Sandman PM; Cuite CL
Description
An account of the resource
Hypotheses generated by the precaution adoption process model, a stage model of health behavior, were tested in the context of home radon testing. The specific idea tested was that the barriers impeding progress toward protective action change from stage to stage. An intervention describing a high risk of radon problems in study area homes was designed to encourage homeowners in the model's undecided stage to decide to test, and a low-effort, how-to-test intervention was designed to encourage homeowners in the decided-to-act stage to order test kits. Interventions were delivered in a factorial design that created conditions matched or mismatched to the recipient's stage (N = 1,897). Both movement to a stage closer to testing and purchase of radon test kits were assessed. As predicted, the risk treatment was relatively more effective in getting undecided people to decide to test than in getting decided-to-act people to order a test. Also supporting predictions, the low-effort intervention proved relatively more effective in getting decided-to-act people to order tests than in getting undecided people to decide to test.
1998
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1037//0278-6133.17.5.445" target="_blank" rel="noreferrer">10.1037//0278-6133.17.5.445</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1998
Adult
Age Factors
Aged
Air Pollutants
Backlog
Cognition
Cuite CL
Female
Health Behavior
Health Promotion
Health Psychology
Humans
Journal Article
Lyon JE
Male
Middle Aged
Questionnaires
Radioactive
Radon/analysis
Random Allocation
Sandman PM
Weinstein ND
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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"you Don't Know Until You Get There": The Positive And Negative "lived" Experience Of Parenting An Adult Child With 22q11.2 Deletion Syndrome.
Publisher
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Health Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
22q11.2 Deletion Syndrome; Ipa; Developmental-disabilities; Mothers; Stress; Psychology Clinical; Velo-cardio-facial Syndrome; Trauma; Interpretative Phenomenological Analysis; Velo-cardio-facial Syndrome; Families; Psychological Growth; Psychology; Symptoms; Prevalence; Disorders; Traumatic Distress
Ipa; Velo-cardio-facial Syndrome; 22q11.2 Deletion Syndrome; Traumatic Distress; Psychological Growth
Creator
An entity primarily responsible for making the resource
Goodwin J; McCormack L; Campbell LE
Description
An account of the resource
OBJECTIVES:
22q11.2 deletion syndrome (22q11DS), a complex genetic syndrome associated with more than 180 features, presents complex challenges for parents including gaining a diagnosis. This phenomenological study sought the "lived" interpretations of parents supporting an adult child with 22q11DS, a poorly researched area.
METHOD:
Interpretative phenomenological analysis informed a detailed and open exploration of parenting a child through to adult life with 22q11DS. Using in-depth semistructured interviews, 8 parents (2 male, 6 female) of adult children with 22q11DS were individually interviewed; providing the data set for transcription and thematic analysis.
RESULTS:
Losing "I" Finding "self," overarched 6 subordinate themes that emerged from participants' articulated descriptions of psychological distress and psychological growth. Distress in parenting a child with 22q11DS was experienced through stigma, loss, grief, and guilt. Progressively, stigma undermined independence, friendships, and instinctual judgement. Ill-informed hierarchical structures experienced as layers of obstruction and lack of awareness of the syndrome triggered angry advocacy for their child. Diagnosis brought opposing relief and grief. In time, they came to value their unique "accomplishments," collected on their journey with 22q11DS, and in turn, consciously valued authentic "self" expressed through empathy, humility, gratitude, and pride.
CONCLUSION:
Parental distress through societal, educational, and health care invalidation persisted for decades for all participants. Conversely, distress facilitated psychological growth for redefining "self" and role as parents over time. Building on this phenomenological cameo, future research can educate against the plight of 22q11DS families. It can enlighten health care professionals in buffering against associated stigma, blame, and self-doubt, and in fostering psychological well-being. (PsycINFO Database Record
Identifier
An unambiguous reference to the resource within a given context
DOI: 10.1037/hea0000415
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
22q11.2 Deletion Syndrome
Campbell LE
Developmental-disabilities
Disorders
Families
Goodwin J
Health Psychology
Interpretative Phenomenological Analysis
Ipa
McCormack L
Mothers
Prevalence
Psychological Growth
Psychology
Psychology Clinical
September 2016 List
Stress
Symptoms
Trauma
Traumatic Distress
Velo-cardio-facial Syndrome