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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1111/j.1532-5415.1997.tb02933.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1532-5415.1997.tb02933.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
What is wrong with end-of-life care? Opinions of bereaved family members
Publisher
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Journal Of The American Geriatrics Society
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
The topic of the resource
Female; Humans; Male; Physician-Patient Relations; Family; Home Nursing; Health Care Surveys; Attitude to Health; Aged; Attitude to Death; Communication; Respiration; Quality of Health Care; quality of life; Empirical Approach; Non-U.S. Gov't; Research Support; bereavement; Death and Euthanasia; cause of death; Nursing Homes/standards; Intensive Care/statistics & numerical data; Consumer Satisfaction/statistics & numerical data; North Carolina; Artificial/statistics & numerical data; Pain/nursing/therapy; Terminal Care/standards/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Hanson LC; Danis M; Garrett J
Description
An account of the resource
OBJECTIVE: To describe family perceptions of care at the end of life. METHODS: In a representative sample of older people who died from chronic diseases, family members were interviewed about satisfaction with treatment intensity, decision-making, and symptom relief in the last month of life, and gave suggestions to improve care. RESULTS: Interviews were completed with 461 family members, 80% of those contacted. They reported that 9% of decedents received CPR, 11% ventilator support, and 24% intensive care during their last month of life. Family members could not recall a discussion of treatment decisions in 23% of cases. Presence or absence of a living will did not affect the likelihood of no discussion (22% vs 24%, P = .85). Family informants desired more treatment to sustain life in 8% of deaths. They or the decedent wanted treatments doctors did not recommend in 6% of deaths but refused recommended therapies in 18% of deaths. They believed more care to relieve pain or other symptoms was indicated in 18% of deaths. Asked to make positive or negative comments about any aspect of terminal care, 91% of comments on hospice were positive. Nursing home care received the smallest proportion of positive comments (51%). Family members recommendations to improve end of life care emphasized better communication (44%), greater access to physicians' time (17%), and better pain management (10%). CONCLUSION: Bereaved family members are generally satisfied with life-sustaining treatment decisions. Their primary concerns are failures in communication and pain control. Discussions that focus on specific treatment decisions may not satisfy the real needs of dying patients and their families.
1997
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1532-5415.1997.tb02933.x" target="_blank" rel="noreferrer">10.1111/j.1532-5415.1997.tb02933.x</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1997
Aged
Artificial/statistics & numerical data
Attitude To Death
Attitude To Health
Backlog
Bereavement
Cause Of Death
Communication
Consumer Satisfaction/statistics & numerical data
Danis M
Death and Euthanasia
Empirical Approach
Family
Female
Garrett J
Hanson LC
Health Care Surveys
Home Nursing
Humans
Intensive Care/statistics & numerical data
Journal Article
Journal Of The American Geriatrics Society
Male
Non-U.S. Gov't
North Carolina
Nursing Homes/standards
Pain/nursing/therapy
Physician-patient Relations
Quality Of Health Care
Quality Of Life
Research Support
Respiration
Terminal Care/standards/statistics & numerical data
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049909114533002" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909114533002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Palliative Sedation: An Analysis of International Guidelines and Position Statements
Publisher
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The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
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hospice; end-of-life care; international guidelines; palliative medicine; Palliative sedation
Creator
An entity primarily responsible for making the resource
Gurschick L; Mayer DK; Hanson LC
Description
An account of the resource
Purpose:To describe the suggested clinical practice of palliative sedation as it is presented in the literature and discuss available guidelines for its use. METHODS: CINAHL, PubMed, and Web of Science were searched for publications since 1997 for recommended guidelines and position statements on palliative sedation as well as data on its provision. Keywords included palliative sedation, terminal sedation, guidelines, United States, and end of life. Inclusion criteria were palliative sedation policies, frameworks, guidelines, or discussion of its practice, general or oncology patient population, performance of the intervention in an inpatient unit, for humans, and in English. Exclusion criteria were palliative sedation in children, acute illness, procedural, or burns, and predominantly ethical discussions. RESULTS: Guidelines were published by American College of Physicians-American Society of Internal Medicine (2000), Hospice and Palliative Nurses Association (2003), American Academy of Hospice and Palliative Medicine (2006), American Medical Association (2008), Royal Dutch Medical Association (2009), European Association for Palliative Care (2009), National Hospice and Palliative Care Organization (2010), and National Comprehensive Cancer Network (2012). Variances throughout guidelines include definitions of the practice, indications for its use, continuation of life-prolonging therapies, medications used, and timing/prognosis.Recommendations:The development and implementation of institutional-based guidelines with clear stance on the discussed variances is necessary for consistency in practice. Data on provision of palliative sedation after implementation of guidelines needs to be collected and disseminated for a better understanding of the current practice in the United States.
2014-05
Identifier
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<a href="http://doi.org/10.1177/1049909114533002" target="_blank" rel="noreferrer">10.1177/1049909114533002</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
End-of-life Care
Gurschick L
Hanson LC
Hospice
international guidelines
Journal Article
Mayer DK
Palliative Medicine
Palliative sedation
The American Journal of Hospice & Palliative Care