[Difficulties in communication with parents of pediatric cancer patients during the transition to palliative care]
Attitude Of Health Personnel; Cancer Palliative Therapy; Childhood Cancer; Communication Barrier; Communication Barriers; Critical Illness/nu [nursing]; Palliative Care/mt [methods]; Parental Attitude; Physician-patient Relations; Article; Cancer Mortality; Cancer Patient; Cancer Therapy; Child; Critical Illness/px [psychology]; Disease Management; Dying; Empathy; Female; Human; Humans; Interpersonal Communication; Medical Expert; Oncologist; Palliative Care/px [psychology]; Parent-child Relations; Parents/px [psychology]; Pediatrician; Psychologist; Quality Of Health Care; Self Defense; Structured Interview
INTRODUCTION: Adequate communication by medical personnel is especially important at certain points during the treatment of childhood cancer patients. AIM: To investigate the timing and manner of communication with parents concerning the introduction of palliative care in pediatric oncology. METHOD: Structured interviews, containing 14 questions, were carried out with physicians working in pediatric oncology (n = 22). Codes were generated inductively with the aid of Atlas.ti 6.0 software. RESULTS: Interviews show a tendency of a one-step transition to palliative care following curative therapy. Another expert is usually involved in communication, most likely a psychologist. Regarding communication, there are expressions utilized or avoided, such as expressing clarity, self-defense and empathy. The communication of death and dying was the most contradictory. CONCLUSION: This was the first investigation regarding communication in pediatric palliative care in Hungary. Our results show that a modern perspective of palliative communication is present, but necessitates more time to become entrenched. Orv Hetil. 2017; 158(30): 1175-1181.
Nyiro J; Hauser P; Zorgo S; Hegedus K
Orvosi Hetilap
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1556/650.2017.30815" target="_blank" rel="noreferrer">10.1556/650.2017.30815</a>
Bereaved Parents' Perspective on Communication of Transition to Palliative Care in Pediatric Oncology - Hungarian Experience
Bereavement; Child; childhood cancer; clinical article; communication protocol; conference abstract; consultation; Female; genetic transcription; Human; Hungary; Male; nonverbal communication; Palliative Therapy; semi structured interview; Terminal Care
Background and Aims: Transition to palliative care (PC) is a critical aspect of pediatric oncology requiring a high level of communication skills from doctors, which could be best judged by parents of children died in cancer. Our aim was to explore parents' perspectives regarding the timing of the consultation on implementing PC, as well as facets of verbal and non-verbal communication in Hungary. Method(s): Semi-structured interviews were conducted with parents who had lost their child to cancer within the past 1-5 years. Interview transcripts (n=23) were scrutinized with Interpretative Phenomenological Analysis. Result(s): Parents frequently associated palliation with end-of-life care and clearly delimited the transition to PC after curative treatments had been exhausted. Parents were ambivalent regarding using the word "death" during this consultation and often did not receive information on what to expect (e.g., regarding symptoms) and who to turn to for further information or support (e.g., concerning bereavement). Conclusion(s): Although significant progress could be observed in the organization of pediatric palliative care in Hungary, there is still no widely accepted communication method for communication of transition to sole PC. There is a need for a culturally-sensitive approach to refining recommendations on word-use and communication protocol in pediatric PC also in Hungary.
Foldesi E; Zorgo S; Nyiro J; Hegedus K; Hauser P
Pediatric Blood and Cancer
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/https://dx.doi.org/10.1002/pbc.29952" target="_blank" rel="noreferrer noopener">https://dx.doi.org/10.1002/pbc.29952</a>