1 40 2 Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month September 2017 List Notes <p>Using Smart Source Parsing ( (pp Date of Publication: 01 Sep 2015</p> URL Address <a href="https://doi.org/10.1177/1367493513510630">https://doi.org/10.1177/136749351351063</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 'Why Does It Happen Like This?' Consulting With Users and Providers Prior to an Evaluation of Services for Children with Life Limiting Conditions and their Families Publisher An entity responsible for making the resource available Journal Of Child Health Care : For Professionals Working With Children In The Hospital And Community Date A point or period of time associated with an event in the lifecycle of the resource 2015 Subject The topic of the resource Family; Patient Referral; Rehabilitation; Supply And Distribution; Adolescent; Child; Child Health Care; Handicapped Child; Health Service; Health Services Research; Human; Information Processing; Interview Creator An entity primarily responsible for making the resource Hunt A; Brown E; Coad J; Staniszewska S; Hacking S; Chesworth B; Chambers L Description An account of the resource Children with life limiting conditions and their families have complex needs. Evaluations must consider their views and perspectives to ensure care is relevant, appropriate and acceptable. We consulted with children, young people, their parents and local professionals to gain a more informed picture of issues affecting them prior to preparing a bid to evaluate services in the area. Multiple methods included focus groups, face-to-face and telephone interviews and participatory activities. Recordings and products from activities were analysed for content to identify areas of relevance and concern. An overarching theme from parents was 'Why does it happen like this?' Services did not seem designed to meet their needs. Whilst children and young people expressed ideas related to quality of environment, services and social life, professionals focused on ways of meeting the families' needs. The theme that linked families' concerns with those of professionals was 'assessing individual needs'. Two questions to be addressed by the evaluation are (1) to what extent are services designed to meet the needs of children and families and (2) to what extent are children, young people and their families consulted about what they need? Consultations with families and service providers encouraged us to continue their involvement as partners in the evaluation. Identifier An unambiguous reference to the resource within a given context <a href="https://doi.org/10.1177/136749351351063">10.1177/1367493513510630</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2015 Adolescent Brown E Chambers L Chesworth B Child Child Health Care Coad J Family Hacking S Handicapped Child Health Service Health Services Research Human Hunt A Information Processing Interview Journal of child health care : for professionals working with children in the hospital and community Patient Referral Rehabilitation September 2017 List Staniszewska S Supply And Distribution Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Backlog URL Address <a href="http://doi.org/10.1177/1367493513510630" target="_blank" rel="noreferrer">http://doi.org/10.1177/1367493513510630</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Why does it happen like this?' Consulting with users and providers prior to an evaluation of services for children with life limiting conditions and their families Publisher An entity responsible for making the resource available Journal Of Child Health Care Date A point or period of time associated with an event in the lifecycle of the resource 2015 Subject The topic of the resource adolescent; Child; Humans; Palliative Care; referral and consultation; Family; Interviews as Topic; disabled children; Health Services Needs and Demand; Health Services Research; Child Health Services; Focus Groups; Children’s participation; quality of care Creator An entity primarily responsible for making the resource Hunt A; Brown E; Coad J; Staniszewska S; Hacking S; Chesworth B; Chambers L Description An account of the resource Children with life limiting conditions and their families have complex needs. Evaluations must consider their views and perspectives to ensure care is relevant, appropriate and acceptable. We consulted with children, young people, their parents and local professionals to gain a more informed picture of issues affecting them prior to preparing a bid to evaluate services in the area. Multiple methods included focus groups, face-to-face and telephone interviews and participatory activities. Recordings and products from activities were analysed for content to identify areas of relevance and concern. An overarching theme from parents was 'Why does it happen like this?' Services did not seem designed to meet their needs. Whilst children and young people expressed ideas related to quality of environment, services and social life, professionals focused on ways of meeting the families' needs. The theme that linked families' concerns with those of professionals was 'assessing individual needs'. Two questions to be addressed by the evaluation are (1) to what extent are services designed to meet the needs of children and families and (2) to what extent are children, young people and their families consulted about what they need? Consultations with families and service providers encouraged us to continue their involvement as partners in the evaluation. 2015-09 Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/1367493513510630" target="_blank" rel="noreferrer">10.1177/1367493513510630</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Type The nature or genre of the resource Journal Article 2015 Adolescent Backlog Brown E Chambers L Chesworth B Child Child Health Services Children’s participation Coad J Disabled Children Family Focus Groups Hacking S Health Services Needs And Demand Health Services Research Humans Hunt A Interviews As Topic Journal Article Journal Of Child Health Care Palliative Care Quality Of Care Referral And Consultation Staniszewska S