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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Special Edition #1 2022 List
Text
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Citation List Month
Special Edition #1 2022 List
URL Address
<a href="http://doi.org/10.1177/0030222817697418" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0030222817697418</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Long Road to Farewell: The Needs of Families With Dying Children
Publisher
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Omega
Date
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2019
Subject
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cancer; pediatric palliative care; bereaved parents; bereavement; trauma
Creator
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Cacciatore J; Thieleman K; Lieber AS; Blood C; Goldman R
Description
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Families of dying children are profoundly impacted by numerous interactions with health-care providers before, during, and after their child's death. However, there is a dearth of research on these families' direct, qualitative experiences with health-care providers. This study presents findings from interviews with 18 family members, predominantly parents, regarding their experiences with health-care providers during a child's terminal illness, from diagnosis to death. The importance of compassion emerged as a salient theme, manifested in myriad ways, and connected to participants' perception of caregiver presence in multiple domains. Families were likewise negatively affected by a wide variety of situations and behaviors that represented individual or institutional abandonment or nonpresence, and thus compounded the experience of loss. Specifics and implications for practice are explored.
Identifier
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<a href="http://doi.org/10.1177/0030222817697418" target="_blank" rel="noreferrer noopener">10.1177/0030222817697418</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
2022 Special Edition 1 - Parent Perspectives
Bereaved Parents
Bereavement
Blood C
Cacciatore J
Cancer
Goldman R
Lieber AS
Omega
Pediatric Palliative Care
Thieleman K
Trauma