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Dublin Core
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Title
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May 2021 List
Text
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Citation List Month
May 2021 List
URL Address
<a href="http://doi.org/10.1186/s12887-020-1979-4" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12887-020-1979-4</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Key constituents for integration of care for children assisted with long-term home ventilation: a European study
Publisher
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BMC Pediatrics
Date
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2020
Subject
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Access to care; Care coordination; Caregivers; Child; Child Health; Child Health Services; Complex care needs; Europe; Family partnership; Governance; Home Care Services; Humans; Long-term home ventilation; Palliative care; Quality of care; Respiration Artificial; Respite care; Surveys and Questionnaires
Creator
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Brenner M; O'Shea MP; Larkin P; Berry J
Description
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BACKGROUND: The number of children requiring long-term home ventilation has consistently increased over the last 25 years. Given the growing population of children with complex care needs (CCNs), this was an important area of focus within the Models of Child Health Appraised (MOCHA) project, funded by the European Union (EU) under the Horizon 2020 programme. We examined the structures and processes of care in place for children with CCNs and identified key constituents for effective integration of care for these children at the community and acute care interface across 30 EU/ European Economic Area (EEA) countries. METHODS: This was a non-experimental descriptive study with an embedded qualitative element. Data were collected by a Country Agent in each of the 30 countries, a local expert in child health services. Data were analysed using descriptive statistics and a thematic analysis was undertaken of the free text data provided. RESULTS: A total of 27 surveys were returned from a possible 30 countries (90.0%) countries. One respondent indicated that their country does not have children on long-term ventilation (LTV) in the home, therefore, responses of 26 countries (86.7%) were analysed. None of the responding countries reported that they had all of the core components in place in their country. Three themes emerged from the free text provided: 'family preparedness for transitioning to home', 'coordinated pathway to specialist care' and 'legal and governance structures'. CONCLUSIONS: While the clinical care of children on LTV in the acute sector has received considerable attention, the results identify the need for an enhanced focus on the care required following discharge to the community setting. The results highlight the need for a commitment to supporting care delivery that acknowledges the complexity of contemporary child health issues and the context of the families that become their primary care givers.
Identifier
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<a href="http://doi.org/10.1186/s12887-020-1979-4" target="_blank" rel="noreferrer noopener">10.1186/s12887-020-1979-4</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Access to care
Berry J
Bmc Pediatrics
Brenner M
Care coordination
Caregivers
Child
Child Health
Child Health Services
Complex care needs
Europe
Family partnership
Governance
home care services
Humans
Larkin P
Long-term home ventilation
May 2021 List
O'Shea MP
Palliative Care
Quality Of Care
Respiration Artificial
Respite Care
Surveys And Questionnaires