Browse Items (46 total)
- Tags: Great Britain
A Report On Location of Death in Paediatric Palliative Care Between Home, Hospice and Hospital
Tags: 2008, Attitude To Death, Australia, Backlog, Canada, Child, Choice Behavior, Collins JJ, Great Britain, Humans, Journal Article, Miller M, NET CV, Omesi L, Palliative Care, Palliative Medicine, Patient Satisfaction, Residence Characteristics/statistics & numerical data, Retrospective Studies, Siden H, Straatman L, Terminal Care, Tucker T
A scale to monitor progression and treatment of mitochondrial disease in children.
Tags: 2006, Adolescent, Backlog, Bugiani M, Child, Disability Evaluation, Disease Progression, Elson JL, Female, Great Britain, Humans, Infant, Journal Article, Longitudinal Studies, Male, McFarland R, Mitochondrial Diseases/diagnosis/therapy, Mitochondrial Encephalomyopathies/diagnosis/therapy, Morava E, Neurology/methods, Neuromuscular Disorders, Newborn, Observer Variation, Pediatrics/methods, Phoenix C, Predictive Value of Tests, Preschool, Prognosis, Q3 Scoping Review Results, Reproducibility of Results, Schaefer AM, Smeitink JA, Turnbull DM, Uziel G
Advanced care planning in children with life-limiting conditions – the Wishes Document
Tags: 2010, Adolescent, Advance Directives, Archives of Disease in Childhood, Backlog, Berringer AJ, Child, DNAR, Finlay F, Fraser J, Great Britain, Harris N, Health Policy, Humans, Infant, Journal Article, Patient Care Planning/og [Organization & Administration], Preschool, Prescott H, Prognosis, Terminal Care/og [organization & Administration], Young Adult
An Overview of Ethical Issues Raised by Medicolegal Challenges to Death by Neurologic Criteria in the United Kingdom and a Comparison to Management of These Challenges in the USA
Children's hospices: organizational and staff issues
Tags: 2002, Adolescent, Adult, Attitude Of Health Personnel, Backlog, Child, Child Health Services/organization & administration/trends, Great Britain, Hospices/organization & administration, Human, Journal Article, Organizational Culture, Palliative Care/organization & administration/trends, Palliative Medicine, Personal Satisfaction, Quality Of Health Care, Sheldon F, Speck P
Constipation in paediatric oncology
Tags: 2006, Backlog, Cathartics/therapeutic use, Causality, Child, Child Nutrition/education, Constipation/diagnosis/etiology/prevention & control, Dietary Fiber, European Journal Of Oncology Nursing, Evidence-based Medicine, Great Britain, Health Services Needs And Demand, Humans, Information Services, Internet, Journal Article, Neoplasms/complications, Nurse's Role, Nursing Assessment/methods/standards, Nursing Evaluation Research, Oncologic Nursing/methods/standards, Palliative Care/methods, Pediatric Nursing/methods/standards, PedPal Lit, Practice Guidelines, Questionnaires, Selwood K
Development and preliminary validation of the 'Mind the Gap' scale to assess satisfaction with transitional health care among adolescents with juvenile idiopathic arthritis
Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Aged, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease/psychology, Cohort Studies, Continuity Of Patient Care/organization & Administration, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, McDonagh JE, Middle Aged, Parents, Patient Satisfaction, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR
Dimensions of the role of the social worker in palliative care
Tags: 2000, Anxiety/rehabilitation, Attitudes, Backlog, Great Britain, Health Knowledge, Humans, Journal Article, Judgment, Palliative Care/organization & Administration, Palliative Medicine, Practice, Professional Practice, Professional-family Relations, Questionnaires, Sheldon FM, Social Work/organization & administration
Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial
Tags: 2010, Abernethy AP, Adult, Aged, Air, Anxiety/chemically induced, Australia, Backlog, Booth S, Bull J, Clark K, Crockett AJ, Currow DC, Double-Blind Method, Dyspnea/drug therapy/therapy, Epistaxis/chemically induced, Female, Frith PA, Great Britain, Herndon JE, Humans, Journal Article, Lancet, Male, Marcello J, McDonald CF, Middle Aged, Oxygen/administration & dosage/adverse effects/blood, Palliative Care/methods, Quality Of Life, Sleep, Sleep Stages, Treatment Outcome, Tulsky JA, United States, Wheeler JL, Wilcock A, Young IH
Euthanasia for children and young people?
Experience in the use of the palliative care outcome scale.
Tags: 2005, 80 And Over, A'hern R, Adult, Aged, Backlog, Broadley K, Cancer Care Facilities, DNAR, Female, Great Britain, Gwilliam B, Hardy J, Humans, Journal Article, Male, Medical Oncology, Middle Aged, Palliative Care/px [psychology], Patient Satisfaction, Pilot Projects, Quality Of Life, Questionnaires, Stevens A-M, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Treatment Outcome
Exploring multi-agency working in services to disabled children with complex healthcare needs and their families
Tags: 2002, Abbott D, Backlog, Child, Child Health Services/organization & administration, Continuity Of Patient Care/organization & Administration, Cooperative Behavior, Disabled Children/rehabilitation, Family Health, Great Britain, Health Policy/legislation & jurisprudence, Health Services Accessibility/organization & administration, Home Care Services/organization & administration, Humans, Interprofessional Relations, Journal Article, Journal of Clinical Nursing, Models, Needs Assessment/organization & administration, Organizational, Patient Care Team/organization & administration, Social Support, Social Work/organization & administration, Townsley R, Watson D
Exploring perceptions of psychological services in a children's hospice in the United Kingdom
Tags: 2013, Adult, Andrews L, Backlog, Child, Child Health Services, Critical Illness, Crozier K, Disabled Children, Focus Groups, Great Britain, Hospice Care, Humans, Journal Article, Leeson J, Lindsay B, Palliative & Supportive Care, Palliative Care, Parents, Professional-family Relations, Psychological, Stress, Wray Jo, Young Adult
Goal setting as a measure of outcome in palliative care
Tags: 2004, 80 And Over, Adult, Aged, Backlog, Caregivers, Goals, Great Britain, Humans, Interprofessional Relations, Journal Article, Medical Audit, Middle Aged, Needham PR, Newbury J, Non-U.S. Gov't, Outcome Assessment (health Care), Palliative Care/standards, Palliative Medicine, Research Support
Improving transition: a qualitative study examining the attitudes of young people with chronic illness transferring to adult care
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration, Adolescent Psychology, Adolescent Transitions, Adult, Age Factors, Attitude To Health, Backlog, Chronic Disease/psychology/therapy, Continuity Of Patient Care, Female, Great Britain, Humans, Interviews As Topic, Journal Article, Journal Of Child Health Care, Male, Patient Transfer, Professional-patient Relations, Qualitative Research, Soanes C, Social Support, Timmons S
Issues of patient consent: a study of paediatric high-dependency care
Tags: 2005, Access to Information/legislation & jurisprudence, Backlog, Biomedical and Behavioral Research, British Journal Of Nursing, Child, Child Advocacy/legislation & jurisprudence, Computer Security/legislation & jurisprudence, Confidentiality/legislation & jurisprudence, Data Collection/legislation & jurisprudence, Ethics Committees, Great Britain, Health Services Research/legislation & jurisprudence, Humans, ICU Decision Making, Informed Consent/legislation & jurisprudence, Intensive Care Units, Journal Article, McKinney PA, Nursing Research/legislation & jurisprudence, Patient Identification Systems/legislation & jurisprudence, Patient Rights/legislation & Jurisprudence, Pediatric/legislation & jurisprudence, Presumed Consent/legislation & jurisprudence, Professional Patient Relationship, Research/legislation & jurisprudence, Rushforth K
Nurse-led paediatric pre operative assessment: an equivalence study
Tags: 2006, Adolescent, Ambulatory Surgical Procedures/education/nursing, Backlog, Burge D, Child, Clinical Competence/standards, Comparative Study, Female, Glasper EA, Great Britain, Hospital/education/standards, Hospital/standards, Hospitals, Humans, Infant, Jones S, Journal Article, Male, McDonald H, Medical History Taking/standards, Medical Staff, Mullee M, Nurse's Role, Nursing Assessment/standards, Nursing Evaluation Research, Nursing Staff, Paediatric Nursing, Pediatric Nursing/education/organization & administration, PedPal Lit, Perioperative Nursing/education/organization & administration, Physical Examination/nursing/standards, Preoperative Care/nursing, Preschool, Rushforth H, Sensitivity and Specificity, Single-Blind Method, Teaching
Opioid use in palliative care of children and young people with cancer
Tags: 2008, Administration, Adolescent, Adult, Analgesics, Backlog, Child, Childs M, Collins GS, Drug/statistics & numerical data, Female, Fentanyl/therapeutic use, Goldman A, Great Britain, Hain R, Heroin/therapeutic use, Hewitt M, Humans, Infant, Infusions, Injections, Intravenous, Journal Article, Longitudinal Studies, Male, Morphine/therapeutic Use, Neoplasms/complications, Opioid/administration & dosage/therapeutic use, Oral, Pain/drug therapy/etiology, Palliative Care/methods, Preschool, Prescriptions, Prospective Studies, Questionnaires, Rectal, Research Design, Subcutaneous, The Journal Of Pediatrics, Therapeutic Equivalency
Physician-assisted suicide--Oregon and beyond
Tags: 2005, Active, Assisted/legislation & jurisprudence/statistics & numerical data, Backlog, Death and Euthanasia, Euthanasia, Gonzales v. Oregon, Great Britain, Humans, Journal Article, Legal Approach, Okie S, Oregon, Suicide, Supreme Court Decisions, Terminal Care/standards, Terminally Ill/legislation & jurisprudence/psychology, The New England Journal Of Medicine, United States, Voluntary/legislation & jurisprudence
Place and provision of palliative care for children with progressive cancer: a study by the Paediatric Oncology Nurses' Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group
Tags: 2007, Adolescent, Adult, Backlog, Bereavement, Child, Child Health Services/organization & administration, Childs M, Collins GS, Female, Great Britain, Hain R, Home Care Services/organization & administration, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Location Of Death, Male, Models, Neoplasms/nursing/therapy, Organizational, Paediatric Oncology Nurses' Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Patient Satisfaction, Preschool, Prospective Studies, Thompson A, Vickers J
Place of death: preferences among cancer patients and their carers
Tags: 2004, 80 And Over, Adult, Aged, Attitude To Death, Backlog, Caregivers/psychology, Clark D, Cohort Studies, Comparative Study, Female, Great Britain, Hospice Care/standards/trends, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Middle Aged, Morris SM, Neoplasms/mortality/therapy, Non-U.S. Gov't, Patient Satisfaction, Research Support, Social science & medicine, Terminally Ill, Thomas C
Psycho-educational interventions for children with chronic disease, parents and siblings: an overview of the research evidence base
Tags: 2004, Adaptation, Adolescent, Adolescent Transitions, Adult, Backlog, Barlow JH, Child, Child: Care, Health and Development, Chronic Disease, Disabled Children/psychology, Ellard DR, Evidence-Based Medicine/methods, Great Britain, Humans, Intervention, Interventions, Journal Article, Parents, Patient Education as Topic, Psychological, Siblings
Quality-of-life measures in chronic diseases of childhood
Tags: 2001, Adolescent, Backlog, Child, Chronic Disease, Disabled Children, Eiser C, Female, Great Britain, Health Services Research, Health Status Indicators, Health Technology Assessment (winchester, England), Humans, Journal Article, Male, Morse R, Preschool, Quality Of Life, Self Assessment (Psychology)
Reviewing audit: barriers and facilitating factors for effective clinical audit
Tags: 2000, Alder EM, Attitude Of Health Personnel, Backlog, Bibliographic, Comparative Study, Crombie IK, Databases, Davies HT, Evaluation Studies, Family Practice, General, Great Britain, Hospital, Hospitals, Interprofessional Relations, Job Satisfaction, Johnston G, Journal Article, Leadership, Medical Audit/standards, Medical Records/standards, Medical Staff, Medline, Millard A, Non-U.S. Gov't, Nursing Audit, Partnership Practice, Patient Satisfaction, Physician-patient Relations, Physician's Role, Primary Health Care, Quality In Health Care, Quality Of Health Care, Retrospective Studies, Support
Seeking and using families' views to shape children's hospice services
Tags: 2005, Adolescent, Adult, Backlog, Child, Child Health Services/organization & administration, Consumer Satisfaction, Female, Focus Groups, Great Britain, Health Care, Hospice Care/organization & administration, Humans, Infant, International Journal of Palliative Nursing, Journal Article, Male, Maynard L, Needs Assessment, Newborn, Parents, Preschool, Professional-family Relations, Quality Assurance, Rennie T, Shirtliffe J, Vickers D
Sharing the care: the key-working experiences of professionals and the parents of life-limited children
Tags: 2014, Adolescent, Adult, Backlog, Caregivers, Child, Child Health Services, Female, Focus Groups, Great Britain, Health Personnel, Health Services Needs And Demand, Humans, International Journal of Palliative Nursing, Journal Article, King N, Male, Middle Aged, Parents, Patient Care Planning, Professional-family Relations, Psychological, Questionnaires, Rodriguez A, Stress, Terminal Care
Symptoms suffered by life-limited children that cause anxiety to UK children's hospice staff
Tags: 2006, Adaptation, Anxiety/etiology, Attitude Of Health Personnel, Attitude To Health, Backlog, Causality, Child, Child Behavior, Child Psychology, Crying, Fear, Great Britain, Hospice Care/psychology, Humans, International Journal of Palliative Nursing, Journal Article, McCluggage HL, Medical Staff/psychology, Nonverbal Communication, Nursing Methodology Research, Nursing Staff/psychology, Occupational Diseases/etiology, Pain Measurement, Pediatric Nursing, Psychological, Psychological/diagnosis/etiology/prevention & control, Questionnaires, Seizures/etiology/prevention & control, Spasm/etiology/prevention & control, Stress, Vomiting/etiology/prevention & control
Tell me about it: drawing as a communication tool for children with cancer
Tags: (b) explore and compare the coping measures they use to manage these stressors, 2005, AdolescentArt Therapy Attitude to Health Child Child, and (c) examine the use of drawing to enhance communication. Participants included 22 children ages 7 to 18 years, Backlog, Communication, Comparative Study, Emotions, Female, Great Britain, Hospitalized/psychology, Humans, Interviews, Journal Article, Journal Of Pediatric Oncology Nursing, Male Neoplasms/nursing/psychology, Non-U.S. Gov't Stress, Nurse-patient Relations, Oncologic Nursing/methods, PedPal Lit, Psychological/nursing United States%X As health-related research on children shifts from seeking information about children to seeking information directly from them, Qualitative Research, regardless of their ethnicity and other cultural comp onents, Research Support, respond to the childhood cancer experience in a similar manner. The use of drawing enhanced communication through direct visual expression and/or through verbal expression via the "campfire effect.", Rollins JA
The natural history of Niemann-Pick disease type C in the UK
Tags: 2007, Adolescent, Adult, Backlog, Besley GT, Child, Dasgupta S, Female, Fensom AH, Genetic, Great Britain, Harris C, Heptinstall L, Humans, Imrie J, Infant, Jacklin E, Journal Article, Journal Of Inherited Metabolic Disease, Knight S, Lipid Metabolism Disorders/diagnosis/metabolism, Lipids/chemistry, Male, Middle Aged, Models, Newborn, Niemann-Pick Disease, Preschool, Q3 Scoping Review Results, Type C/diagnosis/epidemiology, Vanier MT, Ward C, Whitehouse C, Wraith JE
Transition of care from child to adult mental health services: the great divide
Tags: 2009, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Child, Child Health Services/organization & administration, Community Mental Health Services/organization & administration, Continuity Of Patient Care/organization & Administration, Current Opinion In Psychiatry, Great Britain, Health Policy, Health Services Needs And Demand, Health Services Research, Humans, Journal Article, Mental Disorders/diagnosis/psychology/therapy, Outcome And Process Assessment (health Care), Singh SP, Young Adult
Transition of care from paediatric to adult services: one part of improved health services for adolescents
Tags: 2008, Adolescent, Adolescent Health Services/standards, Adolescent Transitions, Archives of Disease in Childhood, Backlog, Continuity of Patient Care/standards, Delivery of Health Care/standards, Great Britain, Humans, Journal Article, Quality Of Health Care, State Medicine/standards, Viner RM