1
40
10
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2021 Special Edition 2 - Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2021 Special Edition - Oncology
URL Address
<a href="http://doi.org/10.1136/bmjopen-2020-046284" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1136/bmjopen-2020-046284</a>
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Title
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Parent Values and Preferences Underpinning Treatment Decision Making In Poor Prognosis Childhood Cancer: A Scoping Review Protocol
Publisher
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BMJ Open
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
Oncology
Creator
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Pearson H; Gibson F; Darlington ASE
Description
An account of the resource
Introduction Parents of a child with cancer want to be involved in making treatment decisions for their child. Underpinning and informing these decisions are parents' individual values and preferences. Parents of a child who has a poor prognosis cancer and who subsequently dies can experience decisional regret. To support parents, and potentially reduce decisional regret, identifying the values and preferences of parents who are making these treatment decisions may enhance the support that can be provided by healthcare professionals. An increased understanding will support future work in this area and identify research gaps that could strengthen support strategies in clinical practice. The aim of this scoping review is to explore parent values and preferences underpinning treatment decision making when their child is receiving cancer-directed therapy for a poor prognosis cancer. Methods and analysis The Joanna Briggs Institute scoping review methodology will be followed. An initial database search of CINHAL and MEDLINE will be conducted to analyse the keywords using subject headings and Medical Subject Headings terms. Articles will be initially screened on title and abstract. The reference and citation lists of the full-text articles to be included will be searched using Web of Science. Articles will be independently reviewed by two reviewers and any discrepancies discussed with a third reviewer. Data extracted will be presented in tabular, diagrams and descriptive summaries. Ethics and dissemination Ethical approval is not required for this scoping review. This review will inform further research with parents to understand their values and preferences when making repeated treatment decisions when their child has a poor prognosis cancer. All outputs will be disseminated through peer-reviewed publications and conference presentations. This scoping review is registered on the Open Science Framework (https://osf.io/n7j9f). Copyright ©
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmjopen-2020-046284" target="_blank" rel="noreferrer noopener">10.1136/bmjopen-2020-046284</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
2021 Special Edition - Oncology
Bmj Open
Darlington ASE
Gibson F
Oncology
Pearson H
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1367493513485825" target="_blank" rel="noreferrer">http://doi.org/10.1177/1367493513485825</a>
<a href="http://chc.sagepub.com/content/18/3/230" target="_blank" rel="noreferrer">http://chc.sagepub.com/content/18/3/230</a>
Dublin Core
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Title
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A relational understanding of sibling experiences of children with rare life-limiting conditions Findings from a qualitative study
Publisher
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Journal Of Child Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Palliative Care; qualitative approaches; Siblings
Creator
An entity primarily responsible for making the resource
Malcolm C; Gibson F; Adams S; Anderson G; Forbat L
Description
An account of the resource
Mucopolysaccharidoses (MPS) and Batten disease are rare life-limiting conditions (LLCs) characterised by progressive and permanent physical and cognitive decline. The impact of such conditions on families, and notably on siblings, has not yet been described or documented. This paper presents data from a UK-wide study that sought to understand the family experience of supporting a child with the rare degenerative LLCs of MPS and Batten disease. The aim of this paper is to report sibling experiences related to these rare degenerative and progressive conditions, in order to inform the future development of supportive interventions. Eight siblings of children with MPS (n = 7) and Batten Disease (n = 1) participated in semi-structured qualitative interviews. A card sort technique was utilised to support and engage the children. Siblings are clearly impacted emotionally, pragmatically and relationally by the ill health of another child in the family. The data indicate four key themes which demonstrate impacts on siblings: perceptions of the condition and its symptoms, impact on daily life, emotional consequences and ways of coping. Siblings often had considerable knowledge of the condition and took on important roles in symptom management. However, these experiences were in the context of managing relationships within the family (often protecting parents from an awareness of how much they knew) and relationships at school (including distraction from learning and being bullied by peers). The data highlight how sibling experiences are generated through a combination of negative disability discourses and support through peers and family members. The data indicate how these features shift as a consequence of witnessing the advancement of their brother’s or sister’s condition and the emotional sequelae of disease progression. Exploration of siblings’ experiences of living with such rare progressive and degenerative LLCs suggest the focus of interventions to support this group should address their emotional health and ways to overcome isolation and build connections with other siblings who share their unique experiences. Critically, the data suggest that sibling support should be cognisant of the trajectory of the illness as well as the family, school and peer relational contexts that siblings inhabit.
2014-09
Identifier
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<a href="http://doi.org/10.1177/1367493513485825" target="_blank" rel="noreferrer">10.1177/1367493513485825</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adams S
Anderson G
Backlog
Forbat L
Gibson F
Journal Article
Journal Of Child Health Care
Malcolm C
Palliative Care
qualitative approaches
Siblings
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.4172/2165-7386.1000214" target="_blank" rel="noreferrer">http://doi.org/10.4172/2165-7386.1000214</a>
Dublin Core
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Title
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Pediatric Oncology Palliative Care: Experiences of General Practitioners and Bereaved Parents
Publisher
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Journal Of Palliative Care & Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
Palliative Care; Children; cancer; oncology; Qualitative; General practitioners
Creator
An entity primarily responsible for making the resource
Neilson SJ; Gibson F; Greenfield SM
Description
An account of the resource
OBJECTIVE: This qualitative study set in the West Midlands region of the United Kingdom, aimed to examine the role of the general practitioner (GP) in children's oncology palliative care from the perspective of GPs who had cared for a child with cancer receiving palliative care at home and bereaved parents. METHODS: One-to-one semi-structured interviews were undertaken with 18 GPs and 11 bereaved parents following the death. A grounded theory data analysis was undertaken; identifying generated themes through chronological comparative data analysis. RESULTS: Similarity in GP and parent viewpoints was found, the GPs role seen as one of providing medication and support. Time pressures GPs faced influenced their level of engagement with the family during palliative and bereavement care and their ability to address their identified learning deficits. Lack of familiarity with the family, coupled with an acknowledgment that it was a rare and could be a frightening experience, also influenced their level of interaction. There was no consistency in GP practice nor evidence of practice being guided by local or national policies. Parents lack of clarity of their GPs role resulted in missed opportunities for support. CONCLUSIONS: Time pressures influence GP working practices. Enhanced communication and collaboration between the GP and regional childhood cancer centre may help address identified GP challenges, such as learning deficits, and promote more time-efficient working practices through role clarity. Parents need greater awareness of their GP's wide-ranging role; one that transcends palliative care incorporating bereavement support and on-going medical care for family members.
2015-03
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.4172/2165-7386.1000214" target="_blank" rel="noreferrer">10.4172/2165-7386.1000214</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2015
Backlog
Cancer
Children
General practitioners
Gibson F
Greenfield SM
Journal Article
Journal Of Palliative Care & Medicine
Neilson SJ
Oncology
Palliative Care
Qualitative
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.ejon.2005.01.008" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ejon.2005.01.008</a>
Dublin Core
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Title
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Evidence in action: fostering growth of research-based practice in children's cancer nursing
Publisher
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European Journal Of Oncology Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit; and in terms of research in nursing this has only become integrated into our work in more recent years. Like many areas in nursing we continue to evolve; and the speciality; as both similar and different to other nurses and other specialities. Secondly; as the solutions described have the potential for translation to other areas within cancer care. Children's cancer nur sing is a relatively new speciality; Child Evidence-Based Medicine HumansNursing Research Oncologic Nursing/trends Pediatric Nursing/trends Professional Autonomy Specialties; describing stages of growth; development; I want to explore the notion of evidence and action and share some of the challenges we face in developing research for practice. The challenges themselves are of interest to all cancer nurses; I will spend some time reflecting on how far we have come; maturation and differentiation in children's cancer nursing that defines nurses; Nursing/trends%X It is an honour to be the first children's nurse to be asked to deliver the Robert Tiffany Lecture. However; that of growth and evidence in action. Firstly; the essence of which is knowing about children and young people.
Creator
An entity primarily responsible for making the resource
Gibson F
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ejon.2005.01.008" target="_blank" rel="noreferrer">10.1016/j.ejon.2005.01.008</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
and in terms of research in nursing this has only become integrated into our work in more recent years. Like many areas in nursing we continue to evolve
and the speciality
as both similar and different to other nurses and other specialities. Secondly
as the solutions described have the potential for translation to other areas within cancer care. Children's cancer nur sing is a relatively new speciality
Backlog
Child Evidence-Based Medicine HumansNursing Research Oncologic Nursing/trends Pediatric Nursing/trends Professional Autonomy Specialties
describing stages of growth
development
European Journal Of Oncology Nursing
Gibson F
I want to explore the notion of evidence and action and share some of the challenges we face in developing research for practice. The challenges themselves are of interest to all cancer nurses
I will spend some time reflecting on how far we have come
Journal Article
maturation and differentiation in children's cancer nursing that defines nurses
Nursing/trends%X It is an honour to be the first children's nurse to be asked to deliver the Robert Tiffany Lecture. However
PedPal Lit
that of growth and evidence in action. Firstly
the essence of which is knowing about children and young people.
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.ejon.2005.09.010" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ejon.2005.09.010</a>
Dublin Core
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Title
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Cancer-related fatigue in children and young people: Survey of healthcare professionals' knowledge and attitudes
Publisher
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European Journal Of Oncology Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit
Creator
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Gibson F; Edwards J; Sepion B; Richardson A
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ejon.2005.09.010" target="_blank" rel="noreferrer">10.1016/j.ejon.2005.09.010</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Backlog
Edwards J
European Journal Of Oncology Nursing
Gibson F
Journal Article
PedPal Lit
Richardson A
Sepion B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/ijpn.2005.11.6.18296" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2005.11.6.18296</a>
Dublin Core
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Title
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Advanced cancer in children: how parents decide on final place of care for their dying child
Publisher
An entity responsible for making the resource available
International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit; location of death; Terminal Care/organization & administration/psychology; Adolescent Adolescent Psychology Attitude to Death Attitude to Health Child Child Psychology Child; Decision Making England Female Health Services Needs and Demand Home Care Services/; needing to feel safe and secure; Preschool Cross-Sectional Studies; psychology Patient Selection Questionnaires Retrospective Studies Safety Social Support; utilization Hospitals/; utilization Humans Male Neoplasms/psychology/therapy Nursing Methodology Research Parents/; we didn't know what to expect
Creator
An entity primarily responsible for making the resource
Hannan J; Gibson F
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/ijpn.2005.11.6.18296" target="_blank" rel="noreferrer">10.12968/ijpn.2005.11.6.18296</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adolescent Adolescent Psychology Attitude to Death Attitude to Health Child Child Psychology Child
Backlog
Decision Making England Female Health Services Needs and Demand Home Care Services/
Gibson F
Hannan J
International Journal of Palliative Nursing
Journal Article
Location Of Death
needing to feel safe and secure
PedPal Lit
Preschool Cross-Sectional Studies
psychology Patient Selection Questionnaires Retrospective Studies Safety Social Support
Terminal Care/organization & administration/psychology
utilization Hospitals/
utilization Humans Male Neoplasms/psychology/therapy Nursing Methodology Research Parents/
we didn't know what to expect
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216310391346" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216310391346</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
An entity primarily responsible for making the resource
Malcolm C; Forbat L; Anderson G; Gibson F; Hain R
Identifier
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<a href="http://doi.org/10.1177/0269216310391346" target="_blank" rel="noreferrer">10.1177/0269216310391346</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Anderson G
Backlog
Forbat L
Gibson F
Hain R
Journal Article
Malcolm C
Palliative Medicine
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1651-2227.2012.02680.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1651-2227.2012.02680.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families
Publisher
An entity responsible for making the resource available
Acta Paediatrica
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Child; Female; Humans; Male; Young Adult; Interviews as Topic; Prospective Studies; Disease Progression; Medical Records; Family Health; adolescent; Preschool; Charting the Territory; Psychological; Stress; Mucopolysaccharidoses/diagnosis/psychology/therapy; Mucopolysaccharidosis I/diagnosis/therapy; Mucopolysaccharidosis III/diagnosis/therapy; Neuronal Ceroid-Lipofuscinoses/diagnosis/psychology/therapy
Creator
An entity primarily responsible for making the resource
Malcolm C; Hain R; Gibson F; Adams S; Anderson G; Forbat L
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1651-2227.2012.02680.x" target="_blank" rel="noreferrer">10.1111/j.1651-2227.2012.02680.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Acta Paediatrica
Adams S
Adolescent
Anderson G
Backlog
Child
Disease Progression
Family Health
Female
Forbat L
Gibson F
Hain R
Humans
Interviews As Topic
Journal Article
Malcolm C
Male
Medical Records
Mucopolysaccharidoses/diagnosis/psychology/therapy
Mucopolysaccharidosis I/diagnosis/therapy
Mucopolysaccharidosis III/diagnosis/therapy
Neuronal Ceroid-Lipofuscinoses/diagnosis/psychology/therapy
Preschool
Prospective Studies
Psychological
Stress
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1136/bmjspcare-2015-000852" target="_blank" rel="noreferrer">http://doi.org/10.1136/bmjspcare-2015-000852</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
GPs and paediatric oncology palliative care: a Q methodological study
Publisher
An entity responsible for making the resource available
Bmj Supportive Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Bereavement; Cancer; General Practitioner; Home Care; Paediatrics; Terminal Care
Creator
An entity primarily responsible for making the resource
Neilson S; Gibson F; Jeffares S; Greenfield SM
Description
An account of the resource
OBJECTIVE: This mixed-methods study set in the West Midlands region of the UK demonstrates the effectiveness of Q methodology in examining general practitioners' (GPs') perception of their role in children's oncology palliative care. METHODS: Using data obtained from the analysis of semistructured interviews with GPs who had cared for a child receiving palliative care at home and bereaved parents, 50 statements were identified as representative of the analysis findings. 32 GPs with a non-palliative child with cancer on their caseload were asked to rank the statements according to their level of agreement/disagreement on a grid. They were then asked to reflect and comment on the statements they most and least agreed with. The data were analysed using a dedicated statistical software package for Q analysis PQMethod V.2.20 (Schmolck 2012). A centroid factor analysis was undertaken initially with 7 factors then repeated for factors 1-6. Varimax and manual flagging was then completed. RESULTS: 4 shared viewpoints were identified denoting different GP roles: the GP, the compassionate practitioner, the team player practitioner and the pragmatic practitioner. In addition consensus (time pressures, knowledge deficits, emotional toll) and disagreement (psychological support, role, experiential learning, prior relationships) between the viewpoints were identified and examined. CONCLUSIONS: Q methodology, used for the first time in this arena, identified 4 novel and distinct viewpoints reflecting a diverse range of GP perspectives. Appropriately timed and targeted GP education, training, support, in conjunction with collaborative multiprofessional working, have the potential to inform their role and practice across specialities.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmjspcare-2015-000852" target="_blank" rel="noreferrer">10.1136/bmjspcare-2015-000852</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Bereavement
Bmj Supportive Palliative Care
Cancer
General Practitioner
Gibson F
Greenfield SM
Home Care
Jeffares S
Neilson S
Oncology 2017 List
Paediatrics
Terminal Care
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1089/jayao.2016.0055" target="_blank" rel="noreferrer">http://doi.org/10.1089/jayao.2016.0055</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis
Publisher
An entity responsible for making the resource available
Journal Of Adolescent And Young Adult Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Creator
An entity primarily responsible for making the resource
Ngwenya N; Kenten C; Jones L; Gibson F; Pearce S; Flatley M; Hough R; Stirling LC; Taylor RM; Wong G; Whelan J
Description
An account of the resource
To review the qualitative literature on experiences of and preferences for end-of-life care of people with cancer aged 16-40 years (young adults) and their informal carers. A systematic review using narrative synthesis of qualitative studies using the 2006 UK Economic and Social Research Council research methods program guidance. Seven electronic bibliographic databases, two clinical trials databases, and three relevant theses databases were searched from January 2004 to October 2015. Eighteen articles were included from twelve countries. The selected studies included at least 5% of their patient sample within the age range 16-40 years. The studies were heterogeneous in their aims, focus, and sample, but described different aspects of end-of-life care for people with cancer. Positive experiences included facilitating adaptive coping and receiving palliative home care, while negative experiences were loss of "self" and nonfacilitative services and environment. Preferences included a family-centered approach to care, honest conversations about end of life, and facilitating normality. There is little evidence focused on the end-of-life needs of young adults. Analysis of reports including some young adults does not explore experience or preferences by age; therefore, it is difficult to identify age-specific issues clearly. From this review, we suggest that supportive interventions and education are needed to facilitate open and honest communication at an appropriate level with young people. Future research should focus on age-specific evidence about the end-of-life experiences and preferences for young adults with cancer and their informal carers.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jayao.2016.0055" target="_blank" rel="noreferrer">10.1089/jayao.2016.0055</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Flatley M
Gibson F
Hough R
Jones L
Journal Of Adolescent And Young Adult Oncology
Kenten C
Ngwenya N
Oncology 2017 List
Pearce S
Stirling LC
Taylor RM
Whelan J
Wong G