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Text
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Citation List Month
October 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Evidence For Implementation Strategies To Provide Palliative Care In The Neonatal Intensive Care Unit.
Publisher
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Advances In Neonatal Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Attitude Of Health Personnel; Clinical Protocols; Evidence-based Practice; Hospice And Palliative Care Nursing/education; Humans; Infant Newborn; Intensive Care Units Neonatal; Neonatal Nursing/education; Neonatal Nursing/methods; Palliative Care/methods; Patient Care Team
Creator
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Quinn M; Gephart S
Description
An account of the resource
BACKGROUND:
Palliative care is a holistic framework that is designed to improve quality of life by identifying and treating distressing symptoms of life-threatening or complex conditions. Neonatal palliative care (NPC) has potential benefits for parents, staff, and patients, yet evidence suggests that implementation and utilization of organized NPC services are low.
PURPOSE:
The purpose of this study is to answer the clinical question: In neonatal intensive care, what evidence can be used to guide implementation of palliative care protocols?
SEARCH STRATEGY:
A literature search was conducted using CINAHL (Cumulative Index of Nursing and Allied Health Literature), PubMed, and the Cochrane Library databases. Publications with a focus on neonates, neonatal intensive care unit, and implementation or evaluation of a palliative care protocol, team, or educational intervention were retained.
RESULTS:
The search yielded 17 articles that fit with the following themes: NPC protocols or teams (n = 8), healthcare team needs (n = 3), and barriers to implementation (n = 6). Approaches to NPC implementation were varied, and outcome data were inconsistently reported. Healthcare team members cited a need for education and consistent, ethical delivery of NPC. Common barriers were identified as lack of NPC education, poor communication, and lack of adequate resources such as staff and space.
IMPLICATIONS FOR PRACTICE AND RESEARCH:
Successful team approaches included standardized order sets to initiate NPC, NPC education for staff, and references to NPC guidelines or protocols. Barriers such as lack of interdisciplinary cooperation, lack of appropriate physical space, and lack of education should be addressed during program development. Further research priorities for NPC include seeking parent perceptions, shifting focus from mostly end-of-life to an integrated model, and collecting outcome data with rigor and consistency.
Identifier
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DOI: 10.1097/ANC.0000000000000354
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Advances in Neonatal Care
Attitude Of Health Personnel
Clinical Protocols
Evidence-based Practice
Gephart S
Hospice And Palliative Care Nursing/education
Humans
Infant Newborn
Intensive Care Units Neonatal
Neonatal Nursing/education
Neonatal Nursing/methods
October 2016 List
Palliative Care/methods
Patient Care Team
Quinn M
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April List 2024
URL Address
<a href="http://doi.org/10.1097/anc.0000000000001137" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1097/anc.0000000000001137</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Exploring Parent Experiences With Early Palliative Care Practices in the NICU
Publisher
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Advances in Neonatal Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2024
Subject
The topic of the resource
Palliative Care; NICU; parent experiences
Creator
An entity primarily responsible for making the resource
Quinn M; Gephart S; Crist J
Description
An account of the resource
BACKGROUND: The anxiety and uncertain outcome of an admission of a seriously ill infant to the neonatal intensive care unit (NICU) can cause great stress for parents and contribute to poor mental health outcomes. Early implementation of family-centered palliative care (PC) may provide support for NICU parents. Key concepts of early PC in the NICU include shared decision-making, care planning, and support for coping with distress. PURPOSE: The purpose of this study was to explore parent experiences during their child's NICU admission with the early PC practices of shared decision-making, care planning, and coping with distress. METHODS: Qualitative descriptive methodology was used. Strategies of reflexive journaling, peer debriefing, and data audits were used to enhance trustworthiness. Parents (N = 16) were interviewed, and data were analyzed by conventional content analysis. Targeted recruitment of fathers occurred to ensure they comprised 25% of sample. RESULTS: Parents' descriptions of decision-making were contextualized in gathering information to make a decision, the emotional impact of the decision, and influences on their decision-making. In experiences with care planning, parents described learning to advocate, having a spectator versus participant role, and experiencing care planning as communication. Key themes expressed regarding parental coping were exposure to trauma, survival mode, and a changing support network. IMPLICATIONS FOR PRACTICE AND RESEARCH: These findings highlight key areas for practice improvement: providing more support and collaboration in decision-making, true engagement of parents in care planning, and encouraging peer support and interaction in the NICU and in online communities.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/anc.0000000000001137" target="_blank" rel="noreferrer noopener">10.1097/anc.0000000000001137</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
Advances in Neonatal Care
April List 2024
Crist J
Gephart S
Nicu
Palliative Care
Parent Experiences
Quinn M