1
40
4
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2021 Special Edition 1 - Low Resource Settings
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2021 Special Edition 1 - Low Resource Settings
URL Address
<a href="http://doi.org/10.1186/s12939-020-01252-x" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1186/s12939-020-01252-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Vulnerability and Agency across Treatment-Seeking Journeys for Acutely Ill Children: How Family Members Navigate Complex Healthcare Before, During and After Hospitalisation in A Rural Kenyan Setting
Publisher
An entity responsible for making the resource available
International Journal for Equity in Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Adult; Child Preschool; Cohort Studies; Female; Humans; Infant; Male; Qualitative Research; Prospective Studies; Family; Continuity of Patient Care; Hospitalization; Child Mortality; Social Support; Acute Disease; Caregivers; Health Facilities; Family Characteristics; Vulnerable Populations; Rural Population; Kenya/epidemiology; Agency; Child Health; Childhood acute illness; Delivery of Health Care/standards; Treatment-seeking; Vulnerability
Creator
An entity primarily responsible for making the resource
Zakayo SM; Njeru RW; Sanga G; Kimani MN; Charo A; Muraya K; Sarma H; Uddin MF; Berkley JA; Walson JL; Kelley M; Marsh V; Molyneux S
Description
An account of the resource
BACKGROUND: Child mortality rates during hospitalisation for acute illness and after discharge are unacceptably high in many under-resourced settings. Childhood vulnerability to recurrent illness, and death, is linked to their families' situations and ability to make choices and act (their agency). We examined vulnerability and agency across treatment-seeking journeys for acutely ill children and considered the implications for policy and practice. METHOD: A qualitative sub-study was embedded within the prospective CHAIN Network cohort study, which is investigating mechanisms of inpatient and post-hospital discharge mortality among acutely ill young children across a spectrum of nutritional status. Primary data were collected from household members of 20 purposively selected cohort children over 18 months through formal interviews (total n = 74), complemented by informal discussions and observations. Data were analysed using narrative and thematic approaches. RESULTS: Treatment-seeking pathways were often long and complex, particularly for children diagnosed as severely malnourished. Family members' stories reveal that children's carers, usually mothers, navigate diverse challenges related to intersecting vulnerabilities at individual, household and facility levels. Specific challenges include the costs of treatment-seeking, confusing and conflicting messaging on appropriate care and nutrition, and poor continuity of care. Strong power inequities were observed between family members and health staff, with many mothers feeling blamed for their child's condition. Caregivers' agency, as demonstrated in decision-making and actions, often drew on the social support of others but was significantly constrained by their situation and broader structural drivers. CONCLUSION: To support children's care and recovery, health systems must be more responsive to the needs of families facing multiple and interacting vulnerabilities. Reducing incurred treatment costs, improving interpersonal quality of care, and strengthening continuity of care across facilities is essential. Promising interventions need to be co-designed with community representatives and health providers and carefully tested for unintended negative consequences and potential for sustainable scale-up.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/s12939-020-01252-x" target="_blank" rel="noreferrer noopener">10.1186/s12939-020-01252-x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2021 Special Edition 1 - Low Resource Settings
Acute Disease
Adult
agency
Berkley JA
Caregivers
Charo A
Child Health
Child Mortality
Child Preschool
Childhood acute illness
Cohort Studies
Continuity Of Patient Care
Delivery of Health Care/standards
Family
Family Characteristics
Female
Health Facilities
Hospitalization
Humans
Infant
International Journal for Equity in Health
Kelley M
Kenya/epidemiology
Kimani MN
Male
Marsh V
Molyneux S
Muraya K
Njeru RW
Prospective Studies
Qualitative Research
Rural Population
Sanga G
Sarma H
Social Support
Treatment-seeking
Uddin MF
VULNERABILITY
Vulnerable Populations
Walson JL
Zakayo SM
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2019 List
URL Address
<a href="http://doi.org/10.1177/1049909118824560" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909118824560</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention
Publisher
An entity responsible for making the resource available
American Journal of Hospice & Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Human; pediatric palliative care; New York; caregiver; Female; pediatric; Action Research; Adult; Caregiver Support; Caregivers -- Psychosocial Factors; Coefficient Alpha; Criterion-Related Validity; Data Analysis Software; Descriptive Statistics; Discriminant Validity; Health Facilities; Internal Consistency; Life Purpose; Married Women; meaning-centered psychotherapy; Middle Age; Mothers; Multimethod Studies; Narratives; Paired T-Tests; Palliative Care -- Psychosocial Factors; Pediatric Care; pediatric caregiver; Personal Satisfaction; Photography; photovoice; Pilot Studies; Pretest-Posttest Design; Program Development; Program Evaluation; Program Implementation; Psychotherapy -- Methods; Questionnaires; Reliability; Research Subject Recruitment; Semi-Structured Interview; social media; Social Media; Surveys; Whites; Adaptation; Psychological
Creator
An entity primarily responsible for making the resource
Levy K; Grant P C; Depner R M; Tenzek K E; Pailler M E; Beaupin L K; Breier J M; Byrwa D J
Description
An account of the resource
Background: Research indicates that informal caregiving can have intense physical and mental impact on the individual. Relative to caregivers of adults, pediatric palliative caregivers appear less in literature despite experiencing greater mental, physical, financial, and social strain. There is limited research on the creation and evaluation of interventions specifically for this population despite clear need. Objective: This study aims to evaluate the feasibility and engagement of the Photographs of Meaning Program, a modified meaning-making intervention for pediatric palliative caregivers. Design: Participants completed a pre�post intervention meaning-in-life measure. Over a 9-week period, participants followed a meaning-making curriculum whereby they created and shared photo narratives via social media. As part of the intervention, a community photo exhibition was held featuring these photo narratives. Exit interviews were also conducted at study close. Setting/Participants: Nine individuals providing informal care to children in a pediatric palliative care program participated in the intervention. All participants were female and are older than 18 years. Settings for research include participant homes and at The Center for Hospice and Palliative Care in Cheektowaga, New York. Results: Participants posted 95 photographs and 96 narratives during the intervention, posting on average once each week. Statistical analysis within the small sample indicated an increased presence of meaning in the lives of participants (P =.022). Exit interviews conveyed satisfaction with the intervention. Conclusions: Findings suggest that the Photographs of Meaning Program is a practical intervention with life-enhancing potential for pediatric palliative. Future research should aim to collect additional evidence of the intervention's effectiveness.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049909118824560" target="_blank" rel="noreferrer noopener">10.1177/1049909118824560</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Action Research
Adaptation
Adult
American Journal of Hospice & Palliative Medicine
August 2019 List
Beaupin L K
Breier J M
Byrwa D J
Caregiver
Caregiver Support
Caregivers -- Psychosocial Factors
Coefficient Alpha
Criterion-Related Validity
Data Analysis Software
Depner R M
Descriptive Statistics
Discriminant Validity
Female
Grant P C
Health Facilities
Human
Internal Consistency
Levy K
Life Purpose
Married Women
meaning-centered psychotherapy
Middle Age
Mothers
Multimethod Studies
Narratives
New York
Pailler M E
Paired T-Tests
Palliative Care -- Psychosocial Factors
Pediatric
Pediatric Care
pediatric caregiver
Pediatric Palliative Care
Personal Satisfaction
Photography
photovoice
Pilot Studies
Pretest-Posttest Design
Program Development
Program Evaluation
Program Implementation
Psychological
Psychotherapy -- Methods
Questionnaires
Reliability
Research Subject Recruitment
Semi-Structured Interview
social media
surveys
Tenzek K E
Whites
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2019 List
URL Address
<a href="http://doi.org/10.1007/s40271-018-0336-2" target="_blank" rel="noreferrer noopener">http://doi.org/10.1007/s40271-018-0336-2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies
Publisher
An entity responsible for making the resource available
Patient
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Humans; Health Facilities; Observational Studies as Topic; Pediatrics; Power (Psychology); Parents/psychology
Creator
An entity primarily responsible for making the resource
Ashcraft LE; Asato M; Houtrow AJ; Kavalieratos D; Miller E; Ray KN
Description
An account of the resource
BACKGROUND: Parent empowerment is often an expressed goal in clinical pediatrics and in pediatric research, but the antecedents and consequences of parent empowerment are not well established. OBJECTIVE: The objective of this systematic review was to synthesize potential antecedents and consequences of parent empowerment in healthcare settings. ELIGIBILITY CRITERIA: The inclusion criteria were (1) studies with results about parent empowerment in the context of children's healthcare or healthcare providers; and (2) qualitative studies, observational studies, and systematic reviews of such studies. INFORMATION SOURCES: We searched the databases of PubMed, Web of Science, and Google Scholar (2006-2017) and reference lists. INCLUDED STUDIES: Forty-four articles met the inclusion criteria. SYNTHESIS OF RESULTS: We identified six themes within consequences of empowerment: increased parent involvement in daily care, improved symptom management, enhanced informational needs and tools, increased involvement in care decisions, increased advocacy for child, and engagement in empowering others. Six themes summarizing antecedents of empowerment also emerged: parent-provider relationships, processes of care, experiences with medical care, experiences with community services, receiving informational/emotional support, and building personal capacity and narrative. We synthesized these findings into a conceptual model to guide future intervention development and evaluation. STRENGTHS AND LIMITATIONS OF EVIDENCE: Non-English articles were excluded. INTERPRETATION: Parent empowerment may enhance parent involvement in daily care and care decisions, improve child symptoms, enhance informational needs and skills, and increase advocacy and altruistic behaviors. Parent empowerment may be promoted by the parent-provider relationship and care processes, finding the right fit of medical and community services, and attention to the cognitive and emotional needs of parents. CLINICAL REGISTRATION NO: PROSPERO 2017:CRD42017059478.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s40271-018-0336-2" target="_blank" rel="noreferrer noopener">10.1007/s40271-018-0336-2</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Asato M
Ashcraft LE
Health Facilities
Houtrow AJ
Humans
Kavalieratos D
Miller E
Observational Studies as Topic
Parents/psychology
Patient
Pediatrics
Power (psychology)
Ray KN
September 2019 List
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1126/science.6143402" target="_blank" rel="noreferrer">http://doi.org/10.1126/science.6143402</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
View through a window may influence recovery from surgery
Publisher
An entity responsible for making the resource available
Science
Date
A point or period of time associated with an event in the lifecycle of the resource
1984
Subject
The topic of the resource
Female; Male; Adult; Analgesics; Pennsylvania; Aged; Length of Stay; U.S. Gov't; Comparative Study; Human; Support; Middle Age; Postoperative Period; Non-P.H.S.; Hospital Bed Capacity; Postoperative Complications; Health Facilities; Health Facility Environment; Patients' Rooms; Postoperative Care/px [Psychology]; 100 to 299; Cholecystectomy; Opioid/tu [Therapeutic Use]; Trees
Creator
An entity primarily responsible for making the resource
Ulrich RS
Description
An account of the resource
Records on recovery after cholecystectomy of patients in a suburban Pennsylvania hospital between 1972 and 1981 were examined to determine whether assignment to a room with a window view of a natural setting might have restorative influences. Twenty-three surgical patients assigned to rooms with windows looking out on a natural scene had shorter postoperative hospital stays, received fewer negative evaluative comments in nurses' notes, and took fewer potent analgesics than 23 matched patients in similar rooms with windows facing a brick building wall.
1984
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1126/science.6143402" target="_blank" rel="noreferrer">10.1126/science.6143402</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
100 to 299
1984
Adult
Aged
Analgesics
Backlog
Cholecystectomy
Comparative Study
Female
Health Facilities
Health Facility Environment
Hospital Bed Capacity
Human
Journal Article
Length Of Stay
Male
Middle Age
Non-P.H.S.
Opioid/tu [Therapeutic Use]
Patients' Rooms
Pennsylvania
Postoperative Care/px [Psychology]
Postoperative Complications
Postoperative Period
Science
Support
Trees
U.S. Gov't
Ulrich RS