1
40
9
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February 2022 List
Text
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February 2022 List
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<a href="http://doi.org/10.1136/bmjspcare-2021-003278" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/bmjspcare-2021-003278</a>
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Title
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Oral morphine versus transmucosal diamorphine for breakthrough pain in children: methods and outcomes: UK (DIPPER study) consensus
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BMJ Supportive & Palliative Care
Date
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2021
Subject
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Oral morphine; paediatrics; pain; transmucosal diamorphine
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Harrop E; Liossi C; Jamieson L; Gastine S; Oulton K; Skene SS; Howard RF; Johnson M; Boyce K; Mitchell L; Jassal S; Anderson AK; Hain R; Hills M; Bayliss J; Soman A; Laddie J; Vickers D; Mellor C; Warlow T; Wong IC
Description
An account of the resource
OBJECTIVES: No randomised controlled trials have been conducted for breakthrough pain in paediatric palliative care and there are currently no standardised outcome measures. The DIPPER study aims to establish the feasibility of conducting a prospective randomised controlled trial comparing oral and transmucosal administration of opioids for breakthrough pain. The aim of the current study was to achieve consensus on design aspects for a small-scale prospective study to inform a future randomised controlled trial of oral morphine, the current first-line treatment, versus transmucosal diamorphine. METHODS: The nominal group technique was used to achieve consensus on best practice for mode of administration, dose regimen and a range of suitable pain intensity outcome measures for transmucosal diamorphine in children and young people with breakthrough pain. An expert panel of ten clinicians in paediatric palliative care and three parent representatives participated. Consensus was achieved when agreement was reached and no further comments from participants were forthcoming. RESULTS: The panel favoured the buccal route of administration, with dosing according to the recommendations in the Association for Paediatric Palliative Medicine formulary (fifth Edition, 2020). The verbal Numerical Rating Scale was selected to measure pain in children 8 years old and older, the Faces Pain Scale-Revised for children between 4 and 8 years old, and Face, Legs, Activity, Cry and Consolability (FLACC)/FLACC-Revised as the observational tools. CONCLUSIONS: The nominal group technique allowed consensus to be reached for a small-scale, prospective, cohort study and provided information to inform the design of a randomised controlled trial.
Identifier
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<a href="http://doi.org/10.1136/bmjspcare-2021-003278" target="_blank" rel="noreferrer noopener">10.1136/bmjspcare-2021-003278</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Anderson AK
Bayliss J
BMJ Supportive & Palliative Care
Boyce K
February 2022 List
Gastine S
Hain R
Harrop E
Hills M
Howard RF
Jamieson L
Jassal S
Johnson M
Laddie J
Liossi C
Mellor C
Mitchell L
Oral morphine
Oulton K
Paediatrics
Pain
Skene SS
Soman A
transmucosal diamorphine
Vickers D
Warlow T
Wong IC
-
Dublin Core
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Title
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February 2022 List
Text
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February 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163211049309" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163211049309</a>
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Title
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Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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paediatrics; pain assessment; Pain measurement; palliative care; systematic review
Creator
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Chan AY; Ge M; Harrop E; Johnson M; Oulton K; Skene SS; Wong IC; Jamieson L; Howard RF; Liossi C
Description
An account of the resource
BACKGROUND: Assessing pain in infants, children and young people with life-limiting conditions remains a challenge due to diverse patient conditions, types of pain and often a reduced ability or inability of patients to communicate verbally. AIM: To systematically identify pain assessment tools that are currently used in paediatric palliative care and examine their psychometric properties and feasibility and make recommendations for clinical practice. DESIGN: A systematic literature review and evaluation of psychometric properties of pain assessment tools of original peer-reviewed research published from inception of data sources to April 2021. DATA SOURCES: PsycINFO via ProQuest, Web of Science Core, Medline via Ovid, EMBASE, BIOSIS and CINAHL were searched from inception to April 2021. Hand searches of reference lists of included studies and relevant reviews were performed. RESULTS: From 1168 articles identified, 201 papers were selected for full-text assessment. Thirty-four articles met the eligibility criteria and we examined the psychometric properties of 22 pain assessment tools. Overall, the Faces Pain Scale-Revised (FPS-R) had high cross-cultural validity, construct validity (hypothesis testing) and responsiveness; while the Faces, Legs, Activity, Cry and Consolability (FLACC) scale and Paediatric Pain Profile (PPP) had high internal consistency, criterion validity, reliability and responsiveness. The number of studies per psychometric property of each pain assessment tool was limited and the methodological quality of included studies was low. CONCLUSION: Balancing aspects of feasibility and psychometric properties, the FPS-R is recommended for self-assessment, and the FLACC scale/FLACC Revised and PPP are the recommended observational tools in their respective age groups.
Identifier
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<a href="http://doi.org/10.1177/02692163211049309" target="_blank" rel="noreferrer noopener">10.1177/02692163211049309</a>
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2021
Chan AY
February 2022 List
Ge M
Harrop E
Howard RF
Jamieson L
Johnson M
Liossi C
Oulton K
Paediatrics
Pain Assessment
Pain Measurement
Palliative Care
Palliative Medicine
Skene SS
Systematic Review
Wong IC
-
Dublin Core
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Title
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June 2021 List
Text
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Citation List Month
June 2021 List
URL Address
<a href="http://doi.org/10.1177/02692163211008737" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163211008737</a>
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Title
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Healthcare professionals' views of the use of oral morphine and transmucosal diamorphine in the management of paediatric breakthrough pain and the feasibility of a randomised controlled trial: A focus group study (DIPPER)
Publisher
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Palliative Medicine.
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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Breakthrough pain; diamorphine; focus groups; opioids; paediatrics; pain management; palliative care; terminal care
Creator
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Jamieson L; Harrop E; Johnson M; Liossi C; Mott C; Oulton K; Skene SS; Wong ICK; Howard RF
Description
An account of the resource
Background: Oral morphine is frequently used for breakthrough pain but the oral route is not always available and absorption is slow. Transmucosal diamorphine is administered by buccal, sublingual or intranasal routes, and rapidly absorbed. Aim(s): To explore the perspectives of healthcare professionals in the UK caring for children with life-limiting conditions concerning the assessment and management of breakthrough pain; prescribing and administration of transmucosal diamorphine compared with oral morphine; and the feasibility of a comparative clinical trial. Design/ participants: Three focus groups, analysed using a Framework approach. Doctors, nurses and pharmacists (n = 28), caring for children with life-limiting illnesses receiving palliative care, participated. Result(s): Oral morphine is frequently used for breakthrough pain across all settings; with transmucosal diamorphine largely limited to use in hospices or given by community nurses, predominantly buccally. Perceived advantages of oral morphine included confidence in its use with no requirement for specific training; disadvantages included tolerability issues, slow onset, unpredictable response and unsuitability for patients with gastrointestinal failure. Perceived advantages of transmucosal diamorphine were quick onset and easy administration; barriers included lack of licensed preparations and prescribing guidance with fears over accountability of prescribers, and potential issues with availability, preparation and palatability. Factors potentially affecting recruitment to a trial were patient suitability and onerousness for families, trial design and logistics, staff time and clinician engagement. Conclusion(s): There were perceived advantages to transmucosal diamorphine, but there is a need for access to a safe preparation. A clinical trial would be feasible provided barriers were overcome. Copyright © The Author(s) 2021.
Identifier
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<a href="http://doi.org/10.1177/02692163211008737" target="_blank" rel="noreferrer noopener">10.1177/02692163211008737</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Breakthrough Pain
diamorphine
Focus Groups
Harrop E
Howard RF
Jamieson L
Johnson M
June 2021 List
Liossi C
Mott C
Opioids
Oulton K
Paediatrics
Pain Management
Palliative Care
Palliative Medicine.
Skene SS
Terminal Care
Wong ICK
-
Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2012.0448" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2012.0448</a>
Dublin Core
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Title
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Journey from Pediatric Intensive Care to Palliative Care
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
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Journal of Palliative Medicine Briefings
Creator
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Gupta N; Harrop E; Lapwood S; Shefler A
Identifier
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<a href="http://doi.org/10.1089/jpm.2012.0448" target="_blank" rel="noreferrer">10.1089/jpm.2012.0448</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
Description
An account of the resource
2013
2013
Backlog
Gupta N
Harrop E
Journal Article
Journal of Palliative Medicine
Journal of Palliative Medicine Briefings
Lapwood S
Shefler A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/archdischild-2012-303325" target="_blank" rel="noreferrer">http://doi.org/10.1136/archdischild-2012-303325</a>
<a href="http://ep.bmj.com/content/98/6/202.abstract" target="_blank" rel="noreferrer">http://ep.bmj.com/content/98/6/202.abstract</a>
Dublin Core
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Title
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How and when to refer a child for specialist paediatric palliative care
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Archives Of Disease In Childhood - Education & Practice Edition
Date
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2013
Creator
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Harrop E; Edwards C
Description
An account of the resource
Specialist paediatric palliative care is a relatively new area of paediatrics, and the interface with other disciplines can occasionally pose challenges for referrers due to lack of information about the diverse services available. Although services vary on a regional basis, there are common principles which may be used to guide and support referrals. Children may be referred to palliative care services via a number of routes from community-based primary care to regional tertiary centres. Identifying those most likely to benefit from the finite resources available can be a challenge, and healthcare professional's negative attitudes to palliative care have been further identified as a potentially modifiable barrier. This article aims to clarify the role of specialist paediatric palliative care, identify who should be eligible for such care, describe the services available (including those from children's hospices) and provide a tool for assessing some of the most challenging referrals. Many of the documents referenced can be downloaded from the Together for Short Lives website, and in many cases, there is no charge.
2013-12
Identifier
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<a href="http://doi.org/10.1136/archdischild-2012-303325" target="_blank" rel="noreferrer">10.1136/archdischild-2012-303325</a>
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Type
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Journal Article
2013
Archives Of Disease In Childhood - Education & Practice Edition
Backlog
Edwards C
Harrop E
Journal Article
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216312450124" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216312450124</a>
Dublin Core
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Title
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Learning from paediatric palliative care: Lessons for adult practice
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Creator
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Spathis A; Harrop E; Robertshaw C; Elverson J; Lapwood S
Identifier
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<a href="http://doi.org/10.1177/0269216312450124" target="_blank" rel="noreferrer">10.1177/0269216312450124</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2012
Backlog
Elverson J
Harrop E
Journal Article
Lapwood S
Palliative Medicine
Robertshaw C
Spathis A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2017 List
Notes
<p>Jamieson, Liz Wong, Ian C K Craig, Finella Christiansen, Nanna Brombley, Karen Tuleu, Catherine Harrop, Emily</p>
Dublin Core
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Title
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Palliative Medicines For Children - A New Frontier In Paediatric Research
Publisher
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Journal Of Pharmacy & Pharmacology
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Biomedical Research/mt [methods]; Palliative Care/mt [methods]; Palliative Medicine/mt [methods]; Pediatrics/mt [methods]; Pharmaceutical Preparations/ad [administration & Dosage]; 0 (pharmaceutical Preparations); Biomedical Research/td [trends]; Child; Drug Delivery Systems/mt [methods]; Humans; Palliative Care/td [trends]; Palliative Medicine/td [trends]; Pediatrics/td [trends]
Creator
An entity primarily responsible for making the resource
Jamieson L; Wong I C; Craig F; Christiansen N; Brombley K; Tuleu C; Harrop E
Description
An account of the resource
OBJECTIVES: This paper seeks to highlight from a UK perspective the current lack of a research evidence base in paediatric palliative care that has resulted in a paucity of available medicines with appropriate formulations (strength and dosage form) to provide symptom management for children with life-limiting illnesses and to raise awareness of this group of 'therapeutic orphans'. Currently, clinicians have limited, often unsuitable medication choices for their paediatric palliative care patients, with little hope of moving away from the status quo. KEY FINDINGS: Most medicines used in children receiving palliative care are old and off-patent drugs, developed for and tested in an adult population. Many are not available in suitable formulations (dosage form and strength) for administration to children, and there are often no age-related profiles of adverse drug reactions or for safe dosing. SUMMARY: Existing regional paediatric palliative care networks and support organisations should lobby funding bodies and the academic community to support appropriate research for this group of therapeutic orphans. Support must also be provided to pharmaceutical companies in the development of suitable products with appropriate formulations.
Identifier
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10.1111/jphp.12615
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
0 (pharmaceutical Preparations)
2017
Biomedical Research/mt [methods]
Biomedical Research/td [trends]
Brombley K
Child
Christiansen N
Craig F
Drug Delivery Systems/mt [methods]
Harrop E
Humans
Jamieson L
Journal of Pharmacy & Pharmacology
Palliative Care/mt [methods]
Palliative Care/td [trends]
Palliative Medicine/mt [methods]
Palliative Medicine/td [trends]
Pediatrics/mt [methods]
Pediatrics/td [trends]
Pharmaceutical Preparations/ad [administration & Dosage]
September 2017 List
Tuleu C
Wong I C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Fifteen-minute Consultation: Perinatal Palliative Care
Publisher
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Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Creator
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Sidgwick P; Harrop E; Kelly B; Todorovic A; Wilkinson D
Description
An account of the resource
Perinatal palliative medicine is an emerging subspecialty within paediatric palliative medicine, neonatal medicine, fetal medicine and obstetrics. It comprises patient-focused, non-judgemental shared decision making and aims to provide holistic multidisciplinary support for families. In this paper we define and describe one model for providing perinatal palliative care, drawing on the personal and professional experience of the authors. Copyright � 2016 BMJ Publishing Group Ltd & Royal College of Paediatrics and Child Health.
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Archives of Disease in Childhood
February 2017 List
Harrop E
Kelly B
Sidgwick P
Todorovic A
Wilkinson D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2016 List
URL Address
<a href="https://doi.org/10.1136/bmj.i6385">https://doi.org/10.1136/bmj.i6385</a>
Dublin Core
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Title
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End of Life Care for Infants, Children and Young People with Life Limiting Conditions: Summary of Nice Guidance
Publisher
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British Medical Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adolescent; Advance Care Planning; Child; Humans; Infant; Patient Care Team; Patient Participation; Practice Guidelines As Topic; State Medicine; Terminal Care; United Kingdom
Creator
An entity primarily responsible for making the resource
Villanueva G; Murphy; MS; Vickers D; Harrop E; Dworzynski K
Description
An account of the resource
Children and young people can have a wide range of life limiting conditions and may sometimes live with such conditions for many years. This guideline recommends that end of life care be managed as a long term process that begins at the time of diagnosis of a life limiting condition and entails planning for the future. Sometimes it may begin before the child’s birth. It is part of the overall care of the child or young person and runs in parallel with other active treatments for the underlying condition itself.1 Finally, it includes those aspects related to the care of the dying.
This guideline was commissioned with the aim to standardise end of life care for infants, children, and young people living with a life limiting condition, and thus promote equity and consistency. Important themes are to involve children and young people and their parents or carers in decisions about their care, facilitate their care in their preferred location (most likely home), and plan for day and night care.
This article summarises the most recent guidance from the recent National Institute for Health and Care Excellence (NICE) on the planning and management of end of life care in infants, children, and young people.2 For a visual summary, please see infographic.
Identifier
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<a href="https://doi.org/10.1136/bmj.i6385">10.1136/bmj.i6385</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adolescent
Advance Care Planning
British Medical Journal
Child
December 2016 List
Dworzynski K
Harrop E
Humans
Infant
MS
Murphy
Patient Care Team
Patient Participation
Practice Guidelines As Topic
State Medicine
Terminal Care
United Kingdom
Vickers D
Villanueva G