Barriers to the use of buccal and intranasal fentanyl for breakthrough pain in paediatric palliative care: an exploratory survey
palliative therapy; letter; pediatrics; human; child; breakthrough pain; fentanyl
We recently administered a survey to investigate the prescribing of buccal and intranasal fentanyl for breakthrough pain in paediatric palliative care in the UK.
Harrop E; Jamieson L; Choy T H; Ho WHP; Wong ICK
BMJ supportive & palliative care
2018
<a href="http://doi.org/10.1136/bmjspcare-2017-001413" target="_blank" rel="noreferrer noopener">10.1136/bmjspcare-2017-001413</a>
A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of life
caregivers; child; meta-analysis; pain management; palliative care; pediatrics; systematic review; terminal care
Background: Symptom management for infants, children and young people at end of life is complex and challenging due to the range of conditions and differing care needs of individuals of different ages. A greater understanding of these challenges could inform the development of effective interventions. Aim(s): To investigate the barriers and facilitators experienced by patients, carers and healthcare professionals managing symptoms in infants, children and young people at end of life. Design(s): A mixed-methods systematic review and meta-analysis was undertaken (PROSPERO ID: CRD42019124797). Data sources: The Cochrane Library, PROSPERO, CINAHL, MEDLINE, PsycINFO, Web of Science Core Collection, ProQuest Dissertations & Theses Database, Evidence Search and OpenGrey were electronically searched from the inception of each database for qualitative, quantitative or mixed-methods studies that included data from patients, carers or healthcare professionals referring to barriers or facilitators to paediatric end-of-life symptom management. Studies underwent data extraction, quality appraisal, narrative thematic synthesis and meta-analysis. Result(s): A total of 64 studies were included (32 quantitative, 18 qualitative and 14 mixed-methods) of medium-low quality. Themes were generated encompassing barriers/facilitators experienced by carers (treatment efficacy, treatment side effects, healthcare professionals' attitudes, hospice care, home care, families' symptom management strategies) and healthcare professionals (medicine access, treatment efficacy, healthcare professionals' demographics, treatment side effects, specialist support, healthcare professionals' training, health services delivery, home care). Only one study included patients' views. Conclusion(s): There is a need for effective communication between healthcare professionals and families, more training for healthcare professionals, improved symptom management planning including anticipatory prescribing, and urgent attention paid to the patients' perspective. Copyright © The Author(s) 2020.
Greenfield K; Holley S; Schoth D E; Harrop E; Howard R F; Bayliss J; Brook L; Jassal S S; Johnson M; Wong I; Liossi C
Palliative Medicine
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/0269216320907065" target="_blank" rel="noreferrer noopener">10.1177/0269216320907065</a>
Managing and sharing research data in children's palliative care: Risks, benefits and imponderables
pediatric palliative care; research; research data
Harris N; Noyes J; Fraser L; Lapwood S; Harrop E; Blackburn M; Price J; Chambers L; Bluebond-Langer M
Journal of advanced nursing
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1111/jan.14527" target="_blank" rel="noreferrer noopener">10.1111/jan.14527</a>
Inequalities in Access to Bereavement Support Before and During COVID-19: Findings from Voluntary and Community Sector Bereavement Services in the UK
bereavement; child; hospice; human; female; male; attention; bereavement; palliative; organization; gender; welfare; therapy; support; study; pandemic; disease; 2019; clinical; population; abstract; conference; controlled; major; social; and; ethnic; coronavirus; disadvantaged; group; media; minority; sexual
Background/aims: The COVID-19 pandemic has resulted in global mass bereavement; in the UK alone there have been 140,000 deaths to date, with a disproportionate impact on Black, Asian or minoritized ethnic (BME) communities. Voluntary and community sector (VCS) bereavement services including hospices play an important role in bereavement support. We aimed to determine services' perspectives on access to their support.
Selman L; Sutton E; Medeiros Mirra R; Goss S; Longo M; Seddon K; Penny A; Wakefield D; Nelson A; Byrne A; Harrop E
Palliative Medicine
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">10.1177/02692163221093145</a>